Guest guest Posted August 1, 2001 Report Share Posted August 1, 2001 Kendra, Welcome! I can't speak to the heart palpitation question because I never have them except when I'm taking Cytomel. But it's not unusual to continue losing hair for 3-4 months after you've been hypothyroid (as for RAI). Have you had any blood work done since you've been on Levoxyl? If your dose is correct, the hair loss should slow down and stop over the next month or two. If it doesn't, it *may* indicate that you need a little more Levoxyl. It's quite common to have to adjust the dose of medication several times after surgery to discover the optimal dose for each patient. After each dosage change, you will have to wait about 8 weeks before having blood tests done to see if the new dose is better for you. Your doctor should be happy to discuss these issues with you at your next follow-up visit. ellen -- mailto:ellen@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 Not everyone's does. It depends on how your body reacts to being hypo. And its not the hair falling out like chemo patients experience, its more like seeing more hair in the brush, noticing your hair is thinner, etc barb > My thyca surgery was May 29, 2001. RAI was third week in June. My hair hasn't > fallen out- will it??? I am on Synthroid .01 > > Pap 2cm TT > > Pls let me know if I should expect to start balding soon. It really doesn't > matter. I feel SO hypo that NOTHING matters right now. My TSH is at 10.25 is > that okay? Will someone pls help me... my endo doesn't anwer any questions or > is of any help. How did he make it through med school.? I have learned more > from this site than all my docs put together. > > I love you guys!!! > > Syl > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 Not everyone's does. It depends on how your body reacts to being hypo. And its not the hair falling out like chemo patients experience, its more like seeing more hair in the brush, noticing your hair is thinner, etc barb > My thyca surgery was May 29, 2001. RAI was third week in June. My hair hasn't > fallen out- will it??? I am on Synthroid .01 > > Pap 2cm TT > > Pls let me know if I should expect to start balding soon. It really doesn't > matter. I feel SO hypo that NOTHING matters right now. My TSH is at 10.25 is > that okay? Will someone pls help me... my endo doesn't anwer any questions or > is of any help. How did he make it through med school.? I have learned more > from this site than all my docs put together. > > I love you guys!!! > > Syl > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 Not everyone's does. It depends on how your body reacts to being hypo. And its not the hair falling out like chemo patients experience, its more like seeing more hair in the brush, noticing your hair is thinner, etc barb > My thyca surgery was May 29, 2001. RAI was third week in June. My hair hasn't > fallen out- will it??? I am on Synthroid .01 > > Pap 2cm TT > > Pls let me know if I should expect to start balding soon. It really doesn't > matter. I feel SO hypo that NOTHING matters right now. My TSH is at 10.25 is > that okay? Will someone pls help me... my endo doesn't anwer any questions or > is of any help. How did he make it through med school.? I have learned more > from this site than all my docs put together. > > I love you guys!!! > > Syl > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2001 Report Share Posted August 12, 2001 Hi Charlene; Welcome, you'll find lots of good info here. > I am so new to all of this and at the moment getting a little > overwhemed! I was told this is very treatable and not to worry. It is very treatable, but your're right, it is a big deal!!! Your first task is getting ready for surgery, try and spend the next few weeks getting comfortable with the idea, and line up some help at home for after surgery if you can. It will be about a week probably before you can drive, and lift heavy things. And you'll want to have some slithery foods to eat, and comfort foods. Folks on the list are always happy to share their surgery experiences. I was very nervous before hand and found that visualization tapes helped me relax and get comfortable with the idea of surgery. A dog bone or other roll type pillow for behind your neck after surgery sure helps you feel more comfortable. I didn't have much pain, but everyone differs in that respect. My only surgery problem was that my parathyroids took a little vacation and stopped controling my calcium levels, so I went home from the hospital, came back for calcium tests only to be readmitted for another 3 days till they kicked back in. Ask your docs about this possibility, as it would be really