Guest guest Posted February 8, 2001 Report Share Posted February 8, 2001 I am considering a uterine fibroid embolization for large pedunculated fibroid,Can anyone tell me what to expect during the procedure and after? I do not want a hystetectomy! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2001 Report Share Posted February 9, 2001 Hi I wondered if it were " pre-shrink " with Lupron if then this fibroid might be removed through a laparoscopy,avoiding major abdominal surgery? Bonnie cailleach wrote: > Date: Thu, 8 Feb 2001 14:27:49 EST From: iscreamfor@... > Subject: pedinculated fibroids & embolization > > >I am considering a uterine fibroid embolization for large pedunculated > >fibroid,Can anyone tell me what to expect during the procedure and after? I > >do not want a hystetectomy! > > Have you spoken to an Interventional Radiologist yet? There are problems both with very large fibroids and with pedunculated fibroids for UAE, and you may be advised to have this fibroid removed by myomectomy. Removing a fibroid that is on a stalk is not difficult surgically and should not lead to a hysterectomy. Though if the fibroid is on the outside of your womb, removal would entail major abdominal surgery with quite a long recovery period. > > UAE on the other hand is a very easy procedure for the patient. There is bloating and pain (managed with drugs) afterwards, but this usually subsides after a week or maybe two. Some women have mild fever (this can also happen after surgery). The downside is that the fibroids are still in your body and the healing process takes many months during which you will be wondering how much size reduction and symptom relief you will get and you may get worrying discharges (usually normal, but a serious infection can develop, so D & C may be advised). This is expecially true of large fibroids. > > You don't say just how big and how pedunculated your fibroid is. I have a very large subserosal (outside of womb) fibroid, about 16 cm diameter. It is borderline pedunculated, narrower at its base but still with a substantial join to my uterus. (If a pedunculated fibroid is on a narrow stalk, surgery is definitely advised.) The IR said my big fibroid was shaped like a mouse ear. He recommended surgery. He says this type of fibroid is likely not to shrink very much, only 15-20%. (surgery =100%) Also it may accumulate liquid inside, swell and cause pain, again requiring surgery. And while subserosal fibroids are not prone to infection, if there are problems they can't be reached via the vagina (D & C, etc) as can submucosal fibroids. > > I decided to go ahead with the UAE, because I have a lot of smaller intramural fibroids which are not suitable for myomectomy and because I know of women with similar fibroids who did get good results from UAE. As I am only 2.5 weeks post UAE, I can't say how successful the procedure is going to be for me. But I am certainly not having a routine recovery. > > I was awake and aware (conscious sedation) for the procedure and it was fine. Afterwards I was given morphine and an antiemetic - I never vomited from it. Usually if women have problems with pain it is shortly after the embolisation, but my problems really got bad on the third day. And I was taking my pain medication regularly! > > I continued to have an occasional bout of severe pain for some days; the last one was on the 8th night post UAE. I am gradually becoming more active, and I am using far less pain medication (it doesn't seem to affect the type of pain I am having now). My abdomen remains swollen, bigger than it was before I went to hospital. The area around my big semi-pedunculated fibroid is big and hard. The fibroid is on my right hand side and I find I can't lie down on my left hand side without pain. Various bending and twisting movements cause great discomfort. I did manage to give a massage and a reflexology treatment yesterday. But a <3/4 mile walk had me in tears because I am usually a great walker and this little walk was causing me pain in my fibroid area. Not the screaming pain I sometimes experienced ~10 days ago, but bad enough. > > If you are not suitable for UAE, myomectomy is definitely a possibility with a pedunculated fibroid. If you have a lot of fibroids, it is possible to both have myo for the more accessible fibroids and UAE to get at everything. Donna Jung may wish to comment as she had a pedunculated fibroid and decided to get all her fibroids removed by myomectomy. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2001 Report Share Posted February 9, 2001 Hi I wondered if it were " pre-shrink " with Lupron if then this fibroid might be removed through a laparoscopy,avoiding major abdominal surgery? Bonnie cailleach wrote: > Date: Thu, 8 Feb 2001 14:27:49 EST From: iscreamfor@... > Subject: pedinculated fibroids & embolization > > >I am considering a uterine fibroid embolization for large pedunculated > >fibroid,Can anyone tell me what to expect during the procedure and after? I > >do not want a hystetectomy! > > Have you spoken to an Interventional Radiologist yet? There are problems both with very large fibroids and with pedunculated fibroids for UAE, and you may be advised to have this fibroid removed by myomectomy. Removing a fibroid that is on a stalk is not difficult surgically and should not lead to a hysterectomy. Though if the fibroid is on the outside of your womb, removal would entail major abdominal surgery with