Re: [Re: Digest Number 310]

[Guest guest]

jennis9659@... wrote:

> ---------------------------------------------

> Attachment: 

> MIME Type: multipart/alternative

> ---------------------------------------------

Hi!

In reading one of the posts, someone mentioned UAE syndrome. What is it and

what causes it. I had an UAE almost two years ago and now have some very

strange things going on. Just wondering if it might be related to the UAE.

Thanks, this is a great post with lots of good info.

Jena

Jena,

From what I understand Post UAE syndrome is the reaction the body goes through

as the fibroids infarct. It consists of fever and malaise.

If you don't mind sharing, what kind of strange things have you experienced

post-UAE? I had mine in 1998 and have had some weird after-effects too. The

only lasting effect has been a burning/cramping feeling in the uterus that

starts about 7-10 days before my period and continues on/off until it begins.

I'm quite sure it's related to the UAE, as I never experienced this before the

procedure. I haven't read of anyone having this symptom yet. I think we'd all

learn by comparing notes.

Thanks,

Kim

[Guest guest]

What does UAE stand for...why do these things infarct. Of course they will cause

scar tissue?

Keloids? What? The body also " remembers " trauma physically. What do you all

thiunk?

KIM RANSDELL wrote:

> jennis9659@... wrote:

>

> > ---------------------------------------------

> > Attachment: 

> > MIME Type: multipart/alternative

> > ---------------------------------------------

> Hi!

>

> In reading one of the posts, someone mentioned UAE syndrome. What is it and

> what causes it. I had an UAE almost two years ago and now have some very

> strange things going on. Just wondering if it might be related to the UAE.

> Thanks, this is a great post with lots of good info.

>

> Jena

>

> Jena,

> >From what I understand Post UAE syndrome is the reaction the body goes

through

> as the fibroids infarct. It consists of fever and malaise.

>

> If you don't mind sharing, what kind of strange things have you experienced

> post-UAE? I had mine in 1998 and have had some weird after-effects too. The

> only lasting effect has been a burning/cramping feeling in the uterus that

> starts about 7-10 days before my period and continues on/off until it begins.

> I'm quite sure it's related to the UAE, as I never experienced this before the

> procedure. I haven't read of anyone having this symptom yet. I think we'd all

> learn by comparing notes.

>

> Thanks,

> Kim

>

>

[Guest guest]

Hi Kim,

It may be me your talking about.I had a uni-lateral-left side only embolization

in Oct.99 and had

post-embo syndrome for a very long time along with 2 hospitalizations for high

fever.I too now think

that the most acute phase of this is over-but I have some very weird things

happen that no one-no

internist,no Infectious Disease Specialist no one will look into.I am very

excited to find someone

else reporting strange things-what type of strange things?

I run low grade fevers,they come and go.I get rashes that come and go,I get

chills,same thing comes

and goes,I still get periods of being wiped out.I sometimes wonder if some

auto-immune mechanism

hasn't been altered?I may not be listing everything,what symptoms do you have?

Best,

Looking forward to your reply,

Bonnie

KIM RANSDELL wrote:

> jennis9659@... wrote:

>

> > ---------------------------------------------

> > Attachment: 

> > MIME Type: multipart/alternative

> > ---------------------------------------------

> Hi!

>

> In reading one of the posts, someone mentioned UAE syndrome. What is it and

> what causes it. I had an UAE almost two years ago and now have some very

> strange things going on. Just wondering if it might be related to the UAE.

> Thanks, this is a great post with lots of good info.

>

> Jena

>

> Jena,

> >From what I understand Post UAE syndrome is the reaction the body goes

through

> as the fibroids infarct. It consists of fever and malaise.

>

> If you don't mind sharing, what kind of strange things have you experienced

> post-UAE? I had mine in 1998 and have had some weird after-effects too. The

> only lasting effect has been a burning/cramping feeling in the uterus that

> starts about 7-10 days before my period and continues on/off until it begins.

