Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 In a message dated 6/14/00 11:44:57 AM Eastern Daylight Time, fauchon@... writes: << I was a forceps delivery. When I asked the neurosurgeon if the two things were related he laughed, but your comments raise the question once again. Joyce >> When I read this, I laughed ) Why? Cuz, I think that I too was a forceps delivery. BUT, I got them at the " other end " cuz I was breech. I haven't thought about that for many, many years! June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2000 Report Share Posted June 15, 2000 wrote :, a tumor developing at the site of the trauma). Almost without doubt the NF growth in my radial nerve was caused by injury ! My upper arm was purple with brusing. Lost use of right hand 18 months to 2 years later. Docs found tumour growing through the nerve at that exact location. Also had a few bumps on scalp from what they used to call a ' CROWPECK ! ' at hight school. The idea was to sneak up behind someone and hit them on the head with one knuckle extended as hard as you could to leave a lump !Very civilised here in OZ ! Well with NF the bumps just stay there. Had them removed later in life ! Marcus !! > a, > > This is interesting stuff. I never thought about it this way (ie, a tumor developing at the site of the trauma). However, it has always been my theory that trauma or stress will cause NF2 tumors to grow faster. Of course, I have no way of proving this. I guess this is really a 'gut feeling' from living with the disorder for over 20 years and other NF2 friends I have met over that time. One good friend had diabetes and NF2. The diabetes was a stress and I think it made his NF2 more aggressive. NF2 type treatment is a stress too so the more we have, the worse it gets. In a way, I feel we are caught in some kind cycle - we need the treatment to get better but the treatment may cause a need fore more treatment in the future. There is not much we can do about this so.... > > Why worry, be happy > > > > PS hakuna matata! > > ---------- > From: a Tweedy > Sent: Tuesday, June 13, 2000 5:00 PM > To: Nf2 Crew > Subject: Research Project > > > We have just had our Nf2 weekend - Over, Hole, Alan Gordon and > GIll McGaughey were all there - and had a really good time. One of the > Speakers was King, a consultant neurosurgeon and during questions > afterwards, one person asked if trauma had anything to do with the growth of > tumours; Mr King said he knew of no evidence to show that it does. However, > several other people cited incidences when there had been a fall or a knock > and a tumour developed on the damaged site. Examples include: a fall from a > horse led to a damaged kneee and a tumour developed; a fall from a bicycle > led to rapid increased growth in spinal tumour; blow to the foot led to > tumour developing. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2000 Report Share Posted June 15, 2000 wrote :, a tumor developing at the site of the trauma). Almost without doubt the NF growth in my radial nerve was caused by injury ! My upper arm was purple with brusing. Lost use of right hand 18 months to 2 years later. Docs found tumour growing through the nerve at that exact location. Also had a few bumps on scalp from what they used to call a ' CROWPECK ! ' at hight school. The idea was to sneak up behind someone and hit them on the head with one knuckle extended as hard as you could to leave a lump !Very civilised here in OZ ! Well with NF the bumps just stay there. Had them removed later in life ! Marcus !! > a, > > This is interesting stuff. I never thought about it this way (ie, a tumor developing at the site of the trauma). However, it has always been my theory that trauma or stress will cause NF2 tumors to grow faster. Of course, I have no way of proving this. I guess this is really a 'gut feeling' from living with the disorder for over 20 years and other NF2 friends I have met over that time. One good friend had diabetes and NF2. The diabetes was a stress and I think it made his NF2 more aggressive. NF2 type treatment is a stress too so the more we have, the worse it gets. In a way, I feel we are caught in some kind cycle - we need the treatment to get better but the treatment may cause a need fore more treatment in the future. There is not much we can do about this so.... > > Why worry, be happy > > > > PS hakuna matata! > > ---------- > From: a Tweedy > Sent: Tuesday, June 13, 2000 5:00 PM > To: Nf2 Crew > Subject: Research Project > > > We have just had our Nf2 weekend - Over, Hole, Alan Gordon and > GIll McGaughey were all there - and had a really good time. One of the > Speakers was King, a consultant neurosurgeon and during questions > afterwards, one person asked if trauma had anything to do with the growth of > tumours; Mr King said he knew of no evidence to show that it does. However, > several other people cited incidences when there had been a fall or a knock > and a tumour developed on the damaged site. Examples include: a fall from a > horse led to a damaged kneee and a tumour developed; a fall from a bicycle > led to rapid increased growth in spinal tumour; blow to the foot led to > tumour developing. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2000 Report Share Posted June 16, 2000 Remember our " bump the bump " topic abt a year ago. several people said they experienced this. Here is my story: In early 1995 I have an mri of my neck, it was clean, no tumors. In March 1995 I was hitfrom behind by a big Bronco going about 45 mph. My car was pushed 2 feet from rail road tracks where an on coming train was approaching. In short, I stopped for the train, the guy behind me didn't. Anyhow, 6 months after that, I had severe burning down my arms, from that point on i began losing strength in my arms. note, within minutes after i get hit, i experienced intense tingling down arms for abt 4 hours. my dr says a tumor began in my c spine in late 1995, i had it removed in march 2000. i lost a significant anout of use in my arms. I am inclined to believe the trauma to my neck had something to do with the tumor developing :-( I know no dr will agree with that and maybe im wrong, but who knows. cindy henrion, clw, fl