Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 In a message dated 01-01-23 07:14:42 EST, you write: << like every one else i have multiple fibroids. i been told by several gyn to have a hysterectomy, which due to many reasons i do not wish to have done. uae is not a option for me also. i would like to know if anyone has had any experience with ru-486 for treatment of fibroids.please advise any symptoms or adverse reactions especially if you have a coagulation defect. thank you, elizabeth gotay >> Hi , RU-486 isn't generally available for fibroid treatment (yet). I'm in a study, taking 10 mg a day. I haven't had any adverse symptoms; the only thing is that my periods have stopped, which in my book right now is a good thing. And after 2 months on it, the fibroids are starting to shrink. I'm down about 25% from when I started in the study (and my fibroids were extremely big. I was about 30 week size at the start; the estimate is now 22 weeks....and dropping, I hope!) There have been disturbing remarks in the news lately that elements in the new administration want to " re-exam " the FDA's approval of RU-486. If they try to rescind the approval, they will be doing a grave disservice to us all. The word has to get out more widely about the promise this drug holds for women for health reasons, not just abortions. We can't let things go backward. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 In a message dated 01-01-23 07:14:42 EST, you write: << like every one else i have multiple fibroids. i been told by several gyn to have a hysterectomy, which due to many reasons i do not wish to have done. uae is not a option for me also. i would like to know if anyone has had any experience with ru-486 for treatment of fibroids.please advise any symptoms or adverse reactions especially if you have a coagulation defect. thank you, elizabeth gotay >> Hi , RU-486 isn't generally available for fibroid treatment (yet). I'm in a study, taking 10 mg a day. I haven't had any adverse symptoms; the only thing is that my periods have stopped, which in my book right now is a good thing. And after 2 months on it, the fibroids are starting to shrink. I'm down about 25% from when I started in the study (and my fibroids were extremely big. I was about 30 week size at the start; the estimate is now 22 weeks....and dropping, I hope!) There have been disturbing remarks in the news lately that elements in the new administration want to " re-exam " the FDA's approval of RU-486. If they try to rescind the approval, they will be doing a grave disservice to us all. The word has to get out more widely about the promise this drug holds for women for health reasons, not just abortions. We can't let things go backward. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 > In a message dated 01-01-23 07:14:42 EST, you write: > > > > RU-486 isn't generally available for fibroid treatment (yet). I'm in a study, > taking 10 mg a day. I haven't had any adverse symptoms; the only thing is > that my periods have stopped, which in my book right now is a good thing. And > after 2 months on it, the fibroids are starting to shrink. I'm down about 25% > from when I started in the study (and my fibroids were extremely big. I was > about 30 week size at the start; the estimate is now 22 weeks....and > dropping, I hope!) > .. , Do you know how I can find out if there is a clinical drug study for the RU-486 in my area? (VA) I have checked the Center Watch Clinical Trial listings but did not find any. Thanks for any info. Debbie (can anyone tell me what " wrap words " means on the reply page? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 > In a message dated 01-01-23 07:14:42 EST, you write: > > > > RU-486 isn't generally available for fibroid treatment (yet). I'm in a study, > taking 10 mg a day. I haven't had any adverse symptoms; the only thing is > that my periods have stopped, which in my book right now is a good thing. And > after 2 months on it, the fibroids are starting to shrink. I'm down about 25% > from when I started in the study (and my fibroids were extremely big. I was > about 30 week size at the start; the estimate is now 22 weeks....and > dropping, I hope!) > .. , Do you know how I can find out if there is a clinical drug study for the RU-486 in my area? (VA) I have checked the Center Watch Clinical Trial listings but did not find any. Thanks for any info. Debbie (can anyone tell me what " wrap words " means on the reply page? