Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Hi everyone and again welcome to the new members! Our e-mail is having problems so I am having trouble keeping up with everything. I have been thinking about all of you! Today, had an appt with a new hep (Dr. Kim Brown at Henry Ford Hospital in Detroit). We were so encouraged by this visit and the fact that she spoke with us for over an hour and gave us so much more info than the first Hepatolgist that we saw. She agreed to put on high dose Actigall and will see him every six months for now. She even had picture of Klug on the wall. When we mentioned 10 years or so might be the time that could need a transplant she said, " 10???? I'm thinking more like 20. " She feels that because he has absolutely no Cirhosis, bile duct damage or any syptoms right now that it will be a while. Of course, she told us that you never really know the course of the disease and we cannot be exactly sure. Nontheless, it helped ease some of our fears and most importantly, we really liked her and her manner. I guess I feel a sense of relief knowing that we are in good hands...it's so important to have a doc that you can talk to! I hope that everyone has a wonderful day! ~ Wife of , PSC '02, Madeline's Momma 16 months and baby #2 due in Oct Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Re: Update and hello! > > > " that she spoke with us for over an hour and gave us so " We so love good news, now aren't you glad you planted that seed? Bob and I are happy, happy for you both. A pic of Klug, that is sure encouraging. Congrads Dee in Peoria, wife of Bob 59, ileo, psc > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Steph, I am so glad to hear the good news about Mike and 20+ years and the you have found a wonderful Dr. Sounds like you are in good hands. Congrats on the Baby due in Oct. I must have missed some posts. That's great! Take care. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Steph, I am so glad to hear the good news about Mike and 20+ years and the you have found a wonderful Dr. Sounds like you are in good hands. Congrats on the Baby due in Oct. I must have missed some posts. That's great! Take care. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 , That is wonderful news! Which part you might ask, all of it including baby #2 on the way. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 , That is wonderful news! Which part you might ask, all of it including baby #2 on the way. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 Great news. Sounds like we could do with a few (many?) clones of Dr. Brown. DutchPat uc66, total colectomy86, ileorectal anastomosis86, necrotising pancreatitis99, psc(??)01 Subject: Re: Update and hello! Today, had an appt with a new hep (Dr. Kim Brown at Henry Ford Hospital in Detroit). We were so encouraged by this visit and the fact that she spoke with us for over an hour and gave us so much more info than the first Hepatolgist that we saw. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 Great news. Sounds like we could do with a few (many?) clones of Dr. Brown. DutchPat uc66, total colectomy86, ileorectal anastomosis86, necrotising pancreatitis99, psc(??)01 Subject: Re: Update and hello! Today, had an appt with a new hep (Dr. Kim Brown at Henry Ford Hospital in Detroit). We were so encouraged by this visit and the fact that she spoke with us for over an hour and gave us so much more info than the first Hepatolgist that we saw. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 Great news. Sounds like we could do with a few (many?) clones of Dr. Brown. DutchPat uc66, total colectomy86, ileorectal anastomosis86, necrotising pancreatitis99, psc(??)01 Subject: Re: Update and hello! Today, had an appt with a new hep (Dr. Kim Brown at Henry Ford Hospital in Detroit). We were so encouraged by this visit and the fact that she spoke with us for over an hour and gave us so much more info than the first Hepatolgist that we saw. Quote Link to comment Share on other sites More sharing options...
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