a Tweedy wrote: > We have just had our Nf2 weekend - Over, Hole, Alan Gordon and > GIll McGaughey were all there - and had a really good time. One of the > Speakers was King, a consultant neurosurgeon and during questions > afterwards, one person asked if trauma had anything to do with the growth of > tumours; Mr King said he knew of no evidence to show that it does. However, > several other people cited incidences when there had been a fall or a knock > and a tumour developed on the damaged site. Examples include: a fall from a > horse led to a damaged kneee and a tumour developed; a fall from a bicycle > led to rapid increased growth in spinal tumour; blow to the foot led to > tumour developing. > > He was fascinated to hear this and has asked me to do some research to find > out more data that I can present at the Nf2 think tank we are having at the > end of July - including three doctors from the US (one from HEI, one from > from NIH and the third ? don't know). > > If any of you would like to take part, I would be grateful if you could > answer the following questions and return to me by 21st July. I do not need > names as the research is being carried out anonymously. I will let you all > know the comments and findings after the weekend. > > ________________________________________________________________________ > > Date of trauma: > > Age at time of trauma: > > What happened (describe the trauma - fall, knock, etc) > > Where the tumour developed: > > Delay between trauma and appearance of tumour: > > Outcome (did the tumour have to be removed, etc) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2000 Report Share Posted June 16, 2000 ! I should think about this before I send it but who cares ! As stupid as this may seem, if lets say trauma can cause a tumour to grow, then is constant sound the cause of AN's ?? Is this why all NFers get AN's ?? Crazy thought I know but ??? Marcus ! > Remember our " bump the bump " topic abt a year ago. several people said > they > experienced this. Here is my story: > > In early 1995 I have an mri of my neck, it was clean, no tumors. In > March 1995 > I was hitfrom behind by a big Bronco going about 45 mph. My car was > pushed 2 feet > from rail road tracks where an on coming train was approaching. In > short, I > stopped for the train, the guy behind me didn't. Anyhow, 6 months after > that, I > had severe burning down my arms, from that point on i began losing > strength in > my arms. note, within minutes after i get hit, i experienced intense > tingling > down arms for abt 4 hours. my dr says a tumor began in my c spine in > late > 1995, i had it removed in march 2000. i lost a significant anout of use > in my > arms. I am inclined to believe the trauma to my neck had something to do > with > the tumor developing :-( I know no dr will agree with that and maybe im > wrong, but who knows. > > cindy henrion, clw, fl > > a Tweedy wrote: > > > We have just had our Nf2 weekend - Over, Hole, Alan Gordon and > > GIll McGaughey were all there - and had a really good time. One of the > > Speakers was King, a consultant neurosurgeon and during questions > > afterwards, one person asked if trauma had anything to do with the growth of > > tumours; Mr King said he knew of no evidence to show that it does. However, > > several other people cited incidences when there had been a fall or a knock > > and a tumour developed on the damaged site. Examples include: a fall from a > > horse led to a damaged kneee and a tumour developed; a fall from a bicycle > > led to rapid increased growth in spinal tumour; blow to the foot led to > > tumour developing. > > > > He was fascinated to hear this and has asked me to do some research to find > > out more data that I can present at the Nf2 think tank we are having at the > > end of July - including three doctors from the US (one from HEI, one from > > from NIH and the third ? don't know). > > > > If any of you would like to take part, I would be grateful if you could > > answer the following questions and return to me by 21st July. I do not need > > names as the research is being carried out anonymously. I will let you all > > know the comments and findings after the weekend. > > > > ________________________________________________________________________ > > > > Date of trauma: > > > > Age at time of trauma: > > > > What happened (describe the trauma - fall, knock, etc) > > > > Where the tumour developed: > > > > Delay between trauma and appearance of tumour: > > > > Outcome (did the tumour have to be removed, etc) > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2000 Report Share Posted June 16, 2000 ! I should think about this before I send it but who cares ! As stupid as this may seem, if lets say trauma can cause a tumour to grow, then is constant sound the cause of AN's ?? Is this why all NFers get AN's ?? Crazy thought I know but ??? Marcus ! > Remember our " bump the bump " topic abt a year ago. several people said > they > experienced this. Here is my story: > > In early 1995 I have an mri of my neck, it was clean, no tumors. In > March 1995 > I was hitfrom behind by a big Bronco going about 45 mph. My car was > pushed 2 feet > from rail road tracks where an on coming train was approaching. In > short, I > stopped for the train, the guy behind me didn't. Anyhow, 6 months after > that, I > had severe burning down my arms, from that point on i began losing > strength in > my arms. note, within minutes after i get hit, i experienced intense > tingling > down arms for abt 4 hours. my dr says a tumor began in my c spine in > late > 1995, i had it removed in march 2000. i lost a significant anout of use > in my > arms. I am inclined to believe the trauma to my neck had something to do > with > the tumor developing :-( I know no dr will agree with that and maybe im > wrong, but who knows. > > cindy henrion, clw, fl > > a Tweedy wrote: > > > We have just had our Nf2 weekend - Over, Hole, Alan Gordon and > > GIll McGaughey were all there - and had a really good time. One of the > > Speakers was King, a consultant neurosurgeon and during questions > > afterwards, one person asked if trauma had anything to do with the growth of > > tumours; Mr King said he knew of no evidence to show that it does. However, > > several other people cited incidences when there had been a fall or a knock > > and a tumour developed on the damaged site. Examples include: a fall from a > > horse led to a damaged kneee and a tumour developed; a fall from a bicycle > > led to rapid increased growth in spinal tumour; blow to the foot led to > > tumour developing. > > > > He was fascinated to hear this and has asked me to do some research to find > > out more data that I can present at the Nf2 think tank we are having at the > > end of July - including three doctors from the US (one from HEI, one from > > from NIH and the third ? don't know). > > > > If any of you would like to take part, I would be grateful if you could > > answer the following questions and return to me by 21st July. I do not need > > names as the research is being carried out anonymously. I will let you all > > know the comments and findings after the weekend. > > > > ________________________________________________________________________ > > > > Date of trauma: > > > > Age at time of trauma: > > > > What happened (describe the trauma - fall, knock, etc) > > > > Where the tumour developed: > > > > Delay between trauma and appearance of tumour: > > > > Outcome (did the tumour have to be removed, etc) > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2000 Report Share Posted June 16, 2000 ! I should think about this before I send it but who cares ! As stupid as this may seem, if lets say trauma can cause a tumour to grow, then is constant sound the cause of AN's ?? Is this why all NFers get AN's ?? Crazy thought I know but ??? Marcus ! > Remember our " bump the bump " topic abt a year ago. several people said > they > experienced this. Here is my story: > > In early 1995 I have an mri of my neck, it was clean, no tumors. In > March 1995 > I was hitfrom behind by a big Bronco going about 45 mph. My car was > pushed 2 feet > from rail road tracks where an on coming train was approaching. In > short, I > stopped for the train, the guy behind me didn't. Anyhow, 6 months after > that, I > had severe burning down my arms, from that point on i began losing > strength in > my arms. note, within minutes after i get hit, i experienced intense > tingling > down arms for abt 4 hours. my dr says a tumor began in my c spine in > late > 1995, i had it removed in march 2000. i lost a significant anout of use > in my > arms. I am inclined to believe the trauma to my neck had something to do > with > the tumor developing :-( I know no dr will agree with that and maybe im > wrong, but who knows. > > cindy henrion, clw, fl > > a Tweedy wrote: > > > We have just had our Nf2 weekend - Over, Hole, Alan Gordon and > > GIll McGaughey were all there - and had a really good time. One of the > > Speakers was King, a consultant neurosurgeon and during questions > > afterwards, one person asked if trauma had anything to do with the growth of > > tumours; Mr King said he knew of no evidence to show that it does. However, > > several other people cited incidences when there had been a fall or a knock > > and a tumour developed on the damaged site. Examples include: a fall from a > > horse led to a damaged kneee and a tumour developed; a fall from a bicycle > > led to rapid increased growth in spinal tumour; blow to the foot led to > > tumour developing. > > > > He was fascinated to hear this and has asked me to do some research to find > > out more data that I can present at the Nf2 think tank we are having at the > > end of July - including three doctors from the US (one from HEI, one from > > from NIH and the third ? don't know). > > > > If any of you would like to take part, I would be grateful if you could > > answer the following questions and return to me by 21st July. I do not need > > names as the research is being carried out anonymously. I will let you all > > know the comments and findings after the weekend. > > > > ________________________________________________________________________ > > > > Date of trauma: > > > > Age at time of trauma: > > > > What happened (describe the trauma - fall, knock, etc) > > > > Where the tumour developed: > > > > Delay between trauma and appearance of tumour: > > > > Outcome (did the tumour have to be removed, etc) > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2000 Report Share Posted June 16, 2000 ----Original Message Follows---- Reply-To: NF2_Crewegroups To: NF2_Crewegroups Subject: Re: Research Project Date: Fri, 16 Jun 2000 20:46:42 -0400 well in all seriousness that doesnt seem logical to me. sound is generally not traumatic (hard to say that to a former musician!)<-----what instrument did you play or any ? I used to play the piano. I could music notes and stuff but I used to play it a lot by ear (no pun intended). ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2000 Report Share Posted June 16, 2000 well in all seriousness that doesnt seem logical to me. sound is generally not traumatic (hard to say that to a former musician!) in my case, i had had tumors in my neck years before with no trauma. it just seemed very coincidental that my scan was clean, then 6 months after severe trauma i had a tumor with symptoms that were identicaol to the pain/problems i experienced immediatly after the accident. :-) Marcus wrote: > ! > I should think about this before I send it but who cares ! > As stupid as this may seem, if lets say trauma can cause a tumour to grow, > then is constant sound the cause of AN's ?? Is this why all NFers get AN's > ?? > Crazy thought I know but ??? > Marcus ! > > > Remember our " bump the bump " topic abt a year ago. several people said > > they > > experienced this. Here is my story: > > > > In early 1995 I have an mri of my neck, it was clean, no tumors. In > > March 1995 > > I was hitfrom behind by a big Bronco going about 45 mph. My car was > > pushed 2 feet > > from rail road tracks where an on coming train was approaching. In > > short, I > > stopped for the train, the guy behind me didn't. Anyhow, 6 months after > > that, I > > had severe burning down my arms, from that point on i began losing > > strength in > > my arms. note, within