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 You can't stay on ru-486 forever. It's only temporary. It will shrink your firbroids temporarily, but what will you do when they grow back? Did you know they usually grow back bigger. I used ru-486 for 3 months before having a myomectomy. I hate I ever took that drug. My legs cramp me all the time. I never had that problem before using ru-486. My legs would cramp so badly some nights I could not even sleep. I don't recommend this treatment unless you already have something else lined up to treat your symptoms after you stop using the drug. I think you can only use ru-486 for up to six months. Most doctors will only let you use it for 3 months because this is not an approved drug for the shrinkage of fibroids in Alabama >From: EGOTAY@... >Reply-To: uterinefibroidsegroups >To: uterinefibroidsegroups >Subject: hello, new to group >Date: Tue, 23 Jan 2001 12:04:53 -0000 > >like every one else i have multiple fibroids. i been told by several >gyn to have a hysterectomy, which due to many reasons i do not wish >to have done. >uae is not a option for me also. i would like to know if anyone has >had any experience with ru-486 for treatment of fibroids.please >advise any symptoms or adverse reactions especially if you have a >coagulation defect. > >thank you, >elizabeth gotay > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 You can't stay on ru-486 forever. It's only temporary. It will shrink your firbroids temporarily, but what will you do when they grow back? Did you know they usually grow back bigger. I used ru-486 for 3 months before having a myomectomy. I hate I ever took that drug. My legs cramp me all the time. I never had that problem before using ru-486. My legs would cramp so badly some nights I could not even sleep. I don't recommend this treatment unless you already have something else lined up to treat your symptoms after you stop using the drug. I think you can only use ru-486 for up to six months. Most doctors will only let you use it for 3 months because this is not an approved drug for the shrinkage of fibroids in Alabama >From: EGOTAY@... >Reply-To: uterinefibroidsegroups >To: uterinefibroidsegroups >Subject: hello, new to group >Date: Tue, 23 Jan 2001 12:04:53 -0000 > >like every one else i have multiple fibroids. i been told by several >gyn to have a hysterectomy, which due to many reasons i do not wish >to have done. >uae is not a option for me also. i would like to know if anyone has >had any experience with ru-486 for treatment of fibroids.please >advise any symptoms or adverse reactions especially if you have a >coagulation defect. > >thank you, >elizabeth gotay > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 , How long is this study to go on? Afterwards, will you just stop taking the drug cold turkey? Watching and waiting and praying for great results for you.. Elise Levine, NYC (uncountable intramurals @18 weeks) Re: hello, new to group In a message dated 01-01-23 07:14:42 EST, you write: << like every one else i have multiple fibroids. i been told by several gyn to have a hysterectomy, which due to many reasons i do not wish to have done. uae is not a option for me also. i would like to know if anyone has had any experience with ru-486 for treatment of fibroids.please advise any symptoms or adverse reactions especially if you have a coagulation defect. thank you, elizabeth gotay >> Hi , RU-486 isn't generally available for fibroid treatment (yet). I'm in a study, taking 10 mg a day. I haven't had any adverse symptoms; the only thing is that my periods have stopped, which in my book right now is a good thing. And after 2 months on it, the fibroids are starting to shrink. I'm down about 25% from when I started in the study (and my fibroids were extremely big. I was about 30 week size at the start; the estimate is now 22 weeks....and dropping, I hope!) There have been disturbing remarks in the news lately that elements in the new administration want to " re-exam " the FDA's approval of RU-486. If they try to rescind the approval, they will be doing a grave disservice to us all. The word has to get out more widely about the promise this drug holds for women for health reasons, not just abortions. We can't let things go backward. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 , How long is this study to go on? Afterwards, will you just stop taking the drug cold turkey? Watching and waiting and praying for great results for you.. Elise Levine, NYC (uncountable intramurals @18 weeks) Re: hello, new to group In a message dated 01-01-23 07:14:42 EST, you write: << like every one else i have multiple fibroids. i been told by several gyn to have a hysterectomy, which due to many reasons i do not wish to have done. uae is not a option for me also. i would like to know if anyone has had any experience with ru-486 for treatment of fibroids.please advise any symptoms or adverse reactions especially if you have a coagulation defect. thank you, elizabeth gotay >> Hi , RU-486 isn't generally available for fibroid treatment (yet). I'm in a study, taking 10 mg a day. I haven't had any adverse symptoms; the only thing is that my periods have stopped, which in my book right now is a good thing. And after 2 months on it, the fibroids are starting to shrink. I'm down about 25% from when I started in the study (and my fibroids were extremely big. I was about 30 week size at the start; the estimate is now 22 weeks....and dropping, I hope!) There have been disturbing remarks in the news lately that elements in the new administration want to " re-exam " the FDA's approval of RU-486. If they try to rescind the approval, they will be doing a grave disservice to us all. The word has to get out more widely about the promise this drug holds for women for health reasons, not just abortions. We can't let things go backward. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 Wiley wrote: I used ru-486 for 3 months before having a myomectomy. I hate I ever took that drug. My legs cramp me all the time. I never had that problem before using ru-486. My legs would cramp so badly some nights I could not even sleep. I don't recommend this treatment unless you already have something else lined up to treat your symptoms after you stop using the drug. I think you can only use ru-486 for up to six months. Most doctors will only let you use it for 3 months because this is not an approved drug for the shrinkage of fibroids in Alabama Sanda, Where were you getting RU-486 in Alabama? Were you part of a study? carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 Wiley wrote: I used ru-486 for 3 months before having a myomectomy. I hate I ever took that drug. My legs cramp me all the time. I never had that problem before using ru-486. My legs would cramp so badly some nights I could not even sleep. I don't recommend this treatment unless you already have something else lined up to treat your symptoms after you stop using the drug. I think you can only use ru-486 for up to six months. Most doctors will only let you use it for 3 months because this is not an approved drug for the shrinkage of fibroids in Alabama Sanda, Where were you getting RU-486 in Alabama? Were you part of a study? carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 In a message dated 01-01-23 10:39:40 EST, you write: << , How long is this study to go on? Afterwards, will you just stop taking the drug cold turkey? Watching and waiting and praying for great results for you.. Elise Levine, NYC (uncountable intramurals @18 weeks) >> Hi Elise, The study will last a year. I don't know what will happen at the end. I expect that when I go off the drug, I will get my periods back and experience regrowth. I don't know how much to expect will regrow. Being a test subject is full of uncertainties, but I'm not sorry to be part of the study. The dosage is very low, and I feel perfectly fine. I just hope my participation will hasten the FDA furthering its approval to include this usage. Thanks for your prayers. In a way, those prayers are for all of us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 In a message dated 01-01-23 10:39:40 EST, you write: << , How long is this study to go on? Afterwards, will you just stop taking the drug cold turkey? Watching and waiting and praying for great results for you.. Elise Levine, NYC (uncountable intramurals @18 weeks) >> Hi Elise, The study will last a year. I don't know what will happen at the end. I expect that when I go off the drug, I will get my periods back and experience regrowth. I don't know how much to expect will regrow. Being a test subject is full of uncertainties, but I'm not sorry to be part of the study. The dosage is very low, and I feel perfectly fine. I just hope my participation will hasten the FDA furthering its approval to include this usage. Thanks for your prayers. In a way, those prayers are for all of us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 In a message dated 01-01-23 10:13:42 EST, you write: << You can't stay on ru-486 forever. It's only temporary. It will shrink your firbroids temporarily, but what will you do when they grow back? Did you know they usually grow back bigger. I used ru-486 for 3 months before having a myomectomy. I hate I ever took that drug. My legs cramp me all the time. I never had that problem before using ru-486. My legs would cramp so badly some nights I could not even sleep. I don't recommend this treatment unless you already have something else lined up to treat your symptoms after you stop using the drug. I think you can only use ru-486 for up to six months. Most doctors will only let you use it for 3 months because this is not an approved drug for the shrinkage of fibroids in Alabama >> , I have a few questions, because this is not like my experience at all. 1. Did you take this in pill form, or was it an injection? 