Guest guest Posted May 9, 2000 Report Share Posted May 9, 2000 Margie, How many of you have been told what Margie was - that she needed to work out more. My husband called me on the phone Saturday, and said that I just needed to go for walks and get out more to get some exercise, or to join a gym.I don't think anyone understands how this makes a sick person feel. It hurts my feelings any way when I try to explain how I am feelings and they tell me things like this. It is just as hurtful as it would be if they said I was lazy. If I hadn't have been on the phone talking to him on the other side of the world, I could/would have slapped him(never have slapped him or anyone else in my life). I have sent him links by the dozens to read and he tells me he understands it and then says something like this! Bless All of You, Debbie Marjorie Tietjen wrote: > Hi All, I have the same problem. I always thought > to myself, what would ever happen if I had to hang > from my arms in a dungeon, you know like in the > movies. That would be the worst torture. The > weakness in the arms and legs must be due to stenosis > and or Chiari and in some folks maybe TOS. I can't > even step up onto a chair. When My purse( I should say > suitcase) is on the table and I have to look for > something in it, it totally wears me out. The motion > of scrunching up my shoulders so I can get my arms > high enough to get into my bag results in having to > drop my arms down in exhaustion after a few seconds. > People tell me Oh, you should work out to strengthen > your arms but I know it's something structural that's > wrong. Margie > > ===== > " If ever time should come, when vain and aspiring men shall possess the highest seats in government, our country will stand in need of it's experienced patriots to prevent it's ruin. " 1780 > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2000 Report Share Posted May 9, 2000 Hi All, Weak arms and legs is definately chiari related. I did strength tests with Dr. Rosner in Nov., surgery Jan., then did the tests again at my 6 week check-up. I had done nothing, and I mean nothing during the 3 months between tests, and my strength had improved, especially on the right side. I still can't keep up with the rest of the world, but I can keep up with the laundry now . Blessings all, in VA Marjorie Tietjen wrote: > > Hi All, I have the same problem. I always thought > to myself, what would ever happen if I had to hang > from my arms in a dungeon, you know like in the > movies. That would be the worst torture. The > weakness in the arms and legs must be due to stenosis > and or Chiari and in some folks maybe TOS. I can't > even step up onto a chair. When My purse( I should say > suitcase) is on the table and I have to look for > something in it, it totally wears me out. The motion > of scrunching up my shoulders so I can get my arms > high enough to get into my bag results in having to > drop my arms down in exhaustion after a few seconds. > People tell me Oh, you should work out to strengthen > your arms but I know it's something structural that's > wrong. Margie > > ===== > " If ever time should come, when vain and aspiring men shall possess the highest seats in government, our country will stand in need of it's experienced patriots to prevent it's ruin. " 1780 > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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