Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 Hello Victor. So nice to hear from a fellow New Englander. Regarding Dr. Zimetbaum. He does full PVA's. Actually, Dr. Marc phson does the procedure. I had mine done in July of this year. All four P Veins and a flutter ablation as well. 7 Hrs. I was out through the whole thing. I told Dr. Z that I didn't want to go through a prolonged drug therapy. He said OK and I did a work up (MRI, TEE etc) and had the PVA. ( They do Focal Point PVA's as well. Dr. Z told me that the other day) Dr. phson was great. He's 's Boss. He started doing PVA's in Philly years ago. He may be part of the group that spearheaded it in the States. Dr. Zimetbaum is much more into drug therapy and research, but is your " Host " at the Beth Israel A Fib Clinic. He's a great guy. My email is oreillyrich@... Keep in touch. Rich O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 Victor, are you interested in a PVA? Rich O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 Hi Rich O. I also use Dr. Zimetbaum. He is the most responsive of any doctors that I know. If you send him an email he usually replies within 2 hours. I do not think he performs PVA. The last time I saw him he was reluctant to perform a focal (single or multiple) point ablation. He would do an ablation for Flutter. If this has changed please let me know. Thanks Victor W. Re: Doctor's attitudes > Hi Barbara, > I see your in Concord, Ma. I live on the South Shore. If I may. I've had > great success with Dr. Zimetbaum and Dr. phson at Beth Israel in Boston. > They run the A Fib Clinic there. Both are EP's/ heart surgeons. They're bed > side manners are excellent and they have a sense of humor. > There in the business of helping people with A Fib and other heart problems. > Here is a phone number to they're office ask for . She > handles all there appointments. > Rich O > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 This brings to my mind one of my last trips (and there were many) to the ER in the year 2000. The ER physician, who I saw on many occasions during that year, looked at me and said, " There are millions of people in this world walking around with Afib and dealing with it - now go home and *deal with it*. He was also one of the doctors who overlooked two compression fractures of the back. He told me my backache was all in my mind and part of the Panic Attacks that he had diagnosed! Oh well, there always has to be med students that graduate at the bottom of the class........I'm sure he was one of them! Ellen NSR on Dofetilide NSR = Normal Sinus Rhthym ********************************** ----- Original Message ----- From: Barbara Tinker (snip) Maybe we should collect quotes about doctor's reponses to questions. (snip) ********************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 > Hi folks, Maybe we should collect quotes about doctor's reponses to > questions. > > My husband tried a new doctor with a reputation for being interested > in cycles. His response, upon looking at his graphs, was " Oh my, another > hypochondriac. " Although it shows very clear cycles, he announced it > looked random, and recommended (on first visit) ablation and raising > amiodarone. Sigh. That quote goes with another from previous doctor; > " Cycles? He's not a woman, is he? . " Just wanted to fuss about this. > Barbara Hi Barbara, I'm new to afib and to this board, and your mention of " cycles " intrigues me. I'm not sure what you are referring to exactly and would love to hear more form you. I am in persistent/chronic afib--- my 8th month---and although I am in afin every hour of every day, i feel there are cycles to my symptoms! is this what you are talking about? there are days I can hardly move from my chair! but then there are days or portions of days that I " almost " feel normal---but I sure can't find any cause & effect for how I feel. I do keep a diary to see if there's a pattern. would love to hear more about ti. thanks. Marcelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 > This brings to my mind one of my last trips (and there were many) to the ER in the year 2000. The ER physician,................snip said, " There are millions of people in this world walking around with Afib and dealing with it - now go home and *deal with it*. > > He was also one of the doctors who overlooked two compression fractures of the back. He told me my backache was all in my mind and part of the Panic Attacks that he had diagnosed! snip............... Hello Ellen: That doctor's diagnoses and reactions were outrageous!.... Here is one for the record: I told my card....that the cardioversions he had done, made a bad speller out of me and his response was:....I have never had a cardioversion and I am a bad speller anyway. Isabelle > >snip......... Oh well, there always has to be med students that graduate at the bottom of the class........I'm sure he was one of them! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 on Thu, 12 Dec 2002 at 19:06:51, Ellen Gilmartin wrote : >This brings to my mind one of my last trips (and there were many) to the ER in the >year 2000. The ER physician, who I saw on many occasions during that year, >looked at me and said, " There are millions of people in this world walking around >with Afib and dealing with it - now go home and *deal with it*. This just *so* the sub-text of what I have come across. OK, OK, I KNOW this - my Dad had afib and walked around with it OK, but mine was DIFFERENT !! This is why it took me so long to get OK'd for an ablation, which has changed my life (back again) :-) And things are looking pretty good again (there we go, tempting fate again!) Best of health to all, Vicky London, UK, 1954 model http://www.vagalafibportal.fsnet.co.uk/ " We don't have a hopeless end; we have an endless hope " - anon (?) via Ellen --------------------------------------------------------------------------------\ ------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 on Thu, 12 Dec 2002 at 19:06:51, Ellen Gilmartin wrote : >This brings to my mind one of my last trips (and there were many) to the ER in the >year 2000. The ER physician, who I saw on many occasions during that year, >looked at me and said, " There are millions of people in this world walking around >with Afib and dealing with it - now go home and *deal with it*. This just *so* the sub-text of what I have come across. OK, OK, I KNOW this - my Dad had afib and walked around with it OK, but mine was DIFFERENT !! This is why it took me so long to get OK'd for an ablation, which has changed my life (back again) :-) And things are looking pretty good again (there we go, tempting fate again!) Best of health to all, Vicky London, UK, 1954 model http://www.vagalafibportal.fsnet.co.uk/ " We don't have a hopeless end; we have an endless hope " - anon (?) via Ellen --------------------------------------------------------------------------------\ ------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 Dear Rich, What is Dr. Zimetbaum's full name? He's not listed in NASPE? Is he an electrophysiologist? I will be going to the Boston A-Fib Symposium Jan 17-18. Do you have any insider tips about Boston? Do you or anyone have any questions you want asked? A-FibFriendSteve celtic8586@... wrote: >Hi Barbara, >I see your in Concord, Ma. I live on the South Shore. If I may. I've had >great success with Dr. Zimetbaum and Dr. phson at Beth Israel in Boston. >They run the A Fib Clinic there. Both are EP's/ heart surgeons. They're bed >side manners are excellent and they have a sense of humor. >There in the business of helping people with A Fib and other heart problems. >Here is a phone number to they're office ask for . She >handles all there appointments. >Rich O > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 Steve, It's Dr. J. Zimetbaum Beth Israel Deaconess Medical Center Division of Cardiology-Electrophysiology Boston, Ma. He's also is a Prof. at Harvard Medical School. Cardiovascular Disease Dr. Mark phson does the PVA's Same address. Rich O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 Steve, It's Dr. J. Zimetbaum Beth Israel Deaconess Medical Center / Harvard Medical School Division of Cardiology-Electrophysiology Boston, Ma. He's also is a Prof. at Harvard Medical School. Cardiovascular Disease Dr. Mark phson does the PVA's Same address. Rich O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 Victor, I won't be at the Jan. AF Seminar in Boston. I'll be away on business. Happy Holidays Rich O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 Hi: Where is the Symposium being held? Who is the contact for reservations? Thanks Victor Re: Doctor's attitudes > Dear Rich, > What is Dr. Zimetbaum's full name? He's not listed in NASPE? Is he > an electrophysiologist? > I will be going to the Boston A-Fib Symposium Jan 17-18. Do you have > any insider tips about Boston? > Do you or anyone have any questions you want asked? > A-FibFriendSteve > > celtic8586@... wrote: > > >Hi Barbara, > >I see your in Concord, Ma. I live on the South Shore. If I may. I've had > >great success with Dr. Zimetbaum and Dr. phson at Beth Israel in Boston. > >They run the A Fib Clinic there. Both are EP's/ heart surgeons. They're bed > >side manners are excellent and they have a sense of humor. > >There in the business of helping people with A Fib and other heart problems. > >Here is a phone number to they're office ask for . She > >handles all there appointments. > >Rich O > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 Rich O. Thanks for the information. I will look for you at the Symposium. Victor Re: Doctor's attitudes > Hello Victor. > So nice to hear from a fellow New Englander. > Regarding Dr. Zimetbaum. He does full PVA's. Actually, Dr. Marc phson > does the procedure. I had mine done in July of this year. All four P Veins > and a flutter ablation as well. 7 Hrs. I was out through the whole