Re: Don't give up on your uterus yet!

[Guest guest]

Melody wrote:

But we don't normally cut off our leg if we have a

benign growth on our foot.

----

My sentiments exactly! Leonie

______________________________________

This message, together with any attachments, is intended only for the

use of the individual or entity to which it is addressed and may contain

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notified that any dissemination, distribution, or copying of this

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this message in error, please notify the original sender (or the WSPR

Help Desk) immediately by telephone () or by return

E-mail and delete the message, along with any attachments, from

your computer. Thank you.

[Guest guest]

Melody wrote:

But we don't normally cut off our leg if we have a

benign growth on our foot.

----

My sentiments exactly! Leonie

______________________________________

This message, together with any attachments, is intended only for the

use of the individual or entity to which it is addressed and may contain

information that is legally privileged, confidential and exempt from

disclosure. If you are not the intended recipient, you are hereby

notified that any dissemination, distribution, or copying of this

message,or any attachment, is strictly prohibited. If you have received

this message in error, please notify the original sender (or the WSPR

Help Desk) immediately by telephone () or by return

E-mail and delete the message, along with any attachments, from

your computer. Thank you.

[Guest guest]

Melody wrote:

But we don't normally cut off our leg if we have a

benign growth on our foot.

----

My sentiments exactly! Leonie

______________________________________

This message, together with any attachments, is intended only for the

use of the individual or entity to which it is addressed and may contain

information that is legally privileged, confidential and exempt from

disclosure. If you are not the intended recipient, you are hereby

notified that any dissemination, distribution, or copying of this

message,or any attachment, is strictly prohibited. If you have received

this message in error, please notify the original sender (or the WSPR

Help Desk) immediately by telephone () or by return

E-mail and delete the message, along with any attachments, from

your computer. Thank you.

[Guest guest]

Not the perfect anaogly; you need your leg; each of us are different and

should supporting others in their decisions; if your appendix is bad - you

take it out.

Re: Don't give up on your uterus yet!

> Melody wrote:

> But we don't normally cut off our leg if we have a

> benign growth on our foot.

>

> ----

> My sentiments exactly! Leonie

>

>

>

> ______________________________________

> This message, together with any attachments, is intended only for the

> use of the individual or entity to which it is addressed and may contain

> information that is legally privileged, confidential and exempt from

> disclosure. If you are not the intended recipient, you are hereby

> notified that any dissemination, distribution, or copying of this

> message,or any attachment, is strictly prohibited. If you have received

> this message in error, please notify the original sender (or the WSPR

> Help Desk) immediately by telephone () or by return

> E-mail and delete the message, along with any attachments, from

> your computer. Thank you.

>

>

>

>

>

>

>

>

[Guest guest]

Not the perfect anaogly; you need your leg; each of us are different and

should supporting others in their decisions; if your appendix is bad - you

take it out.

Re: Don't give up on your uterus yet!

> Melody wrote:

> But we don't normally cut off our leg if we have a

> benign growth on our foot.

>

> ----

> My sentiments exactly! Leonie

>

>

>

> ______________________________________

> This message, together with any attachments, is intended only for the

> use of the individual or entity to which it is addressed and may contain

> information that is legally privileged, confidential and exempt from

> disclosure. If you are not the intended recipient, you are hereby

> notified that any dissemination, distribution, or copying of this

> message,or any attachment, is strictly prohibited. If you have received

> this message in error, please notify the original sender (or the WSPR

> Help Desk) immediately by telephone () or by return

> E-mail and delete the message, along with any attachments, from

> your computer. Thank you.

>

>

>

>

>

>

>

>

[Guest guest]

Jeanne Eisenstein wrote:

Not the perfect anaogly; you need your leg; each of us are different and

should supporting others in their decisions; if your appendix is bad - you

take it out.

-------------

Jeanne, women also need their uteri. But we've been talked into believing that

we don't, many years ago because there were no other options available to treat

many aliments, today because of custom, reluctance to change, and I do believe,

financial motives in some cases. Many years ago legs were amputated much more

frequently than today. But because we can SEE what our legs do for us, there

was more pressure to develop other ways of treating leg ailments.

Unfortunately, too many of the things our uteri and ovaries do for us are not

visible to our eyes or even unknown to this day, and those women who have lost

their uteri and ovaries and are suffering as a result are too often not heard

when they try to tell us what they go through following hysterectomy. Please

note that I am NOT saying every woman who has a hysterectomy suffers problems,

but every hysterectomy has many consequences in the body.

I believe we are just at the start of learning about what our uteri do for us,

as well as just at the start of learning what happens to our bodies when they

are removed. Please see my email this morning regarding the cervix.

Jeanne, should you feel, after learning the pros and cons of your various

options, that hysterectomy is the correct choice for you, I will support your

choice 100%. But please don't go into it thinking there are no consequences to

a hysterectomy. Best of luck to you, what ever your decision, Leonie

______________________________________

This message, together with any attachments, is intended only for the

use of the individual or entity to which it is addressed and may contain

information that is legally privileged, confidential and exempt from

disclosure. If you are not the intended recipient, you are hereby

notified that any dissemination, distribution, or copying of this

message,or any attachment, is strictly prohibited. If you have received

this message in error, please notify the original sender (or the WSPR

Help Desk) immediately by telephone () or by return

E-mail and delete the message, along with any attachments, from

your computer. Thank you.

[Guest guest]

Jeanne Eisenstein wrote:

Not the perfect anaogly; you need your leg; each of us are different and

should supporting others in their decisions; if your appendix is bad - you

take it out.

-------------

Jeanne, women also need their uteri. But we've been talked into believing that

we don't, many years ago because there were no other options available to treat

many aliments, today because of custom, reluctance to change, and I do believe,

financial motives in some cases. Many years ago legs were amputated much more

frequently than today. But because we can SEE what our legs do for us, there

was more pressure to develop other ways of treating leg ailments.

Unfortunately, too many of the things our uteri and ovaries do for us are not

visible to our eyes or even unknown to this day, and those women who have lost

their uteri and ovaries and are suffering as a result are too often not heard

when they try to tell us what they go through following hysterectomy. Please

note that I am NOT saying every woman who has a hysterectomy suffers problems,

but every hysterectomy has many consequences in the body.

I believe we are just at the start of learning about what our uteri do for us,

as well as just at the start of learning what happens to our bodies when they

are removed. Please see my email this morning regarding the cervix.

Jeanne, should you feel, after learning the pros and cons of your various

options, that hysterectomy is the correct choice for you, I will support your

choice 100%. But please don't go into it thinking there are no consequences to

a hysterectomy. Best of luck to you, what ever your decision, Leonie

______________________________________

This message, together with any attachments, is intended only for the

use of the individual or entity to which it is addressed and may contain

information that is legally privileged, confidential and exempt from

disclosure. If you are not the intended recipient, you are hereby

notified that any dissemination, distribution, or copying of this

message,or any attachment, is strictly prohibited. If you have received

this message in error, please notify the original sender (or the WSPR

Help Desk) immediately by telephone () or by return

E-mail and delete the message, along with any attachments, from

your computer. Thank you.

[Guest guest]

Jeanne Eisenstein wrote:

Not the perfect anaogly; you need your leg; each of us are different and

should supporting others in their decisions; if your appendix is bad - you

take it out.

-------------

Jeanne, women also need their uteri. But we've been talked into believing that

we don't, many years ago because there were no other options available to treat

many aliments, today because of custom, reluctance to change, and I do believe,

financial motives in some cases. Many years ago legs were amputated much more

frequently than today. But because we can SEE what our legs do for us, there

was more pressure to develop other ways of treating leg ailments.

