Re: KEN'S BANDING YESTERDAY

[Guest guest]

Barb,

I'm glad to hear that things have calmed down for Ken! Watching your kids suffer is one of the hardest thing a mother has to endure.

I don't know what "banding" is so if you (or someone else in the group) has the time to explain it to me I would appreciate it.

Take care of yourself, Ken, and the dog from hell.

[Guest guest]

Dear Barb so sorry to hear Ken is having a rough go. It must be hell on your nerves too. Try and take a breathier you won't any good to any one if you fall apart. Sorry I live to far away but I would love to take the dog I need a playmate for mine he is very old and we would like him to train a replacement dog. Both of you will be in my prayers.

Frieda-'sMom PSC 00,UC00

[Guest guest]

Hey Barb....

I must have missed some of the emails...did not know that Ken was going in for a banding...

Sounds like a not very nice experience....

With the mail being so messed up I am not sure when he had this...was it monday...so that would mean he might still be in the hosp...Taking a lot of guesses here....

It is very hard to see your son like this....it is heart breaking...but also very annoying....because we are used to be in charge of our childrens lives...always seem to make them feel somewhat better....BUT...when they are screaming in pain...in hurts us to the core....and then we get mad .....and then WATCH OUT .....

When was 18 he was really sick and in the hosp....He went for some testing...sent next door...he was really sick...and just having him get in a wheel chair and wait to go in for the test was murder....I was not allowed in...It sounded to me at the time that he was having an endoscopy....but he had had them before at CHOP and wasn't sure why they were sending him next door for the test...just figured it was because he was older.....now that I know more and think about what he told me....I think he had an ERCP....he came out of the test...back in wheel chair and taken back to Chop....he was a mess...never saw him so bad...he had lost alot of weight...and he looked so beaten...broke my heart...and scared me....I sat by him and rubbed his arm and hands for hours...even though he was out of it...but would moan in his sleep...

......and of course been there done that with Ty....so I am hugging you right now....tight...feel it....

I know that is what I need in those times....

I hope that by now Ken is feeling alot better...poor guy...do you know how long he will be in there....

and as for the dog from hell....no thanks...sorry....not sure if my old cats could tolerate a puppy ...they put up with Brittany...the boxer...but she is 8...not that that has slowed her down...but they are used to her....the cats are ...2 of them are 18 yrs old...and one of them is totally deaf....poor thing...

well enough....

Hope to hear that things are getting better....

hope you get this in some timely fashion since the mail has been a bit screwed up lately...

Luanne Ty's mom

[Guest guest]

Hey Barb....

I must have missed some of the emails...did not know that Ken was going in for a banding...

Sounds like a not very nice experience....

With the mail being so messed up I am not sure when he had this...was it monday...so that would mean he might still be in the hosp...Taking a lot of guesses here....

It is very hard to see your son like this....it is heart breaking...but also very annoying....because we are used to be in charge of our childrens lives...always seem to make them feel somewhat better....BUT...when they are screaming in pain...in hurts us to the core....and then we get mad .....and then WATCH OUT .....

When was 18 he was really sick and in the hosp....He went for some testing...sent next door...he was really sick...and just having him get in a wheel chair and wait to go in for the test was murder....I was not allowed in...It sounded to me at the time that he was having an endoscopy....but he had had them before at CHOP and wasn't sure why they were sending him next door for the test...just figured it was because he was older.....now that I know more and think about what he told me....I think he had an ERCP....he came out of the test...back in wheel chair and taken back to Chop....he was a mess...never saw him so bad...he had lost alot of weight...and he looked so beaten...broke my heart...and scared me....I sat by him and rubbed his arm and hands for hours...even though he was out of it...but would moan in his sleep...

......and of course been there done that with Ty....so I am hugging you right now....tight...feel it....

I know that is what I need in those times....

I hope that by now Ken is feeling alot better...poor guy...do you know how long he will be in there....

and as for the dog from hell....no thanks...sorry....not sure if my old cats could tolerate a puppy ...they put up with Brittany...the boxer...but she is 8...not that that has slowed her down...but they are used to her....the cats are ...2 of them are 18 yrs old...and one of them is totally deaf....poor thing...

well enough....

