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I am considering a uterine fibroid embolization for large pedunculated

fibroid,Can anyone tell me what to expect during the procedure and after? I

do not want a hystetectomy!

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Hi

I wondered if it were " pre-shrink " with Lupron if then this fibroid might be

removed through a laparoscopy,avoiding major abdominal surgery?

Bonnie

cailleach wrote:

> Date: Thu, 8 Feb 2001 14:27:49 EST From: iscreamfor@...

> Subject: pedinculated fibroids & embolization

>

> >I am considering a uterine fibroid embolization for large pedunculated

> >fibroid,Can anyone tell me what to expect during the procedure and after? I

> >do not want a hystetectomy!

>

> Have you spoken to an Interventional Radiologist yet? There are problems both

with very large fibroids and with pedunculated fibroids for UAE, and you may be

advised to have this fibroid removed by myomectomy. Removing a fibroid that is

on a stalk is not difficult surgically and should not lead to a hysterectomy.

Though if the fibroid is on the outside of your womb, removal would entail

major abdominal surgery with quite a long recovery period.

>

> UAE on the other hand is a very easy procedure for the patient. There is

bloating and pain (managed with drugs) afterwards, but this usually subsides

after a week or maybe two. Some women have mild fever (this can also happen

after surgery). The downside is that the fibroids are still in your body and

the healing process takes many months during which you will be wondering how

much size reduction and symptom relief you will get and you may get worrying

discharges (usually normal, but a serious infection can develop, so D & C may be

advised). This is expecially true of large fibroids.

>

> You don't say just how big and how pedunculated your fibroid is. I have a

very large subserosal (outside of womb) fibroid, about 16 cm diameter. It is

borderline pedunculated, narrower at its base but still with a substantial join

to my uterus. (If a pedunculated fibroid is on a narrow stalk, surgery is

definitely advised.) The IR said my big fibroid was shaped like a mouse ear. He

recommended surgery. He says this type of fibroid is likely not to shrink very

much, only 15-20%. (surgery =100%) Also it may accumulate liquid inside, swell

and cause pain, again requiring surgery. And while subserosal fibroids are not

prone to infection, if there are problems they can't be reached via the vagina

(D & C, etc) as can submucosal fibroids.

>

> I decided to go ahead with the UAE, because I have a lot of smaller intramural

fibroids which are not suitable for myomectomy and because I know of women with

similar fibroids who did get good results from UAE. As I am only 2.5 weeks post

UAE, I can't say how successful the procedure is going to be for me. But I am

certainly not having a routine recovery.

>

> I was awake and aware (conscious sedation) for the procedure and it was fine.

Afterwards I was given morphine and an antiemetic - I never vomited from it.

Usually if women have problems with pain it is shortly after the embolisation,

but my problems really got bad on the third day. And I was taking my pain

medication regularly!

>

> I continued to have an occasional bout of severe pain for some days; the last

one was on the 8th night post UAE. I am gradually becoming more active, and I

am using far less pain medication (it doesn't seem to affect the type of pain I

am having now). My abdomen remains swollen, bigger than it was before I went to

hospital. The area around my big semi-pedunculated fibroid is big and hard.

The fibroid is on my right hand side and I find I can't lie down on my left hand

side without pain. Various bending and twisting movements cause great

discomfort. I did manage to give a massage and a reflexology treatment

yesterday. But a <3/4 mile walk had me in tears because I am usually a great

walker and this little walk was causing me pain in my fibroid area. Not the

screaming pain I sometimes experienced ~10 days ago, but bad enough.

>

> If you are not suitable for UAE, myomectomy is definitely a possibility with a

pedunculated fibroid. If you have a lot of fibroids, it is possible to both

have myo for the more accessible fibroids and UAE to get at everything. Donna

Jung may wish to comment as she had a pedunculated fibroid and decided to get

all her fibroids removed by myomectomy.

>

>

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Hi

I wondered if it were " pre-shrink " with Lupron if then this fibroid might be

removed through a laparoscopy,avoiding major abdominal surgery?

Bonnie

cailleach wrote:

> Date: Thu, 8 Feb 2001 14:27:49 EST From: iscreamfor@...

> Subject: pedinculated fibroids & embolization

>

> >I am considering a uterine fibroid embolization for large pedunculated

> >fibroid,Can anyone tell me what to expect during the procedure and after? I

> >do not want a hystetectomy!

>

> Have you spoken to an Interventional Radiologist yet? There are problems both

with very large fibroids and with pedunculated fibroids for UAE, and you may be

advised to have this fibroid removed by myomectomy. Removing a fibroid that is

on a stalk is not difficult surgically and should not lead to a hysterectomy.