Unfortunately, too many of the things our uteri and ovaries do for us are not

visible to our eyes or even unknown to this day, and those women who have lost

their uteri and ovaries and are suffering as a result are too often not heard

when they try to tell us what they go through following hysterectomy. Please

note that I am NOT saying every woman who has a hysterectomy suffers problems,

but every hysterectomy has many consequences in the body.

I believe we are just at the start of learning about what our uteri do for us,

as well as just at the start of learning what happens to our bodies when they

are removed. Please see my email this morning regarding the cervix.

Jeanne, should you feel, after learning the pros and cons of your various

options, that hysterectomy is the correct choice for you, I will support your

choice 100%. But please don't go into it thinking there are no consequences to

a hysterectomy. Best of luck to you, what ever your decision, Leonie

______________________________________

This message, together with any attachments, is intended only for the

use of the individual or entity to which it is addressed and may contain

information that is legally privileged, confidential and exempt from

disclosure. If you are not the intended recipient, you are hereby

notified that any dissemination, distribution, or copying of this

message,or any attachment, is strictly prohibited. If you have received

this message in error, please notify the original sender (or the WSPR

Help Desk) immediately by telephone () or by return

E-mail and delete the message, along with any attachments, from

your computer. Thank you.

[Guest guest]

I'm not throwing in the towel yet, but I must say it's very difficult to

know what is fact. Our medical professionals are not helping and I

certainly get mixed feeling from what I read on the internet. When we are

corresponding with each other in this group we get bits and pieces, not

medical histories so our opinions and intrepretations can be inaccurate. We

need more details included in our communications. Like, Dee's comments.

Sounds like a miracle; why won't she share who and where this doctor is?

I've been reading a lot and I've been told I'm " large " at a 20 week size

uterus (17cm) but my myoma is only 10 cm. It's incredable how Dee has a

20-week size uterus and a 19cm myoma. I've been told by two doctors that I

am too large and due to previous scarring from endo and tube removal, not a

good candidate to have either a myomectomy or a LAVH. I'm in ville,

Florida and have not yet found a doctor like Dee described. However, I am

getting closer. The doctor at the Mayo Clinic, stating that a LAVM or LAVH

could be possible with the right level of expertise with the larproscope and

referred me to Dr. Camran Nezhat in Atlanta. From what I heard and read

he/they are awsome with the laproscope and when I spoke with their office

(after reading your posting Leonie) they seem a little more open. Who

knows, I may even be a possible candidate for myomectomy (I could only

hope). Please let me know if anyone else has heard of these brothers in

Atlanta. What you shared about the cervix is interesting and is making me

think (which is the purpose of this group). I feel silly saying this, but I

don't know if I feel my husband's penis or pressure therefrom on my cervix.

He's onthe large side and I'm on the small side - but I don't know! What I

do know is right know in my current state, intercourse is already painful.

Stick with me

Re: Don't give up on your uterus yet!

> Jeanne Eisenstein wrote:

> Not the perfect anaogly; you need your leg; each of us are different and

> should supporting others in their decisions; if your appendix is bad -

you

> take it out.

> -------------

> Jeanne, women also need their uteri. But we've been talked into believing

that

> we don't, many years ago because there were no other options available to

treat

> many aliments, today because of custom, reluctance to change, and I do

believe,

> financial motives in some cases. Many years ago legs were amputated much

more

> frequently than today. But because we can SEE what our legs do for us,

there

> was more pressure to develop other ways of treating leg ailments.

> Unfortunately, too many of the things our uteri and ovaries do for us are

not

> visible to our eyes or even unknown to this day, and those women who have

lost

> their uteri and ovaries and are suffering as a result are too often not

heard

> when they try to tell us what they go through following hysterectomy.

Please

> note that I am NOT saying every woman who has a hysterectomy suffers

problems,

> but every hysterectomy has many consequences in the body.

>

> I believe we are just at the start of learning about what our uteri do for

us,

> as well as just at the start of learning what happens to our bodies when

they

> are removed. Please see my email this morning regarding the cervix.

>

> Jeanne, should you feel, after learning the pros and cons of your various

> options, that hysterectomy is the correct choice for you, I will support

your

> choice 100%. But please don't go into it thinking there are no

consequences to

> a hysterectomy. Best of luck to you, what ever your decision, Leonie

>

>

>

> ______________________________________

> This message, together with any attachments, is intended only for the

> use of the individual or entity to which it is addressed and may contain

> information that is legally privileged, confidential and exempt from

> disclosure. If you are not the intended recipient, you are hereby

> notified that any dissemination, distribution, or copying of this

> message,or any attachment, is strictly prohibited. If you have received

> this message in error, please notify the original sender (or the WSPR

> Help Desk) immediately by telephone () or by return

> E-mail and delete the message, along with any attachments, from

> your computer. Thank you.

>

>

>

>

>

>

>

>

[Guest guest]

I'm not throwing in the towel yet, but I must say it's very difficult to

know what is fact. Our medical professionals are not helping and I

certainly get mixed feeling from what I read on the internet. When we are

corresponding with each other in this group we get bits and pieces, not

medical histories so our opinions and intrepretations can be inaccurate. We

need more details included in our communications. Like, Dee's comments.

Sounds like a miracle; why won't she share who and where this doctor is?

I've been reading a lot and I've been told I'm " large " at a 20 week size

uterus (17cm) but my myoma is only 10 cm. It's incredable how Dee has a

20-week size uterus and a 19cm myoma. I've been told by two doctors that I

am too large and due to previous scarring from endo and tube removal, not a

good candidate to have either a myomectomy or a LAVH. I'm in ville,

Florida and have not yet found a doctor like Dee described. However, I am

getting closer. The doctor at the Mayo Clinic, stating that a LAVM or LAVH

could be possible with the right level of expertise with the larproscope and

referred me to Dr. Camran Nezhat in Atlanta. From what I heard and read

he/they are awsome with the laproscope and when I spoke with their office

(after reading your posting Leonie) they seem a little more open. Who

knows, I may even be a possible candidate for myomectomy (I could only

hope). Please let me know if anyone else has heard of these brothers in

Atlanta. What you shared about the cervix is interesting and is making me

think (which is the purpose of this group). I feel silly saying this, but I

don't know if I feel my husband's penis or pressure therefrom on my cervix.

He's onthe large side and I'm on the small side - but I don't know! What I

do know is right know in my current state, intercourse is already painful.

Stick with me

Re: Don't give up on your uterus yet!

> Jeanne Eisenstein wrote:

> Not the perfect anaogly; you need your leg; each of us are different and

> should supporting others in their decisions; if your appendix is bad -

you

> take it out.

> -------------

> Jeanne, women also need their uteri. But we've been talked into believing

that

> we don't, many years ago because there were no other options available to

treat

> many aliments, today because of custom, reluctance to change, and I do

believe,

> financial motives in some cases. Many years ago legs were amputated much

more

> frequently than today. But because we can SEE what our legs do for us,

there

> was more pressure to develop other ways of treating leg ailments.

> Unfortunately, too many of the things our uteri and ovaries do for us are

not

> visible to our eyes or even unknown to this day, and those women who have

lost

> their uteri and ovaries and are suffering as a result are too often not

heard

> when they try to tell us what they go through following hysterectomy.

Please

> note that I am NOT saying every woman who has a hysterectomy suffers

problems,

> but every hysterectomy has many consequences in the body.

