Guest guest Posted December 13, 2000 Report Share Posted December 13, 2000 To those of you on Lupron, what sorts of side effects did you experience and how long were you on it. Did you end up going on to other interventions such as myomectomy, UAE, or hysterectomy? --candace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2001 Report Share Posted February 3, 2001 You won't feel anything ! I did have 1 period which was bad after the 1st shot because the fool was so in a hurry to make money - he didn't even give it to me at the proper time of my cycle so it didn't work untitled 2nd one - After I did research and adjusted the appointment to the right time of my cycle. For clarity this was a hyst. butcher that I just used to stop the excessive bleeding. While I research this site and many medsites trying to find a decent doctor and a decent procedure. When you will know its working you will have flushes bad run outside to cool off flushes - soak yo night gown flushes- Some people have other symptoms I did not I was so happy the bleeding stopped didn't care!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 About Lupron, I was diagnosed with light endometriosis 4 years ago, and my doctor at that time suggested 2 shots of Lupron 3,75mg (1 per 2 months). I had symptoms like painful cramps and heavy bleeding during my periods, and painful intercourse. The results amazing: all the symptoms were gone in a few months after. Of course, a 400$/injection is quite high, but it's worth it. I am now back on the same Lupron since October in order to diminish a fibroid and ensure better chances in an eventual myomectomy. Already, the fibroid has diminish from a 13 inch to an 8 inch, and probably less today. The only thing: my doctor did not prescribe any calcium or iron supplements. Knowing that Lupron reproduces the effect of menopause, I am wondering if a particular attention should not be paid to this issue. Good luck > Lupron will shrink the fibroids. I don't believe it should be used long > term though. I was on Lupron, Progesterone, Esgrogen 11 years ago prior to > my successful InVitro Fertilization and had NO adverse side affects. I am > considering Lupron now to shrink my fibroids. I will check out those > websites, Thanks for that info. > > >...difference, so I > > >stopped them. The doctor has suggested trying Lupron, but I am > > >concerned about the potential side effects and the expense (I am > > >currently a graduate student). Has anyone else tried Lupron? How > > >did it work out? I would love to avoid surgery as long as possible, > > >but the constant pain sometimes wears me down. I am so glad this > > >group is out there! > > > > I am also a graduate student with fibroids, so I know how you feel. It is > > my understanding that Lupron should only be used for a short time. > > > > I got the following from the National Library of Medicine > > > (http://www.nlm.nih.gov/medlineplus/druginfo/leuprolidesystemic202322. html#S > > XX04): > > > > " Leuprolide (loo-PROE-lide) may be used for a number of different medical > > problems. These include treatment of: > > > > anemia caused by bleeding of uterine leiomyomas (tumors in the > uterus); > > cancer of the prostate gland in men; > > central precocious puberty (CPP), a condition that causes early > puberty > > in boys (before 9 years of age) and in girls (before 8 years of age); > > pain due to endometriosis in women. " > > > > Notice that it only says *anemia* caused by excessive bleeding. It > doesn't > > sound from your post that you are anemic. > > > > I believe there is some dispute about the use of Lupron to treat fibroid > > symptoms--someone please correct me if I'm wrong, but I thought it was > only > > approved by the FDA for other uses. Even www.lupron.com says, " Hormonal > > therapy for advanced prostate cancer, endometriosis, & central precocious > > puberty. " You may also want to check out www.lupronvictims.com. > > > > Aside from Lupron, have you been looking into any other treatments? > > > > Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 About Lupron, I was diagnosed with light endometriosis 4 years ago, and my doctor at that time suggested 2 shots of Lupron 3,75mg (1 per 2 months). I had symptoms like painful cramps and heavy bleeding during my periods, and painful intercourse. The results amazing: all the symptoms were gone in a few months after. Of course, a 400$/injection is quite high, but it's worth it. I am now back on the same Lupron since October in order to diminish a fibroid and ensure better chances in an eventual myomectomy. Already, the fibroid has diminish from a 13 inch to an 8 inch, and probably less today. The only thing: my doctor did not prescribe any calcium or iron supplements. Knowing that Lupron reproduces the effect of menopause, I am wondering if a particular attention should not be paid to this issue. Good luck > Lupron will shrink the fibroids. I don't believe it should be used long > term though. I was on Lupron, Progesterone, Esgrogen 11 years ago prior to > my successful InVitro Fertilization and had NO adverse side affects. I am > considering Lupron now to shrink my fibroids. I will check out those > websites, Thanks for that info. > > >...difference, so I > > >stopped them. The doctor has suggested trying Lupron, but I am > > >concerned about the potential side effects and the expense (I am > > >currently a graduate student). Has anyone else tried Lupron? How > > >did it work out? I would love to avoid surgery as long as possible, > > >but the constant pain sometimes wears me down. I am so glad this > > >group is out there! > > > > I am also a graduate student with fibroids, so I know how you feel. It is > > my understanding that Lupron should only be used for a short time. > > > > I got the following from the National Library of Medicine > > > (http://www.nlm.nih.gov/medlineplus/druginfo/leuprolidesystemic202322. html#S > > XX04): > > > > " Leuprolide (loo-PROE-lide) may be used for a number of different medical > > problems. These include treatment of: > > > > anemia caused by bleeding of uterine leiomyomas (tumors in the > uterus); > > cancer of the prostate gland in men; > > central precocious puberty (CPP), a condition that causes early > puberty > > in boys (before 9 years of age) and in girls (before 8 years of age); > > pain due to endometriosis in women. " > > > > Notice that it only says *anemia* caused by excessive bleeding. It > doesn't > > sound from your post that you are anemic. > > > > I believe there is some dispute about the use of Lupron to treat fibroid > > symptoms--someone please correct me if I'm wrong, but I thought it was > only > > approved by the FDA for other uses. Even www.lupron.com says, " Hormonal > > therapy for advanced prostate cancer, endometriosis, & central precocious > > puberty. " You may also want to check out www.lupronvictims.com. > > > > Aside from Lupron, have you been looking into any other treatments? > > > > Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2001 Report Share Posted April 15, 2001 I am trying to find out if the body uses soy as estrogen and have seen some contradicting material. I added soy to my diet and any perimenopausal (I'm 45) symptoms disappeared. However my fibroid grew rapidly and I'm wondering if the say had anything to do with it. My doctor found adenomyosis when I had a myo and wants to put me on Lupron to shrink it. If I do go that route I'm wondering if I cansstill have soy products. Thanks. H Re: Lupron I have been on Lupron for 2 months (going for my 3rd shot today). I have had none of the side effects that many women have on Lupron. Either I am lucky or am coincidentally doing something to help with the side-effects. I do at least 30 minutes of aerobic activity every day as well as weight training 3 times a week. I have heard that exercise helps with hot flashes so maybe this is helping. Also, I drink 2 cups of soy milk a day and sometimes eat other soy products during the day (food, not supplements). Many menopausal women incorporate soy as a natural way of dealing with hot flashes, this may be helping me as well. (I am also upping my calcium intake to 1500 mg a day--the recommended dose for post-menopausal women, due to bone loss. My feeling is none of these things can hurt, and maybe they are helping. That's very nice of you to get involved in the whole life of your client like that--what a lucky client you have. Sydney At 08:32 PM 4/11/2001 +0000, you wrote: >Hi I am new to the group. I joined because I have a client who will >be starting Lupron next week to treat a uterine fibroid (i am an >exercise physiologist). I was wondering if anyone out there has any >recomendations for her. She also was interested in alternatve >therapies which might help her with some of the symptoms she has been >told about. > > > > > Quote Link to comment Share on other sites More sharing options...
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