2. What was the size of the dosage? 3. Who told you that it was limited to 3 to 6 months? If it was injection, my instincts tell me that it wasn't RU-486, but Lupron. Lupron is an anti-estrogen that is used (off-label) to reduce fibroids, but can only be used 3-6 months because it creates an early menopause, complete with bone loss. RU-486 is an anti-progesterone, and is NOT available for doctors to prescribe off-label. So far as I know, it's only available through clinical trials, such as the one I'm in. And no one has said anything about a required time limit; if anything, they're extending trial times. If I'm wrong, and it was RU-486, then the size of the dosage may have been a factor. I'm on 10 mg, and feeling great. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 In a message dated 01-01-23 10:13:42 EST, you write: << You can't stay on ru-486 forever. It's only temporary. It will shrink your firbroids temporarily, but what will you do when they grow back? Did you know they usually grow back bigger. I used ru-486 for 3 months before having a myomectomy. I hate I ever took that drug. My legs cramp me all the time. I never had that problem before using ru-486. My legs would cramp so badly some nights I could not even sleep. I don't recommend this treatment unless you already have something else lined up to treat your symptoms after you stop using the drug. I think you can only use ru-486 for up to six months. Most doctors will only let you use it for 3 months because this is not an approved drug for the shrinkage of fibroids in Alabama >> , I have a few questions, because this is not like my experience at all. 1. Did you take this in pill form, or was it an injection? 2. What was the size of the dosage? 3. Who told you that it was limited to 3 to 6 months? If it was injection, my instincts tell me that it wasn't RU-486, but Lupron. Lupron is an anti-estrogen that is used (off-label) to reduce fibroids, but can only be used 3-6 months because it creates an early menopause, complete with bone loss. RU-486 is an anti-progesterone, and is NOT available for doctors to prescribe off-label. So far as I know, it's only available through clinical trials, such as the one I'm in. And no one has said anything about a required time limit; if anything, they're extending trial times. If I'm wrong, and it was RU-486, then the size of the dosage may have been a factor. I'm on 10 mg, and feeling great. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 In a message dated 01-01-23 09:27:54 EST, you write: << , Do you know how I can find out if there is a clinical drug study for the RU-486 in my area? (VA) I have checked the Center Watch Clinical Trial listings but did not find any. Thanks for any info. Debbie (can anyone tell me what " wrap words " means on the reply page? Thanks >> Hi Debbie, No, I'm afraid I don't. I only stumbled onto knowledge of the one I'm in (at the University of Rochester) because I saw something on the local news last spring about their first trial. I posted a question here at the time about it, and Heleen LeRoux at Rochester contacted me with more information. Sorry, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 In a message dated 01-01-23 09:27:54 EST, you write: << , Do you know how I can find out if there is a clinical drug study for the RU-486 in my area? (VA) I have checked the Center Watch Clinical Trial listings but did not find any. Thanks for any info. Debbie (can anyone tell me what " wrap words " means on the reply page? Thanks >> Hi Debbie, No, I'm afraid I don't. I only stumbled onto knowledge of the one I'm in (at the University of Rochester) because I saw something on the local news last spring about their first trial. I posted a question here at the time about it, and Heleen LeRoux at Rochester contacted me with more information. Sorry, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 Hi Bonnie, Sounds like we have an acquaintance in common. How many mgs are you taking? In a message dated 01-01-23 15:32:26 EST, you write: << Sydney, All I know about it was supplied me by Heleen at the University of Rochester,I think she is part of our group. The First Affiliated Hospital of Beijing Medical University in Beijing.The people involved are Youlin Yang,Zheng Shurong,Li Kemin et al.They have a web site,but I can't find it this instant,however if you do a " search " and type in First Affliated etc. you should get somewhere.I was going to