Hi, I'm new

August 17, 2001

--- Amy wrote:

> Hi, my name is Amy and I'm a 30yr old mother of two.

> I was just diagnosed last week with papillary

> carcinoma and will have a total thyroidectomy next

> Wednesday. Needless to say, I am scared to death.

> My dr assures me I have nothing to worry about, but

> still...it's a scary word. I'm looking forward to

> hearing from all of you and hearing your stories.

> Amy

>

> [Non-text portions of this message have been

> removed]

Hi, Amy. My story is similar. I'm a 32-year-old

mother of a 3 year old son. I had a total

thyroidectomy in December of 2000. I had a cyst,

(nodule) on my right lobe. The doctor told me that

cancer was rare. I even had a needle biopsy that came

back benign. I had the surgery Dec. 7th. While I was

under, the lab looked at the cyst. Again no cancer.

I was left with a portion of my gland to avoid having

to take medication. Less than a week later I was

called by my doctor, who informed me that another lab

that took more detailed slices of the cyst found

follicular cancer in the center of the cyst. I had to

go back Dec. 12 and have the surgery one more time. I

was very depressed. The surgeon cut on the same

place, since it didn't have time to heal yet. The

scar doesn't look too bad now. I will look into laser

surgery later and I have to take synthroid every day.

You have better news. Yours is papillary, which is

the best to have. Follicular could come back. I am

praying not. Mine was very hard to find, since it was

right in the center. That is also a good sign. My

lump was noticed after I have birth to my son. I had

gained 50 lbs. I feel so much better now. I’ve lost

40 lbs. I only have about 10 more left to get back to

my normal weight of 130lbs. Don't worry, recovery

time is very fast and you scar doesn't even hurt, it

just uncomfortable with the bandages. Nada

__________________________________________________

August 17, 2001

--- Amy wrote:

> Hi, my name is Amy and I'm a 30yr old mother of two.

> I was just diagnosed last week with papillary

> carcinoma and will have a total thyroidectomy next

> Wednesday. Needless to say, I am scared to death.

> My dr assures me I have nothing to worry about, but

> still...it's a scary word. I'm looking forward to

> hearing from all of you and hearing your stories.

> Amy

>

> [Non-text portions of this message have been

> removed]

Hi, Amy. My story is similar. I'm a 32-year-old

mother of a 3 year old son. I had a total

thyroidectomy in December of 2000. I had a cyst,

(nodule) on my right lobe. The doctor told me that

cancer was rare. I even had a needle biopsy that came

back benign. I had the surgery Dec. 7th. While I was

under, the lab looked at the cyst. Again no cancer.

I was left with a portion of my gland to avoid having

to take medication. Less than a week later I was

called by my doctor, who informed me that another lab

that took more detailed slices of the cyst found

follicular cancer in the center of the cyst. I had to

go back Dec. 12 and have the surgery one more time. I

was very depressed. The surgeon cut on the same

place, since it didn't have time to heal yet. The

scar doesn't look too bad now. I will look into laser

surgery later and I have to take synthroid every day.

You have better news. Yours is papillary, which is

the best to have. Follicular could come back. I am

praying not. Mine was very hard to find, since it was

right in the center. That is also a good sign. My

lump was noticed after I have birth to my son. I had

gained 50 lbs. I feel so much better now. I’ve lost

40 lbs. I only have about 10 more left to get back to

my normal weight of 130lbs. Don't worry, recovery

time is very fast and you scar doesn't even hurt, it

just uncomfortable with the bandages. Nada

__________________________________________________

August 17, 2001

>Hi, my name is Amy and I'm a 30yr old mother of two. I was just

>diagnosed last week with papillary carcinoma and will have a total

>thyroidectomy next Wednesday. Needless to say, I am scared to death.

>My dr assures me I have nothing to worry about, but still...it's a

>scary word. I'm looking forward to hearing from all of you and

>hearing your stories.

Hi Amy & welcome to the ThyCa list!

Did your surgeon answer your questions about surgery? Did his

answers help reassure you?

Do you still have any specific concerns or fears? Just ask away,

and I'm sure you'll get comments from list members.

If you go to the Thyca group site on yahoogroups, you can also use

the archive function to search for previous messages were posted about

any topic like " surgery " or " thyroidectomy " (tt).

Good luck with your surgery & let us know how you are doing.

dx pap-Hurthle cell variant, tt 9/99, RAI 100 mCi 12/99

August 17, 2001

>Hi, my name is Amy and I'm a 30yr old mother of two. I was just

>diagnosed last week with papillary carcinoma and will have a total

>thyroidectomy next Wednesday. Needless to say, I am scared to death.

>My dr assures me I have nothing to worry about, but still...it's a

>scary word. I'm looking forward to hearing from all of you and

>hearing your stories.

Hi Amy & welcome to the ThyCa list!

Did your surgeon answer your questions about surgery? Did his

answers help reassure you?

Do you still have any specific concerns or fears? Just ask away,

and I'm sure you'll get comments from list members.

If you go to the Thyca group site on yahoogroups, you can also use

the archive function to search for previous messages were posted about

any topic like " surgery " or " thyroidectomy " (tt).

