Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 ne, Here in NZ I used Calogen, a peanut oil. The protiens are taken out so you don't need to worry about allergic reactions. (Please note that it is 50% oil and 50% water in a suspended solution, so that needs to be calculated in.I also used mayonaise with great success and on occaision, a combination of olive and flax oil. I am not sure long term how the straight oil would go but if blended properly, should be OK. Louise NZ > Possible MCT crisis > > > > I have just been told tonight that Mead will no longer be > supplying > MCT oil here in Australia. I will be on the phone tomorrow, but wonder if > any other Australians out there have heard similar speculations. > > If this should be the case..I need some input from the group as to > approprate oils substitutes. Gaby is Gastrostomy tube fed. > Presently I use an infant formula powder, infant vitamin powder, protein > powder, MCt and a little walnut oil. > > To add to the delemna, my dietitian is due to leave to have a baby any > day.(.there will be a replacement though, just pray she is keto > friendly!!) > > I am also dealing with continued partial seizures with Gaby, > since the pain > following plaster removal from recent surgery.?muscle spasms and skin > hypersensitivity) Her pain is settling, but I am still seeing > partials. She > is not on any meds, and I do not want to go there just yet either. Guess I > just need reassuring from those of you who are so much more experienced > here, that this is porbably just a temporary thing. > > Phew, thats a load of my chest! > > ne (in Australia). Mum to Gaby 6 years, mito disorder, > ketogenic diet, G > Tube, microcephaly, global delays, and the prettiest smile. > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a > last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a > professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 Dear ne: You can purchase MCT Oil in the United States without a prescription-and it is much cheaper than the Mead -prescription required oil. I am in Canada and require a prescription for it-but I did some research on the different brands available in the United States (I had a truck driver buy any type he came across and then I contacted the manufacturer and compared mine to theres. I did come up with a good substitute but the truck driver stopped driving long distance. If you are having trouble getting other brands in Australia I can get the brand name for you and you can contact the manufacturer directly-they may ship it to you-the price difference was amazing. I pay $ 50.00 a bottle here and this brand was 18.00 a bottle-so if you bought in bulk it may be worth the shipping. Let me know Good Luck Diane Possible MCT crisis I have just been told tonight that Mead will no longer be supplyingMCT oil here in Australia. I will be on the phone tomorrow, but wonder ifany other Australians out there have heard similar speculations.If this should be the case..I need some input from the group as toapproprate oils substitutes. Gaby is Gastrostomy tube fed.Presently I use an infant formula powder, infant vitamin powder, proteinpowder, MCt and a little walnut oil.To add to the delemna, my dietitian is due to leave to have a baby anyday.(.there will be a replacement though, just pray she is keto friendly!!)I am also dealing with continued partial seizures with Gaby, since the painfollowing plaster removal from recent surgery.?muscle spasms and skinhypersensitivity) Her pain is settling, but I am still seeing partials. Sheis not on any meds, and I do not want to go there just yet either. Guess Ijust need reassuring from those of you who are so much more experiencedhere, that this is porbably just a temporary thing.Phew, thats a load of my chest!ne (in Australia). Mum to Gaby 6 years, mito disorder, ketogenic diet, GTube, microcephaly, global delays, and the prettiest smile. "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 Dear ne: You can purchase MCT Oil in the United States without a prescription-and it is much cheaper than the Mead -prescription required oil. I am in Canada and require a prescription for it-but I did some research on the different brands available in the United States (I had a truck driver buy any type he came across and then I contacted the manufacturer and compared mine to theres. I did come up with a good substitute but the truck driver stopped driving long distance. If you are having trouble getting other brands in Australia I can get the brand name for you and you can contact the manufacturer directly-they may ship it to you-the price difference was amazing. I pay $ 50.00 a bottle here and this brand was 18.00 a bottle-so if you bought in bulk it may be worth the shipping. Let me know Good Luck Diane Possible MCT crisis I have just been told tonight that Mead will no longer be supplyingMCT oil here in Australia. I will be on the phone tomorrow, but wonder ifany other Australians out there have heard similar speculations.If this should be the case..I need some input from the group as toapproprate oils substitutes. Gaby is Gastrostomy tube fed.Presently I use an infant formula powder, infant vitamin powder, proteinpowder, MCt and a little walnut oil.To add to the delemna, my dietitian is due to leave to have a baby anyday.