minutes after i get hit, i experienced intense > > tingling > > down arms for abt 4 hours. my dr says a tumor began in my c spine in > > late > > 1995, i had it removed in march 2000. i lost a significant anout of use > > in my > > arms. I am inclined to believe the trauma to my neck had something to do > > with > > the tumor developing :-( I know no dr will agree with that and maybe im > > wrong, but who knows. > > > > cindy henrion, clw, fl > > > > a Tweedy wrote: > > > > > We have just had our Nf2 weekend - Over, Hole, Alan Gordon > and > > > GIll McGaughey were all there - and had a really good time. One of the > > > Speakers was King, a consultant neurosurgeon and during questions > > > afterwards, one person asked if trauma had anything to do with the > growth of > > > tumours; Mr King said he knew of no evidence to show that it does. > However, > > > several other people cited incidences when there had been a fall or a > knock > > > and a tumour developed on the damaged site. Examples include: a fall > from a > > > horse led to a damaged kneee and a tumour developed; a fall from a > bicycle > > > led to rapid increased growth in spinal tumour; blow to the foot led to > > > tumour developing. > > > > > > He was fascinated to hear this and has asked me to do some research to > find > > > out more data that I can present at the Nf2 think tank we are having at > the > > > end of July - including three doctors from the US (one from HEI, one > from > > > from NIH and the third ? don't know). > > > > > > If any of you would like to take part, I would be grateful if you could > > > answer the following questions and return to me by 21st July. I do not > need > > > names as the research is being carried out anonymously. I will let you > all > > > know the comments and findings after the weekend. > > > > > > ________________________________________________________________________ > > > > > > Date of trauma: > > > > > > Age at time of trauma: > > > > > > What happened (describe the trauma - fall, knock, etc) > > > > > > Where the tumour developed: > > > > > > Delay between trauma and appearance of tumour: > > > > > > Outcome (did the tumour have to be removed, etc) > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2000 Report Share Posted June 16, 2000 well in all seriousness that doesnt seem logical to me. sound is generally not traumatic (hard to say that to a former musician!) in my case, i had had tumors in my neck years before with no trauma. it just seemed very coincidental that my scan was clean, then 6 months after severe trauma i had a tumor with symptoms that were identicaol to the pain/problems i experienced immediatly after the accident. :-) Marcus wrote: > ! > I should think about this before I send it but who cares ! > As stupid as this may seem, if lets say trauma can cause a tumour to grow, > then is constant sound the cause of AN's ?? Is this why all NFers get AN's > ?? > Crazy thought I know but ??? > Marcus ! > > > Remember our " bump the bump " topic abt a year ago. several people said > > they > > experienced this. Here is my story: > > > > In early 1995 I have an mri of my neck, it was clean, no tumors. In > > March 1995 > > I was hitfrom behind by a big Bronco going about 45 mph. My car was > > pushed 2 feet > > from rail road tracks where an on coming train was approaching. In > > short, I > > stopped for the train, the guy behind me didn't. Anyhow, 6 months after > > that, I > > had severe burning down my arms, from that point on i began losing > > strength in > > my arms. note, within minutes after i get hit, i experienced intense > > tingling > > down arms for abt 4 hours. my dr says a tumor began in my c spine in > > late > > 1995, i had it removed in march 2000. i lost a significant anout of use > > in my > > arms. I am inclined to believe the trauma to my neck had something to do > > with > > the tumor developing :-( I know no dr will agree with that and maybe im > > wrong, but who knows. > > > > cindy henrion, clw, fl > > > > a Tweedy wrote: > > > > > We have just had our Nf2 weekend - Over, Hole, Alan Gordon > and > > > GIll McGaughey were all there - and had a really good time. One of the > > > Speakers was King, a consultant neurosurgeon and during questions > > > afterwards, one person asked if trauma had anything to do with the > growth of > > > tumours; Mr King said he knew of no evidence to show that it does. > However, > > > several other people cited incidences when there had been a fall or a > knock > > > and a tumour developed on the damaged site. Examples include: a fall > from a > > > horse led to a damaged kneee and a tumour developed; a fall from a > bicycle > > > led to rapid increased growth in spinal tumour; blow to the foot led to > > > tumour developing. > > > > > > He was fascinated to hear this and has asked me to do some research to > find > > > out more data that I can present at the Nf2 think tank we are having at > the > > > end of July - including three doctors from the US (one from HEI, one > from > > > from NIH and the third ? don't know). > > > > > > If any of you would like to take part, I would be grateful if you could > > > answer the following questions and return to me by 21st July. I do not > need > > > names as the research is being carried out anonymously. I will let you > all > > > know the comments and findings after the weekend. > > > > > > ________________________________________________________________________ > > > > > > Date of trauma: > > > > > > Age at time of trauma: > > > > > > What happened (describe the trauma - fall, knock, etc) > > > > > > Where the tumour developed: > > > > > > Delay between trauma and appearance of tumour: > > > > > > Outcome (did the tumour have to be removed, etc) > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2000 Report Share Posted June 16, 2000 well in all seriousness that doesnt seem logical to me. sound is generally not traumatic (hard to say that to a former musician!) in my case, i had had tumors in my neck years before with no trauma. it just seemed very coincidental that my scan was clean, then 6 months after severe trauma i had a tumor with symptoms that were identicaol to the pain/problems