Good luck with your surgery & let us know how you are doing.

dx pap-Hurthle cell variant, tt 9/99, RAI 100 mCi 12/99

August 18, 2001

Hi Amy,

Here is the HUGE list n referred to in her posting to you. I found it

to be very helpful and a wonderful place to start with questions/answers.

You can always get your questions answered here, too, supportively, or at the

very least, find good resources here.

Good luck. You'll see....you will do just fine. Having to go through this

with children seems like a dreaded thing, but I think having children will

help to center you and give you deeper purpose as you bring yourself back to

health.

Debbi (Wash., DC) <-----mother of one

Age 41

dx pap thyca 5/01

TT 7/01

2 cm tumor/no spread to nodes

RAI anyday now

Subj: Fwd: THE Thyroid Cancer Resource List - 7/17/2001

Date: 7/22/01 9:20:16 AM Eastern Daylight Time

From: <A HREF= " mailto:DINOSJAMMIN " >DINOSJAMMIN</A>

To: <A HREF= " mailto:Djkoplen " >Djkoplen</A>

-----------------

Forwarded Message:

Subj: THE Thyroid Cancer Resource List - 7/17/2001

Date: 7/17/01 10:32:13 PM Eastern Daylight Time

From: <A HREF= " mailto:576277 " >576277</A>

To: <A HREF= " mailto:applek@... " >applek@...</A>, <A

HREF= " mailto:lstbeach20@... " >lstbeach20@...</A>, <A

HREF= " mailto:homerandmarge@... " >homerandmarge@...</A>, <A

HREF= " mailto:s_manikonda@... " >

s_manikonda@...</A>, <A HREF= " mailto:DINOSJAMMIN " >DINOSJAMMIN</A>, <A

HREF= " mailto:CMorais999 " >CMorais999</A>, <A

HREF= " mailto:Dominique@... " >

Dominique@...</A>, <A

HREF= " mailto:jlc8131@... " >jlc8131@...</A>, <A

HREF= " mailto:BobC101468 " >BobC101468</A>, <A HREF= " mailto:jlpepper@... " >

jlpepper@...</A>, <A HREF= " mailto:nysMommy1 " >nysMommy1</A>, <A

HREF= " mailto:Gustys " >Gustys</A>, <A

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osenga7@...</A>, <A

HREF= " mailto:margaretep@... " >margaretep@...</A>, <A

HREF= " mailto:menchu1968@... " >menchu1968@...</A>, <A

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lgormezano@...</A>, <A

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HREF= " mailto:PDrucklieb " >PDrucklieb</A>, <A

HREF= " mailto:IstFrench " >IstFrench</A>, <A HREF= " mailto:Renae43152 " >

Renae43152</A>, <A

HREF= " mailto:scoobydoobydoo1@... " >scoobydoobydoo1@...</A>, <A

HREF= " mailto:ThyCa " >ThyCa</A>, <A HREF= " mailto:PWattsN " >PWattsN</A>,

<A HREF= " mailto:ImeldaJunior " >ImeldaJunior</A>, <A

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feona_j@...</A>, <A

HREF= " mailto:Walter@... " >Walter@...</A>, <A

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HREF= " mailto:alovejoy@... " >

alovejoy@...</A>, <A HREF= " mailto:Carole432a " >Carole432a</A>, <A

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<A HREF= " mailto:tanya.klassen@... " >tanya.klassen@...</A>, <A

HREF= " mailto:Choni1 " >Choni1</A>, <A

HREF= " mailto:rosenstein.a@... " >rosenstein.a@...</A>

THE Thyroid Cancer Related Resource List

The following are some of the links I'm aware of. I do not specifically

endorse any of the sites listed, I cannot guaranty the accuracy of any info.,

I do not profit from this at all, and no advice is intended. ALWAYS consult

your doctor. Simply put, I have either found the following sources of

information helpful or they look helpful to me. I hope they are of interest

to you:

GENERAL INFO.

<A HREF= " http://www.thyca.org/index.htm " >ThyCa: Thyroid Cancer Survivors'

Association</A>

http://www.Thyca.org

Created and maintained by Thyroid Cancer Survivors.

Great Info.; Great Resource; Caring People who've been there.

An excellent place to begin !

<A HREF= " http://www.thyroid-cancer.net/ " >Thyroid Cancer at s Hopkins</A>

http://www.thyroid-cancer.net/

s Hopkins Thyroid Tumor Center http://www.thyroid-cancer.net

This very helpful site is being developed by the doctors at s

Hopkins Thyroid Tumor Center. Using easy-to-understand terms, the

site explains about issues having to do with thyroid cancer, from

basic thyroid function to diagnosis and treatment. The site also

includes news and innovations in thyroid cancer treatment, a list

of specialists in your area, and even allows you to create your

own thyroid page to keep track of your medication and pharmacy

information, track your lab results, keep track of questions for

your doctor and can remind you via email when its time to refill

your thyroid prescription!

<A HREF= " http://www.aace.com/ " >Welcome to AACE</A>

http://www.aace.com/

American Association of Clinical Endocrinologists ( HIGHLY RECOMMENDED)

Also LOCATE an Endocrinologist who Specializes in the treatment of Thyroid

diseases in YOUR AREA.