(.there will be a replacement though, just pray she is keto friendly!!)I am also dealing with continued partial seizures with Gaby, since the painfollowing plaster removal from recent surgery.?muscle spasms and skinhypersensitivity) Her pain is settling, but I am still seeing partials. Sheis not on any meds, and I do not want to go there just yet either. Guess Ijust need reassuring from those of you who are so much more experiencedhere, that this is porbably just a temporary thing.Phew, thats a load of my chest!ne (in Australia). Mum to Gaby 6 years, mito disorder, ketogenic diet, GTube, microcephaly, global delays, and the prettiest smile. "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 Dear ne: You can purchase MCT Oil in the United States without a prescription-and it is much cheaper than the Mead -prescription required oil. I am in Canada and require a prescription for it-but I did some research on the different brands available in the United States (I had a truck driver buy any type he came across and then I contacted the manufacturer and compared mine to theres. I did come up with a good substitute but the truck driver stopped driving long distance. If you are having trouble getting other brands in Australia I can get the brand name for you and you can contact the manufacturer directly-they may ship it to you-the price difference was amazing. I pay $ 50.00 a bottle here and this brand was 18.00 a bottle-so if you bought in bulk it may be worth the shipping. Let me know Good Luck Diane Possible MCT crisis I have just been told tonight that Mead will no longer be supplyingMCT oil here in Australia. I will be on the phone tomorrow, but wonder ifany other Australians out there have heard similar speculations.If this should be the case..I need some input from the group as toapproprate oils substitutes. Gaby is Gastrostomy tube fed.Presently I use an infant formula powder, infant vitamin powder, proteinpowder, MCt and a little walnut oil.To add to the delemna, my dietitian is due to leave to have a baby anyday.(.there will be a replacement though, just pray she is keto friendly!!)I am also dealing with continued partial seizures with Gaby, since the painfollowing plaster removal from recent surgery.?muscle spasms and skinhypersensitivity) Her pain is settling, but I am still seeing partials. Sheis not on any meds, and I do not want to go there just yet either. Guess Ijust need reassuring from those of you who are so much more experiencedhere, that this is porbably just a temporary thing.Phew, thats a load of my chest!ne (in Australia). Mum to Gaby 6 years, mito disorder, ketogenic diet, GTube, microcephaly, global delays, and the prettiest smile. "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 Thankyou everyone for your responses to my dilemma last night. Today it was confirmed Mead ARE withdrawing most of their supplies from Australia, but that Nutrica and Scientific Hospital Supplies (SHS),carry MCT oil here also. (I think it is /was just easier for the local pharmacy to access products from the Mead line) I am aware of the availability of Calogen, but Gaby actually doesn't have as good ketone production with it. I guess its just an individual thing, but it would certainly be an option should MCT disappear from the land down under! For the record, I can obtain MCT here on an authority prescription (ie, meds for special circumstances), and with Gaby's health care card, it costs me just $3.30 per month for 2 litres. Without the prescription, it would cost just over $50.00 per litre (so I guess my dilemma was not only availability, but also cost of alternative products!!) Thanks again, I'll keep you posted on the events that follow on the Aussie MCT supply! ne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 On Wed, 29 Aug 2001 21:35:08 +1000 "Tony & ne" writes: I have just been told tonight that Mead will no longer be supplyingMCT oil here in Australia. Presently I use an infant formula powder, infant vitamin powder, proteinpowder, MCt and a little walnut oil.I would suggest a combination of oils. Flaxseed oil has been known to increase ketones in some...similar to MCT. We use Barleans flaxseed oil. To get the W3 conversions add Cod Liver oil..we use Kirkman labs CLO. Safflower or sunflower oils supply the w6 fatty acids...and to get the w6 conversions we use borage oil found in omega twin (flax-borrage mix) also by barleans. A shot of extra virgin olive oil