Re: chelation and success

[Guest guest]

In a message dated 5/8/2002 6:43:24 PM US Mountain Standard Time,

beckygood@... writes:

> My question is, have people had success chelating and not

> having to do anything else? I've read so many reports of false

> negatives with the peptide tests that I'm afraid to stop the diet!

>

My son also tested extremely high (a lot like yours) in the metals, however,

it is my opinion that every little thing could possibly help. I am keeping

GFCF and using enzymes in addition to chelation, hoping that once we

clear him out of all of the toxic stuff, we will eventually be able to go off

of the diet.

It might be better to keep him on the diet, especially while he is young,

until you know more. Metals may not be his only problem since they create

damage elsewhere in the body. You don't really know what his gut looks like

unless you've had a scope done.

Jane

Mama to 5 yrs (ASD) and 2 yrs (NT)

[Guest guest]

> Just this past Friday our test results came back and our son

> is SEVERLY metal poisoned! He tested toxic for 24 of 30 metals! Of

> those, 5 were off the charts, and 12 were 3x or more the " safe "

> level.

Ummmm.... if this is an accurate description, it isn't compatible

with life. Since your son sounds like he is still with you, perhaps

the lab has unreasonably low limits, or he is an " all high " mercury

toxic person who DOESN'T really have problems with ALL the other

metals, or something else funky is going on.

The interpretation that he has toxic levels of 24 metals just isn't

credible.

>We start oral chelation tomorrow with DMSA.

Every 4 hours so he gets better, or every 8 hours to give you a big

chance he gets worse? With the above " diagnosis " I would be very

concerned about what ELSE the doc has to say.

>All of our sons

> other tests came back negative. The DAN doctor firmly believes the

> metal toxicity is causing our son's Autism. He did not feel it was

> necessary to continue the GFCF diet (although he did recommend

eating

> organic). My question is, have people had success chelating and not

> having to do anything else?

Antioxidant vitamins, e. g. vitamin C 4 times a day and vitamin E, are

an essential part of chelation. Otherwise yes, some people who

chelate on a proper protocol do find their children improve

dramatically without having to do all that much else. But many find

that doing other things makes their child much better in the meantime,

and also much more able to undergo chelation without a lot of

unpleasant ups and downs.

> I've read so many reports of false

> negatives with the peptide tests that I'm afraid to stop the diet!

> Any comments are GREATLY appreciated!

> T

[Guest guest]

Keep the diet. It's a pain in the ass but healthy. It can't hurt him. It's

good you're moving so fast and at such an early age.

Holly

[Guest guest]

| > Just this past Friday our test results came back and our son

| > is SEVERLY metal poisoned! He tested toxic for 24 of 30 metals! Of

| > those, 5 were off the charts, and 12 were 3x or more the " safe "

| > level.

|

| Ummmm.... if this is an accurate description, it isn't compatible

| with life. Since your son sounds like he is still with you, perhaps

| the lab has unreasonably low limits, or he is an " all high " mercury

| toxic person who DOESN'T really have problems with ALL the other

| metals, or something else funky is going on.

|

| The interpretation that he has toxic levels of 24 metals just isn't

| credible.

Yes it is, if by 'toxic' you mean in the yellow or red zone. Our data,

unfortunately, roughly correlates with the '24

of 30' metals result. And my daughter is most definitely alive - just ask her

teachers...

The " Toxic Element Clearance Profile (Random/Timed) test from GSDL measures 30

metals.

Here are my daughter's results from her post/DMSA/ALA urinalysis (2001/2002):

Round 2 - Metals in the yellow or red zone - 22. Number with >3x ref.

range - 6.

Round 4 - Metals in the yellow or red zone - 19. Number with >3x ref.

range - 5.

Round 5 - Metals in the yellow or red zone - 21. Number with >3x ref.

range - 6.

Round 8 - Metals in the yellow or red zone - 19. Number with >3x ref.

range - 1.

Round10- Metals in the yellow or red zone - 17. Number with >3x ref. range

- 4.

Summary - She's toxic for 17-22 of 30 metals, with 1-6 >3x ref. range.

Note that mercury is <dl in all the above tests!

Even hair analysis shows many toxic elements:

The DDI hair tests measure 16 " Toxic Elements " and 23 " Elements " .

