Re: Don't give up on your uterus yet!

[Guest guest]

Pardon me, Jeanne, I certainly did not want to be unsupportive. but

investigating everything carefully can only help one come to better

decision-- whatever that is. Regardless of what you base you

decision on-- it's still YOUR decision. Melody

> > But we don't normally cut off our leg if we have a

> > benign growth on our foot.

> >

> > ----

> > My sentiments exactly! Leonie

> >

> >

> >

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> >

[Guest guest]

Jeanne - long before i knew of this egroup (unfortunately) i had been

referred to a woman named Nora Coffey from HERS foundation...she's basically

a women's activist/advocate AGAINST hysterectomy & you can have a phone

conversation with her for $15 ... she knows her stuff...had recommended a

doctor in new york for me for a myo but i had UAE instead (not a total

success)...that aside, she may have a list of doctors who are indeed skilled

surgeons in myo in your area as well...i can search for her # & i know shes

on line somewhere if you're interested...Joan

[Guest guest]

Jeanne,

I just attended the HERS convention in Philadelphia. A gynecologist spoke

at this conference. His name is Levine, M.D. He said it is

always possible to remove fibroids. He has never had to do a hysterectomy

because of fibroids, no matter the number, size or location. He said it is

a documented fact that 15-20% of ovaries quit functioning after the removal

of the uterus. I do not have his phone number, but it says in the

conference brochure he is Clinical Associate Professor at Boston University

School of Medicine. I have never been a patient of his. I wish I had known

about a doctor like this 3 years ago.

I can't tell you what to do, except explore all of your options.

DJS

PS. I had two healthy ovaries before surgery, and I am now taking hormone

substitution therapy. At age 40, a gyn at a university medical center told

me my ovaries were small (the size of a menopausal woman) , " but I guess

that's not uncommon after hysterectomy " , that I was in perimenopause (I was

not even close prior to hysterectomy), and prescribed me a hormone that

ended up giving me shortness of breath, and heart palpitations. For me,

hysterectomy has been exchanging one set of problems for another. Some

women have no problems, but others do.

Re: Don't give up on your uterus yet!

> Jeanne - long before i knew of this egroup (unfortunately) i had been

> referred to a woman named Nora Coffey from HERS foundation...she's

basically

> a women's activist/advocate AGAINST hysterectomy & you can have a phone

> conversation with her for $15 ... she knows her stuff...had recommended a

> doctor in new york for me for a myo but i had UAE instead (not a total

> success)...that aside, she may have a list of doctors who are indeed

skilled

> surgeons in myo in your area as well...i can search for her # & i know

shes

> on line somewhere if you're interested...Joan

>

>

>

[Guest guest]

Jeanne,

I just attended the HERS convention in Philadelphia. A gynecologist spoke

at this conference. His name is Levine, M.D. He said it is

always possible to remove fibroids. He has never had to do a hysterectomy

because of fibroids, no matter the number, size or location. He said it is

a documented fact that 15-20% of ovaries quit functioning after the removal

of the uterus. I do not have his phone number, but it says in the

conference brochure he is Clinical Associate Professor at Boston University

School of Medicine. I have never been a patient of his. I wish I had known

about a doctor like this 3 years ago.

I can't tell you what to do, except explore all of your options.

DJS

PS. I had two healthy ovaries before surgery, and I am now taking hormone

substitution therapy. At age 40, a gyn at a university medical center told

me my ovaries were small (the size of a menopausal woman) , " but I guess

that's not uncommon after hysterectomy " , that I was in perimenopause (I was

not even close prior to hysterectomy), and prescribed me a hormone that

ended up giving me shortness of breath, and heart palpitations. For me,

hysterectomy has been exchanging one set of problems for another. Some

women have no problems, but others do.

Re: Don't give up on your uterus yet!

> Jeanne - long before i knew of this egroup (unfortunately) i had been

> referred to a woman named Nora Coffey from HERS foundation...she's

basically

> a women's activist/advocate AGAINST hysterectomy & you can have a phone

> conversation with her for $15 ... she knows her stuff...had recommended a

> doctor in new york for me for a myo but i had UAE instead (not a total

> success)...that aside, she may have a list of doctors who are indeed

skilled

> surgeons in myo in your area as well...i can search for her # & i know

shes

> on line somewhere if you're interested...Joan

>

>

>

[Guest guest]

Actually it is the perfect analogy (IMHO)...There are many people who live

productive lives without a leg... (Isn't that what we are told about our

uterus?) :0

--

>Not the perfect anaogly; you need your leg; each of us are different and

>should supporting others in their decisions; if your appendix is bad - you

>take it out.

>

> Re: Don't give up on your uterus yet!

>

>

>> Melody wrote:

>> But we don't normally cut off our leg if we have a

>> benign growth on our foot.

>>

>> ----

>> My sentiments exactly! Leonie

>>

>>

>>

>> ______________________________________

>> This message, together with any attachments, is intended only for the

>> use of the individual or entity to which it is addressed and may contain

>> information that is legally privileged, confidential and exempt from

>> disclosure. If you are not the intended recipient, you are hereby

>> notified that any dissemination, distribution, or copying of this

>> message,or any attachment, is strictly prohibited. If you have received

>> this message in error, please notify the original sender (or the WSPR

>> Help Desk) immediately by telephone () or by return

>> E-mail and delete the message, along with any attachments, from

>> your computer. Thank you.

>>

>>

>>

>>

>>

>>

>>

>>

[Guest guest]

Actually it is the perfect analogy (IMHO)...There are many people who live

productive lives without a leg... (Isn't that what we are told about our

uterus?) :0

--

>Not the perfect anaogly; you need your leg; each of us are different and

>should supporting others in their decisions; if your appendix is bad - you

>take it out.

>

> Re: Don't give up on your uterus yet!

>

>

>> Melody wrote:

>> But we don't normally cut off our leg if we have a

>> benign growth on our foot.

>>

>> ----

>> My sentiments exactly! Leonie

>>

>>

>>

>> ______________________________________

>> This message, together with any attachments, is intended only for the

>> use of the individual or entity to which it is addressed and may contain

>> information that is legally privileged, confidential and exempt from

>> disclosure. If you are not the intended recipient, you are hereby

>> notified that any dissemination, distribution, or copying of this

>> message,or any attachment, is strictly prohibited. If you have received

>> this message in error, please notify the original sender (or the WSPR

>> Help Desk) immediately by telephone () or by return

>> E-mail and delete the message, along with any attachments, from

>> your computer. Thank you.

>>

>>

>>

>>

>>

>>

>>

>>