LID, Nick Repostman, Plain Vanilla,etc.

[Guest guest]

.... because until I joined this group,I didn't even know to ask for a

Tg while hypo!

>

> Regards,

> donaldson

Not to ignore the rest of your post but... this line caught my

attention ... are " tg " tests suppose to be done when HYPO or on MEDS

.... I've had it done while on my meds .... I'm going to be hypo for a

tracer scan soon, I'd hate to miss a blood draw that should been done

when I am HYPO??????

Nov.3/00;lymph node removal, Nov.13/00;pap/thyca,TT .. Dec.19/00;

2mCi.RAI, Dec.22/00;100mCi.RAI quarantine ... June 15/01;tg 0.5 ...

NOW GETTING READY FOR TRACER BODY SCAN Aug 10th/01!

[Guest guest]

,

Yes, it is important to get the tg while you are hypo as well. It will

let the doctor know if there is any further activity. The tg is done

when your TSH is tested to see if it is elevated adequately for RAI

dosing.

Gail

dx: 1968,TT,pap. & foll. well differentiated, RAI, rad.neck

dissection, lung surgery, hashimoto, iodine resistant,

existing thyca nodules in lungs. Last surgery 1972

> ... because until I joined this group,I didn't even know to ask for a

> Tg while hypo!

> >

> > Regards,

> > donaldson

>

>

> Not to ignore the rest of your post but... this line caught my

> attention ... are " tg " tests suppose to be done when HYPO or on MEDS

> ... I've had it done while on my meds .... I'm going to be hypo for a

> tracer scan soon, I'd hate to miss a blood draw that should been done

> when I am HYPO??????

>

>

> Nov.3/00;lymph node removal, Nov.13/00;pap/thyca,TT .. Dec.19/00;

> 2mCi.RAI, Dec.22/00;100mCi.RAI quarantine ... June 15/01;tg 0.5 ...

> NOW GETTING READY FOR TRACER BODY SCAN Aug 10th/01!

[Guest guest]

,

Yes, it is important to get the tg while you are hypo as well. It will

let the doctor know if there is any further activity. The tg is done

when your TSH is tested to see if it is elevated adequately for RAI

dosing.

Gail

dx: 1968,TT,pap. & foll. well differentiated, RAI, rad.neck

dissection, lung surgery, hashimoto, iodine resistant,

existing thyca nodules in lungs. Last surgery 1972

> ... because until I joined this group,I didn't even know to ask for a

> Tg while hypo!

> >

> > Regards,

> > donaldson

>

>

> Not to ignore the rest of your post but... this line caught my

> attention ... are " tg " tests suppose to be done when HYPO or on MEDS

> ... I've had it done while on my meds .... I'm going to be hypo for a

> tracer scan soon, I'd hate to miss a blood draw that should been done

> when I am HYPO??????

>

>

> Nov.3/00;lymph node removal, Nov.13/00;pap/thyca,TT .. Dec.19/00;

> 2mCi.RAI, Dec.22/00;100mCi.RAI quarantine ... June 15/01;tg 0.5 ...

> NOW GETTING READY FOR TRACER BODY SCAN Aug 10th/01!

[Guest guest]

,

Yes, it is important to get the tg while you are hypo as well. It will

let the doctor know if there is any further activity. The tg is done

when your TSH is tested to see if it is elevated adequately for RAI

dosing.

Gail

dx: 1968,TT,pap. & foll. well differentiated, RAI, rad.neck

dissection, lung surgery, hashimoto, iodine resistant,

existing thyca nodules in lungs. Last surgery 1972

> ... because until I joined this group,I didn't even know to ask for a

> Tg while hypo!

> >

> > Regards,

> > donaldson

>

>

> Not to ignore the rest of your post but... this line caught my

> attention ... are " tg " tests suppose to be done when HYPO or on MEDS

> ... I've had it done while on my meds .... I'm going to be hypo for a

> tracer scan soon, I'd hate to miss a blood draw that should been done

> when I am HYPO??????

>

>

> Nov.3/00;lymph node removal, Nov.13/00;pap/thyca,TT .. Dec.19/00;

> 2mCi.RAI, Dec.22/00;100mCi.RAI quarantine ... June 15/01;tg 0.5 ...

> NOW GETTING READY FOR TRACER BODY SCAN Aug 10th/01!

[Guest guest]

Dear Gail, Thank you. You said this so much better than I could have. I do

think everyone is entitled to their own opinion, however, if I found a list

with members not " well rounded " and not

" mainstream " , I would probably leave. There are plenty of such groups on the

'net, you know, something for everyone. This is a serious disease, and many of

the members on this list have suffered

for years, going the hypo route, tests, and tests again. Recurrence is always a

consideration, and while we don't obsess on it, it becomes a part of our daily

lives. I hate to see what we've gone

thru trivialized by someone that, perhaps, doesn't have the whole picture yet.

lindalee@...

dx 12-96 follicular w/ bone mets

4 RAI= 840mCi 300mcg Synthroid

HPTH

Pgh., Pa

[Guest guest]

Chris

100 years ago, the mainstream treatmens for thyca were bloodletting, leeches,

herbal remedies & who knows what else. Medicine moves on because people step

out of the mainstream and try different things, some of which work.