>

> I believe we are just at the start of learning about what our uteri do for

us,

> as well as just at the start of learning what happens to our bodies when

they

> are removed. Please see my email this morning regarding the cervix.

>

> Jeanne, should you feel, after learning the pros and cons of your various

> options, that hysterectomy is the correct choice for you, I will support

your

> choice 100%. But please don't go into it thinking there are no

consequences to

> a hysterectomy. Best of luck to you, what ever your decision, Leonie

>

>

>

> ______________________________________

> This message, together with any attachments, is intended only for the

> use of the individual or entity to which it is addressed and may contain

> information that is legally privileged, confidential and exempt from

> disclosure. If you are not the intended recipient, you are hereby

> notified that any dissemination, distribution, or copying of this

> message,or any attachment, is strictly prohibited. If you have received

> this message in error, please notify the original sender (or the WSPR

> Help Desk) immediately by telephone () or by return

> E-mail and delete the message, along with any attachments, from

> your computer. Thank you.

>

>

>

>

>

>

>

>

[Guest guest]

I'm not throwing in the towel yet, but I must say it's very difficult to

know what is fact. Our medical professionals are not helping and I

certainly get mixed feeling from what I read on the internet. When we are

corresponding with each other in this group we get bits and pieces, not

medical histories so our opinions and intrepretations can be inaccurate. We

need more details included in our communications. Like, Dee's comments.

Sounds like a miracle; why won't she share who and where this doctor is?

I've been reading a lot and I've been told I'm " large " at a 20 week size

uterus (17cm) but my myoma is only 10 cm. It's incredable how Dee has a

20-week size uterus and a 19cm myoma. I've been told by two doctors that I

am too large and due to previous scarring from endo and tube removal, not a

good candidate to have either a myomectomy or a LAVH. I'm in ville,

Florida and have not yet found a doctor like Dee described. However, I am

getting closer. The doctor at the Mayo Clinic, stating that a LAVM or LAVH

could be possible with the right level of expertise with the larproscope and

referred me to Dr. Camran Nezhat in Atlanta. From what I heard and read

he/they are awsome with the laproscope and when I spoke with their office

(after reading your posting Leonie) they seem a little more open. Who

knows, I may even be a possible candidate for myomectomy (I could only

hope). Please let me know if anyone else has heard of these brothers in

Atlanta. What you shared about the cervix is interesting and is making me

think (which is the purpose of this group). I feel silly saying this, but I

don't know if I feel my husband's penis or pressure therefrom on my cervix.

He's onthe large side and I'm on the small side - but I don't know! What I

do know is right know in my current state, intercourse is already painful.

Stick with me

Re: Don't give up on your uterus yet!

> Jeanne Eisenstein wrote:

> Not the perfect anaogly; you need your leg; each of us are different and

> should supporting others in their decisions; if your appendix is bad -

you

> take it out.

> -------------

> Jeanne, women also need their uteri. But we've been talked into believing

that

> we don't, many years ago because there were no other options available to

treat

> many aliments, today because of custom, reluctance to change, and I do

believe,

> financial motives in some cases. Many years ago legs were amputated much

more

> frequently than today. But because we can SEE what our legs do for us,

there

> was more pressure to develop other ways of treating leg ailments.

> Unfortunately, too many of the things our uteri and ovaries do for us are

not

> visible to our eyes or even unknown to this day, and those women who have

lost

> their uteri and ovaries and are suffering as a result are too often not

heard

> when they try to tell us what they go through following hysterectomy.

Please

> note that I am NOT saying every woman who has a hysterectomy suffers

problems,

> but every hysterectomy has many consequences in the body.

>

> I believe we are just at the start of learning about what our uteri do for

us,

> as well as just at the start of learning what happens to our bodies when

they

> are removed. Please see my email this morning regarding the cervix.

>

> Jeanne, should you feel, after learning the pros and cons of your various

> options, that hysterectomy is the correct choice for you, I will support

your

> choice 100%. But please don't go into it thinking there are no

consequences to

> a hysterectomy. Best of luck to you, what ever your decision, Leonie

>

>

>

> ______________________________________

> This message, together with any attachments, is intended only for the

> use of the individual or entity to which it is addressed and may contain

> information that is legally privileged, confidential and exempt from

> disclosure. If you are not the intended recipient, you are hereby

> notified that any dissemination, distribution, or copying of this

> message,or any attachment, is strictly prohibited. If you have received

> this message in error, please notify the original sender (or the WSPR

> Help Desk) immediately by telephone () or by return

> E-mail and delete the message, along with any attachments, from

> your computer. Thank you.

>

>

>

>

>

>

>

>

[Guest guest]

Jeanne,

A couple of suggestions. Since you just joined the group I can imagine

that following the threads of posters may be a bit difficult for you.

It doesn't hurt to spend some time in the archives of emails to

understand more of what's going on within this group. You can get

access to them here:

/group/uterinefibroids

scroll down for the monthly table of archived email. clicking on a

month will take you to the posts for that time period.

If we've discussed any given doctors in the past, you can search on

their name in the search box for messages as well. Also, reading the

files and links on egroups for this group may be helpful.

As for doctors and " checking them out " -- I've found the search engine

google.com to be most useful. Type in Dr. Camran Nezhat and see what

you get. Also, don't forget to check with the medical board and also

check on board certifications. There's more on my website about how you

can go about checking out a doctor:

http://www.uterinefibroids.com/t_doc.htm

There's also a link to all the state medical boards from that web page.

Sharing our personal experiences about our physicians is something we do

frequently -- but giving out specifically good or bad advice that might

make someone choose to seek out or avoid any given physician is tricky

business on the internet. No one wants to be sued. Either a woman who

sought out the physician and was, perhaps, treated badly, OR by the

physician who doesn't much care for defamatory statements about him/her

might find it within his/her nature to sue. So, typically we proceed

with caution when sharing the names of doctors online. We still do it.

But cautiously and generally with a lot of disclaimers over the

information. Each patient's experience with any given physician is

unique.

Carla

Jeanne Eisenstein wrote:

> I'm not throwing in the towel yet, but I must say it's very difficult

> to

> know what is fact. Our medical professionals are not helping and I

> certainly get mixed feeling from what I read on the internet. When we

> are

> corresponding with each other in this group we get bits and pieces,

> not

> medical histories so our opinions and intrepretations can be

> inaccurate. We

> need more details included in our communications. Like, Dee's

> comments.

> Sounds like a miracle; why won't she share who and where this doctor

> is?

> I've been reading a lot and I've been told I'm " large " at a 20 week

> size

> uterus (17cm) but my myoma is only 10 cm. It's incredable how Dee has

> a

> 20-week size uterus and a 19cm myoma. I've been told by two doctors

> that I

> am too large and due to previous scarring from endo and tube removal,

> not a

> good candidate to have either a myomectomy or a LAVH. I'm in

> ville,

> Florida and have not yet found a doctor like Dee described. However,

> I am

> getting closer. The doctor at the Mayo Clinic, stating that a LAVM or

> LAVH

> could be possible with the right level of expertise with the

> larproscope and

> referred me to Dr. Camran Nezhat in Atlanta. From what I heard and

> read

> he/they are awsome with the laproscope and when I spoke with their

> office

> (after reading your posting Leonie) they seem a little more open. Who

>

> knows, I may even be a possible candidate for myomectomy (I could only

>

> hope). Please let me know if anyone else has heard of these brothers

> in

> Atlanta. What you shared about the cervix is interesting and is

> making me

> think (which is the purpose of this group). I feel silly saying this,

> but I

> don't know if I feel my husband's penis or pressure therefrom on my

> cervix.