> I'm quite sure it's related to the UAE, as I never experienced this before the

> procedure. I haven't read of anyone having this symptom yet. I think we'd all

> learn by comparing notes.

>

> Thanks,

> Kim

>

>

[Guest guest]

UAE stands for Uterine Artery Emboliztion.The fibroids are deprived of their

blood supply via blocking

of the uterine artery.They go through a process of necrotization-dying off as it

were and the body

re-absorbs the dead tissue.I do believe that this process could cause or will

cause scar tissue.I don't

know about keloids-I think,but am not sure that keloids are a type of scar and

not everyone scars like

that.

The body I think does " remember " trauma,as does the mind,but how this is

expressed in terms of UAE I

don't know.

Best,

Bonnie

GG Schaumburg wrote:

> What does UAE stand for...why do these things infarct. Of course they will

cause scar tissue?

> Keloids? What? The body also " remembers " trauma physically. What do you all

thiunk?

>

> KIM RANSDELL wrote:

>

> > jennis9659@... wrote:

> >

> > > ---------------------------------------------

> > > Attachment: 

> > > MIME Type: multipart/alternative

> > > ---------------------------------------------

> > Hi!

> >

> > In reading one of the posts, someone mentioned UAE syndrome. What is it and

> > what causes it. I had an UAE almost two years ago and now have some very

> > strange things going on. Just wondering if it might be related to the UAE.

> > Thanks, this is a great post with lots of good info.

> >

> > Jena

> >

> > Jena,

> > >From what I understand Post UAE syndrome is the reaction the body goes

through

> > as the fibroids infarct. It consists of fever and malaise.

> >

> > If you don't mind sharing, what kind of strange things have you experienced

> > post-UAE? I had mine in 1998 and have had some weird after-effects too.

The

> > only lasting effect has been a burning/cramping feeling in the uterus that

> > starts about 7-10 days before my period and continues on/off until it

begins.

> > I'm quite sure it's related to the UAE, as I never experienced this before

the

> > procedure. I haven't read of anyone having this symptom yet. I think we'd

all

> > learn by comparing notes.

> >

> > Thanks,

> > Kim

> >

> >

[Guest guest]

pardon me but I want to ask a question. If this procedure is done, how does the

body perceive itself

immunologically? I'm not being facetious here. I had a sponge left in my body

from a kidney operation

for ten years, my body sought to protect itself and the ensuing expression

mimicked toxic shock or aids

or lupus. some of the same symptoms...what about the procedure would physically

set up the response? gg

Bonnie Andrukaitis wrote:

> Hi Kim and Hi Jena,

> I did respond to one of you.For some reason I only got one of your e mails.

> I have had weird symptoms since my UAE Oct.'99.Could the 3 of us compare

notes.I have a lot of

> burning,rashes and still fatigue as well as other symptoms.I have difficulty

in finding anyone to

> explain things to me and I have some suspicion that some form of auto-immune

thing might be going on.

>

> I would love to hear from both of you,because this is the first time I heard

anyone talk about weird

> persistent things.

> Best

> Bonnie

>

> KIM RANSDELL wrote:

>

> > jennis9659@... wrote:

> >

> > > ---------------------------------------------

> > > Attachment: 

> > > MIME Type: multipart/alternative

> > > ---------------------------------------------

> > Hi!

> >

> > In reading one of the posts, someone mentioned UAE syndrome. What is it and

> > what causes it. I had an UAE almost two years ago and now have some very

> > strange things going on. Just wondering if it might be related to the UAE.

> > Thanks, this is a great post with lots of good info.

> >

> > Jena

> >

> > Jena,

> > >From what I understand Post UAE syndrome is the reaction the body goes

through

> > as the fibroids infarct. It consists of fever and malaise.

> >

> > If you don't mind sharing, what kind of strange things have you experienced

> > post-UAE? I had mine in 1998 and have had some weird after-effects too.

The

> > only lasting effect has been a burning/cramping feeling in the uterus that

> > starts about 7-10 days before my period and continues on/off until it

begins.