<A HREF= " http://www.aace.com/clinguideindex.htm " >Welcome to AACE Online: AACE

Clinical Practice Guidelines</A>

http://www.aace.com/clinguideindex.htm

The Clinical Practice Guidelines for the Treatment of Thyroid Carcinoma.

<A HREF= " http://cancernet.nci.nih.gov/ " >NCI's CancerNet Cancer Information</A>

http://wwwicic.nci.nih.gov/

NCI (National Cancer Institute), including Clinical Trials info. and a lot

more.

<A HREF= " http://cancernet.nci.nih.gov/Cancer_Types/Thyroid_Cancer.shtml " >NCI

Thyroid Cancer Info.</A>, including:

http://cancernet.nci.nih.gov/Cancer_Types/Thyroid_Cancer.shtml

Statistics

Treating Thyroid Cancer

Clinical Trials

Genetics, Causes, Risk Factors, Prevention of Thyroid Cancer

Complementary and Alternative Medicine

Testing for Thyroid Cancer

Coping with Thyroid Cancer

Support and Resources

Cancer Literature

Related Information

Emotional Concerns

and <A

HREF= " http://cancernet.nci.nih.gov/cgi-bin/srchcgi.exe?DBID=pdq & TYPE=search & SFMT\

=pdq_statement/1/0/0 & Z208=208_01252H " >reviewable studies</A> including:

Hundahl SA, Fleming ID, Fremgen AM, et al.: A National Cancer Data Base

report on 53,856 cases of thyroid carcinoma treated in the U.S., 1985-1995.

Cancer 83(12): 2638-2648, 1998.

Grant CS, Hay ID, Gough IR, et al.: Local recurrence in papillary thyroid

carcinoma: Is extent of surgical resection important? Surgery 104(6):

954-962, 1988.

LE, Cady B: Differentiated thyroid cancer: reexamination of risk

groups and outcome of treatment. Archives of Surgery 133(4): 419-425, 1998.

Mazzaferri EL: Treating differentiated thyroid carcinoma: where do we draw

the line? Mayo Clinic Proceedings 66(1): 105-111, 1991.

Staunton MD: Thyroid cancer: a multivariate analysis on influence of

treatment on long-term survival. European Journal of Surgical Oncology 20:

613-621, 1994.

Mazzaferri EL, Jhiang SM: Long-term impact of initial surgical and medical

therapy on papillary and follicular thyroid cancer. American Journal of

Medicine 97: 418-428, 1994.

Tennvall J, Biorklund A, Moller T, et al.: Is the EORTC prognostic index of

thyroid cancer valid in differentiated thyroid carcinoma?: retrospective

multivariate analysis of differentiated thyroid carcinoma with long

follow-up. Cancer 57(7): 1405-1414, 1986.

Shah JP, Loree TR, Dharker D, et al.: Prognostic factors in differentiated

carcinoma of the thyroid gland. American Journal of Surgery 164(6): 658-661,

1992.

Andersen PE, Kinsella J, Loree TR, et al.: Differentiated carcinoma of the

thyroid with extrathyroidal extension. American Journal of Surgery 170(5):

467-470, 1995.

Coburn MC, Wanebo HJ: Prognostic factors and management considerations in

patients with cervical metastases of thyroid cancer. American Journal of

Surgery 164(6): 671-676, 1992.

Sellers M, Beenken S, Blankenship A, et al.: Prognostic significance of

cervical lymph node metastases in differentiated thyroid cancer. American

Journal of Surgery 164(6): 578-581, 1992.

van Herle AJ, Brown DG: Thyroglobulin in benign and malignant thyroid

disease. In: Falk SA: Thyroid disease: endocrinology, surgery, nuclear

medicine, and radiotherapy. New York: Raven Press, 1990, pp 473-484.

Ruiz- J, Ruiz de Almodovar JM, Olea N, et al.: Thyroglobulin level as a

predictive factor of tumoral recurrence in differentiated thyroid cancer.

Journal of Nuclear Medicine 32(3): 395-398, 1991.

Duren M, Siperstein AE, Shen W, et al.: Value of stimulated serum

thyroglobulin levels for detecting persistent or recurrent differentiated

thyroid cancer in high- and low-risk patients. Surgery 126(1): 13-19, 1999.

Godballe C, Asschenfeldt P, nsen KE, et al.: Prognostic factors in

papillary and follicular thyroid carcinomas: p53 expression is a significant

indicator of prognosis. Laryngoscope 108(2): 243-249, 1998.

Fraker DL, Skarulis M, Livolsi V: Thyroid tumors. In: DeVita VT Jr, Hellman

S, Rosenberg SA, eds.: Cancer: Principles and Practice of Oncology.

Philadelphia, Pa: Lippincott-Raven Publishers, 5th ed., 1997, pp 1629-1652.

<A

HREF= " http://cancernet.nci.nih.gov/cgi-bin/srchcgi.exe?DBID=pdq & TYPE=search & SFMT\

=pdq_statement/1/0/0 & Z208=208_01252H " >http://cancernet.nci.nih.gov/cgi-bin/srchc\

gi.exe?DBID=pdq & TYPE=search &

SFMT=pdq_statement/1/0/0 & Z208=208_01252H</A>

<A HREF= " http://www.cancerlinksusa.com/thyroid/index.htm " >Thyroid Cancer,

CancerLinksUSA.com</A>

http://www.cancerlinksusa.com/thyroid/index.htm

The CancerLinksUSA.com is a site founded to provide support and information

to cancer patients and their caregivers.