hard to do a 4 hour drive back and forth... > > In reading some of the archives I am hearing a lot more than my Drs. > have told me. They said you have you thyroid removed, you probable > won't have to have radio active iodine and then you go on hormone > replacement. Simple. Not a lot of details there. You may want to ask them more questions. It really depends on the size of the cancer when they remove it, if any got into the lymph nodes, if the cancer spread outside the capsule of the thyroid etc. If its encapsulated, no spread, smaller than 1.5 cm, you may be considered low risk and not have RAI... But typically most folks do have RAI to clean up any remaining thyroid tissue after surgery and enable the use of TG thyroglobulin as a marker for monitoring for recurrence. The hormone replacement is pretty easy, its a pill a day.. the finding out of the right dose for an individual often takes multiple 6 week attempts with a bloodtest and then dose readjustment to get to just the right dose. Its not hard, just time consuming. > > I guess I'm wondering what other things I should be asking them and > not going into this without a realistic idea of what it is going to > be like. Check out www.thyca.org the newbies link.. it has LOTS of questions to ask your doctors. Good Luck, welcome, and keep asking those questions barb Barb Burri dx pap 7/1/99 TT 8/13/99, RAI 63mci 4/26/00 - CLEAN SCAN 12/15/00 - .175 synthroid barburri@... // bburri@... // www.burri.com hailing from Plaistow NH (42 miles Due North of Boston) > > Thanks > Charlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2001 Report Share Posted August 12, 2001 Thank you for the reply. I guess I should have given some more information about myself. I am 46 years old and have two children, daughter is 26 yrs., and my son is 18 yrs. (I have been married for 27 years to a wonderful guy!) My nodule is estimated to be somewhere between 2 to 2 1/2cm, I was diagnosed with papillary cancer (FNA). I don't know how familiar people are with the Mayo Clinic in Rochester, MN. It is supposed to be one of the finest facilities around and people come from all over the world to come there. Anyway, they are about to present a paper on their findings that only about 60% of their thyroid cancer patients need RAI and if it is needed they use a much lower dose. They also use ultrasound mapping of the thyroid and lymph nodes before surgery to determine if lymph nodes are involved and where the locations are. For these reasons I decided to schedule my surgery there (a 4 hour drive from my home) rather than at the University of Iowa Hospital that is about 20 minutes from my home. I'm still in the phase of I don't want anything to do with this. No surgery (I've never had any surgeries, had my daughter at home, my son in a hospital but left the hospital 12 hours after he was born, no meds during labor or delivery.)I have only taking vitamins most of my life, not big into taking medication. Thanks for place to ask questions and get support. Charlene Brown Iowa > I noticed that your Dr's told you that once you have your thyroid out you > are done. I would definitely question this. I know that there are many > people who have not had RAI (radioactive iodine) treatments after their TT > (total thyroidectomy) but I am not one of them. I have had two RAI's since > my TT in April of last year (one 5/26/00 and the next 1/19/01). This > occurred due to the spread to my lymph nodes (found on the path report from > the Partial thyroidectomy) and the second time due to elevated thyroglobulin > levels. Make sure that some one does a Tg (thyroglobulin) test on you after > your TT. I think it is done around 6 weeks after TT. Your thyroid produces > this naturally so you will need to wait a while to get it out of your > system. If your Tg is 1 or higher, then that means that there is still > something going on. Most of us are striving for less than 1. Endo's use > this test as a marker in the future to determine if there is thyca occurring > in your body. > > Hope that helps! Hang in there. I know this is overwhelming. I was > diagnosed when I was 3 months postpartum! > > in Michigan > Papillary ThyCa - PT 3/1/00, TT 4/12/00 > RAI 100 mCi's 5/26/00 > 2nd RAI 150 mCi's 1/19/01 > Synthroid .150 mg > New Member > > > > Hi, > > > > I am Charlene, I was diagnosed with pap ca on Aug. 1, I am scheduled > > to have surgery on Aug. 24 at Mayo Clinic in Rochester, MN > > > > I live in Iowa and it is a 4 hour drive to Mayo for me. > > > > I am so new to all of this and at the moment getting a little > > overwhemed! I was told this is very treatable and not to worry. > > Yes, I relise there are a lot