> > I'm quite sure it's related to the UAE, as I never experienced this before

the

> > procedure. I haven't read of anyone having this symptom yet. I think we'd

all

> > learn by comparing notes.

> >

> > Thanks,

> > Kim

> >

> >

[Guest guest]

GG

Sorry for getting to this message late.

Yes,I believe the mechansim would be the same and some of the same symtoms would

occur.Its the fact that

there is a foreign body whether it be a sponge or degerating material.The same

defenses would go into

action.

What did youy do for those 10 years?

Things must have been awful and if took 10 years I guess they didn't think of a

sponge left in.

Bonnie

GG Schaumburg wrote:

> pardon me but I want to ask a question. If this procedure is done, how does

the body perceive itself

> immunologically? I'm not being facetious here. I had a sponge left in my body

from a kidney operation

> for ten years, my body sought to protect itself and the ensuing expression

mimicked toxic shock or aids

> or lupus. some of the same symptoms...what about the procedure would

physically set up the response? gg

>

> Bonnie Andrukaitis wrote:

>

> > Hi Kim and Hi Jena,

> > I did respond to one of you.For some reason I only got one of your e mails.

> > I have had weird symptoms since my UAE Oct.'99.Could the 3 of us compare

notes.I have a lot of

> > burning,rashes and still fatigue as well as other symptoms.I have difficulty

in finding anyone to

> > explain things to me and I have some suspicion that some form of auto-immune

thing might be going on.

> >

> > I would love to hear from both of you,because this is the first time I heard

anyone talk about weird

> > persistent things.

> > Best

> > Bonnie

> >

> > KIM RANSDELL wrote:

> >

> > > jennis9659@... wrote:

> > >

> > > > ---------------------------------------------

> > > > Attachment: 

> > > > MIME Type: multipart/alternative

> > > > ---------------------------------------------

> > > Hi!

> > >

> > > In reading one of the posts, someone mentioned UAE syndrome. What is it

and

> > > what causes it. I had an UAE almost two years ago and now have some very

> > > strange things going on. Just wondering if it might be related to the

UAE.

> > > Thanks, this is a great post with lots of good info.

> > >

> > > Jena

> > >

> > > Jena,

> > > >From what I understand Post UAE syndrome is the reaction the body goes

through

> > > as the fibroids infarct. It consists of fever and malaise.

> > >

> > > If you don't mind sharing, what kind of strange things have you

experienced

> > > post-UAE? I had mine in 1998 and have had some weird after-effects too.

The

> > > only lasting effect has been a burning/cramping feeling in the uterus that

> > > starts about 7-10 days before my period and continues on/off until it

begins.

> > > I'm quite sure it's related to the UAE, as I never experienced this before

the

> > > procedure. I haven't read of anyone having this symptom yet. I think we'd

all

> > > learn by comparing notes.

> > >

> > > Thanks,

> > > Kim

> > >

> > >

[Guest guest]

Kim,

You read that post most likely from me.I have strange goings on and I am 17

months post UAE.Jena is

also reporting strange things,I wonder if we put our heads together if we could

not find out what is

still causing our bodies to react so long after the procedure,please write and

lets share.

Best,

Bonnie

KIM RANSDELL wrote:

> jennis9659@... wrote:

>

> > ---------------------------------------------

> > Attachment: 

> > MIME Type: multipart/alternative

> > ---------------------------------------------

> Hi!

>

> In reading one of the posts, someone mentioned UAE syndrome. What is it and

> what causes it. I had an UAE almost two years ago and now have some very

> strange things going on. Just wondering if it might be related to the UAE.

> Thanks, this is a great post with lots of good info.

>

> Jena

>

> Jena,

> >From what I understand Post UAE syndrome is the reaction the body goes

through

> as the fibroids infarct. It consists of fever and malaise.

>

> If you don't mind sharing, what kind of strange things have you experienced

> post-UAE? I had mine in 1998 and have had some weird after-effects too. The

> only lasting effect has been a burning/cramping feeling in the uterus that

> starts about 7-10 days before my period and continues on/off until it begins.