<A HREF= " http://www.ohsu.edu/cliniweb/C19/C19.874.html " >Thyroid Diseases</A>

http://www.ohsu.edu/cliniweb/C19/C19.874.html

Has MANY links to thyroid info. sites including Baylor College of Medicine,

Harvard, Loyola, Med.College of Wisconsin, Nat'l Cancer Center of Japan, U.

of Illinios, UPENN Oncolink, U. Pittsburgh Med. Ctr., Virginia SOM, and some

others for info. about Thyroid Cancers. It also has info. about other

Thyroid conditions and other links including to The American Assoc. of

Clinical Endocrinologists, Vanderbilt, U. of Iowa, Stanford, Canadian Med.

Assoc. and U. Florida.

<A HREF= " http://www3.cancer.org/cancerinfo/res_home.asp?st=wi & ct=43 " >Thyroid

Cancer : Resource Center</A> - American Cancer Society

http://www3.cancer.org/cancerinfo/res_home.asp?st=wi & ct=43

Basic overview kind of Info.

<A HREF= " http://www.ncbi.nlm.nih.gov/PubMed/ " >Welcome to PubMed</A>

http://www.ncbi.nlm.nih.gov/PubMed/

National Library of Medicine. Search Topics with Medline, Journals and more.

<A HREF= " http://medlineplus.gov/ " >Medline Plus</A>

http://medlineplus.gov/

Health topics, Drug Info., Dictionaries, Professional Directories, and more !

<A HREF= " http://www.geocities.com/Athens/3626/thyroid.html " >Thyroid Related Web

sites </A>

http://www.geocities.com/Athens/3626/thyroid.html

A bunch more Thyroid sites and some search engines, including Medline.

<A HREF= " http://www.the-thyroid-society.org/ " >The Thyroid Society</A>

http://www.the-thyroid-society.org/

The Thyroid Society (General Info.)

<A HREF= " http://home.ican.net/~thyroid/Guides/HG12.html " >Thyroid Foundation of

Canada</A>

http://www.thyroid.ca/index.html

The Thyroid Foundation of Canada (Very Basic)

<A HREF= " http://www.mythyroid.com/thyroid_cancer.htm " >Thyroid Cancer</A> -

General Info. from Ontario.

http://www.mythyroid.com/thyroid_cancer.htm

The site is maintained by Dr. J Drucker, Division of Endocrinology,

University of Toronto.

<A

HREF= " http://endrcr06.mda.uth.tmc.edu/Sherman/Thyroidectomy/thyroid.htm " >Thyroid

Surgery</A>

http://endrcr06.mda.uth.tmc.edu/Sherman/Thyroidectomy/thyroid.htm

MD Patient Info.

AOL Keyword: Medline

<A HREF= " http://www.the-thyroid-society.org/info.html " >The Thyroid Society -

Additional Info</A>

http://www.the-thyroid-society.org/info.html

More links/info.

<A HREF= " http://www.endocrineweb.com/thyroidca.html " >Thyroid cancer: diagnosis,

treatment and prognosis.</A>

http://www.endocrineweb.com/thyroidca.html

Overview and general info.

<A HREF= " http://www.thyroidmanager.org/Chapter18/18-cancerframe.htm " >Thyroid

Disease Resource Text</A> - Including Thyroid Cancer.

http://www.thyroidmanager.org/Chapter18/18-cancerframe.htm

" THYROID DISEASE MANAGER© is intended to provide physicians, researchers,

and trainees around the world with an authoritative, complete and current

analysis of all aspects of human thyroid physiology and thyroid disease. "

<A HREF= " http://www.cansearch.org/ " >National Coalition for Cancer

Survivorship</A>

http://www.cansearch.org/

TREATMENT ISSUES

<A

HREF= " http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?db=m & form=6 & uid=895403\

4 & Dopt=r " >TSH Suppression and Prognosis</A>

http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?db=m & form=6 & uid=8954034 &

Dopt=r

J Clin Endocrinol Metab

Degree of thyrotropin suppression as a prognostic determinant in

differentiated thyroid cancer.

and

<A

HREF= " http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9777742 & form=6 & db=\

m & Dopt=b " >TSH Suppression Study</A>

http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9777742 & form=6 & db=m &

Dopt=b

Thyrotropin suppression and disease progression in patients with

differentiated thyroid cancer: results from the National Thyroid Cancer

Treatment ative Registry.

<A

HREF= " http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=1517360 & form=6 & db=\

m & Dopt=b " >MD Past Experience with Treatment Options</A>

http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=1517360 & form=6 & db=m &

Dopt=b

J Clin Endocrinol Metab 1992 Sep;75(3):714-720

The results of various modalities of treatment of well differentiated thyroid

carcinomas: a retrospective review of 1599 patients.

<A

HREF= " http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9164219 & form=6 & db=\

m & Dopt=b " >Survival of Differentiated Thyroid Carcinoma Studied in 500

Patients.</A>

http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9164219 & form=6 & db=m &

Dopt=b

<A

HREF= " http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query_old?uid=10626858 & form=\

6 & db=m & Dopt=b " >Treatment of Papillary in Children</A>

http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query_old?uid=10626858 & form=6 &

db=m & Dopt=b

Study: Extensive surgery improves recurrence-free survival for children and

young patients with class I papillary thyroid carcinoma.