Hope to hear that things are getting better....

hope you get this in some timely fashion since the mail has been a bit screwed up lately...

Luanne Ty's mom

[Guest guest]

Barb so sorry Ken had to go through that and that you

had to do that. Good thing for Ken he had you to act

for him. Sometimes it takes a little force and you

and I are good at that.:-) But afterwards it is

draining. I'm sure you'll do great when it comes time

for transplant and I'm glad they got those things

banded so he didn't have a bleed. You just keep on

yelling in his defense. You can do it MOM.

Peg

__________________________________________________

[Guest guest]

Barb so sorry Ken had to go through that and that you

had to do that. Good thing for Ken he had you to act

for him. Sometimes it takes a little force and you

and I are good at that.:-) But afterwards it is

draining. I'm sure you'll do great when it comes time

for transplant and I'm glad they got those things

banded so he didn't have a bleed. You just keep on

yelling in his defense. You can do it MOM.

Peg

__________________________________________________

[Guest guest]

Barb, how horrible for both of you...you know it doesn't matter how old they

are it's still hard to watch your kids in any kind of distress or pain and

not be able to ease that....

I know when Sara was having Spencer, she would just squeeze my hand and say

" mom " , I knew her pain, but couldn't help other than being there....

I hope he's feeling better today.....you know I don't know anything about a

blue heeler but I could probably challenge him with my shih tzu (or as Mike

says shit zu), from hell...

take care

Patti

>

>Reply-To:

>To: " Psc-SupportYahoogroups (DOT) Com " < >

>Subject: KEN'S BANDING YESTERDAY

>Date: Tue, 5 Mar 2002 09:56:30 -0600

>

>We got to the hospital at 9am and didn't leave

>till 5pm. The banding (8 of them) only took an hour

>and the Doctor said all went well. Except......

>when Ken came back to his room he was in so much

>pain he was crying his heart out. He couldn't sit,

>couldn't lay just stood there doubled over crying.

>Guess you would have to know Ken to realize this

>was not at all normal. He had a EGD just 2 weeks

>ago with no problem. They gave him 2 shots - no

>relief, his eyes were fire engine red, blood pressure

>kept going up. 175 over 95. I couldn't console him,

>couldn't touch him, yet he kept crying Mom. At 6 foot

>and 175 pounds Ken is used to pain, but this was

>different. After 2 hours of this - I being my ever sweet

>self said- This is not normal!! Do something!!

> " The doctor didn't leave an order " they said.

>I said get him now or get a verbal order. But do

>something! Finally Doctor comes back in and orders

>an x-ray. All is ok and they think it was gas trapped

>inside, this kind of pain has happened only once

>before he said. So 3 shots this time and Ken is finally

>sleeping. I'm a basket case, wondering how the hell am

>I going to be a help to him when he gets his transplant?

>This was so hard to sit there and listen to him and being

>totally helpless. I HATE IT! Anyway he slept here last

>night. While his Dad and I watched his dog from hell.

>Got up this a.m. had a small bowl of soup and juice and

>went back to bed. Anyone want a very special blue heeler

>1 year old puppy????? Thanks for listening.

>Barb In Texas - Son (Ken) UC 91 PSC 99

>

>

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[Guest guest]

Barb, that was so horrible what your son went through. I know your

feeling of helplessness. It's tough when a loved one is in pain and

you can't do anything about it. You did help him by getting them to

get the Dr in there. I'm sure you will do fine when it's transplant

time. WE don't realize what we are capable of doing until we are in

a situation.

I hope he is feeling better.

Take care,

[Guest guest]

Barb, that was so horrible what your son went through. I know your

feeling of helplessness. It's tough when a loved one is in pain and

you can't do anything about it. You did help him by getting them to

get the Dr in there. I'm sure you will do fine when it's transplant

time. WE don't realize what we are capable of doing until we are in

a situation.

I hope he is feeling better.

Take care,