thing. I > told Dr. Z that I didn't want to go through a prolonged drug therapy. He said > OK and I did a work up (MRI, TEE etc) and had the PVA. ( They do Focal Point > PVA's as well. Dr. Z told me that the other day) > Dr. phson was great. He's 's Boss. He started doing PVA's in Philly > years ago. He may be part of the group that spearheaded it in the States. > Dr. Zimetbaum is much more into drug therapy and research, but is your " Host " > at the Beth Israel A Fib Clinic. He's a great guy. > My email is oreillyrich@... > Keep in touch. > Rich O > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 Rich O My AFIB is controlled by Flecinide. NSR since April 2002. I am interested in PVA etc. in order to keep track of the technology. If & when I need an ablation I want to know my options. Victor Re: Doctor's attitudes > Victor, are you interested in a PVA? > Rich O > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 Hi folks, Maybe we should collect quotes about doctor's reponses to questions. My husband tried a new doctor with a reputation for being interested in cycles. His response, upon looking at his graphs, was " Oh my, another hypochondriac. " Although it shows very clear cycles, he announced it looked random, and recommended (on first visit) ablation and raising amiodarone. Sigh. That quote goes with another from previous doctor; " Cycles? He's not a woman, is he? . " Just wanted to fuss about this. Barbara Barbara Tinker The Concord Consortium 10 Concord Crossing, Suite 300, Concord MA 01742 Work Phone: Work Fax: Work: http://www.concord.org Personal: http://www.concord.org/~barbara/gaiamatters/beauty/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 how many ablation have you had vicky? Re: Doctor's attitudes on Thu, 12 Dec 2002 at 19:06:51, Ellen Gilmartin wrote : >This brings to my mind one of my last trips (and there were many) to the ER in the >year 2000. The ER physician, who I saw on many occasions during that year, >looked at me and said, " There are millions of people in this world walking around >with Afib and dealing with it - now go home and *deal with it*. This just *so* the sub-text of what I have come across. OK, OK, I KNOW this - my Dad had afib and walked around with it OK, but mine was DIFFERENT !! This is why it took me so long to get OK'd for an ablation, which has changed my life (back again) :-) And things are looking pretty good again (there we go, tempting fate again!) Best of health to all, Vicky London, UK, 1954 model http://www.vagalafibportal.fsnet.co.uk/ " We don't have a hopeless end; we have an endless hope " - anon (?) via Ellen --------------------------------------------------------------------------------\ ------------- Web Page - http://groups.yahoo.com/group/AFIBsupport FAQ - http://groups.yahoo.com/group/AFIBsupport/files/Administrative/faq.htm For more information: http://www.dialsolutions.com/af Unsubscribe: AFIBsupport-unsubscribe List owner: AFIBsupport-owner For help on how to use the group, including how to drive it via email, send a blank email to AFIBsupport-help Nothing in this message should be considered as medical advice, or should be acted upon without consultation with one's physician. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 how many ablation have you had vicky? Re: Doctor's attitudes on Thu, 12 Dec 2002 at 19:06:51, Ellen Gilmartin wrote : >This brings to my mind one of my last trips (and there were many) to the ER in the >year 2000. The ER physician, who I saw on many occasions during that year, >looked at me and said, " There are millions of people in this world walking around >with Afib and dealing with it - now go home and *deal with it*. This just *so* the sub-text of what I have come across. OK, OK, I KNOW this - my Dad had afib and walked around with it OK, but mine was DIFFERENT !! This is why it took me so long to get OK'd for an ablation, which has changed my life (back again) :-) And things are looking pretty good again (there we go, tempting fate again!) Best of health to all, Vicky London, UK, 1954 model http://www.vagalafibportal.fsnet.co.uk/ " We don't have a hopeless end; we have an endless hope " - anon (?) via Ellen --------------------------------------------------------------------------------\ ------------- Web Page - http://groups.yahoo.com/group/AFIBsupport FAQ - http://groups.yahoo.com/group/AFIBsupport/files/Administrative/faq.htm For more information: http://www.dialsolutions.com/af Unsubscribe: AFIBsupport-unsubscribe List owner: AFIBsupport-owner For help on how to use the group, including how to drive it via email, send a blank email to AFIBsupport-help Nothing in this message should be considered as medical advice, or should be acted upon without consultation with one's physician. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 on Fri, 13 Dec 2002 at 10:12:32, schw9883@... wrote : >how many ablation have you had vicky? One " main " one, plus a top-up after 3-months to re-do 2 veins and the flutter. Guess I just healed too well. Best of health to all, Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 > > This just *so* the sub-text of what I have come across. OK, OK, I KNOW > this - my Dad had afib and walked around with it OK, but mine was > DIFFERENT !! > > This is why it took me so long to get OK'd for an ablation, which haschanged my life (back again) :-) And things are looking pretty good again (there we go, tempting fate again!) Best of health to all, Vicky. > Vicky: So happy that you are feeling good!!!!!!!!! Isabelle....I am afibless for 25 days, (did I create a new word....? Note, I am afraid to use the three letter one) and feel 25 years younger.....what do you think has happened, or shouldn't I ask for fear of tempting fate? Regards, I love your posts. Isabelle > > London, UK, 1954 model > http://www.vagalafibportal.fsnet.co.uk/ > > " We don't have a hopeless end; we have an endless hope " > - anon (?) via Ellen > ------------------------------------------------------------------- -------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 > > This just *so* the sub-text of what I have come across. OK, OK, I KNOW > this - my Dad had afib and walked around with it OK, but mine was > DIFFERENT !! > > This is why it took me so long to get OK'd for an ablation, which haschanged my life (back again) :-) And things are looking pretty good again (there we go, tempting fate again!) Best of health to all, Vicky. > Vicky: So happy that you are feeling good!!!!!!!!! Isabelle....I am afibless for 25 days, (did I create a new word....? Note, I am afraid to use the three letter one) and feel 25 years younger.....what do you think has happened, or shouldn't I ask for fear of tempting fate? Regards, I love your posts. Isabelle > > London, UK, 1954 model > http://www.vagalafibportal.fsnet.co.uk/ > > " We don't have a hopeless end; we have an endless hope " > - anon (?) via Ellen > ------------------------------------------------------------------- -------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 > > This just *so* the sub-text of what I have come across. OK, OK, I KNOW > this - my Dad had afib and walked around with it OK, but mine was > DIFFERENT !! > > This is why it took me so long to get OK'd for an ablation, which haschanged my life (back again) :-) And things are looking pretty good again (there we go, tempting fate again!) Best of health to all, Vicky. > Vicky: So happy that you are feeling good!!!!!!!!! Isabelle....I am afibless for 25 days, (did I create a new word....? Note, I am afraid to use the three letter one) and feel 25 years younger.....what do you think has happened, or shouldn't I ask for fear of tempting fate? Regards, I love your posts. Isabelle > > London, UK, 1954 model > http://www.vagalafibportal.fsnet.co.uk/ > > " We don't have a hopeless end; we have an endless hope " > - anon (?) via Ellen > ------------------------------------------------------------------- -------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 > > >Where is the Symposium being held? >Who is the contact for reservations? > Dear Victor, The Boston A-Fib Symposium is being held at the Seaport Hotel and Conference Center, World Trade Center, Boston January 17-18, 2003. It seems very well put together with all the world's big guns in A-Fib. The person listed in the brochure is Kathy Kneebone, The Pyle Center, 702 Langdon St., Madison, WI 53706 tel . (Yes, that is a Wisconsin address and phone number. I think the Un. of Wisconsin is co-sponsoring the Symposium.) I talked to Muriel Corcoran in Boston. If you're going, want to try to meet there? A-FibFriendSteve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2002 Report Share Posted December 14, 2002 Hi Barbara, thanks for your response, and what you suggest sounds like a great idea! As early as my 1st cardiologist visit, I mentioned my symptoms to my Dr. and she seemed to act like she couldn't figure why I felt so bad??? Like she never had another patient that felt so bad! I was ready to go to another doctor, but decided to hold off for awhile---I think that she she finally " got it " that I do feel this bad, and that's why my treatment has been geared towards getting OUT of afib, rather than just rate control--- thanks again----doctors don't seem to know as to why i feel really bad on some days and not too bad on others. I sure wish they WOULD do a study! Marcelle In AFIBsupport , Barbara Tinker <barbara@c...