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a question for the list about g-tubes

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I was wondering how many people -adults or kids are on g-tubes and if any of

you have had trouble getting them to take anything by mouth. The reason

got his tube was because with out it I am convinced he would have

starved to death. He never ever seems to get hungry---is this a common

problem? I was also wondering if once a child is tubed if the desire to eat

becomes less strong--or what I really mean does the " will " to eat go away

when you realize the tube does all the work for you? suffers with

respirations of 100-130 per minute and this has always caused him great

difficulty in the suck swallow breath necessary to bottle or breast feed. He

fatigues so easily I wonder if eating is just too much trouble for him.

Any suggestions or advice would be greatly appreciated on this one.

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