> He's onthe large side and I'm on the small side - but I don't know!

> What I

> do know is right know in my current state, intercourse is already

> painful.

>

> Stick with me

[Guest guest]

Jeanne,

A couple of suggestions. Since you just joined the group I can imagine

that following the threads of posters may be a bit difficult for you.

It doesn't hurt to spend some time in the archives of emails to

understand more of what's going on within this group. You can get

access to them here:

/group/uterinefibroids

scroll down for the monthly table of archived email. clicking on a

month will take you to the posts for that time period.

If we've discussed any given doctors in the past, you can search on

their name in the search box for messages as well. Also, reading the

files and links on egroups for this group may be helpful.

As for doctors and " checking them out " -- I've found the search engine

google.com to be most useful. Type in Dr. Camran Nezhat and see what

you get. Also, don't forget to check with the medical board and also

check on board certifications. There's more on my website about how you

can go about checking out a doctor:

http://www.uterinefibroids.com/t_doc.htm

There's also a link to all the state medical boards from that web page.

Sharing our personal experiences about our physicians is something we do

frequently -- but giving out specifically good or bad advice that might

make someone choose to seek out or avoid any given physician is tricky

business on the internet. No one wants to be sued. Either a woman who

sought out the physician and was, perhaps, treated badly, OR by the

physician who doesn't much care for defamatory statements about him/her

might find it within his/her nature to sue. So, typically we proceed

with caution when sharing the names of doctors online. We still do it.

But cautiously and generally with a lot of disclaimers over the

information. Each patient's experience with any given physician is

unique.

Carla

Jeanne Eisenstein wrote:

> I'm not throwing in the towel yet, but I must say it's very difficult

> to

> know what is fact. Our medical professionals are not helping and I

> certainly get mixed feeling from what I read on the internet. When we

> are

> corresponding with each other in this group we get bits and pieces,

> not

> medical histories so our opinions and intrepretations can be

> inaccurate. We

> need more details included in our communications. Like, Dee's

> comments.

> Sounds like a miracle; why won't she share who and where this doctor

> is?

> I've been reading a lot and I've been told I'm " large " at a 20 week

> size

> uterus (17cm) but my myoma is only 10 cm. It's incredable how Dee has

> a

> 20-week size uterus and a 19cm myoma. I've been told by two doctors

> that I

> am too large and due to previous scarring from endo and tube removal,

> not a

> good candidate to have either a myomectomy or a LAVH. I'm in

> ville,

> Florida and have not yet found a doctor like Dee described. However,

> I am

> getting closer. The doctor at the Mayo Clinic, stating that a LAVM or

> LAVH

> could be possible with the right level of expertise with the

> larproscope and

> referred me to Dr. Camran Nezhat in Atlanta. From what I heard and

> read

> he/they are awsome with the laproscope and when I spoke with their

> office

> (after reading your posting Leonie) they seem a little more open. Who

>

> knows, I may even be a possible candidate for myomectomy (I could only

>

> hope). Please let me know if anyone else has heard of these brothers

> in

> Atlanta. What you shared about the cervix is interesting and is

> making me

> think (which is the purpose of this group). I feel silly saying this,

> but I

> don't know if I feel my husband's penis or pressure therefrom on my

> cervix.

> He's onthe large side and I'm on the small side - but I don't know!

> What I

> do know is right know in my current state, intercourse is already

> painful.

>

> Stick with me

[Guest guest]

Jeanne,

A couple of suggestions. Since you just joined the group I can imagine

that following the threads of posters may be a bit difficult for you.

It doesn't hurt to spend some time in the archives of emails to

understand more of what's going on within this group. You can get

access to them here:

/group/uterinefibroids

scroll down for the monthly table of archived email. clicking on a

month will take you to the posts for that time period.

If we've discussed any given doctors in the past, you can search on

their name in the search box for messages as well. Also, reading the

files and links on egroups for this group may be helpful.

As for doctors and " checking them out " -- I've found the search engine

google.com to be most useful. Type in Dr. Camran Nezhat and see what

you get. Also, don't forget to check with the medical board and also

check on board certifications. There's more on my website about how you

can go about checking out a doctor:

http://www.uterinefibroids.com/t_doc.htm

There's also a link to all the state medical boards from that web page.

Sharing our personal experiences about our physicians is something we do

frequently -- but giving out specifically good or bad advice that might

make someone choose to seek out or avoid any given physician is tricky

business on the internet. No one wants to be sued. Either a woman who

sought out the physician and was, perhaps, treated badly, OR by the

physician who doesn't much care for defamatory statements about him/her

might find it within his/her nature to sue. So, typically we proceed

with caution when sharing the names of doctors online. We still do it.

But cautiously and generally with a lot of disclaimers over the

information. Each patient's experience with any given physician is

unique.

Carla

Jeanne Eisenstein wrote:

> I'm not throwing in the towel yet, but I must say it's very difficult

> to

> know what is fact. Our medical professionals are not helping and I

> certainly get mixed feeling from what I read on the internet. When we

> are

> corresponding with each other in this group we get bits and pieces,

> not

> medical histories so our opinions and intrepretations can be

> inaccurate. We

> need more details included in our communications. Like, Dee's

> comments.

> Sounds like a miracle; why won't she share who and where this doctor

> is?

> I've been reading a lot and I've been told I'm " large " at a 20 week

> size

> uterus (17cm) but my myoma is only 10 cm. It's incredable how Dee has

> a

> 20-week size uterus and a 19cm myoma. I've been told by two doctors

> that I

> am too large and due to previous scarring from endo and tube removal,

> not a

> good candidate to have either a myomectomy or a LAVH. I'm in

> ville,

> Florida and have not yet found a doctor like Dee described. However,

> I am

> getting closer. The doctor at the Mayo Clinic, stating that a LAVM or

> LAVH

> could be possible with the right level of expertise with the

> larproscope and

> referred me to Dr. Camran Nezhat in Atlanta. From what I heard and

> read

> he/they are awsome with the laproscope and when I spoke with their

> office

> (after reading your posting Leonie) they seem a little more open. Who

>

> knows, I may even be a possible candidate for myomectomy (I could only

>

> hope). Please let me know if anyone else has heard of these brothers

> in

> Atlanta. What you shared about the cervix is interesting and is

> making me

> think (which is the purpose of this group). I feel silly saying this,

> but I

> don't know if I feel my husband's penis or pressure therefrom on my

> cervix.

> He's onthe large side and I'm on the small side - but I don't know!

> What I

> do know is right know in my current state, intercourse is already

> painful.

>

> Stick with me

[Guest guest]

I am in Louisville, KY and my doctor will perform a myomectomy on a fibroid

that is almost 11cm (whenever I'm ready). He did say that if I were in my

40s, he would recommend a hysterectomy, although he would still perform a

myomectomy if I definitely felt I wanted to keep my uterus (and I would).

Unfortunately, docs use age to determine our treatment methods. If they can

do a myo for me at age 33, they ought to be able to do one for a woman in

her 40s. The fibroids are the same size.

It may take persistence, but I do believe you can find a doctor who will

perform a myo.

I wish you the best of luck in whatever you decide, but recommend that you

keep doing what you're doing. Don't have doubts about your decision. Take

the time to feel confident you're doing what's right for you. Best of luck,

Re: Don't give up on your uterus yet!