i experienced immediatly after the accident. :-) Marcus wrote: > ! > I should think about this before I send it but who cares ! > As stupid as this may seem, if lets say trauma can cause a tumour to grow, > then is constant sound the cause of AN's ?? Is this why all NFers get AN's > ?? > Crazy thought I know but ??? > Marcus ! > > > Remember our " bump the bump " topic abt a year ago. several people said > > they > > experienced this. Here is my story: > > > > In early 1995 I have an mri of my neck, it was clean, no tumors. In > > March 1995 > > I was hitfrom behind by a big Bronco going about 45 mph. My car was > > pushed 2 feet > > from rail road tracks where an on coming train was approaching. In > > short, I > > stopped for the train, the guy behind me didn't. Anyhow, 6 months after > > that, I > > had severe burning down my arms, from that point on i began losing > > strength in > > my arms. note, within minutes after i get hit, i experienced intense > > tingling > > down arms for abt 4 hours. my dr says a tumor began in my c spine in > > late > > 1995, i had it removed in march 2000. i lost a significant anout of use > > in my > > arms. I am inclined to believe the trauma to my neck had something to do > > with > > the tumor developing :-( I know no dr will agree with that and maybe im > > wrong, but who knows. > > > > cindy henrion, clw, fl > > > > a Tweedy wrote: > > > > > We have just had our Nf2 weekend - Over, Hole, Alan Gordon > and > > > GIll McGaughey were all there - and had a really good time. One of the > > > Speakers was King, a consultant neurosurgeon and during questions > > > afterwards, one person asked if trauma had anything to do with the > growth of > > > tumours; Mr King said he knew of no evidence to show that it does. > However, > > > several other people cited incidences when there had been a fall or a > knock > > > and a tumour developed on the damaged site. Examples include: a fall > from a > > > horse led to a damaged kneee and a tumour developed; a fall from a > bicycle > > > led to rapid increased growth in spinal tumour; blow to the foot led to > > > tumour developing. > > > > > > He was fascinated to hear this and has asked me to do some research to > find > > > out more data that I can present at the Nf2 think tank we are having at > the > > > end of July - including three doctors from the US (one from HEI, one > from > > > from NIH and the third ? don't know). > > > > > > If any of you would like to take part, I would be grateful if you could > > > answer the following questions and return to me by 21st July. I do not > need > > > names as the research is being carried out anonymously. I will let you > all > > > know the comments and findings after the weekend. > > > > > > ________________________________________________________________________ > > > > > > Date of trauma: > > > > > > Age at time of trauma: > > > > > > What happened (describe the trauma - fall, knock, etc) > > > > > > Where the tumour developed: > > > > > > Delay between trauma and appearance of tumour: > > > > > > Outcome (did the tumour have to be removed, etc) > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2000 Report Share Posted June 17, 2000 Oh yeah I forgot the tumours don't start on hearing nerve anyhow ! Hmm I'd just got out of bed, and strange things seem possible at those times. Marcus > well in all seriousness that doesnt seem logical to me. sound is generally not > traumatic (hard to say that to a former musician!) in my case, i had had tumors > in my neck years before with no trauma. it just seemed very coincidental that my > scan was clean, then 6 months after severe trauma i had a tumor with symptoms > that were identicaol to the pain/problems i experienced immediatly after the > accident. :-) > > Marcus wrote: > > > ! > > I should think about this before I send it but who cares ! > > As stupid as this may seem, if lets say trauma can cause a tumour to grow, > > then is constant sound the cause of AN's ?? Is this why all NFers get AN's > > ?? > > Crazy thought I know but ??? > > Marcus ! > > > > > Remember our " bump the bump " topic abt a year ago. several people said > > > they > > > experienced this. Here is my story: > > > > > > In early 1995 I have an mri of my neck, it was clean, no tumors. In > > > March 1995 > > > I was hitfrom behind by a big Bronco going about 45 mph. My car was > > > pushed 2 feet > > > from rail road tracks where an on coming train was approaching. In > > > short, I > > > stopped for the train, the guy behind me didn't. Anyhow, 6 months after > > > that, I > > > had severe burning down my arms, from that point on i began losing > > > strength in > > > my arms. note, within minutes after i get hit, i experienced intense > > > tingling > > > down arms for abt 4 hours. my dr says a tumor began in my c spine in > > > late > > > 1995, i had it removed in march 2000. i lost a significant anout of use > > > in my > > > arms. I am inclined to believe the trauma to my neck had something to do > > > with > > > the tumor developing :-( I know no dr will agree with that and maybe im > > > wrong, but who knows. > > > > > > cindy henrion, clw, fl > > > > > > a Tweedy wrote: > > > > > > > We have just had our Nf2 weekend - Over, Hole, Alan Gordon > > and > > > > GIll McGaughey were all there - and had a really good time. One of the > > > > Speakers was King, a consultant neurosurgeon and during questions > > > > afterwards, one person asked if trauma had anything to do with the > > growth of > > > > tumours; Mr King said he knew of no evidence to show that it does. > > However, > > > > several other people cited incidences when there had been a fall or a > > knock > > > > and a tumour developed on the damaged site. Examples include: a fall > > from a > > > > horse led to a damaged kneee and a tumour developed; a fall from a > > bicycle > > > > led to rapid increased growth in spinal tumour; blow to the foot led to > > > > tumour developing. > > > > > > > > He was fascinated to hear this and has asked me to do some research to > > find > > > > out more data that I can present at the Nf2 think tank we are having at > > the > > > > end of July - including three doctors