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RE: Intersitisual Cysitis

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I am in a chronic pain program and take morphine. Unfortunatlly I have tryed many , many pain relievers and they don't work, sometimes they diminish the pain, but that is in large doses with valium or colomipin. The pain is UNBEARABLE. I also talked with a nurse who read my chart on the Cystocopy. The OR report says I have it and have visual examples, the lab report says no. She told me I had to get them to use the OR report as evidience of IC, because the report specifically mentions it. She then told me there are three or four things at lease to try. DMSO, some medication and diet.

[blakeley Winn -] Blakeley -----Original Message-----From: suzy fromage Sent: Thursday, August 01, 2002 8:13 AMTo: VulvarDisorders Subject: Re: Intersitisual Cysitis

Blakeley, have you visited a pain specialist and/or apain management center? It sounds like you need tofind some kind of pain relief immediately. I'm sureyou can't even *think straight* with that kind of painin your life. Please see a pain specialist so you canthen work on controlling the vestibulitis andinterstitial cystitis, once you get some relief fromwhat sounds like enormous pain!Suzy--- blakeleyjt wrote:> Help!! I seem to have this with vulva vestibulities> and inersisitial > cyitis. I can not get comfortable. There are> times when I am in so > much pain that I would rather die then be like that.> Morphine > doesn't touch the pain. Sex is out of the question.> Help.> Blakeley> > __________________________________________________

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