I'm not throwing in the towel yet, but I must say it's very difficult to

know what is fact. Our medical professionals are not helping and I

certainly get mixed feeling from what I read on the internet. When we are

corresponding with each other in this group we get bits and pieces, not

medical histories so our opinions and intrepretations can be inaccurate. We

need more details included in our communications. Like, Dee's comments.

Sounds like a miracle; why won't she share who and where this doctor is?

I've been reading a lot and I've been told I'm " large " at a 20 week size

uterus (17cm) but my myoma is only 10 cm. It's incredable how Dee has a

20-week size uterus and a 19cm myoma. I've been told by two doctors that I

am too large and due to previous scarring from endo and tube removal, not a

good candidate to have either a myomectomy or a LAVH. I'm in ville,

Florida and have not yet found a doctor like Dee described. However, I am

getting closer. The doctor at the Mayo Clinic, stating that a LAVM or LAVH

could be possible with the right level of expertise with the larproscope and

referred me to Dr. Camran Nezhat in Atlanta. From what I heard and read

he/they are awsome with the laproscope and when I spoke with their office

(after reading your posting Leonie) they seem a little more open. Who

knows, I may even be a possible candidate for myomectomy (I could only

hope). Please let me know if anyone else has heard of these brothers in

Atlanta. What you shared about the cervix is interesting and is making me

think (which is the purpose of this group). I feel silly saying this, but I

don't know if I feel my husband's penis or pressure therefrom on my cervix.

He's onthe large side and I'm on the small side - but I don't know! What I

do know is right know in my current state, intercourse is already painful.

Stick with me

Re: Don't give up on your uterus yet!

> Jeanne Eisenstein wrote:

> Not the perfect anaogly; you need your leg; each of us are different and

> should supporting others in their decisions; if your appendix is bad -

you

> take it out.

> -------------

> Jeanne, women also need their uteri. But we've been talked into believing

that

> we don't, many years ago because there were no other options available to

treat

> many aliments, today because of custom, reluctance to change, and I do

believe,

> financial motives in some cases. Many years ago legs were amputated much

more

> frequently than today. But because we can SEE what our legs do for us,

there

> was more pressure to develop other ways of treating leg ailments.

> Unfortunately, too many of the things our uteri and ovaries do for us are

not

> visible to our eyes or even unknown to this day, and those women who have

lost

> their uteri and ovaries and are suffering as a result are too often not

heard

> when they try to tell us what they go through following hysterectomy.

Please

> note that I am NOT saying every woman who has a hysterectomy suffers

problems,

> but every hysterectomy has many consequences in the body.

>

> I believe we are just at the start of learning about what our uteri do for

us,

> as well as just at the start of learning what happens to our bodies when

they

> are removed. Please see my email this morning regarding the cervix.

>

> Jeanne, should you feel, after learning the pros and cons of your various

> options, that hysterectomy is the correct choice for you, I will support

your

> choice 100%. But please don't go into it thinking there are no

consequences to

> a hysterectomy. Best of luck to you, what ever your decision, Leonie

>

>

>

> ______________________________________

> This message, together with any attachments, is intended only for the

> use of the individual or entity to which it is addressed and may contain

> information that is legally privileged, confidential and exempt from

> disclosure. If you are not the intended recipient, you are hereby

> notified that any dissemination, distribution, or copying of this

> message,or any attachment, is strictly prohibited. If you have received

> this message in error, please notify the original sender (or the WSPR

> Help Desk) immediately by telephone () or by return

> E-mail and delete the message, along with any attachments, from

> your computer. Thank you.

>

>

>

>

>

>

>

>

[Guest guest]

I am in Louisville, KY and my doctor will perform a myomectomy on a fibroid

that is almost 11cm (whenever I'm ready). He did say that if I were in my

40s, he would recommend a hysterectomy, although he would still perform a

myomectomy if I definitely felt I wanted to keep my uterus (and I would).

Unfortunately, docs use age to determine our treatment methods. If they can

do a myo for me at age 33, they ought to be able to do one for a woman in

her 40s. The fibroids are the same size.

It may take persistence, but I do believe you can find a doctor who will

perform a myo.

I wish you the best of luck in whatever you decide, but recommend that you

keep doing what you're doing. Don't have doubts about your decision. Take

the time to feel confident you're doing what's right for you. Best of luck,

Re: Don't give up on your uterus yet!

I'm not throwing in the towel yet, but I must say it's very difficult to

know what is fact. Our medical professionals are not helping and I

certainly get mixed feeling from what I read on the internet. When we are

corresponding with each other in this group we get bits and pieces, not

medical histories so our opinions and intrepretations can be inaccurate. We

need more details included in our communications. Like, Dee's comments.

Sounds like a miracle; why won't she share who and where this doctor is?

I've been reading a lot and I've been told I'm " large " at a 20 week size

uterus (17cm) but my myoma is only 10 cm. It's incredable how Dee has a

20-week size uterus and a 19cm myoma. I've been told by two doctors that I

am too large and due to previous scarring from endo and tube removal, not a

good candidate to have either a myomectomy or a LAVH. I'm in ville,

Florida and have not yet found a doctor like Dee described. However, I am

getting closer. The doctor at the Mayo Clinic, stating that a LAVM or LAVH

could be possible with the right level of expertise with the larproscope and

referred me to Dr. Camran Nezhat in Atlanta. From what I heard and read

he/they are awsome with the laproscope and when I spoke with their office

(after reading your posting Leonie) they seem a little more open. Who

knows, I may even be a possible candidate for myomectomy (I could only

hope). Please let me know if anyone else has heard of these brothers in

Atlanta. What you shared about the cervix is interesting and is making me

think (which is the purpose of this group). I feel silly saying this, but I

don't know if I feel my husband's penis or pressure therefrom on my cervix.

He's onthe large side and I'm on the small side - but I don't know! What I

do know is right know in my current state, intercourse is already painful.

Stick with me

Re: Don't give up on your uterus yet!

> Jeanne Eisenstein wrote:

> Not the perfect anaogly; you need your leg; each of us are different and

> should supporting others in their decisions; if your appendix is bad -

you

> take it out.

> -------------

> Jeanne, women also need their uteri. But we've been talked into believing

that

> we don't, many years ago because there were no other options available to

treat

> many aliments, today because of custom, reluctance to change, and I do

believe,

> financial motives in some cases. Many years ago legs were amputated much

more

> frequently than today. But because we can SEE what our legs do for us,

there

> was more pressure to develop other ways of treating leg ailments.

> Unfortunately, too many of the things our uteri and ovaries do for us are

not

> visible to our eyes or even unknown to this day, and those women who have

lost

> their uteri and ovaries and are suffering as a result are too often not

heard

> when they try to tell us what they go through following hysterectomy.

Please

> note that I am NOT saying every woman who has a hysterectomy suffers

problems,

> but every hysterectomy has many consequences in the body.

>

> I believe we are just at the start of learning about what our uteri do for

us,

> as well as just at the start of learning what happens to our bodies when

they

> are removed. Please see my email this morning regarding the cervix.

>

> Jeanne, should you feel, after learning the pros and cons of your various

> options, that hysterectomy is the correct choice for you, I will support

your

> choice 100%. But please don't go into it thinking there are no

consequences to

> a hysterectomy. Best of luck to you, what ever your decision, Leonie

>

>

>

> ______________________________________

> This message, together with any attachments, is intended only for the

> use of the individual or entity to which it is addressed and may contain

> information that is legally privileged, confidential and exempt from

> disclosure. If you are not the intended recipient, you are hereby

> notified that any dissemination, distribution, or copying of this

> message,or any attachment, is strictly prohibited. If you have received

> this message in error, please notify the original sender (or the WSPR

> Help Desk) immediately by telephone () or by return

> E-mail and delete the message, along with any attachments, from

> your computer. Thank you.