from the US (one from HEI, one > > from > > > > from NIH and the third ? don't know). > > > > > > > > If any of you would like to take part, I would be grateful if you could > > > > answer the following questions and return to me by 21st July. I do not > > need > > > > names as the research is being carried out anonymously. I will let you > > all > > > > know the comments and findings after the weekend. > > > > > > > > ________________________________________________________________________ > > > > > > > > Date of trauma: > > > > > > > > Age at time of trauma: > > > > > > > > What happened (describe the trauma - fall, knock, etc) > > > > > > > > Where the tumour developed: > > > > > > > > Delay between trauma and appearance of tumour: > > > > > > > > Outcome (did the tumour have to be removed, etc) > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2000 Report Share Posted June 17, 2000 Oh yeah I forgot the tumours don't start on hearing nerve anyhow ! Hmm I'd just got out of bed, and strange things seem possible at those times. Marcus > well in all seriousness that doesnt seem logical to me. sound is generally not > traumatic (hard to say that to a former musician!) in my case, i had had tumors > in my neck years before with no trauma. it just seemed very coincidental that my > scan was clean, then 6 months after severe trauma i had a tumor with symptoms > that were identicaol to the pain/problems i experienced immediatly after the > accident. :-) > > Marcus wrote: > > > ! > > I should think about this before I send it but who cares ! > > As stupid as this may seem, if lets say trauma can cause a tumour to grow, > > then is constant sound the cause of AN's ?? Is this why all NFers get AN's > > ?? > > Crazy thought I know but ??? > > Marcus ! > > > > > Remember our " bump the bump " topic abt a year ago. several people said > > > they > > > experienced this. Here is my story: > > > > > > In early 1995 I have an mri of my neck, it was clean, no tumors. In > > > March 1995 > > > I was hitfrom behind by a big Bronco going about 45 mph. My car was > > > pushed 2 feet > > > from rail road tracks where an on coming train was approaching. In > > > short, I > > > stopped for the train, the guy behind me didn't. Anyhow, 6 months after > > > that, I > > > had severe burning down my arms, from that point on i began losing > > > strength in > > > my arms. note, within minutes after i get hit, i experienced intense > > > tingling > > > down arms for abt 4 hours. my dr says a tumor began in my c spine in > > > late > > > 1995, i had it removed in march 2000. i lost a significant anout of use > > > in my > > > arms. I am inclined to believe the trauma to my neck had something to do > > > with > > > the tumor developing :-( I know no dr will agree with that and maybe im > > > wrong, but who knows. > > > > > > cindy henrion, clw, fl > > > > > > a Tweedy wrote: > > > > > > > We have just had our Nf2 weekend - Over, Hole, Alan Gordon > > and > > > > GIll McGaughey were all there - and had a really good time. One of the > > > > Speakers was King, a consultant neurosurgeon and during questions > > > > afterwards, one person asked if trauma had anything to do with the > > growth of > > > > tumours; Mr King said he knew of no evidence to show that it does. > > However, > > > > several other people cited incidences when there had been a fall or a > > knock > > > > and a tumour developed on the damaged site. Examples include: a fall > > from a > > > > horse led to a damaged kneee and a tumour developed; a fall from a > > bicycle > > > > led to rapid increased growth in spinal tumour; blow to the foot led to > > > > tumour developing. > > > > > > > > He was fascinated to hear this and has asked me to do some research to > > find > > > > out more data that I can present at the Nf2 think tank we are having at > > the > > > > end of July - including three doctors from the US (one from HEI, one > > from > > > > from NIH and the third ? don't know). > > > > > > > > If any of you would like to take part, I would be grateful if you could > > > > answer the following questions and return to me by 21st July. I do not > > need > > > > names as the research is being carried out anonymously. I will let you > > all > > > > know the comments and findings after the weekend. > > > > > > > > ________________________________________________________________________ > > > > > > > > Date of trauma: > > > > > > > > Age at time of trauma: > > > > > > > > What happened (describe the trauma - fall, knock, etc) > > > > > > > > Where the tumour developed: > > > > > > > > Delay between trauma and appearance of tumour: > > > > > > > > Outcome (did the tumour have to be removed, etc) > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2000 Report Share Posted June 17, 2000 Oh yeah I forgot the tumours don't start on hearing nerve anyhow ! Hmm I'd just got out of bed, and strange things seem possible at those times. Marcus > well in all seriousness that doesnt seem logical to me. sound is generally not > traumatic (hard to say that to a former musician!) in my case, i had had tumors > in my neck years before with no trauma. it just seemed very coincidental that my > scan was clean, then 6 months after severe trauma i had a tumor with symptoms > that were identicaol to the pain/problems i experienced immediatly after the > accident. :-) > > Marcus wrote: > > > ! > > I should think about this before I send it but who cares ! > > As stupid as this may seem, if lets say trauma can cause a tumour to grow, > > then is constant sound the cause of AN's ?? Is this why all NFers get AN's > > ?? > > Crazy thought I know but ??? > > Marcus ! > > > > > Remember our " bump the bump " topic abt a year ago. several people said > > > they > > > experienced this. Here is my story: > > > > > > In early 1995 I have an mri of my neck, it was clean, no tumors. In > > > March 1995 > > > I was hitfrom behind by a big Bronco going about 45 mph. My car was > > > pushed 2 feet > > > from rail road tracks where an on coming train was approaching. In > > > short, I > > > stopped for the train, the guy behind me didn't. Anyhow, 6 months after > > > that, I > > > had severe burning down my