Though if the fibroid is on the outside of your womb, removal would entail

major abdominal surgery with quite a long recovery period.

>

> UAE on the other hand is a very easy procedure for the patient. There is

bloating and pain (managed with drugs) afterwards, but this usually subsides

after a week or maybe two. Some women have mild fever (this can also happen

after surgery). The downside is that the fibroids are still in your body and

the healing process takes many months during which you will be wondering how

much size reduction and symptom relief you will get and you may get worrying

discharges (usually normal, but a serious infection can develop, so D & C may be

advised). This is expecially true of large fibroids.

>

> You don't say just how big and how pedunculated your fibroid is. I have a

very large subserosal (outside of womb) fibroid, about 16 cm diameter. It is

borderline pedunculated, narrower at its base but still with a substantial join

to my uterus. (If a pedunculated fibroid is on a narrow stalk, surgery is

definitely advised.) The IR said my big fibroid was shaped like a mouse ear. He

recommended surgery. He says this type of fibroid is likely not to shrink very

much, only 15-20%. (surgery =100%) Also it may accumulate liquid inside, swell

and cause pain, again requiring surgery. And while subserosal fibroids are not

prone to infection, if there are problems they can't be reached via the vagina

(D & C, etc) as can submucosal fibroids.

>

> I decided to go ahead with the UAE, because I have a lot of smaller intramural

fibroids which are not suitable for myomectomy and because I know of women with

similar fibroids who did get good results from UAE. As I am only 2.5 weeks post

UAE, I can't say how successful the procedure is going to be for me. But I am

certainly not having a routine recovery.

>

> I was awake and aware (conscious sedation) for the procedure and it was fine.

Afterwards I was given morphine and an antiemetic - I never vomited from it.

Usually if women have problems with pain it is shortly after the embolisation,

but my problems really got bad on the third day. And I was taking my pain

medication regularly!

>

> I continued to have an occasional bout of severe pain for some days; the last

one was on the 8th night post UAE. I am gradually becoming more active, and I

am using far less pain medication (it doesn't seem to affect the type of pain I

am having now). My abdomen remains swollen, bigger than it was before I went to

hospital. The area around my big semi-pedunculated fibroid is big and hard.

The fibroid is on my right hand side and I find I can't lie down on my left hand

side without pain. Various bending and twisting movements cause great

discomfort. I did manage to give a massage and a reflexology treatment

yesterday. But a <3/4 mile walk had me in tears because I am usually a great

walker and this little walk was causing me pain in my fibroid area. Not the

screaming pain I sometimes experienced ~10 days ago, but bad enough.

>

> If you are not suitable for UAE, myomectomy is definitely a possibility with a

pedunculated fibroid. If you have a lot of fibroids, it is possible to both

have myo for the more accessible fibroids and UAE to get at everything. Donna

Jung may wish to comment as she had a pedunculated fibroid and decided to get

all her fibroids removed by myomectomy.

>

>

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" swan511 " wrote:

> Hi Donna,

> You returned to work 18 days after surgery????? Girl you are

> making me feel good! (Myomectomy with Dr. West 3/18).

> Hazel

Hi Hazel,

Yes, I went back to work this Monday, 2/5/01. Some people who knew

about abdominal surgeries were surprised to see me walking around as

if I never had surgery. Mind you, the incision is still numb and

tender.

Most surgeries are 2 to 3 hours. The MRI showed 7 fibroids. Dr.

West found 30 fibroids and the surgery took 5 hours. He said I lost

some blood.

Dr. West made sure the bladder, bowels and other organs were out of

the way to prevent damage to them. He used Interceed to prevent

adhesions. He did a bikini cut. He used glue to close the

incision. And he had plenty of experience. I believe these are what

made my recovery easier.

Hazel, you are in good hands. After surgery, as soon as you can,

make sure you get up and walk around as much as you can. It helps

with gas and prevents blood clots.

How many fibroids do you have? How big? Where are they?

Donna

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I only have the one pedunculated fibroid on the outside of mu uterus the last

measurement was 7.9cm x 4.8cm on the backside of my uterus midline. I have no

symtoms. My GYN says its got to be right up against the colon. I am watchful

for anything but I have no indications anything is wrong. We have been

monitoring this for a year. My appoint is early March and at that time he

would like for me to decide on what I would like to do. I decided to look at

embolization because it was less invasive and to honest I am scared, I have

never had surgery and don't want to be put under. All of your responses have

given me things to think about and I thank you. My first option I still think

will be the embolization, unless as I have now been informed of is, what the

stalk is like. I have no idea about the stalk I'll have to ask at my next

appointment. I will keep you posted.

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