follow this lead and I'm glad you will,right now I have some breakthrough bleeding from the progesterone I was telling everyone that was working so well,so I'm a bit on edge.However,would you please keep me,and others interested,in the loop? Bonnie Sydney Lagier wrote: > Bonnie: > > I'm interested in your comment about China. Does the literature > mention how they use it (a low dose forever ora temporary dose of it) > or what happens when they stop taking it? Yes, I'm very interested in > learning more about this. > > Sydney > > At 01:22 PM 1/23/01 -0500, you wrote: > >> Sydney, >> This is my guess too.I don't see how one could get RU486.Think of >> the >> risk the doctor would be putting himself at-its not approved for >> fibroids,okay neither is progesterone,but a lot of doctors prescribe >> it >> anyway,but they have collegues who will stand by them.Give RU486 to >> a >> patient and what do you do with complications,how do you justify >> that >> your peers are doing the same.I bet there is confusion with Lupron. >> Bonnie >> P.S. I understand RU 486 is approved for fibroids in China>I have >> the >> info.if yo're interested. >> >> Sydney Lagier wrote: >> >> > You got RU-486??? How? I can't seem to get anyone to let me try >> >> > it. I thought you had to be part of a study. (Are you sure >> you're >> > not talking about Lupron?) >> > >> > At 04:36 PM 1/23/01 +0000, you wrote: >> > >> >> I got this drug from a doctor who no longer practices in >> Alabama. I >> >> was not >> >> part of a study and I hate I ever took that drug. >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 Hi Bonnie, Sounds like we have an acquaintance in common. How many mgs are you taking? In a message dated 01-01-23 15:32:26 EST, you write: << Sydney, All I know about it was supplied me by Heleen at the University of Rochester,I think she is part of our group. The First Affiliated Hospital of Beijing Medical University in Beijing.The people involved are Youlin Yang,Zheng Shurong,Li Kemin et al.They have a web site,but I can't find it this instant,however if you do a " search " and type in First Affliated etc. you should get somewhere.I was going to follow this lead and I'm glad you will,right now I have some breakthrough bleeding from the progesterone I was telling everyone that was working so well,so I'm a bit on edge.However,would you please keep me,and others interested,in the loop? Bonnie Sydney Lagier wrote: > Bonnie: > > I'm interested in your comment about China. Does the literature > mention how they use it (a low dose forever ora temporary dose of it) > or what happens when they stop taking it? Yes, I'm very interested in > learning more about this. > > Sydney > > At 01:22 PM 1/23/01 -0500, you wrote: > >> Sydney, >> This is my guess too.I don't see how one could get RU486.Think of >> the >> risk the doctor would be putting himself at-its not approved for >> fibroids,okay neither is progesterone,but a lot of doctors prescribe >> it >> anyway,but they have collegues who will stand by them.Give RU486 to >> a >> patient and what do you do with complications,how do you justify >> that >> your peers are doing the same.I bet there is confusion with Lupron. >> Bonnie >> P.S. I understand RU 486 is approved for fibroids in China>I have >> the >> info.if yo're interested. >> >> Sydney Lagier wrote: >> >> > You got RU-486??? How? I can't seem to get anyone to let me try >> >> > it. I thought you had to be part of a study. (Are you sure >> you're >> > not talking about Lupron?) >> > >> > At 04:36 PM 1/23/01 +0000, you wrote: >> > >> >> I got this drug from a doctor who no longer practices in >> Alabama. I >> >> was not >> >> part of a study and I hate I ever took that drug. >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 I got this drug from a doctor who no longer practices in Alabama. I was not part of a study and I hate I ever took that drug. > >Reply-To: uterinefibroidsegroups >To: uterinefibroidsegroups >Subject: Re: hello, new to group >Date: Tue, 23 Jan 2001 07:59:34 -0800 > ><< smime.p7s >> _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Wiley wrote: I used ru-486 for 3 months before having a myomectomy. I hate I ever took that drug. My legs cramp me all the time. I never had that problem before using ru-486. My legs would cramp so badly some nights I could not even sleep. I don't recommend this treatment unless you already have something else lined up to treat your symptoms after you stop using the drug. I think you can only use ru-486 for up to six months. Most doctors will only let you use it for 3 months because this is not an approved drug for the shrinkage of fibroids in Alabama Sanda, Where were you getting RU-486 in Alabama? Were