<A HREF= " http://cancernet.nci.nih.gov/pdqfull.html " >Thyroid Cancer: General

Info.</A>

http://www.indyrad.iupui.edu/public/lectures/HTML/NM-RM/NUCMED/THY09.HTM

<A HREF= " http://endocrine-surgery.com/hyper1.html " >Hyperthyroidism

Thyrotoxicosis/Hyperthyroid Symptoms</A>

http://endocrine-surgery.com/hyper1.html

<A HREF= " http://endocrine-surgery.com/hypo1.html " >Hypothyroid Symptoms</A>

http://endocrine-surgery.com/hypo1.html

<A HREF= " http://endocrine-surgery.com/thyroiditis.html " >Thyroiditis

Explained</A>

http://endocrine-surgery.com/thyroiditis.html

TESTING INFO.

<A HREF= " http://endocrineweb.com/tests.html " >Interpretation of Thyroid Tests

Thyroid Tests Explained</A>

http://endocrineweb.com/tests.html

<A HREF= " http://www.endocrineweb.com/fna.html " >FNA Biopsy Explained</A>

http://www.endocrineweb.com/fna.html

<A

HREF= " http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=8608781 & form=6 & db=\

m & Dopt=b " >Thyroglobulin Info.</A>

http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=8608781 & form=6 & db=m &

Dopt=b

Thyroglobulin measurement. Techniques, clinical benefits, and pitfalls.

<A

HREF= " http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & list_\

uids=11041454 & dopt=Abstract " >Thyrogen Study</A>

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed &

list_uids=11041454 & dopt=Abstract

Thyroid 2000 Sep;10(9):767-78

Using recombinant human TSH in the management of well-differentiated thyroid

cancer: current strategies and future directions.

Mazzaferri EL, Kloos RT

Department of Internal Medicine, The Ohio State University, Columbus, USA.

<A HREF= " http://www.genzyme.com/thyrogen/pi.htm " >Genzyme Corporation -

Thyrogen</A>

http://www.genzyme.com/thyrogen/pi.htm

THYROGEN Info.

" Across the two clinical studies, the Thyrogen scan failed to detect remnant

and/or cancer localized to the thyroid bed in 16% (20/124) of patients in

whom it was detected by a scan after thyroid hormone withdrawal. In addition,

the Thyrogen scan failed to detect metastatic disease in 24% (9/38) of

patients in whom it was detected by a scan after thyroid hormone withdrawal. "

<A

HREF= " http://jcem.endojournals.org/cgi/content/abstract/86/2/619?maxtoshow= & HITS\

=10 & " >Thyrogen Study</A>

The Journal of Clinical Endocrinology & Metabolism Vol. 86, No. 2 619-625,

2001

http://jcem.endojournals.org/cgi/content/abstract/86/2/619?maxtoshow= & HITS=10 &

" We conclude that preparing patients by rhTSH is diagnostically equivalent to

preparing them by THW. "

<A HREF= " http://www.mflint.com/thyrogen/thyrogen.htm " >Thyrogen Brochure</A>

http://www.mflint.com/thyrogen/thyrogen.htm

<A HREF= " http://www.nejm.org/content/1997/0337/0013/0888.asp " >Original Articles

-- NEJM 1997; 337: 888-896 -- September 25, 1997</A>

http://www.nejm.org/public/1997/0337/0013/0888/1.htm

(Thyrogen Related Study)

RADIOACTIVE IODINE / RADIATION

<A

HREF= " http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & I " >Sa\

livary and lacrimal gland dysfunction (sicca syndrome) after radioiodine

therapy.</A>

J Nucl Med 2001 May;42(5):738-43

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & I

<A

HREF= " http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=8896926 & form=6 & db=\

m & Dopt=b " >Short Term Hazards</A>

http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=8896926 & form=6 & db=m &

Dopt=b

Potential Short Term Complications of Low Dose I-131.

<A

HREF= " http://www.cc.nih.gov/ccc/patient_education/pepubs/lowio.pdf " >http://www.c\

c.nih.gov/ccc/patient_education/pepubs/lowio.pdf</A>

A Low Iodine Diet often prescribed before I-131 ablation.

<A HREF= " http://www.mskcc.org/document/pedrad.htm " >Radiation Exposure and

Thyroid Cancer</A>

http://www.mskcc.org/document/pedrad.htm

Info. about Nuclear Testing in the 1950s and 1960s and increased risk.

and

http://rex.nci.nih.gov/massmedia/Fallout/contents.html

<A HREF= " http://www.prop1.org/prop1/radiated/states.htm " >U.S. Radiation

Sites</A>

http://www.prop1.org/prop1/radiated/states.htm

Interesting site. A little unsettling.

<A HREF= " http://www-dceg.ims.nci.nih.gov/cgi-bin/atlas/mapview " >Atlas of Cancer

Mortality -- View Maps</A>

http://www-dceg.ims.nci.nih.gov/cgi-bin/atlas/mapview

See Maps and Data re: Thyroid Cancer Mortality and Distribution from NIH.

