NCC/Missed you all/Some questions

[Guest guest]

Hello everyone,

Due to the unfortunate torching of my garage by some bratty teenagers, I

have been away for awhile. We're still in the process of cleaning up

and working things out with my insurance company, but I missed everyone

so much that I had to come back sooner than I thought. Hello to all the

newbies out there!!

I do have some medical questions, though. I had been having a problem

with dizziness/vertigo which my nsg Dr. Weingart felt was not related to

my Chiari. I went to an ENT who did a number of tests and concluded

this past Monday that I have " Classic Meniere's Disease. " He ordered

another MRI (my 7th) just to be sure there weren't any tumors in there

causing the problems.

The MRI came back clear, but says something in there about

cervicomedullary junction kinking. What exactly is this? I haven't

been able to find out any information on the net. Someone who is a

nurse told me she thinks the cervicomedullary junction is the point at

which the medulla enters the cervical canal.

The report also says, " ..a large area of extension of cerebral spinal

fluid into the foramen magnum and subarachnoid space posteriorly, just

posterior to the cerebellum and midline/vermis. " I don't know if that

is good or bad...anyone else?

I have been trying to contact Dr. Weingart to speak with him about the

connection between Meniere's and Chiari, and also to ask him about the

MRI report, but he doesn't return my calls. Last week I decided to

write him a letter with all of my concerns, and I included a copy of the

MRI report. Hopefully I will hear from him soon.

Thanks to all, it's really great to be back!!

Sheila Reilly

ACM I 3mm

Decompressed 12/98

[Guest guest]

Hi all,

I have read in several places where cervicomedullary kinking can be part of

chiari complex, including in Dr. Milhorat's paper. Also in his study and in

others, vertigo and meniere's type symptoms are related to the chiari.

I have also read that symptoms of cervicomedullary kinking can include vertigo.

So I have a hard time thinking that so many of us may have Meniere's. So I

think Sheila's vertigo is more probably related to chiari and other related

complications.

Sheila--maybe you should get another opinion. I think it was a good idea to

write to Dr. Weingart.

Love,

Maureen

Subject: Re: NCC/Missed you all/Some questions

>Meniere's? Chiari 1 people are normal human >beings capable of having

>more than one medical condition, and possibly your years of pre op

Chiari could have caused the onset of the Meniere's. I don't know - I am

NOT a doctor, but it seems possible to me.

Best of Wishes,

Debbie

[Guest guest]

Hi all,

I have read in several places where cervicomedullary kinking can be part of

chiari complex, including in Dr. Milhorat's paper. Also in his study and in

others, vertigo and meniere's type symptoms are related to the chiari.

I have also read that symptoms of cervicomedullary kinking can include vertigo.

So I have a hard time thinking that so many of us may have Meniere's. So I

think Sheila's vertigo is more probably related to chiari and other related

complications.

Sheila--maybe you should get another opinion. I think it was a good idea to

write to Dr. Weingart.

Love,

Maureen

Subject: Re: NCC/Missed you all/Some questions

>Meniere's? Chiari 1 people are normal human >beings capable of having

>more than one medical condition, and possibly your years of pre op

Chiari could have caused the onset of the Meniere's. I don't know - I am

NOT a doctor, but it seems possible to me.

Best of Wishes,

Debbie

[Guest guest]

Hi all,

I have read in several places where cervicomedullary kinking can be part of

chiari complex, including in Dr. Milhorat's paper. Also in his study and in

others, vertigo and meniere's type symptoms are related to the chiari.

I have also read that symptoms of cervicomedullary kinking can include vertigo.

So I have a hard time thinking that so many of us may have Meniere's. So I

think Sheila's vertigo is more probably related to chiari and other related

complications.

Sheila--maybe you should get another opinion. I think it was a good idea to

write to Dr. Weingart.

Love,

Maureen

Subject: Re: NCC/Missed you all/Some questions

>Meniere's? Chiari 1 people are normal human >beings capable of having

>more than one medical condition, and possibly your years of pre op

Chiari could have caused the onset of the Meniere's. I don't know - I am

NOT a doctor, but it seems possible to me.

Best of Wishes,

Debbie

[Guest guest]

Sheila,

Your nurse friend is right about the cervicomedullary junction. I

have been researching Chiari for a lot less time than most of the

members here, but I have looked at several pre and post op MRI photos

and seen this in the later and always thought it didn't look too good to

me. But obviously, if these top of the line research doctors are

displaying these photos as good results, then it must not cause too much

harm.

Some of the areas where you mentioned large amounts of fluid are the

vey areas that pre op Chiari patients have very lttle to vitually none,

so I don't know if he might just be commenting on the fact that these

areas are now decompressed and have good flow.

Has Dr. Weingart seen these MRIs or the report? If so, I would guess

that it it just saying that you appear to be well decompressed. I think

if he thought there was too much fluid(hydrocephaly) he probably would

have said that.

Do you not think it is entirely possibly to have Chiari and

Meniere's? Chiari 1 people are normal human beings capable of having

more than one medical condition, and possibly your years of pre op

Chiari could have caused the onset of the Meniere's. I don't know - I am

NOT a doctor, but it seems possible to me.

Best of Wishes,

Debbie

[Guest guest]

Sheila,

Your nurse friend is right about the cervicomedullary junction. I

have been researching Chiari for a lot less time than most of the

members here, but I have looked at several pre and post op MRI photos

and seen this in the later and always thought it didn't look too good to

me. But obviously, if these top of the line research doctors are

displaying these photos as good results, then it must not cause too much

harm.

Some of the areas where you mentioned large amounts of fluid are the

vey areas that pre op Chiari patients have very lttle to vitually none,

so I don't know if he might just be commenting on the fact that these

areas are now decompressed and have good flow.

Has Dr. Weingart seen these MRIs or the report? If so, I would guess

that it it just saying that you appear to be well decompressed. I think

if he thought there was too much fluid(hydrocephaly) he probably would

have said that.

Do you not think it is entirely possibly to have Chiari and

Meniere's? Chiari 1 people are normal human beings capable of having

more than one medical condition, and possibly your years of pre op

Chiari could have caused the onset of the Meniere's. I don't know - I am

NOT a doctor, but it seems possible to me.

Best of Wishes,

Debbie

[Guest guest]

Sheila,

Your nurse friend is right about the cervicomedullary junction. I

have been researching Chiari for a lot less time than most of the

members here, but I have looked at several pre and post op MRI photos

and seen this in the later and always thought it didn't look too good to

me. But obviously, if these top of the line research doctors are

displaying these photos as good results, then it must not cause too much

harm.

Some of the areas where you mentioned large amounts of fluid are the

vey areas that pre op Chiari patients have very lttle to vitually none,

so I don't know if he might just be commenting on the fact that these

areas are now decompressed and have good flow.

Has Dr. Weingart seen these MRIs or the report? If so, I would guess

that it it just saying that you appear to be well decompressed. I think

if he thought there was too much fluid(hydrocephaly) he probably would

have said that.

Do you not think it is entirely possibly to have Chiari and

Meniere's? Chiari 1 people are normal human beings capable of having

more than one medical condition, and possibly your years of pre op

Chiari could have caused the onset of the Meniere's. I don't know - I am

NOT a doctor, but it seems possible to me.

Best of Wishes,

Debbie