>

>

>

>

>

>

>

>

[Guest guest]

I am in Louisville, KY and my doctor will perform a myomectomy on a fibroid

that is almost 11cm (whenever I'm ready). He did say that if I were in my

40s, he would recommend a hysterectomy, although he would still perform a

myomectomy if I definitely felt I wanted to keep my uterus (and I would).

Unfortunately, docs use age to determine our treatment methods. If they can

do a myo for me at age 33, they ought to be able to do one for a woman in

her 40s. The fibroids are the same size.

It may take persistence, but I do believe you can find a doctor who will

perform a myo.

I wish you the best of luck in whatever you decide, but recommend that you

keep doing what you're doing. Don't have doubts about your decision. Take

the time to feel confident you're doing what's right for you. Best of luck,

Re: Don't give up on your uterus yet!

I'm not throwing in the towel yet, but I must say it's very difficult to

know what is fact. Our medical professionals are not helping and I

certainly get mixed feeling from what I read on the internet. When we are

corresponding with each other in this group we get bits and pieces, not

medical histories so our opinions and intrepretations can be inaccurate. We

need more details included in our communications. Like, Dee's comments.

Sounds like a miracle; why won't she share who and where this doctor is?

I've been reading a lot and I've been told I'm " large " at a 20 week size

uterus (17cm) but my myoma is only 10 cm. It's incredable how Dee has a

20-week size uterus and a 19cm myoma. I've been told by two doctors that I

am too large and due to previous scarring from endo and tube removal, not a

good candidate to have either a myomectomy or a LAVH. I'm in ville,

Florida and have not yet found a doctor like Dee described. However, I am

getting closer. The doctor at the Mayo Clinic, stating that a LAVM or LAVH

could be possible with the right level of expertise with the larproscope and

referred me to Dr. Camran Nezhat in Atlanta. From what I heard and read

he/they are awsome with the laproscope and when I spoke with their office

(after reading your posting Leonie) they seem a little more open. Who

knows, I may even be a possible candidate for myomectomy (I could only

hope). Please let me know if anyone else has heard of these brothers in

Atlanta. What you shared about the cervix is interesting and is making me

think (which is the purpose of this group). I feel silly saying this, but I

don't know if I feel my husband's penis or pressure therefrom on my cervix.

He's onthe large side and I'm on the small side - but I don't know! What I

do know is right know in my current state, intercourse is already painful.

Stick with me

Re: Don't give up on your uterus yet!

> Jeanne Eisenstein wrote:

> Not the perfect anaogly; you need your leg; each of us are different and

> should supporting others in their decisions; if your appendix is bad -

you

> take it out.

> -------------

> Jeanne, women also need their uteri. But we've been talked into believing

that

> we don't, many years ago because there were no other options available to

treat

> many aliments, today because of custom, reluctance to change, and I do

believe,

> financial motives in some cases. Many years ago legs were amputated much

more

> frequently than today. But because we can SEE what our legs do for us,

there

> was more pressure to develop other ways of treating leg ailments.

> Unfortunately, too many of the things our uteri and ovaries do for us are

not

> visible to our eyes or even unknown to this day, and those women who have

lost

> their uteri and ovaries and are suffering as a result are too often not

heard

> when they try to tell us what they go through following hysterectomy.

Please

> note that I am NOT saying every woman who has a hysterectomy suffers

problems,

> but every hysterectomy has many consequences in the body.

>

> I believe we are just at the start of learning about what our uteri do for

us,

> as well as just at the start of learning what happens to our bodies when

they

> are removed. Please see my email this morning regarding the cervix.

>

> Jeanne, should you feel, after learning the pros and cons of your various

> options, that hysterectomy is the correct choice for you, I will support

your

> choice 100%. But please don't go into it thinking there are no

consequences to

> a hysterectomy. Best of luck to you, what ever your decision, Leonie

>

>

>

> ______________________________________

> This message, together with any attachments, is intended only for the

> use of the individual or entity to which it is addressed and may contain

> information that is legally privileged, confidential and exempt from

> disclosure. If you are not the intended recipient, you are hereby

> notified that any dissemination, distribution, or copying of this

> message,or any attachment, is strictly prohibited. If you have received

> this message in error, please notify the original sender (or the WSPR

> Help Desk) immediately by telephone () or by return

> E-mail and delete the message, along with any attachments, from

> your computer. Thank you.

>

>

>

>

>

>

>

>

[Guest guest]

Hi Carla:

Thanks for the tip. However, I have not had success in accessing the

archives. I tried orginally when I joined the group and just did again now.

I hope I 'm not coming across wrong, but it seems I have had that problem my

whole life. I do appreciate everyone's input and patience with my frame of

mind. Up until three weeks ago I had not even heard of uterine fibroids and

I guess I'm a bit anxious. Your site was the first site I look at; my

sister in Tampa told me about it. I read your journal and have spent

nearly 8 - 10 hours a day for the last 3 weeks researching and communicating

with others because of what I read on your site. I guess I wonder if too

much information be as bad as too little since we are al going to respond so

differently and we don't know until it done. Again, thanks to all for your

patience as I adjust to dealing with this new issue in my life.

Re: Don't give up on your uterus yet!

> Jeanne,

>

> A couple of suggestions. Since you just joined the group I can imagine

> that following the threads of posters may be a bit difficult for you.

> It doesn't hurt to spend some time in the archives of emails to

> understand more of what's going on within this group. You can get

> access to them here:

>

> /group/uterinefibroids

>

> scroll down for the monthly table of archived email. clicking on a

> month will take you to the posts for that time period.

>

> If we've discussed any given doctors in the past, you can search on

> their name in the search box for messages as well. Also, reading the

> files and links on egroups for this group may be helpful.

>

> As for doctors and " checking them out " -- I've found the search engine

> google.com to be most useful. Type in Dr. Camran Nezhat and see what

> you get. Also, don't forget to check with the medical board and also

> check on board certifications. There's more on my website about how you

> can go about checking out a doctor:

>

> http://www.uterinefibroids.com/t_doc.htm

>

> There's also a link to all the state medical boards from that web page.

>

> Sharing our personal experiences about our physicians is something we do

> frequently -- but giving out specifically good or bad advice that might

> make someone choose to seek out or avoid any given physician is tricky

> business on the internet. No one wants to be sued. Either a woman who

> sought out the physician and was, perhaps, treated badly, OR by the

> physician who doesn't much care for defamatory statements about him/her

> might find it within his/her nature to sue. So, typically we proceed

> with caution when sharing the names of doctors online. We still do it.

> But cautiously and generally with a lot of disclaimers over the

> information. Each patient's experience with any given physician is

> unique.

>

> Carla

>

> Jeanne Eisenstein wrote:

>

> > I'm not throwing in the towel yet, but I must say it's very difficult

> > to

> > know what is fact. Our medical professionals are not helping and I

> > certainly get mixed feeling from what I read on the internet. When we

> > are

> > corresponding with each other in this group we get bits and pieces,

> > not

> > medical histories so our opinions and intrepretations can be

> > inaccurate. We

> > need more details included in our communications. Like, Dee's

> > comments.

> > Sounds like a miracle; why won't she share who and where this doctor

> > is?