MEDULLARY

<A HREF= " http://www.endocrineweb.com/camed.html " >Medullary Thyroid Cancer

Overview.</A>

http://www.endocrineweb.com/camed.html

http://web.jet.es/bturner/fset.htm

Medullary Info. Site

<A HREF= " http://www.nejm.org/content/1994/0331/0013/0870.asp " >Medullary Info. --

NEJM 1994</A>

http://www.nejm.org/public/1994/0331/0013/0870/1.htm

<A

HREF= " http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9681853 & form=6 & db=\

m & Dopt=b " >Recurrent Medullary Thyroid Cancer</A>

http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9681853 & form=6 & db=m &

Dopt=b

Surgical management of patients with persistent or recurrent Medullary

thyroid cancer.

ANAPLASTIC

<A

HREF= " http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=1695118 & form=6 & db=\

m & Dopt=b " >Anaplastic MD </A>

http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=1695118 & form=6 & db=m &

Dopt=b

<A

HREF= " http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=7883548 & form=6 & db=\

m & Dopt=b " >Anaplastic 24 Yr. Experience</A>

http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=7883548 & form=6 & db=m &

Dopt=b

FOLLICULAR and HURTHLE CELL

<A

HREF= " http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9735140 & form=6 & db=\

m & Dopt=b " >Follicular and Hurthle Cell Neoplasms</A>

http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9735140 & form=6 & db=m &

Dopt=b

Management of Follicular and Hurthle Cell Neoplasms of the Thyroid Gland.

<A HREF= " http://endocrineweb.com/hurthle.html " >Hurthle Cell Carcinoma:

Diagnosis and Treatment</A>

http://endocrineweb.com/hurthle.html

THYROID DISEASE AND PREGNANCY

<A

HREF= " http://cancernet.nci.nih.gov/cgi-bin/srchcgi.exe?SFMT=clit_detailed/1/0/1 & \

TYPE=fetch & RECKEY=C6/399814000/3120 & PASSTHRU=:srchform:SRCH:ip:64.12.104.186::HO\

ME:::SEARCH::::recno:3 " >Thyroid Disease and Female Reproduction</A>

Department of Endocrinology and Metabolism, Panagia Hospital, Thessaloniki,

Greece. 2000

http://cancernet.nci.nih.gov/cgi-bin/srchcgi.exe?SFMT=clit_detailed/1/0/1 &

TYPE=fetch & RECKEY=C6/399814000/3120 &

PASSTHRU=:srchform:SRCH:ip:64.12.104.186::HOME:::SEARCH::::recno:3

<A

HREF= " http://cancernet.nci.nih.gov/cgi-bin/srchcgi.exe?SFMT=clit_detailed/1/0/1 & \

TYPE=fetch & RECKEY=C6/337265427/2773 & PASSTHRU=:srchform:SRCH:ip:64.12.104.186::HO\

ME:::SEARCH::::recno:6 " >Pregnancy following Thyroid Cancer</A>

Clinic of Endocrinological and General Surgery, Medical University of Lodz,

Poland. 2000

http://cancernet.nci.nih.gov/cgi-bin/srchcgi.exe?SFMT=clit_detailed/1/0/1 &

TYPE=fetch & RECKEY=C6/337265427/2773 &

PASSTHRU=:srchform:SRCH:ip:64.12.104.186::HOME:::SEARCH::::recno:6

<A

HREF= " http://cancernet.nci.nih.gov/cgi-bin/srchcgi.exe?SFMT=clit_detailed/1/0/1 & \

TYPE=fetch & RECKEY=C6/113416161/2516 & PASSTHRU=:srchform:SRCH:ip:64.12.104.186::HO\

ME:::SEARCH::::recno:14 " >Management of differentiated thyroid cancer diagnosed

during pregnancy.</A>

Eur J Endocrinol, 1999

Thyroid Unit, Royal Marsden NHS Trust, Downs Road, Sutton, Surrey SM2 5PT,

UK.

http://cancernet.nci.nih.gov/cgi-bin/srchcgi.exe?SFMT=clit_detailed/1/0/1 &

TYPE=fetch & RECKEY=C6/113416161/2516 &

PASSTHRU=:srchform:SRCH:ip:64.12.104.186::HOME:::SEARCH::::recno:14

OTHER ISSUES

<A HREF= " http://thyroid.about.com/health/thyroid/gi/pages/mmail.htm " >Thyroid

Disease Newsletter #5 - September 5, 1997 - Thyroid Disease</A>

http://thyroid.about.com/health/thyroid/gi/pages/mmail.htm

Inconsistencies of Thyroid Hormone Replacements.

[Federal Register: August 14, 1997 (Volume 62, Number 157)] - FDA

<A HREF= " http://thyroid.miningco.com/bliodin.htm " >Thyroid Disease / The Low

Iodine Diet -- The Mining Company</A>

http://thyroid.tqn.com/bliodin.htm

A Pre-Scan Low Iodine Diet.

<A

HREF= " http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9579237 & form=6 & db=\

m & Dopt=b " >Bone Density and Replacement Thyroxine</A>

http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9579237 & form=6 & db=m &

Dopt=b

Effect of replacement doses of thyroxine on bone mineral density.

