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New At This & Lost In Fear!

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My 7 month old daughter, was just diagnosed yesterday with ACM

I. The doctor couldn't tell me anything about it. I have been on an

emotional roller coaster. I have an appointment at A.I. Dupont

Institute for Children on June 8th. I am in " Limbo " until then. I

have been reading what I can on the internet about ACM. I haven't seen

many children with it. I am not sure how to help her pain or what she

needs to help her, until we see the specialist. I would really

appreciate any input.

Thanks, AMY ('s Mom)

Ocean View, DE

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