worse things, but this is a big thing > > to me. > > > > In reading some of the archives I am hearing a lot more than my Drs. > > have told me. They said you have you thyroid removed, you probable > > won't have to have radio active iodine and then you go on hormone > > replacement. Simple. Not a lot of details there. > > > > I guess I'm wondering what other things I should be asking them and > > not going into this without a realistic idea of what it is going to > > be like. > > > > Thanks > > Charlene > > > > > > For more information regarding thyroid cancer visit www.thyca.org. If you > do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank > email to thyca-unsubscribe@y... > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2001 Report Share Posted August 15, 2001 I have also been hearing people say " oh, it's only thyroid cancer, " as in " what are you so upset about? " Well, some of them will get a diagnosis like this some day, and then they'll know! But the day before I got the results of the FNAB, there was a huge parade here in Philly to mark the opening of this year's international dragonboat racing on the Schuylkill River, and there was a whole boatful of rowers who were breast cancer survivors. One of them, by coincidence, saw a bunch of us from the Free Library watching the parade and asked if everybody's mammograms were up to date. At HUP they'd had to postpone lots of appointments when people walked off the job, so I told her about that, and then blurted out, " I'm awaiting the results of a test for thyroid cancer. " The parade had stopped marching for a moment, so she broke out of the line, ran up to me, grabbed me in a huge bear hug and wouldn't let me go. I told her I was terrified...and that compared to what she and the others had been through, thyroid cancer was almost a joke, but she said, both vehemently and reassuringly, that no kind of cancer was any sort of joke. She said a lot of other nice things, too...and then, in the bus on the way home, I was talking to a neighbor (who's a veterinary oncologist) about it all, and when I got off, I heard the driver wish me good luck. You never know where you'll find a friend...sometimes you discover you have far more than you thought. My colleagues have been astounding; I actually want to go in to work now, for the first time since the library administration started trying to run me out after they learned I had bipolar a few years ago. But that's another tale! Barbara PS--I'm from DC and know Bethesda and Chevy Chase intimately; I don't know if I'll go down for the conference (surgery's on the 11th), but if anyone has any questions about the area, please let me know. I'll be really forward and offer up my home phone--just don't call me for a while after the 11th, guess why! I'll be in Cleveland from this Thursday until this Sunday. Here I'm at . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Hi, ! Glad to have you join us. ) I, too, have found that IE is the only thing that's worked for me in 7 years of trying to shed the unwanted pounds, but have also been lured back into old habits. I, too, am working on climbing back onto the " IE Wagon " . We'll journey together! ) Jenn <>< -----Original Message----- >HI EVERYONE, I AM A NEW MEMBER, MY NAME IS MELISSA. I HAVE KNOWN THAT INTUITIVE EATING HAS BEEN THE ONLY WAY THAT I WAS EVER HAPPY IN MY LIFE,BUT I JUST HAVE BEEN LED BACK TO THIS OLD LIFESTYLE . Books Read: http://mizbooksreads.blogspot.com Faith Group: http://groups.yahoo.com/group/unshakablefocus Healthy Eating: http://intuitive-eating.blogspot.com Wishlist: http://www.librarything.com/catalog/mizbooks94 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 Hi I was the same as you - I gained my weight in my late 20's (29-34). My marriage was going thru a very rough time and I think I ate to provide some comfort to the situation. Once I realized that I had to take responsibilty for myself and not rely on others or food to make me feel better. I started losing weight but I did so thru dieting - which became my hobby and total focus in life (not good). Dieting had become a total obsession. I can't really offer much (if any) advice regarding IE as I have just started myself, I just wanted you to know that I have been there, done that. The weight did come off once I started to take care of myself - I just wish I had done so in a healthy way (IE instead of dieting) and I see IE as a wonderful opportunity to take the best care of myself that I can. I also don't want my daughter to have a mother that is constantly dieting and not accepting herself as she is. I'm slowly coming to realize that I am good the way I am - I don't have