Here are my daughter's hair test results from 1999/2000:

DDI Hair Test #1 -

" Toxic Elements " in the yellow or red zone - 9. " Elements " in the yellow zone

- 8.

Sum = 9 of 16 " Toxics " or 17 of 39 " Elements " .

" Toxic Elements " with >3x ref. range - 5, Number of " Elements " with >3x ref.

range - 1.

Sum = 6.

DDI Hair Test #2 -

" Toxic Elements " in the yellow or red zone - 7. " Elements " in the yellow zone

- 6.

Sum = 7 of 16 " Toxics " or 13 of 39 " Elements " .

" Toxic Elements " with >3x ref. range - 1, Number of " Elements " with >3x ref.

range - 0.

Sum = 1.

It would be lovely if we could focus on a single metal, but it just isn't

working out that way. These kids took

everything in. I just wonder what other metals they have that these tests don't

even attempt to measure?

I'd say to stay with the GFCF diet if you don't want bigger gut issues down the

road. Stay off soy too. Use some

enzymes. Heal the gut and you'll have fewer metals entering your kid's body,

and maybe no yeast problems. Congrats on

catching this while your kid is so young.

K.

[Guest guest]

> My question is, have people had success chelating and not

>having to do anything else?

My GUESS is that most people do " something else " . But then it

would also depend on what you count as " something " . If you

count supplements as " something " then almost everyone I think

uses some sorts of supplements.

> I've read so many reports of false

>negatives with the peptide tests that I'm afraid to stop the diet!

then don't. also bear in mind that chelation takes a LONG time and

is a SLOW process.

best wishes,

Moria [not a momma]

[Guest guest]

Becky, Glad you found your way to Autism Mercury...there are a ton of

knowlegabe people here...have you gone to the archives to apply the counting

rules to see exactly how toxic your son is? Andy Cutler is very knowledgable

in chelation and he doesn't mince his words...he and the people on this list

have been very helpful to me>>>Good Luck to you!!! Sharon

[Guest guest]

Becky,

I just returned from the DAN conf. and they constantly said that the leaky

gut and other digestive problems should be fixed before chelating. Most drs

said to give the diet a 6 month trial to see if it helps. Mercury can cause

the digestive enzyme DPPIV to be inactivated and your child will not be able

to digest gluten and casein. Dont take everything that your DAN dr says

without researching it yourself.

karen w

[Guest guest]

>> I just returned from the DAN conf. and they constantly said that

the leaky gut and other digestive problems should be fixed before

chelating.

This is one approach, but balance it against others and your own

situation. Another thing to keep in mind is that you may not be able

to " get the gut in shape " before chelation if the metals are at the

root of the problem. So you may be wasting a great deal of time

trying to accomplish this when you could be spending your time and

resources getting the metals out. Getting the metals out may heal the

gut along the way. (this may be what your DAN doctor is getting at)

I am reminded of the person who spent months trying to conquer yeast.

Finally, they just went on to chelation and guess what! the yeast

cleared up on it's own. Or the person who spent over a year on the

diet but didn't make substantial progress until they just decided to

chelate. Then the food issue resolved itself. Using enzymes seems to

speed up the gut healing process as well as break down foods - more

efficient. Even still, some people do not see the great improvements

until they chelate. Progress with chelation seems to come quicker the

younger the person is, so you may not want to wait a very long time

since you know the metals are a major part of your son's situation.

Removing the metals may take care of most of the other things anyway.

.

[Guest guest]

> I just returned from the DAN conf. and they constantly said that the

leaky

> gut and other digestive problems should be fixed before chelating.

Thus dramatically lowering the amount of ultimate progress possible.

You want to chelate as young as you can. Which even the DAN! doctors

admit. Then they put it off and put it off and put it off.

Chelation is the most effective means to correct leaky gut. Proper

supplementation can have a big effect too, and this takes maybe a few

weeks to work if you do it right.

> Most drs

> said to give the diet a 6 month trial to see if it helps.

I don't suppose any of them gave an indication to try the diet other

than that you made an appointment with them, or a description of what

is indicating it helps, or any discussion of how plasma cysteine

relates to this?

> Mercury can cause

> the digestive enzyme DPPIV to be inactivated and your child will not

be able

> to digest gluten and casein. Dont take everything that your DAN dr

says

> without researching it yourself.

> karen w

>

>

> [Non-text portions of this message have bee