arms, from that point on i began losing > > > strength in > > > my arms. note, within minutes after i get hit, i experienced intense > > > tingling > > > down arms for abt 4 hours. my dr says a tumor began in my c spine in > > > late > > > 1995, i had it removed in march 2000. i lost a significant anout of use > > > in my > > > arms. I am inclined to believe the trauma to my neck had something to do > > > with > > > the tumor developing :-( I know no dr will agree with that and maybe im > > > wrong, but who knows. > > > > > > cindy henrion, clw, fl > > > > > > a Tweedy wrote: > > > > > > > We have just had our Nf2 weekend - Over, Hole, Alan Gordon > > and > > > > GIll McGaughey were all there - and had a really good time. One of the > > > > Speakers was King, a consultant neurosurgeon and during questions > > > > afterwards, one person asked if trauma had anything to do with the > > growth of > > > > tumours; Mr King said he knew of no evidence to show that it does. > > However, > > > > several other people cited incidences when there had been a fall or a > > knock > > > > and a tumour developed on the damaged site. Examples include: a fall > > from a > > > > horse led to a damaged kneee and a tumour developed; a fall from a > > bicycle > > > > led to rapid increased growth in spinal tumour; blow to the foot led to > > > > tumour developing. > > > > > > > > He was fascinated to hear this and has asked me to do some research to > > find > > > > out more data that I can present at the Nf2 think tank we are having at > > the > > > > end of July - including three doctors from the US (one from HEI, one > > from > > > > from NIH and the third ? don't know). > > > > > > > > If any of you would like to take part, I would be grateful if you could > > > > answer the following questions and return to me by 21st July. I do not > > need > > > > names as the research is being carried out anonymously. I will let you > > all > > > > know the comments and findings after the weekend. > > > > > > > > ________________________________________________________________________ > > > > > > > > Date of trauma: > > > > > > > > Age at time of trauma: > > > > > > > > What happened (describe the trauma - fall, knock, etc) > > > > > > > > Where the tumour developed: > > > > > > > > Delay between trauma and appearance of tumour: > > > > > > > > Outcome (did the tumour have to be removed, etc) > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2000 Report Share Posted June 17, 2000 lol Mark, i was referring to marcus as the former musician ;-) I did play the " recorder " in 5th grade though. mary had a little lamb was my high point :-) Mark Sarmac wrote: > ----Original Message Follows---- > > Reply-To: NF2_Crewegroups > To: NF2_Crewegroups > Subject: Re: Research Project > Date: Fri, 16 Jun 2000 20:46:42 -0400 > > well in all seriousness that doesnt seem logical to me. sound is generally > not > traumatic (hard to say that to a former musician!)<-----what instrument did > you play or any ? I used to play the piano. I could music notes and > stuff but I used to play it a lot by ear (no pun intended). > > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2000 Report Share Posted June 17, 2000 lol Mark, i was referring to marcus as the former musician ;-) I did play the " recorder " in 5th grade though. mary had a little lamb was my high point :-) Mark Sarmac wrote: > ----Original Message Follows---- > > Reply-To: NF2_Crewegroups > To: NF2_Crewegroups > Subject: Re: Research Project > Date: Fri, 16 Jun 2000 20:46:42 -0400 > > well in all seriousness that doesnt seem logical to me. sound is generally > not > traumatic (hard to say that to a former musician!)<-----what instrument did > you play or any ? I used to play the piano. I could music notes and > stuff but I used to play it a lot by ear (no pun intended). > > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2000 Report Share Posted June 17, 2000 lol Mark, i was referring to marcus as the former musician ;-) I did play the " recorder " in 5th grade though. mary had a little lamb was my high point :-) Mark Sarmac wrote: > ----Original Message Follows---- > > Reply-To: NF2_Crewegroups > To: NF2_Crewegroups > Subject: Re: Research Project > Date: Fri, 16 Jun 2000 20:46:42 -0400 > > well in all seriousness that doesnt seem logical to me. sound is generally > not > traumatic (hard to say that to a former musician!)<-----what instrument did > you play or any ? I used to play the piano. I could music notes and > stuff but I used to play it a lot by ear (no pun intended). > > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2000 Report Share Posted June 17, 2000 I used to go home after concerts and would be deaf for 24 hrs from the noise ! In hindsight, I'm glad I didn't bother to protect my hearing ! Would love just one more night though.. ' memories !!! Like tinnitus in my head ! Hmmm Marcus > lol Mark, i was referring to marcus as the former musician ;-) I did play the > " recorder " in 5th grade though. mary had a little lamb was my high point :-) > > Mark Sarmac wrote: > > > ----Original Message Follows---- > > > > Reply-To: NF2_Crewegroups > > To: NF2_Crewegroups > > Subject: Re: Research Project > > Date: Fri, 16 Jun 2000 20:46:42 -0400 > > > > well in all seriousness that doesnt seem logical to me. sound is generally > > not > > traumatic (hard to say that to a former musician!)<-----what instrument did > > you play or any ? I used to play the piano. I could music notes and > > stuff but I used to play it a lot by ear (no pun intended). > > > > ________________________________________________________________________ > > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2000 Report Share Posted June 17, 2000 I used to go home after concerts and would be deaf for 24 hrs from the noise ! In hindsight, I'm glad I didn't bother to protect my hearing ! Would love just one more night though.. ' memories !!! Like tinnitus in my head ! Hmmm Marcus > lol Mark, i was referring to marcus as the former musician ;-) I did play the > " recorder " in 5th grade though. mary had a little lamb was my high point :-) > > Mark Sarmac wrote: > > > ----Original Message Follows---- > > > > Reply-To: NF2_Crewegroups > > To: NF2_Crewegroups > > Subject: Re: Research Project > > Date: Fri, 16 Jun 2000 20:46:42 -0400 > > > > well in all seriousness that doesnt seem logical to me. sound is generally > > not > > traumatic (hard to say that to a former musician!)