<A

HREF= " http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9661603 & form=6 & db=\

m & Dopt=b " >Bone Density Not Reduced</A>

http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9661603 & form=6 & db=m &

Dopt=b

....Bone density is not reduced by suppressive doses of thyroxine, but is

increased by cyclic intravenous pamidronate.

<A

HREF= " http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9678534 & form=6 & db=\

m & Dopt=b " >Bone Density Info.</A>

http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9678534 & form=6 & db=m &

Dopt=b

Markers of bone turnover in patients with differentiated thyroid cancer with

and following withdrawal of thyroxine suppressive therapy.

<A HREF= " http://www.hbdi.org/ " >Human Biological Database Interchange</A>

http://www.hbdi.org/

Help Thyroid Disease Research.

" HBDI carries out its mission by recruiting interested families with affected

members who are asked to fill out a confidential questionnaire that contains

medical and genealogical information about their immediate and extended

families. A panel of scientists reviews this information and selects families

for further participation. Selected family members are requested to donate a

small sample of blood. The blood is used to produce cell lines and DNA is

extracted. These biomaterials are placed in a repository and made available

at cost to scientists worldwide. Researchers use these biomaterials in their

genetic and other studies to understand and potentially prevent disease. "

SUPPORT GROUPS - ONLINE

Subscribe to a Great Email mailing list Support Group !

ThyCa Discussion Group (general group for overall thyroid cancer discussion &

support): http://groups.yahoo.com/group/thyca/join

Instructions:

If you are already registered w/ Yahoo, then all you need to do is go to

http://groups.yahoo.com/group/thyca/join & subscribe to Thyca, Thyroid Cancer

Support Group. Of course, you can set your delivery options as you wish.

If you are not yet registered w/ Yahoo, you need to go to

http://groups.yahoo.com/group/thyca/join & click on the New Member link to

register. (This is a simple & quick process, as well as free; you will get a

Yahoo password.) Then, go back to http://groups.yahoo.com/group/thyca/join &

subscribe to Thyca, Thyroid Cancer Support Group. Set your delivery options

as you wish; you can go back to Yahoo & change them at any time.

Upon subscribing, you will get first a confirmation e-mail from Yahoo (which

you must reply to in order to activate your new list membership) & then an

automated welcome message from Yahoo. This will tell you how to post to the

list. This list has some MD contributors and is great for obtaining helpful

info. and support.

Medullary Support Group: Medullary-subscribe

Anaplastic Support Group: Anaplastic-subscribe

Pediatric Support Group: Ped_thyca-subscribe

Advanced Thyroid Cancer Support Group: adv-thyca-subscribe

<A HREF= " http://www.tile.net:2001/lists/thyroidonc.html " >THYROID-ONC: The

Thyroid Cancer Online Support Group</A>

http://www.tile.net:2001/lists/thyroidonc.html

Summary: THYROID-ONCThe Thyroid Cancer Online Email Support Group Country:

USSite: L-Soft international, Inc. org You can join this group by sending

the message " sub THYROID-ONC your name " to listserv@...

Subscribe to a GENERAL TOPIC Thyroid Email List Support Group at

LISTSERV@... and post " Subscribe Thyroid " (without

quotes). Beware, this list covers ALL thyroid conditions and deluged me with

mail unrelated to Thyroid Cancer when I subscribed to try it out.

<A HREF= " aol://2719:3-1072-Glennas%20Garden/ " >Glennas Garden </A><=====

Keyword: AHCHAT, then click on Glenna's Garden.

(On America Online)

Live Thyroid Cancer Support Chat, Monday 8-9PM.

Talk with those who've been there, and sometimes MDs.

you might also wish to check...

www.fda.gov

<A

HREF= " http://www.fda.gov/cder/drug/infopage/unithroid/unithroid.htm " >Unithroid</\

A>

FDA/Center for Drug Evaluation and Research

http://www.fda.gov/cder/drug/infopage/unithroid/unithroid.htm

" ...an oral levothryroxine sodium drug product that has been determined to be

safe and effective by the FDA and that also meets FDA standards for

manufacturing processes, purity, potency, and stability. " The first one to

be approved by the FDA.

<A HREF= " http://www.synthroid.com/noframes/prescribing/index.html " >SYNTHROID

Prescribing Information</A>

http://www.synthroid.com/noframes/prescribing/index.html

SYNTHROID Info.

<A HREF= " http://www.jmedpharma.com/html/cytomel.html " >Cytomel Company Site</A>

http://www.jmedpharma.com/html/cytomel.html

(There is some controversy about the length of Cytomel's " half life " . Hours

or days ?)

<A HREF= " http://www.genzyme.com/thyrogen/pi.htm " >Genzyme Corporation -

Thyrogen</A>

http://www.genzyme.com/thyrogen/pi.htm

THYROGEN Info.

<A HREF= " http://www.rxlist.com/ " >RxList - The Internet Drug Index</A>

http://www.rxlist.com/

<A HREF= " http://www.merck.com/pubs/ " >MERCK Manual and Publications</A>

http://www.merck.com/pubs/

Merck Manual (Full Reference Texts) (Look it up !)