quite a long recovery period. > > UAE on the other hand is a very easy procedure for the patient. There is bloating and pain (managed with drugs) afterwards, but this usually subsides after a week or maybe two. Some women have mild fever (this can also happen after surgery). The downside is that the fibroids are still in your body and the healing process takes many months during which you will be wondering how much size reduction and symptom relief you will get and you may get worrying discharges (usually normal, but a serious infection can develop, so D & C may be advised). This is expecially true of large fibroids. > > You don't say just how big and how pedunculated your fibroid is. I have a very large subserosal (outside of womb) fibroid, about 16 cm diameter. It is borderline pedunculated, narrower at its base but still with a substantial join to my uterus. (If a pedunculated fibroid is on a narrow stalk, surgery is definitely advised.) The IR said my big fibroid was shaped like a mouse ear. He recommended surgery. He says this type of fibroid is likely not to shrink very much, only 15-20%. (surgery =100%) Also it may accumulate liquid inside, swell and cause pain, again requiring surgery. And while subserosal fibroids are not prone to infection, if there are problems they can't be reached via the vagina (D & C, etc) as can submucosal fibroids. > > I decided to go ahead with the UAE, because I have a lot of smaller intramural fibroids which are not suitable for myomectomy and because I know of women with similar fibroids who did get good results from UAE. As I am only 2.5 weeks post UAE, I can't say how successful the procedure is going to be for me. But I am certainly not having a routine recovery. > > I was awake and aware (conscious sedation) for the procedure and it was fine. Afterwards I was given morphine and an antiemetic - I never vomited from it. Usually if women have problems with pain it is shortly after the embolisation, but my problems really got bad on the third day. And I was taking my pain medication regularly! > > I continued to have an occasional bout of severe pain for some days; the last one was on the 8th night post UAE. I am gradually becoming more active, and I am using far less pain medication (it doesn't seem to affect the type of pain I am having now). My abdomen remains swollen, bigger than it was before I went to hospital. The area around my big semi-pedunculated fibroid is big and hard. The fibroid is on my right hand side and I find I can't lie down on my left hand side without pain. Various bending and twisting movements cause great discomfort. I did manage to give a massage and a reflexology treatment yesterday. But a <3/4 mile walk had me in tears because I am usually a great walker and this little walk was causing me pain in my fibroid area. Not the screaming pain I sometimes experienced ~10 days ago, but bad enough. > > If you are not suitable for UAE, myomectomy is definitely a possibility with a pedunculated fibroid. If you have a lot of fibroids, it is possible to both have myo for the more accessible fibroids and UAE to get at everything. Donna Jung may wish to comment as she had a pedunculated fibroid and decided to get all her fibroids removed by myomectomy. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2001 Report Share Posted February 9, 2001 " swan511 " wrote: > Hi Donna, > You returned to work 18 days after surgery????? Girl you are > making me feel good! (Myomectomy with Dr. West 3/18). > Hazel Hi Hazel, Yes, I went back to work this Monday, 2/5/01. Some people who knew about abdominal surgeries were surprised to see me walking around as if I never had surgery. Mind you, the incision is still numb and tender. Most surgeries are 2 to 3 hours. The MRI showed 7 fibroids. Dr. West found 30 fibroids and the surgery took 5 hours. He said I lost some blood. Dr. West made sure the bladder, bowels and other organs were out of the way to prevent damage to them. He used Interceed to prevent adhesions. He did a bikini cut. He used glue to close the incision. And he had plenty of experience. I believe these are what made my recovery easier. Hazel, you are in good hands. After surgery, as soon as you can, make sure you get up and walk around as much as you can. It helps with gas and prevents blood clots. How many fibroids do you have? How big? Where are they? Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2001 Report Share Posted February 10, 2001 I only have the one pedunculated fibroid on the outside of mu uterus the last measurement was 7.9cm x 4.8cm on the backside of my uterus midline. I have no symtoms. My GYN says its got to be right up against the colon. I am watchful for anything but I have no indications anything is wrong. We have been monitoring this for a year. My appoint is early March and at that time he would like for me to decide on what I would like to do. I decided to look at embolization because it was less invasive and to honest I am scared, I have never had surgery and don't want to be put under. All of your responses have given me things to think about and I thank you. My first option I still think will be the embolization, unless as I have now been informed of is, what the stalk is like. I have no idea about the stalk I'll have to ask at my next appointment. I will keep you posted. Quote Link to comment Share on other sites More sharing options...
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