Re: How quickly can we see progress?

August 26, 2004

My daughter and son went gf in May of this year. And, both of them because

of genetics were very big for their age. However, I have seen my daughter

grow considerably taller in the last few months and I attribute this to her

being able to absorb the nutrients she needs. I would venture to say she has

grown 3 inches total since may. Trully incredible what can happen on a gf

diet.

August 27, 2004

Also Kroger brand Golden Nuggets is gluten-free per letter from their

dietitian. Pete eats it all the time and has never had a problem with it.

Faye Gannon, Dalton, GA

August 27, 2004

My Son with CD was born in the 10th

percentile. He remained there until just before his third birthday - that’s

when he dropped completely off the growth chart. He wore the same size clothes

for two years!! The Pediatrician still didn’t think there was a problem

until I brought in a pamphlet on CD and demanded testing for my Son. Its been

almost two years since he’s been GF. He’s just now starting to shoot-up.

We just had an appointment with the Pediatrician and he’s back on the

growth chart! YAHOO!!

Don’t worry about your daughter….it

may take a while. But I would also make sure you thoroughly check all foods she

eats, to make sure she isn’t getting gluten from somewhere. You can find

gluten in the strangest places…..ground beef for example! Who would’ve

thought?!?

August 27, 2004

Holly, I have been reading your conversation with great interest, our

experiences are so simmilar! I too have 4 kids, all small except the

4 month old- 50th percentile! My oldest,,Raven-5 1/2, was dx'd celiac

11/02, and is finally over 30 lbs. He starts kindergarten next week,

and I am working on his 504 plan, goodie box, and educating his

teacher. Luckily there is another celiac family in our community, so

the district has worked with it before.

My 2 yr old, Taran, has been going through the testing process this

summer. His blood work was negative, but done at 18 mos., so they did

an endoscopy in June when he turned 2. No villi damage, so no celiac

disease, but there were eosinophilic cells. He still has the

diarrhea, and weighs about 22 lbs now. Our GI also suggested

Pediasure, and calorie loading. I wish I could eat like that- ice

cream floats, puddings, lots of butter on everything, whole milk, all

the stuff they tell us to avoid! We also got a juice based liquid

nutrition called " Enlive " , by the makers of Ensure. Comes in Apple

and Peach flavor, and he likes it better than Pediasure. It got to

where his diapers were more than I could bear with the Pediasure,

that stuff smells horrible.

Our older boys also have allergies, food & enviornmental, and I am

about ready to concede to the fact that I just have small children.

It helps with clothes shopping when they are all within about 10 lbs

of each other and wear the same sizes for so long!

It took about 6 months for Raven(5) to start gaining any weight, but

he got a bit of height within the first couple months. Sinjon(4) had

got to within 1lb of Raven before he started to gain again, and now

Raven is 37 lbs and Sinjon is 33. I have gotten rid of our scale, and

rely more on how they feel than the actual numbers now.

You said WIC helped supply the Pediasure for you? How did you get

that? They still let us get whole milk for Taran because he is off

the growth chart, but that is all. Maybe it is different in different

states, we can't get soy or rice milk either, and no other subs for

allergies.

Okay this is just getting way too long, so thanks for

listening...Renae

August 27, 2004