you part of a study? carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 I got this drug from a doctor who no longer practices in Alabama. I was not part of a study and I hate I ever took that drug. > >Reply-To: uterinefibroidsegroups >To: uterinefibroidsegroups >Subject: Re: hello, new to group >Date: Tue, 23 Jan 2001 07:59:34 -0800 > ><< smime.p7s >> _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Wiley wrote: I used ru-486 for 3 months before having a myomectomy. I hate I ever took that drug. My legs cramp me all the time. I never had that problem before using ru-486. My legs would cramp so badly some nights I could not even sleep. I don't recommend this treatment unless you already have something else lined up to treat your symptoms after you stop using the drug. I think you can only use ru-486 for up to six months. Most doctors will only let you use it for 3 months because this is not an approved drug for the shrinkage of fibroids in Alabama Sanda, Where were you getting RU-486 in Alabama? Were you part of a study? carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 You got RU-486??? How? I can't seem to get anyone to let me try it. I thought you had to be part of a study. (Are you sure you're not talking about Lupron?) At 04:36 PM 1/23/01 +0000, you wrote: I got this drug from a doctor who no longer practices in Alabama. I was not part of a study and I hate I ever took that drug. > >Reply-To: uterinefibroidsegroups >To: uterinefibroidsegroups >Subject: Re: hello, new to group >Date: Tue, 23 Jan 2001 07:59:34 -0800 > ><< smime.p7s >> _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 Sydney, This is my guess too.I don't see how one could get RU486.Think of the risk the doctor would be putting himself at-its not approved for fibroids,okay neither is progesterone,but a lot of doctors prescribe it anyway,but they have collegues who will stand by them.Give RU486 to a patient and what do you do with complications,how do you justify that your peers are doing the same.I bet there is confusion with Lupron. Bonnie P.S. I understand RU 486 is approved for fibroids in China>I have the info.if yo're interested. Sydney Lagier wrote: You got RU-486??? How? I can't seem to get anyone to let me try it. I thought you had to be part of a study. (Are you sure you're not talking about Lupron?) At 04:36 PM 1/23/01 +0000, you wrote: I got this drug from a doctor who no longer practices in Alabama. I was not part of a study and I hate I ever took that drug. > >Reply-To: uterinefibroidsegroups >To: uterinefibroidsegroups >Subject: Re: hello, new to group >Date: Tue, 23 Jan 2001 07:59:34 -0800 > ><< smime.p7s >> _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 Sydney, This is my guess too.I don't see how one could get RU486.Think of the risk the doctor would be putting himself at-its not approved for fibroids,okay neither is progesterone,but a lot of doctors prescribe it anyway,but they have collegues who will stand by them.Give RU486 to a patient and what do you do with complications,how do you justify that your peers are doing the same.I bet there is confusion with Lupron. Bonnie P.S. I understand RU 486 is approved for fibroids in China>I have the info.if yo're interested. Sydney Lagier wrote: You got RU-486??? How? I can't seem to get anyone to let me try it. I thought you had to be part of a study. (Are you sure you're not talking about Lupron?) At 04:36 PM 1/23/01 +0000, you wrote: I got this drug from a doctor who no longer practices in Alabama. I was not part of a study and I hate I ever took that drug. > >Reply-To: uterinefibroidsegroups >To: uterinefibroidsegroups >Subject: Re: hello, new to group >Date: Tue, 23 Jan 2001 07:59:34 -0800 > ><< smime.p7s >> _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 In a message dated 01-01-23 18:13:33 EST, you write: << Hi , Are things getting confused?I'm on progesterone,is that what you mean,or RU486 and our common friend is the great Heleen? Please answer back and set me straight,I'm peri-menopausal and I can have a partially fried brain at times Bonnie >> Hi Bonnie, I guess I got confused. I'm on RU-486, the anti-progesterone. But I did mean the great Heleen. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 In a message dated 01-01-23 18:13:33 EST, you write: << Hi , Are things getting confused?I'm on progesterone,is that what you mean,or RU486 and our common friend is the great Heleen? Please answer back and set me straight,I'm peri-menopausal and I can have a partially fried brain at times Bonnie >> Hi Bonnie, I guess I got confused. I'm on RU-486, the anti-progesterone. But I did mean the great Heleen. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.