> wrote: > Hi Marcelle, I gather than as many as 40% AFIB patients report cycles, > though they vary in length and intensity. It does not surprise me at all > that there are cycles of symptoms, even when the AFIB is constant. > Unfortunately, it has been hard to interest doctors in researching the > symptoms. With this list, we could cluster people according to symptoms, > and, after getting everyone extensively tested, collect a vast amount of > interesting data. Barbara > > > > > >> Hi folks, Maybe we should collect quotes about doctor's reponses to > >> questions. > >> > >> My husband tried a new doctor with a reputation for being > >interested > >> in cycles. His response, upon looking at his graphs, was " Oh my, > >another > >> hypochondriac. " Although it shows very clear cycles, he announced > >it > >> looked random, and recommended (on first visit) ablation and raising > >> amiodarone. Sigh. That quote goes with another from previous > >doctor; > >> " Cycles? He's not a woman, is he? . " Just wanted to fuss about > >this. > >> Barbara > > > > > >Hi Barbara, > > I'm new to afib and to this board, and your mention of " cycles " > >intrigues me. I'm not sure what you are referring to exactly and > >would love to hear more form you. I am in persistent/chronic afib-- - > >my 8th month---and although I am in afin every hour of every day, i > >feel there are cycles to my symptoms! is this what you are talking > >about? there are days I can hardly move from my chair! but then there > >are days or portions of days that I " almost " feel normal---but I sure > >can't find any cause & effect for how I feel. I do keep a diary to > >see if there's a pattern. would love to hear more about ti. thanks. > >Marcelle > > > > > >Web Page - http://groups.yahoo.com/group/AFIBsupport > >FAQ - http://groups.yahoo.com/group/AFIBsupport/files/Administrative/faq.htm > >For more information: http://www.dialsolutions.com/af > >Unsubscribe: AFIBsupport-unsubscribe > >List owner: AFIBsupport-owner > >For help on how to use the group, including how to drive it via email, > >send a blank email to AFIBsupport-help > > > >Nothing in this message should be considered as medical advice, or should > >be acted upon without consultation with one's physician. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2002 Report Share Posted December 14, 2002 Hi Barbara, thanks for your response, and what you suggest sounds like a great idea! As early as my 1st cardiologist visit, I mentioned my symptoms to my Dr. and she seemed to act like she couldn't figure why I felt so bad??? Like she never had another patient that felt so bad! I was ready to go to another doctor, but decided to hold off for awhile---I think that she she finally " got it " that I do feel this bad, and that's why my treatment has been geared towards getting OUT of afib, rather than just rate control--- thanks again----doctors don't seem to know as to why i feel really bad on some days and not too bad on others. I sure wish they WOULD do a study! Marcelle In AFIBsupport , Barbara Tinker <barbara@c...> wrote: > Hi Marcelle, I gather than as many as 40% AFIB patients report cycles, > though they vary in length and intensity. It does not surprise me at all > that there are cycles of symptoms, even when the AFIB is constant. > Unfortunately, it has been hard to interest doctors in researching the > symptoms. With this list, we could cluster people according to symptoms, > and, after getting everyone extensively tested, collect a vast amount of > interesting data. Barbara > > > > > >> Hi folks, Maybe we should collect quotes about doctor's reponses to > >> questions. > >> > >> My husband tried a new doctor with a reputation for being > >interested > >> in cycles. His response, upon looking at his graphs, was " Oh my, > >another > >> hypochondriac. " Although it shows very clear cycles, he announced > >it > >> looked random, and recommended (on first visit) ablation and raising > >> amiodarone. Sigh. That quote goes with another from previous > >doctor; > >> " Cycles? He's not a woman, is he? . " Just wanted to fuss about > >this. > >> Barbara > > > > > >Hi Barbara, > > I'm new to afib and to this board, and your mention of " cycles " > >intrigues me. I'm not sure what you are referring to exactly and > >would love to hear more form you. I am in persistent/chronic afib-- - > >my 8th month---and although I am in afin every hour of every day, i > >feel there are cycles to my symptoms! is this what you are talking > >about? there are days I can hardly move from my chair! but then there > >are days or portions of days that I " almost " feel normal---but I sure > >can't find any cause & effect for how I feel. I do keep a diary to > >see if there's a pattern. would love to hear more about ti. thanks. > >Marcelle > > > > > >Web Page - http://groups.yahoo.com/group/AFIBsupport > >FAQ - http://groups.yahoo.com/group/AFIBsupport/files/Administrative/faq.htm > >For more information: http://www.dialsolutions.com/af > >Unsubscribe: AFIBsupport-unsubscribe > >List owner: AFIBsupport-owner > >For help on how to use the group, including how to drive it via email, > >send a blank email to AFIBsupport-help > > > >Nothing in this message should be considered as medical advice, or should > >be acted upon without consultation with one's physician. > > > > Quote Link to comment Share on other sites More sharing options...
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