If their ideas are horribly invasive, disfiguring, painful or dangerous then,

despite working, their ideas will probably fall by the wayside. But if the

idea is easy then it is likely to be accepted and will eventually become the

new mainstream.

This is the situation with the LID. In 1977 when I started in this field,

the LID was policy here. By 'here' I mean at the Royal Marsden Hospital,

which is a Cancer-only hospital in London, England. (I now work for the ICR

which is the research part of the same hospital.) In about 1979 I got

involved in management of thyca patients and wrote a booklet on the

process for them, this included the LID which I had by then done some

research on.

Some aspects of the efficacy of the LID are not positively established. To do

so would be difficult and probably unethical. The converse of the LID is,

however, not in doubt.

In the event of a radiological or nuclear accident involving RAI, or in cases

where RAI-labelled drugs are given to treat diseases other than thyroid, it

is standard practice to 'block' the thyroid with iodide or iodate. I carry a

stock of iodate tablets for this purpose.

A lot of non-radioactive iodine in the blood will dilute the RAI and, since

the thyroid can't tell the difference, it will take up the atoms randomly. It

follows that if there is twice as much 'cold' iodine in the blood, the

thyroid will only take up half as much 'hot' iodine.

From this, I conclude that a big meal of fish in cheese sauce, heavily salted

with iodized salt and garnished with cocktail cherries, eaten a few minutes

before taking your RAI, WILL have a major effect on your uptake, and hence on

the effectiveness of your treatment.

Backtracking from this statement (which few, if any, specialists in this

field would disagree with), you can make your own decisions on how low your

LID should be, or for how long you should do it for.

If I had thyca, I would do the LID.

Ian

> Nick,

> I'm just wondering...as I see you post, repost, and post again in an

> almost daily fashion, I wonder if you do any research other than

> repeatedly reading and re-reading Dr. Ain's point of view?

>

> Not that anything is wrong with Dr. Ain's opinion's....I would just

> encourage you and others on the list to get a more " well-rounded " and

> balanced perspective on thyca and its treatment.

>

> To all members:

> Dr. Ain himself even said that as far as he knows, he is the ONLY

> physician who does this CT scan dye--24 hr urine thing.

> So, neither this, nor the LID represent MAINSTREAM treatment.

>

> If YOU want to follow these opinions and advice which are so heavily

> advocated here, then by all means do so. They certainly appear

> to " do no harm. "

>

> But, just as I am tolerant of YOUR treatment choices, you need to be

> tolerant of mine. I am following my own doctors treatment plan and I

> am doing great. So stop harassing me about it, OK?

>

> FYI, I got my I-131 capsules 2 hours ago and I am feeling great--not

> any nausea whatsoever. My doc said that she and my endo believe that

> I could stay off all meds 2 more weeks and my tsh would still not

> move beyond 9. She said she is basing her decision to proceed on her

> decades of treating thyca patients with I-131. She asked if I was

> getting my info from doctors. I said, no just other patients, except

> for ONE doctor that most on the list seem to follow.

> She said, well....there you have it...

>

> So, enough said.

>

> I'm going to thoroughly ENJOY my time alone here as a much welcomed

> and deserved rest away from responsiblities and children.

>

> ,

> " Plain vanilla " is just what ya got. You don't have the more

> complicated variants of papillary thyca like hurthel cell, tall cell,

> columnar cell. And that IS good news.

>

> And, of course, I wasn't saying anything at all about thyca being

> the " good kind of cancer " ---as a fellow thyca (with plain vanilla

> also) I would NEVER say that.

>

> So, be of good cheer. ) Things could ALWAYS be much worse!

>

> --in KY

> pt 4/5/01; dx papillary w. follicular var 4/7/01; tt 4/9/01;

> RAI ablation 150 mCi 7/23/01; WBS in 2 weeks.

>

>

>

> --Chris

>

>

>

>

>

> For more information regarding thyroid cancer visit www.thyca.org. If you do

not wish to belong to this group, you may UNSUBSCRIBE by sending a blank email

to thyca-unsubscribe

>

>

>

[Guest guest]

Ian,

I just wanted to say thank you for the time and effort you give us here on

the list.

Peace, Love and all that Hippie Stuff!

[Guest guest]

Ian,

I just wanted to say thank you for the time and effort you give us here on

the list.

Peace, Love and all that Hippie Stuff!