to be a certain weight in order to be happy with myself -- thats been a diffcult thing to really internalize. Oh and I understand the sex thing -- I went to great lengths to avoid it! Also, reading Intuitive Eating has been very helpful to me. Anyway, I hope this helps but I just wanted you to know that you aren't alone with this and I'm in the same boat and trying to figure things out. Deb -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.410 / Virus Database: 268.17.14/657 - Release Date: 1/29/2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 Hi I was the same as you - I gained my weight in my late 20's (29-34). My marriage was going thru a very rough time and I think I ate to provide some comfort to the situation. Once I realized that I had to take responsibilty for myself and not rely on others or food to make me feel better. I started losing weight but I did so thru dieting - which became my hobby and total focus in life (not good). Dieting had become a total obsession. I can't really offer much (if any) advice regarding IE as I have just started myself, I just wanted you to know that I have been there, done that. The weight did come off once I started to take care of myself - I just wish I had done so in a healthy way (IE instead of dieting) and I see IE as a wonderful opportunity to take the best care of myself that I can. I also don't want my daughter to have a mother that is constantly dieting and not accepting herself as she is. I'm slowly coming to realize that I am good the way I am - I don't have to be a certain weight in order to be happy with myself -- thats been a diffcult thing to really internalize. Oh and I understand the sex thing -- I went to great lengths to avoid it! Also, reading Intuitive Eating has been very helpful to me. Anyway, I hope this helps but I just wanted you to know that you aren't alone with this and I'm in the same boat and trying to figure things out. Deb -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.410 / Virus Database: 268.17.14/657 - Release Date: 1/29/2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 Hi I was the same as you - I gained my weight in my late 20's (29-34). My marriage was going thru a very rough time and I think I ate to provide some comfort to the situation. Once I realized that I had to take responsibilty for myself and not rely on others or food to make me feel better. I started losing weight but I did so thru dieting - which became my hobby and total focus in life (not good). Dieting had become a total obsession. I can't really offer much (if any) advice regarding IE as I have just started myself, I just wanted you to know that I have been there, done that. The weight did come off once I started to take care of myself - I just wish I had done so in a healthy way (IE instead of dieting) and I see IE as a wonderful opportunity to take the best care of myself that I can. I also don't want my daughter to have a mother that is constantly dieting and not accepting herself as she is. I'm slowly coming to realize that I am good the way I am - I don't have to be a certain weight in order to be happy with myself -- thats been a diffcult thing to really internalize. Oh and I understand the sex thing -- I went to great lengths to avoid it! Also, reading Intuitive Eating has been very helpful to me. Anyway, I hope this helps but I just wanted you to know that you aren't alone with this and I'm in the same boat and trying to figure things out. Deb -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.410 / Virus Database: 268.17.14/657 - Release Date: 1/29/2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 Thanks, Marjolein, I appreciate your encouragement! > > Hi ! > > Yee, I feel for you...having gone through so much in the last few years! > It is a pitty that you weren't able to take good and loving care of > yourself....I know how that feels. > > I wish you all the best with this approach: you CAN do this!! > Just pick up your book and tell yourself you don't have to do ANYTHING > you don't want to! This really is a way toward freedom but the > emotional part is the most difficult..at least for me, it is. > > I'm doing EFT for the feelings I have difficulties with and sometimes I > just go to bed and feel what I feel. It's more loving towards myself > than stuffing my face with sweets. > > I am starting today with rereading the book: the 7 secrets of slim > people and I am going to do the exercises this time. It is a really > good book...very to the point and not to much blabla. > > The best to you, > Marjolein > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 Thanks, Marjolein, I appreciate your encouragement! > > Hi ! > > Yee, I feel for you...having gone through so much in the last few years! > It is a pitty that you weren't able to take good and loving care of > yourself....I know how that feels. > > I wish you all the best with this approach: you CAN do this!! > Just pick up your book and tell yourself you don't have to do ANYTHING > you don't want to! This really is a way toward freedom but the > emotional part is the most difficult..at least for me, it is. > > I'm doing EFT for the feelings I have difficulties with and sometimes I > just go to bed and feel what I feel. It's more loving towards myself > than stuffing my face with sweets. > > I am starting today with rereading the book: the 7 secrets of slim > people and I am going to do the exercises this time. It is a really > good book...very to the point and not to much blabla. > > The best to you, > Marjolein > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 Welcome & I look forward to hearing some of your thoughts! > > Hi everybody! > I am a new member to the group. I have not yet seen where I can read > all of your messages, but I'll keep looking! > I am an Overeater's Anonymous flunkee and long, long time sufferer of > bulimia and compulsive overeating. I went to OA because there are no other > ongoing support groups out there--at least, there weren't when I started going > in 1981. There are online support groups now, which is great, but OA is the > only support group I'm aware of that meets in the flesh. > As I slowly found my way out of the abyss of compulsive overeating and > bulimia, I wanted to share what I learned with others. I got certified as a > Life Coach and created a program to help others, based on my experiences. It > is called FREE: Finding Resolve through Empowered Eating. My website is > _www.empoweredeating.net_ (http://www.empoweredeating.net) . > I did a Google search on intuitive eating yesterday to find like-minded > people to interact with. That's how I found my way to your group. I'm > looking forward to hearing all of your thoughts and acting as support for one > another. > > Warmly, > > Caryn Schall, CTACC > Certified Personal Coach > FREE: Finding Resolve through Empowered Eating > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 Welcome & I look forward to hearing some of your thoughts! > > Hi everybody! > I am a new member to the group. I have not yet seen where I can read > all of your messages, but I'll keep looking! > I am an Overeater's Anonymous flunkee and long, long time sufferer of > bulimia and compulsive overeating. I went to OA because there are no other > ongoing support groups out there--at least, there weren't when I started going > in 1981. There are online support groups now, which is great, but OA is the > only support group I'm aware of that meets in the flesh. > As I slowly found my way out of the abyss of compulsive overeating and > bulimia, I wanted to share what I learned with others. I got certified as a > Life Coach and created a program to help others, based on my experiences. It > is called FREE: Finding Resolve through Empowered Eating. My website is > _www.empoweredeating.net_ (http://www.empoweredeating.net) . > I did a Google search on intuitive eating yesterday to find like-minded > people to interact with. That's how I found my way to your group. I'm > looking forward to hearing all of your thoughts and acting as support for one > another. > > Warmly, > > Caryn Schall, CTACC > Certified Personal Coach > FREE: Finding Resolve through Empowered Eating > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 My name is Lori & I have been on this Intuitive Eating journey for almost 3 years. I'm 50 years old & went on my first diet at 16 (I wasn't overweight), which started a cycle of losing, feeling deprived, bingeing, gaining, maintaining a while, then starting over again. I found this group from the Intuitive Eating website. I lost my copy of the book & needed to refresh my memory. I need to be reminded why diets don't work. I would describe my eating style as somewhere between a " careful eater " & " intuitive eater " . Last summer my cholesterol was too high & I was given a chance to lower it with diet/exercise rather than medication. I was successful, but I've been feeling deprived lately. I remembered the chapter on " gentle nutrition " & know this is the way to go. On a personal note, I've been married 25 years, have 2 children in college & teach preschool. I look forward to reading the messages and getting to know others on their journey to be free of dieting! Quote Link to comment Share on other sites More sharing options...
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