> > I've been reading a lot and I've been told I'm " large " at a 20 week

> > size

> > uterus (17cm) but my myoma is only 10 cm. It's incredable how Dee has

> > a

> > 20-week size uterus and a 19cm myoma. I've been told by two doctors

> > that I

> > am too large and due to previous scarring from endo and tube removal,

> > not a

> > good candidate to have either a myomectomy or a LAVH. I'm in

> > ville,

> > Florida and have not yet found a doctor like Dee described. However,

> > I am

> > getting closer. The doctor at the Mayo Clinic, stating that a LAVM or

> > LAVH

> > could be possible with the right level of expertise with the

> > larproscope and

> > referred me to Dr. Camran Nezhat in Atlanta. From what I heard and

> > read

> > he/they are awsome with the laproscope and when I spoke with their

> > office

> > (after reading your posting Leonie) they seem a little more open. Who

> >

> > knows, I may even be a possible candidate for myomectomy (I could only

> >

> > hope). Please let me know if anyone else has heard of these brothers

> > in

> > Atlanta. What you shared about the cervix is interesting and is

> > making me

> > think (which is the purpose of this group). I feel silly saying this,

> > but I

> > don't know if I feel my husband's penis or pressure therefrom on my

> > cervix.

> > He's onthe large side and I'm on the small side - but I don't know!

> > What I

> > do know is right know in my current state, intercourse is already

> > painful.

> >

> > Stick with me

>

[Guest guest]

Hi Carla:

Thanks for the tip. However, I have not had success in accessing the

archives. I tried orginally when I joined the group and just did again now.

I hope I 'm not coming across wrong, but it seems I have had that problem my

whole life. I do appreciate everyone's input and patience with my frame of

mind. Up until three weeks ago I had not even heard of uterine fibroids and

I guess I'm a bit anxious. Your site was the first site I look at; my

sister in Tampa told me about it. I read your journal and have spent

nearly 8 - 10 hours a day for the last 3 weeks researching and communicating

with others because of what I read on your site. I guess I wonder if too

much information be as bad as too little since we are al going to respond so

differently and we don't know until it done. Again, thanks to all for your

patience as I adjust to dealing with this new issue in my life.

Re: Don't give up on your uterus yet!

> Jeanne,

>

> A couple of suggestions. Since you just joined the group I can imagine

> that following the threads of posters may be a bit difficult for you.

> It doesn't hurt to spend some time in the archives of emails to

> understand more of what's going on within this group. You can get

> access to them here:

>

> /group/uterinefibroids

>

> scroll down for the monthly table of archived email. clicking on a

> month will take you to the posts for that time period.

>

> If we've discussed any given doctors in the past, you can search on

> their name in the search box for messages as well. Also, reading the

> files and links on egroups for this group may be helpful.

>

> As for doctors and " checking them out " -- I've found the search engine

> google.com to be most useful. Type in Dr. Camran Nezhat and see what

> you get. Also, don't forget to check with the medical board and also

> check on board certifications. There's more on my website about how you

> can go about checking out a doctor:

>

> http://www.uterinefibroids.com/t_doc.htm

>

> There's also a link to all the state medical boards from that web page.

>

> Sharing our personal experiences about our physicians is something we do

> frequently -- but giving out specifically good or bad advice that might

> make someone choose to seek out or avoid any given physician is tricky

> business on the internet. No one wants to be sued. Either a woman who

> sought out the physician and was, perhaps, treated badly, OR by the

> physician who doesn't much care for defamatory statements about him/her

> might find it within his/her nature to sue. So, typically we proceed

> with caution when sharing the names of doctors online. We still do it.

> But cautiously and generally with a lot of disclaimers over the

> information. Each patient's experience with any given physician is

> unique.

>

> Carla

>

> Jeanne Eisenstein wrote:

>

> > I'm not throwing in the towel yet, but I must say it's very difficult

> > to

> > know what is fact. Our medical professionals are not helping and I

> > certainly get mixed feeling from what I read on the internet. When we

> > are

> > corresponding with each other in this group we get bits and pieces,

> > not

> > medical histories so our opinions and intrepretations can be

> > inaccurate. We

> > need more details included in our communications. Like, Dee's

> > comments.

> > Sounds like a miracle; why won't she share who and where this doctor

> > is?

> > I've been reading a lot and I've been told I'm " large " at a 20 week

> > size

> > uterus (17cm) but my myoma is only 10 cm. It's incredable how Dee has

> > a

> > 20-week size uterus and a 19cm myoma. I've been told by two doctors

> > that I

> > am too large and due to previous scarring from endo and tube removal,

> > not a

> > good candidate to have either a myomectomy or a LAVH. I'm in

> > ville,

> > Florida and have not yet found a doctor like Dee described. However,

> > I am

> > getting closer. The doctor at the Mayo Clinic, stating that a LAVM or

> > LAVH

> > could be possible with the right level of expertise with the

> > larproscope and

> > referred me to Dr. Camran Nezhat in Atlanta. From what I heard and

> > read

> > he/they are awsome with the laproscope and when I spoke with their

> > office

> > (after reading your posting Leonie) they seem a little more open. Who

> >

> > knows, I may even be a possible candidate for myomectomy (I could only

> >

> > hope). Please let me know if anyone else has heard of these brothers

> > in

> > Atlanta. What you shared about the cervix is interesting and is

> > making me

> > think (which is the purpose of this group). I feel silly saying this,

> > but I

> > don't know if I feel my husband's penis or pressure therefrom on my

> > cervix.

> > He's onthe large side and I'm on the small side - but I don't know!

> > What I

> > do know is right know in my current state, intercourse is already

> > painful.

> >

> > Stick with me

>

[Guest guest]

Hi Carla:

Thanks for the tip. However, I have not had success in accessing the

archives. I tried orginally when I joined the group and just did again now.

I hope I 'm not coming across wrong, but it seems I have had that problem my

whole life. I do appreciate everyone's input and patience with my frame of

mind. Up until three weeks ago I had not even heard of uterine fibroids and

I guess I'm a bit anxious. Your site was the first site I look at; my

sister in Tampa told me about it. I read your journal and have spent

nearly 8 - 10 hours a day for the last 3 weeks researching and communicating

with others because of what I read on your site. I guess I wonder if too

much information be as bad as too little since we are al going to respond so

differently and we don't know until it done. Again, thanks to all for your

patience as I adjust to dealing with this new issue in my life.

Re: Don't give up on your uterus yet!

> Jeanne,

>

> A couple of suggestions. Since you just joined the group I can imagine

> that following the threads of posters may be a bit difficult for you.

> It doesn't hurt to spend some time in the archives of emails to

> understand more of what's going on within this group. You can get

> access to them here:

>

> /group/uterinefibroids

>

> scroll down for the monthly table of archived email. clicking on a

> month will take you to the posts for that time period.

>

> If we've discussed any given doctors in the past, you can search on

> their name in the search box for messages as well. Also, reading the

> files and links on egroups for this group may be helpful.

>

> As for doctors and " checking them out " -- I've found the search engine

> google.com to be most useful. Type in Dr. Camran Nezhat and see what

> you get. Also, don't forget to check with the medical board and also

> check on board certifications. There's more on my website about how you

> can go about checking out a doctor:

>

> http://www.uterinefibroids.com/t_doc.htm

>

> There's also a link to all the state medical boards from that web page.

>

> Sharing our personal experiences about our physicians is something we do

> frequently -- but giving out specifically good or bad advice that might

> make someone choose to seek out or avoid any given physician is tricky

> business on the internet. No one wants to be sued. Either a woman who

> sought out the physician and was, perhaps, treated badly, OR by the

> physician who doesn't much care for defamatory statements about him/her

> might find it within his/her nature to sue. So, typically we proceed

> with caution when sharing the names of doctors online. We still do it.