is a good ideal also. cya Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 On Wed, 29 Aug 2001 21:35:08 +1000 "Tony & ne" writes: I have just been told tonight that Mead will no longer be supplyingMCT oil here in Australia. Presently I use an infant formula powder, infant vitamin powder, proteinpowder, MCt and a little walnut oil.I would suggest a combination of oils. Flaxseed oil has been known to increase ketones in some...similar to MCT. We use Barleans flaxseed oil. To get the W3 conversions add Cod Liver oil..we use Kirkman labs CLO. Safflower or sunflower oils supply the w6 fatty acids...and to get the w6 conversions we use borage oil found in omega twin (flax-borrage mix) also by barleans. A shot of extra virgin olive oil is a good ideal also. cya Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 On Wed, 29 Aug 2001 21:35:08 +1000 "Tony & ne" writes: I have just been told tonight that Mead will no longer be supplyingMCT oil here in Australia. Presently I use an infant formula powder, infant vitamin powder, proteinpowder, MCt and a little walnut oil.I would suggest a combination of oils. Flaxseed oil has been known to increase ketones in some...similar to MCT. We use Barleans flaxseed oil. To get the W3 conversions add Cod Liver oil..we use Kirkman labs CLO. Safflower or sunflower oils supply the w6 fatty acids...and to get the w6 conversions we use borage oil found in omega twin (flax-borrage mix) also by barleans. A shot of extra virgin olive oil is a good ideal also. cya Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 On Thu, 30 Aug 2001 11:52:44 +0930 " Prowse" writes: My son is also gtube fed on the diet, we use a liquid called Calogenwhich we source via the Childrens Hospital in Adelaide. Its actually a LCToil not MCT, but I've been told that you actually get better ketones withLCT by our biochemist.Just curious what the L stands for?? LOng??? the M stands for medium Chain I agree with your biochemist...flaxseed oil is a very long chain fatty acid and has been shown to increase ketones. I spoke to a biochemist at Barleans for quite some time about this. He said the same thing...its perfect for the diet. wonder how processed the Calogen is?? Gotta research that one.. might loose the health benefits if thats the case. Oh just rambling...never mind... cya Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 On Thu, 30 Aug 2001 11:52:44 +0930 " Prowse" writes: My son is also gtube fed on the diet, we use a liquid called Calogenwhich we source via the Childrens Hospital in Adelaide. Its actually a LCToil not MCT, but I've been told that you actually get better ketones withLCT by our biochemist.Just curious what the L stands for?? LOng??? the M stands for medium Chain I agree with your biochemist...flaxseed oil is a very long chain fatty acid and has been shown to increase ketones. I spoke to a biochemist at Barleans for quite some time about this. He said the same thing...its perfect for the diet. wonder how processed the Calogen is?? Gotta research that one.. might loose the health benefits if thats the case. Oh just rambling...never mind... cya Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 Glad you found another supplier ne. Its too hard to think about alternate arrangements sometimes. Life is busy enough w/o spending mental energy on things like that. At least you can tick this one off. ----- Original Message ----- > Today it was confirmed Mead ARE withdrawing most of their supplies > from Australia, but that Nutrica and Scientific Hospital Supplies > (SHS),carry MCT oil here also. (I think it is /was just easier for the local > pharmacy to access products from the Mead line) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 Glad you found another supplier ne. Its too hard to think about alternate arrangements sometimes. Life is busy enough w/o spending mental energy on things like that. At least you can tick this one off. ----- Original Message ----- > Today it was confirmed Mead ARE withdrawing most of their supplies > from Australia, but that Nutrica and Scientific Hospital Supplies > (SHS),carry MCT oil here also. (I think it is /was just easier for the local > pharmacy to access products from the Mead line) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 Glad you found another supplier ne. Its too hard to think about alternate arrangements sometimes. Life is busy enough w/o spending mental energy on things like that. At least you can tick this one off. ----- Original Message ----- > Today it was confirmed Mead ARE withdrawing most of their supplies > from Australia, but that Nutrica and Scientific Hospital Supplies > (SHS),carry MCT oil here also. (I think it is /was just easier for the local > pharmacy to access products from the Mead line) Quote Link to comment Share on other sites More sharing options...
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