<A HREF= " http://www.graylab.ac.uk/omd/index.html " >On-line Medical Dictionary</A>

http://www.graylab.ac.uk/omd/index.html

<A HREF= " http://www.m-w.com/ " >Welcome to Merriam-Webster</A> Dictionary

http://www.m-w.com

<A HREF= " http://www.quackwatch.com/ " >QuackWatch Home Page</A>

http://www.quackwatch.com/

A MUST READ ! Before you consider " Alternative Medicine " , or just about any

kind of treatment, just take a look at this site. I found it fascinating.

" Quackwatch, Inc., a member of Consumer Federation of America, is a nonprofit

corporation whose purpose is to combat health-related frauds, myths, fads,

and fallacies. "

<A HREF= " http://www.clinicaltrials.gov/ " >Clinical Trials.gov</A>

http://www.clinicaltrials.gov

NEW Searchable U.S. Government Clinical Trials Database.

<A HREF= " http://cancernet.nci.nih.gov/pdq.htm#clinical_trial " >PDQ -- NCI's

Comprehensive Cancer Database</A>

http://cancernet.nci.nih.gov/pdqfull.html

" PDQ contains the world's most comprehensive cancer clinical trials database.

It includes approximately 1,700 abstracts of trials that are open and

approved for patient accrual (accepting patients), including trials for

cancer treatment, diagnosis, supportive care, screening, and prevention. In

addition, you can access approximately 10,300 abstracts of closed clinical

trials that have been completed or are no longer accepting patients. However,

these closed clinical trials are not currently available on CancerNet. "

<A HREF= " http://cancertrials.nci.nih.gov/ " >NCI: Cancer Trials</A>

http://cancertrials.nci.nih.gov/

Search for Clinical Trials.

http://www.arc.com/cancernet/cancernet.html

Clinical Trial Searches and Other Cancer Info.

<A HREF= " http://cis.nci.nih.gov/fact/stat.htm " >Cancer Statistics</A>

<A

HREF= " http://www.facs.org/about_college/acsdept/cancer_dept/programs/ncdb/whatsn\

cdb.html " >http://www.facs.org/about_college/acsdept/cancer_dept/programs/ncdb/wh\

atsncdb.

html</A>

<A

HREF= " http://www-dceg.ims.nci.nih.gov/cgi-bin/atlas/site-discuss?site=thy " >Atlas

of Cancer Mortality in the United States: 1950-94</A>

Geographic Patterns by Type of Cancer

http://www-dceg.ims.nci.nih.gov/cgi-bin/atlas/site-discuss?site=thy

<A HREF= " http://www.ama-assn.org/aps/amahg.htm " >AMA - On-Line Doctor Finder</A>

http://www.ama-assn.org/aps/amahg.htm

American Medical Association info.on most any doctor in the country.

<A HREF= " http://cis.nci.nih.gov/fact/8_6.htm " >Hospice Info.</A>

http://cis.nci.nih.gov/fact/8_6.htm

<A HREF= " http://cancerhelp.8m.com/ " >CancerHelp - Comprehensive Cancer Resources

On The Internet</A>

http://cancerhelp.8m.com

CancerHelp (Huge Number of cancer

August 18, 2001

Amy,

One great thing you can do is to begin to prepare and freeze the foods

you will be allowed to eat once on the low-iodine diet (approximately a month

after surgery, you will be asked to go on this specialized diet). Read as

much as you can about it (there is a great deal of info on the web), resolve

any conflicting information you have (ask here), and begin to accumulate

recipes that you think you might enjoy. Prepare ahead of time whatever you

can freeze, and get everything from the store you think you will need (except

for the fresh fruit and veggies) so that when the time comes (and you will

probably be getting a little sluggish by then) you will be ready in terms of

what you'll eat....

a low iodine cookbook link can be found on the home page of <A HREF= " www.

thyca.org " >www. thyca.org</A>

Other low-iodine links can be found in that huge list I sent you.

Perhaps you are lucky enough to have someone to cook for you? If so, just

print this out and hand it to them! Also, there are plenty of dishes you eat

regularly that are allowed on the diet. As long as they don't have any of

the " no-no " ingredients in them, and as long as you use non-idozed salt

instead of iodized salt, then you are safe! You might want to start with

those dishes you're familiar with and see if they will be safe while on the

LID.

If you work outside of the home, be prepared to take a bit of time off

after surgery (usually about a week) and another couple of weeks while hypo

(although some people work during this time). My experience has shown me

that most of my friends rallied around me after surgery, but the toughest

part of this journey for me was being forced to go hypothyroid. My friends

had already gone back to their busy lives by then, thinking that the worst

for me was over. My hypo symptoms come in waves, usually brought on by

stress. For that reason, I stopped working at my fifth week after my TT. I

felt better the week I was at home with no meds vs, the week leading up to

that with Cytomel (a pill your endo will probably put you on for about a

month after your TT which will help you feel better while your neck heals,

but take you off the last two weeks prior to you RAI treatment).

One more thing...educate bosses and family about the symptoms of

hypothyroidism so that they will understand your limitations. Some people

sail through it, while others stumble through it. Most are somewhere in

between. I hope you fare well and recover quickly!

Hope this helps!

Debbi (Wash., DC)

Age 41

dx pap thyca 5/01

TT 7/01

2 cm tumor/no spread to nodes

RAI anyday now

August 18, 2001