Doctor's attitudes

[Guest guest]

Hi Barbara,

thanks for your response, and what you suggest sounds like a great

idea! As early as my 1st cardiologist visit, I mentioned my symptoms

to my Dr. and she seemed to act like she couldn't figure why I felt

so bad??? Like she never had another patient that felt so bad! I was

ready to go to another doctor, but decided to hold off for awhile---I

think that she she finally " got it " that I do feel this bad, and

that's why my treatment has been geared towards getting OUT of afib,

rather than just rate control--- thanks again----doctors don't seem

to know as to why i feel really bad on some days and not too bad on

others. I sure wish they WOULD do a study!

Marcelle

In AFIBsupport , Barbara Tinker <barbara@c...> wrote:

> Hi Marcelle, I gather than as many as 40% AFIB patients report

cycles,

> though they vary in length and intensity. It does not surprise me

at all

> that there are cycles of symptoms, even when the AFIB is constant.

> Unfortunately, it has been hard to interest doctors in researching

the

> symptoms. With this list, we could cluster people according to

symptoms,

> and, after getting everyone extensively tested, collect a vast

amount of

> interesting data. Barbara

>

>

> >

> >> Hi folks, Maybe we should collect quotes about doctor's reponses

to

> >> questions.

> >>

> >> My husband tried a new doctor with a reputation for being

> >interested

> >> in cycles. His response, upon looking at his graphs, was " Oh my,

> >another

> >> hypochondriac. " Although it shows very clear cycles, he

announced

> >it

> >> looked random, and recommended (on first visit) ablation and

raising

> >> amiodarone. Sigh. That quote goes with another from previous

> >doctor;

> >> " Cycles? He's not a woman, is he? . " Just wanted to fuss about

> >this.

> >> Barbara

> >

> >

> >Hi Barbara,

> > I'm new to afib and to this board, and your mention of " cycles "

> >intrigues me. I'm not sure what you are referring to exactly and

> >would love to hear more form you. I am in persistent/chronic afib--

-

> >my 8th month---and although I am in afin every hour of every day, i

> >feel there are cycles to my symptoms! is this what you are talking

> >about? there are days I can hardly move from my chair! but then

there

> >are days or portions of days that I " almost " feel normal---but I

sure

> >can't find any cause & effect for how I feel. I do keep a diary to

> >see if there's a pattern. would love to hear more about ti. thanks.

> >Marcelle

> >

> >

> >Web Page - http://groups.yahoo.com/group/AFIBsupport

> >FAQ -

http://groups.yahoo.com/group/AFIBsupport/files/Administrative/faq.htm

> >For more information: http://www.dialsolutions.com/af

> >Unsubscribe: AFIBsupport-unsubscribe

> >List owner: AFIBsupport-owner

> >For help on how to use the group, including how to drive it via

email,

> >send a blank email to AFIBsupport-help

> >

> >Nothing in this message should be considered as medical advice, or

should

> >be acted upon without consultation with one's physician.

> >

> >

[Guest guest]

Steve wrote...

<<Dear Victor,

The Boston A-Fib Symposium is being held at the Seaport Hotel and

Conference Center, World Trade Center, Boston January 17-18, 2003. It

seems very well put together with all the world's big guns in A-Fib. The

person listed in the brochure is Kathy Kneebone, The Pyle Center, 702

Langdon St., Madison, WI 53706 tel . (Yes, that is a

Wisconsin address and phone number. I think the Un. of Wisconsin is

co-sponsoring the Symposium.) I talked to Muriel Corcoran

in Boston.

If you're going, want to try to meet there?

A-FibFriendSteve>>

this url may be useful to you too

http://www.afsymposium.com/

[Guest guest]

Steve,

A great place to eat in Boston, is up the street from the Seaport Hotel and

World Trade Center. Jimmy's Harborside. Good food and your on the water.

's Pier 4 is out there also, but it's more of a tourist trap. The

foods OK. If you want some great food. Go to the North End of Boston. The

Italian section of town. Dozens of excellent little restaurants. It's not far

from the World Trade Center.

Visit Quincy Market or the Aquarium. If your into Art, The Museum of Fine

Arts or the Isabelle Gardener Museum are outstanding. Catch a

Celtic's or Bruin's game or a Broadway Show. Hang out on Boston Common and

people watch. Walk the Freedom Trail or other Revolutionary War attractions.

There's plenty to do.

Have Victor take you out for a beer. Remember. It Jan. in Boston. It's going

to be cold and windy. Dress well.

Rich O

[Guest guest]

Steve,

A great place to eat in Boston, is up the street from the Seaport Hotel and

World Trade Center. Jimmy's Harborside. Good food and your on the water.