> I'm quite sure it's related to the UAE, as I never experienced this before the

> procedure. I haven't read of anyone having this symptom yet. I think we'd all

> learn by comparing notes.

>

> Thanks,

> Kim

>

>

[Guest guest]

It was a rough go. My marriage ended over it. I kept going into the hospital

feeling like I was going to

die...shock symptoms. At times thought it was all in my head. Had radiation

tracers mixed with my blood

shooting through my veins to find any hot spots...IV antibiotics, I'd get better

then and be discharged and

then have to go back again. CDC called out. they thought it was something

new...to rule out something new,

or toxic shock or aids or something. convinced it led to my complete planentia

abruptio and almost total

bleed out. son born dead for 7 minutes than shocked back to life. apgar of zero.

is fine now. they found the

sponge after the emergency C-section to save my son. Three docs peering into my

open belly and saying, " What

the hell is that.? " So. Question. Why wouldn't the body try to protect itself

in the same way, producing

perhaps even sub-clinical symptoms, at times, fatigue, flu-like symptoms,

slightly elevated WBC, slight

shockiness, panic fear flight stuff...I wonder...gg

Bonnie Andrukaitis wrote:

> GG

> Sorry for getting to this message late.

> Yes,I believe the mechansim would be the same and some of the same symtoms

would occur.Its the fact that

> there is a foreign body whether it be a sponge or degerating material.The same

defenses would go into

> action.

> What did youy do for those 10 years?

> Things must have been awful and if took 10 years I guess they didn't think of

a sponge left in.

> Bonnie

>

> GG Schaumburg wrote:

>

> > pardon me but I want to ask a question. If this procedure is done, how does

the body perceive itself

> > immunologically? I'm not being facetious here. I had a sponge left in my

body from a kidney operation

> > for ten years, my body sought to protect itself and the ensuing expression

mimicked toxic shock or aids

> > or lupus. some of the same symptoms...what about the procedure would

physically set up the response? gg

> >

> > Bonnie Andrukaitis wrote:

> >

> > > Hi Kim and Hi Jena,

> > > I did respond to one of you.For some reason I only got one of your e

mails.

> > > I have had weird symptoms since my UAE Oct.'99.Could the 3 of us compare

notes.I have a lot of

> > > burning,rashes and still fatigue as well as other symptoms.I have

difficulty in finding anyone to

> > > explain things to me and I have some suspicion that some form of

auto-immune thing might be going on.

> > >

> > > I would love to hear from both of you,because this is the first time I

heard anyone talk about weird

> > > persistent things.

> > > Best

> > > Bonnie

> > >

> > > KIM RANSDELL wrote:

> > >

> > > > jennis9659@... wrote:

> > > >

> > > > > ---------------------------------------------

> > > > > Attachment: 

> > > > > MIME Type: multipart/alternative

> > > > > ---------------------------------------------

> > > > Hi!

> > > >

> > > > In reading one of the posts, someone mentioned UAE syndrome. What is it

and

> > > > what causes it. I had an UAE almost two years ago and now have some

very

> > > > strange things going on. Just wondering if it might be related to the

UAE.

> > > > Thanks, this is a great post with lots of good info.

> > > >

> > > > Jena

> > > >

> > > > Jena,

> > > > >From what I understand Post UAE syndrome is the reaction the body goes

through

> > > > as the fibroids infarct. It consists of fever and malaise.

> > > >

> > > > If you don't mind sharing, what kind of strange things have you

experienced

> > > > post-UAE? I had mine in 1998 and have had some weird after-effects too.

The

> > > > only lasting effect has been a burning/cramping feeling in the uterus

that

> > > > starts about 7-10 days before my period and continues on/off until it

begins.

> > > > I'm quite sure it's related to the UAE, as I never experienced this

before the

> > > > procedure. I haven't read of anyone having this symptom yet. I think

we'd all

> > > > learn by comparing notes.

> > > >

> > > > Thanks,

> > > > Kim

> > > >

> > > >