<-----what instrument did > > you play or any ? I used to play the piano. I could music notes and > > stuff but I used to play it a lot by ear (no pun intended). > > > > ________________________________________________________________________ > > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2000 Report Share Posted June 17, 2000 I used to go home after concerts and would be deaf for 24 hrs from the noise ! In hindsight, I'm glad I didn't bother to protect my hearing ! Would love just one more night though.. ' memories !!! Like tinnitus in my head ! Hmmm Marcus > lol Mark, i was referring to marcus as the former musician ;-) I did play the > " recorder " in 5th grade though. mary had a little lamb was my high point :-) > > Mark Sarmac wrote: > > > ----Original Message Follows---- > > > > Reply-To: NF2_Crewegroups > > To: NF2_Crewegroups > > Subject: Re: Research Project > > Date: Fri, 16 Jun 2000 20:46:42 -0400 > > > > well in all seriousness that doesnt seem logical to me. sound is generally > > not > > traumatic (hard to say that to a former musician!)<-----what instrument did > > you play or any ? I used to play the piano. I could music notes and > > stuff but I used to play it a lot by ear (no pun intended). > > > > ________________________________________________________________________ > > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2000 Report Share Posted June 17, 2000 heheh , it's all good. I assumed you were pointing yourself as the muscian. I remember the 'recorder' myself, the flute like instruement right? I sister had played it also in 5th grad for Sister Theresa's class. Cheers... Mark ----Original Message Follows---- lol Mark, i was referring to marcus as the former musician ;-) I did play the " recorder " in 5th grade though. mary had a little lamb was my high point :-) Mark Sarmac wrote: > ----Original Message Follows---- > > Reply-To: NF2_Crewegroups > To: NF2_Crewegroups > Subject: Re: Research Project > Date: Fri, 16 Jun 2000 20:46:42 -0400 > > well in all seriousness that doesnt seem logical to me. sound is generally > not > traumatic (hard to say that to a former musician!)<-----what instrument did > you play or any ? I used to play the piano. I could music notes and > stuff but I used to play it a lot by ear (no pun intended). > > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2000 Report Share Posted June 18, 2000 Hey, cindy! I'm a former musician. Played trombone in the high school marching band for 1/2 a year and 3 years in middle school. My school marching band kicks BUTT! The drum line and dance team just recently went to nationals. Drum line ended up 8th in the world among 40 drumlines. The dance team did a little worse that last year. The whole band got to march in the Orange Bowl parade on New Years Eve. Big honor! - Re: Research Project >> Date: Fri, 16 Jun 2000 20:46:42 -0400 >> >> well in all seriousness that doesnt seem logical to me. sound is generally >> not >> traumatic (hard to say that to a former musician!)<-----what instrument did >> you play or any ? I used to play the piano. I could music notes and >> stuff but I used to play it a lot by ear (no pun intended). >> >> ________________________________________________________________________ >> Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2000 Report Share Posted June 18, 2000 Hey, cindy! I'm a former musician. Played trombone in the high school marching band for 1/2 a year and 3 years in middle school. My school marching band kicks BUTT! The drum line and dance team just recently went to nationals. Drum line ended up 8th in the world among 40 drumlines. The dance team did a little worse that last year. The whole band got to march in the Orange Bowl parade on New Years Eve. Big honor! - Re: Research Project >> Date: Fri, 16 Jun 2000 20:46:42 -0400 >> >> well in all seriousness that doesnt seem logical to me. sound is generally >> not >> traumatic (hard to say that to a former musician!)<-----what instrument did >> you play or any ? I used to play the piano. I could music notes and >> stuff but I used to play it a lot by ear (no pun intended). >> >> ________________________________________________________________________ >> Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2000 Report Share Posted June 18, 2000 courtney Yes,I was in Marching band one year,played the trumpet.My Sister played trombone. I have a cousin,my age,her hs band got to marrch in the orange bowlo parade too Jimmy Re: Research Project > >> Date: Fri, 16 Jun 2000 20:46:42 -0400 > >> > >> well in all seriousness that doesnt seem logical to me. sound is > generally > >> not > >> traumatic (hard to say that to a former musician!)<-----what instrument > did > >> you play or any ? I used to play the piano. I could music notes and > >> stuff but I used to play it a lot by ear (no pun intended). > >> > >> ________________________________________________________________________ > >> Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2000 Report Share Posted June 20, 2000 My brother is playing trumpet this year!! Great coincidence! Re: Research Project >courtney >Yes,I was in Marching band one year,played the trumpet.My Sister played >trombone. >I have a cousin,my age,her hs band got to marrch in the orange bowlo parade >too > >Jimmy > Re: Research Project >> >> Date: Fri, 16 Jun 2000 20:46:42 -0400 >> >> >> >> well in all seriousness that doesnt seem logical to me. sound is >> generally >> >> not >> >> traumatic (hard to say that to a former musician!)<-----what instrument >> did >> >> you play or any ? I used to play the piano. I could music notes >and >> >> stuff but I used to play it a lot by ear (no pun intended). >> >> >> >> >________________________________________________________________________ >> >> Get Your Private, Free E-mail from MSN Hotmail at >http://www.hotmail.com >> > >> > >> > >> > >> > >> >> >> >> >> > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.