's Pier 4 is out there also, but it's more of a tourist trap. The

foods OK. If you want some great food. Go to the North End of Boston. The

Italian section of town. Dozens of excellent little restaurants. It's not far

from the World Trade Center.

Visit Quincy Market or the Aquarium. If your into Art, The Museum of Fine

Arts or the Isabelle Gardener Museum are outstanding. Catch a

Celtic's or Bruin's game or a Broadway Show. Hang out on Boston Common and

people watch. Walk the Freedom Trail or other Revolutionary War attractions.

There's plenty to do.

Have Victor take you out for a beer. Remember. It Jan. in Boston. It's going

to be cold and windy. Dress well.

Rich O

[Guest guest]

Hi Marcelle, I gather than as many as 40% AFIB patients report cycles,

though they vary in length and intensity. It does not surprise me at all

that there are cycles of symptoms, even when the AFIB is constant.

Unfortunately, it has been hard to interest doctors in researching the

symptoms. With this list, we could cluster people according to symptoms,

and, after getting everyone extensively tested, collect a vast amount of

interesting data. Barbara

>

>> Hi folks, Maybe we should collect quotes about doctor's reponses to

>> questions.

>>

>> My husband tried a new doctor with a reputation for being

>interested

>> in cycles. His response, upon looking at his graphs, was " Oh my,

>another

>> hypochondriac. " Although it shows very clear cycles, he announced

>it

>> looked random, and recommended (on first visit) ablation and raising

>> amiodarone. Sigh. That quote goes with another from previous

>doctor;

>> " Cycles? He's not a woman, is he? . " Just wanted to fuss about

>this.

>> Barbara

>

>

>Hi Barbara,

> I'm new to afib and to this board, and your mention of " cycles "

>intrigues me. I'm not sure what you are referring to exactly and

>would love to hear more form you. I am in persistent/chronic afib---

>my 8th month---and although I am in afin every hour of every day, i

>feel there are cycles to my symptoms! is this what you are talking

>about? there are days I can hardly move from my chair! but then there

>are days or portions of days that I " almost " feel normal---but I sure

>can't find any cause & effect for how I feel. I do keep a diary to

>see if there's a pattern. would love to hear more about ti. thanks.

>Marcelle

>

>

>Web Page - http://groups.yahoo.com/group/AFIBsupport

>FAQ - http://groups.yahoo.com/group/AFIBsupport/files/Administrative/faq.htm

>For more information: http://www.dialsolutions.com/af

>Unsubscribe: AFIBsupport-unsubscribe

>List owner: AFIBsupport-owner

>For help on how to use the group, including how to drive it via email,

>send a blank email to AFIBsupport-help

>

>Nothing in this message should be considered as medical advice, or should

>be acted upon without consultation with one's physician.

>

>

[Guest guest]

Thanks everyone, for your Boston information! Barbara

>Hi Barbara,

>I see your in Concord, Ma. I live on the South Shore. If I may. I've had

>great success with Dr. Zimetbaum and Dr. phson at Beth Israel in Boston.

>They run the A Fib Clinic there. Both are EP's/ heart surgeons. They're bed

>side manners are excellent and they have a sense of humor.

>There in the business of helping people with A Fib and other heart problems.

>Here is a phone number to they're office ask for . She

>handles all there appointments.

>Rich O

>

>

>

[Guest guest]

Dear Rich,

Thanks for the insider info on Boston. I'm originally from Buffalo,

NY where the winters were horrendous. I remember them putting up ropes

on Main St. so that you could pull yourself along and not get blown away

by the wind. But the blood's been thinned out quite a bit living in Malibu.

A-FibFriendSteve

celtic8586@... wrote:

>Steve,

>A great place to eat in Boston, is up the street from the Seaport Hotel and

>World Trade Center. Jimmy's Harborside. Good food and your on the water.

>'s Pier 4 is out there also, but it's more of a tourist trap. The

>foods OK. If you want some great food. Go to the North End of Boston. The

>Italian section of town. Dozens of excellent little restaurants. It's not far

>from the World Trade Center.

>Visit Quincy Market or the Aquarium. If your into Art, The Museum of Fine

>Arts or the Isabelle Gardener Museum are outstanding. Catch a

>Celtic's or Bruin's game or a Broadway Show. Hang out on Boston Common and

>people watch. Walk the Freedom Trail or other Revolutionary War attractions.

>There's plenty to do.

>Have Victor take you out for a beer. Remember. It Jan. in Boston. It's going

>to be cold and windy. Dress well.

>Rich O

>

>

>