> But cautiously and generally with a lot of disclaimers over the

> information. Each patient's experience with any given physician is

> unique.

>

> Carla

>

> Jeanne Eisenstein wrote:

>

> > I'm not throwing in the towel yet, but I must say it's very difficult

> > to

> > know what is fact. Our medical professionals are not helping and I

> > certainly get mixed feeling from what I read on the internet. When we

> > are

> > corresponding with each other in this group we get bits and pieces,

> > not

> > medical histories so our opinions and intrepretations can be

> > inaccurate. We

> > need more details included in our communications. Like, Dee's

> > comments.

> > Sounds like a miracle; why won't she share who and where this doctor

> > is?

> > I've been reading a lot and I've been told I'm " large " at a 20 week

> > size

> > uterus (17cm) but my myoma is only 10 cm. It's incredable how Dee has

> > a

> > 20-week size uterus and a 19cm myoma. I've been told by two doctors

> > that I

> > am too large and due to previous scarring from endo and tube removal,

> > not a

> > good candidate to have either a myomectomy or a LAVH. I'm in

> > ville,

> > Florida and have not yet found a doctor like Dee described. However,

> > I am

> > getting closer. The doctor at the Mayo Clinic, stating that a LAVM or

> > LAVH

> > could be possible with the right level of expertise with the

> > larproscope and

> > referred me to Dr. Camran Nezhat in Atlanta. From what I heard and

> > read

> > he/they are awsome with the laproscope and when I spoke with their

> > office

> > (after reading your posting Leonie) they seem a little more open. Who

> >

> > knows, I may even be a possible candidate for myomectomy (I could only

> >

> > hope). Please let me know if anyone else has heard of these brothers

> > in

> > Atlanta. What you shared about the cervix is interesting and is

> > making me

> > think (which is the purpose of this group). I feel silly saying this,

> > but I

> > don't know if I feel my husband's penis or pressure therefrom on my

> > cervix.

> > He's onthe large side and I'm on the small side - but I don't know!

> > What I

> > do know is right know in my current state, intercourse is already

> > painful.

> >

> > Stick with me

>

[Guest guest]

Jeanne,

Your sense of being overwhelmed with information is normal. Especially when you

first learn about fibroids and seemingly drop into an endless chasm of medical

information that you never knew even existed. In addition, if you are anemic or

bleeding excessively or highly symptomatic from your fibroids -- well, your

health isn't helping your ability to cognitively assimilate all the information

all that well. Add to that the sheer overwhelming emotional impact of it all

and, well, there you have it. You've joined a rather unfortunate club.

Welcome.

If links aren't working for you when you visit the eGroups uterinefibroids page

on the web, it's probably because you are only subscribed to the list group --

and not to eGroups. eGroups allows that but then stops short of letting you

have access to all the information we make available unless you also register

with them. Pain in wazoo. At any rate, to register with eGroups go here:

/register

fill out the form and then you should be able to fully access the archived email

on uterinefibroids.

Hang in there Jeanne. It's better to take the time to really learn and know

what is right for you than to jump into something that you have no idea of what

the consequences are truly going to be. It may be overwhelming at first -- but

there is a sense of peace once you truly know what is right for you and move

forward with that treatment option fully informed. Well worth the trip down the

path to informed consent.

[Guest guest]

Jeanne,

Your sense of being overwhelmed with information is normal. Especially when you

first learn about fibroids and seemingly drop into an endless chasm of medical

information that you never knew even existed. In addition, if you are anemic or

bleeding excessively or highly symptomatic from your fibroids -- well, your

health isn't helping your ability to cognitively assimilate all the information

all that well. Add to that the sheer overwhelming emotional impact of it all

and, well, there you have it. You've joined a rather unfortunate club.

Welcome.

If links aren't working for you when you visit the eGroups uterinefibroids page

on the web, it's probably because you are only subscribed to the list group --

and not to eGroups. eGroups allows that but then stops short of letting you

have access to all the information we make available unless you also register

with them. Pain in wazoo. At any rate, to register with eGroups go here:

/register

fill out the form and then you should be able to fully access the archived email

on uterinefibroids.

Hang in there Jeanne. It's better to take the time to really learn and know

what is right for you than to jump into something that you have no idea of what

the consequences are truly going to be. It may be overwhelming at first -- but

there is a sense of peace once you truly know what is right for you and move

forward with that treatment option fully informed. Well worth the trip down the

path to informed consent.

[Guest guest]

Jeanne,

Your sense of being overwhelmed with information is normal. Especially when you

first learn about fibroids and seemingly drop into an endless chasm of medical

information that you never knew even existed. In addition, if you are anemic or

bleeding excessively or highly symptomatic from your fibroids -- well, your

health isn't helping your ability to cognitively assimilate all the information

all that well. Add to that the sheer overwhelming emotional impact of it all

and, well, there you have it. You've joined a rather unfortunate club.

Welcome.

If links aren't working for you when you visit the eGroups uterinefibroids page

on the web, it's probably because you are only subscribed to the list group --

and not to eGroups. eGroups allows that but then stops short of letting you

have access to all the information we make available unless you also register

with them. Pain in wazoo. At any rate, to register with eGroups go here:

/register

fill out the form and then you should be able to fully access the archived email

on uterinefibroids.

Hang in there Jeanne. It's better to take the time to really learn and know

what is right for you than to jump into something that you have no idea of what

the consequences are truly going to be. It may be overwhelming at first -- but

there is a sense of peace once you truly know what is right for you and move

forward with that treatment option fully informed. Well worth the trip down the

path to informed consent.

[Guest guest]

Pardon me, Jeanne, I certainly did not want to be unsupportive. but

investigating everything carefully can only help one come to better

decision-- whatever that is. Regardless of what you base you

decision on-- it's still YOUR decision. Melody

> > But we don't normally cut off our leg if we have a

> > benign growth on our foot.

> >

> > ----

> > My sentiments exactly! Leonie

> >

> >

> >

> > ______________________________________

> > This message, together with any attachments, is intended only for

the

> > use of the individual or entity to which it is addressed and may

contain

> > information that is legally privileged, confidential and exempt

from

> > disclosure. If you are not the intended recipient, you are hereby

> > notified that any dissemination, distribution, or copying of this

> > message,or any attachment, is strictly prohibited. If you have

received

> > this message in error, please notify the original sender (or the

WSPR

> > Help Desk) immediately by telephone () or by return

> > E-mail and delete the message, along with any attachments, from

> > your computer. Thank you.

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Pardon me, Jeanne, I certainly did not want to be unsupportive. but

investigating everything carefully can only help one come to better

decision-- whatever that is. Regardless of what you base you

decision on-- it's still YOUR decision. Melody

> > But we don't normally cut off our leg if we have a

> > benign growth on our foot.

> >

> > ----

> > My sentiments exactly! Leonie

> >

> >

> >

> > ______________________________________

> > This message, together with any attachments, is intended only for

the

> > use of the individual or entity to which it is addressed and may

contain

> > information that is legally privileged, confidential and exempt

from

> > disclosure. If you are not the intended recipient, you are hereby

> > notified that any dissemination, distribution, or copying of this

> > message,or any attachment, is strictly prohibited. If you have

received

> > this message in error, please notify the original sender (or the

WSPR

> > Help Desk) immediately by telephone () or by return

> > E-mail and delete the message, along with any attachments, from

> > your computer. Thank you.

> >

> >

> >

> >

> >

> >

> >

> >