Guest guest Posted April 12, 2000 Report Share Posted April 12, 2000 > >May is National NF Awareness month. The National Neurofibromatosis > >Foundation, a not-for-profit organization that raises money for NF > >research, is holding an on-line auction on E-Bay.com from May 1 - May > >31. > > > >Neurofibromatosis (NF) is the most common neurological disorder causes > >by a single gene and more prevalent than Cystic Fibrosis, Huntington's > >Disease and Tay Sachs disease combined. NF causes tumors to grow on the > >nerves anywhere in the body and can lead to blindness, deafness, > >disfigurement, skeletal abnormalities and learning disabilities. > > > >The money raised from this auction will be used to fund research in NF. > >The NF protein has been implicated in the development of several common > >cancers (breast cancer, colon cancer and melanoma) therefore; NF > >research has the potential to benefit an additional 100 million > >Americans! > > > >There are several ways you can help us in our efforts to raise public > >awareness and research dollars for NF: > > > >1 - Auction an item on E-bay during the month May and then donate the > >proceeds of the sale to the NNFF. For more information on how to > >participate in the auction please log on to www.nf.org/auction > ><http://www.nf.org/auction>. > > > >2 - Bid on items on the NF auction block. Log on to www.ebay.com > ><http://www.ebay.com> during May and type in the key word " 4 NF " to > >search for item on the NF auction block. > > > >3 - Tell a friend. Simply cut and paste this email into a new email > >message and forward it to as many people as possible. > > > >Thank you for your support > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2000 Report Share Posted April 12, 2000 > >May is National NF Awareness month. The National Neurofibromatosis > >Foundation, a not-for-profit organization that raises money for NF > >research, is holding an on-line auction on E-Bay.com from May 1 - May > >31. > > > >Neurofibromatosis (NF) is the most common neurological disorder causes > >by a single gene and more prevalent than Cystic Fibrosis, Huntington's > >Disease and Tay Sachs disease combined. NF causes tumors to grow on the > >nerves anywhere in the body and can lead to blindness, deafness, > >disfigurement, skeletal abnormalities and learning disabilities. > > > >The money raised from this auction will be used to fund research in NF. > >The NF protein has been implicated in the development of several common > >cancers (breast cancer, colon cancer and melanoma) therefore; NF > >research has the potential to benefit an additional 100 million > >Americans! > > > >There are several ways you can help us in our efforts to raise public > >awareness and research dollars for NF: > > > >1 - Auction an item on E-bay during the month May and then donate the > >proceeds of the sale to the NNFF. For more information on how to > >participate in the auction please log on to www.nf.org/auction > ><http://www.nf.org/auction>. > > > >2 - Bid on items on the NF auction block. Log on to www.ebay.com > ><http://www.ebay.com> during May and type in the key word " 4 NF " to > >search for item on the NF auction block. > > > >3 - Tell a friend. Simply cut and paste this email into a new email > >message and forward it to as many people as possible. > > > >Thank you for your support > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2000 Report Share Posted May 19, 2000 There was some talk at the beginning of the month about recognizing those with NF2 who have fallen before us during NF awareness month. In honour of that, I would like to share with you my mother's story. She wrote her autobiography sometime before she died in 1983. I have just completed digitizing, editing, and transferring to HTML her story. I respectfully present it to the crew. You can find the story at /files/NF2_Crew/jason_mom.html If you wish to use any part of the story for any purpose, please feel free to do so, but let me know about it. Quote Link to comment Share on other sites More sharing options...
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