Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Welcome to the Thyca list, Jan. You'll find lots of helpful advice and tips here. One question....did your Dr. recommend starting the LID already (6 weeks prior to your ablative dose)? That is VERY early to begin the diet as our Drs. recommend starting it 2 weeks prior to receiving the dose. In my opinion, it will be very difficult to maintain the LID for that length of time. Most of us find it is hard enough to do it for 2 weeks! 6 weeks would be impossible for me and I know I would cheat at the very end when it is most important to be absolutely strict about avoiding products containing iodine. In answer to your question. Butter is definitely a no-no. Dairy products are among the worst offenders of the LID. As far as your embroidery...you might consider starting your project while in the hospital and then putting it in a plastic bag to bring home and allow to 'decay' for several months before resuming the work. The perspiration from your hands is what will contaminate it. Marilyn (dx '94-pap w/lung metastases - 5 pos scans/435mCi's - scans 6 & 7 clean) JanS@... wrote: > I am in day 6 of low iodine diet and no thyroid medication in > readiness for RAI on May 30th. Am doing pretty well but have found > the differing diet lists to be upsetting to me-i.e. my hospital does > not allow chicken but will allow sweet butter and tea. I have read at > the thyca site that these are " definite no-no's " . > > Another question I had was about what i can do in the hospital. I was > planning on bringing my embroidery but then it seems that it would be > contaminated and will that just go away in time? I wouldnt want to > wash it. > > I look forward to further discussions with you and more information. > > Jan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Welcome to the Thyca list, Jan. You'll find lots of helpful advice and tips here. One question....did your Dr. recommend starting the LID already (6 weeks prior to your ablative dose)? That is VERY early to begin the diet as our Drs. recommend starting it 2 weeks prior to receiving the dose. In my opinion, it will be very difficult to maintain the LID for that length of time. Most of us find it is hard enough to do it for 2 weeks! 6 weeks would be impossible for me and I know I would cheat at the very end when it is most important to be absolutely strict about avoiding products containing iodine. In answer to your question. Butter is definitely a no-no. Dairy products are among the worst offenders of the LID. As far as your embroidery...you might consider starting your project while in the hospital and then putting it in a plastic bag to bring home and allow to 'decay' for several months before resuming the work. The perspiration from your hands is what will contaminate it. Marilyn (dx '94-pap w/lung metastases - 5 pos scans/435mCi's - scans 6 & 7 clean) JanS@... wrote: > I am in day 6 of low iodine diet and no thyroid medication in > readiness for RAI on May 30th. Am doing pretty well but have found > the differing diet lists to be upsetting to me-i.e. my hospital does > not allow chicken but will allow sweet butter and tea. I have read at > the thyca site that these are " definite no-no's " . > > Another question I had was about what i can do in the hospital. I was > planning on bringing my embroidery but then it seems that it would be > contaminated and will that just go away in time? I wouldnt want to > wash it. > > I look forward to further discussions with you and more information. > > Jan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 I was told not to do knitting or embroidery type of things unless I wanted to put it in a plastic bag afterward and leave it there for several months away from everybody. JanS@... wrote: > I am in day 6 of low iodine diet and no thyroid medication in > readiness for RAI on May 30th. Am doing pretty well but have found > the differing diet lists to be upsetting to me-i.e. my hospital does > not allow chicken but will allow sweet butter and tea. I have read at > the thyca site that these are " definite no-no's " . > > Another question I had was about what i can do in the hospital. I was > planning on bringing my embroidery but then it seems that it would be > contaminated and will that just go away in time? I wouldnt want to > wash it. > > I look forward to further discussions with you and more information. > > Jan > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 I was told not to do knitting or embroidery type of things unless I wanted to put it in a plastic bag afterward and leave it there for several months away from everybody. JanS@... wrote: > I am in day 6 of low iodine diet and no thyroid medication in > readiness for RAI on May 30th. Am doing pretty well but have found > the differing diet lists to be upsetting to me-i.e. my hospital does > not allow chicken but will allow sweet butter and tea. I have read at > the thyca site that these are " definite no-no's " . > > Another question I had was about what i can do in the hospital. I was > planning on bringing my embroidery but then it seems that it would be > contaminated and will that just go away in time? I wouldnt want to > wash it. > > I look forward to further discussions with you and more information. > > Jan > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 I can see what you are saying about doing embroidery in the hospital and then putting it away for months. When you get home from the hospital after the RAI how do you live without touching everything--cooking, housekeeping, doorknobs etc. I read where you are supposed to put plastic on your bed and pillow but what about everything else? Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 I can see what you are saying about doing embroidery in the hospital and then putting it away for months. When you get home from the hospital after the RAI how do you live without touching everything--cooking, housekeeping, doorknobs etc. I read where you are supposed to put plastic on your bed and pillow but what about everything else? Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Marilyn, I notice that you put various bits of information on the bottom of your email like when you were diagnosed and how many scans you have had etc. The cancer I have is both pap and fall and went into my lymph nodes but more than that I dont know. I didnt know until a little while ago that I would have to have scans for the rest of my life either. This is all a real shock to me as well as my family and I am sure it must have been so for you (as well as other members of this list). By the way, I am brand new to Yahoo and thus am a bit clumsy about navigating in here but am getting the hang of it. Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Marilyn, I notice that you put various bits of information on the bottom of your email like when you were diagnosed and how many scans you have had etc. The cancer I have is both pap and fall and went into my lymph nodes but more than that I dont know. I didnt know until a little while ago that I would have to have scans for the rest of my life either. This is all a real shock to me as well as my family and I am sure it must have been so for you (as well as other members of this list). By the way, I am brand new to Yahoo and thus am a bit clumsy about navigating in here but am getting the hang of it. Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Jan-- I am in day 6 of ... no thyroid medication in > readiness for RAI on May 30th. A lot of us take Cytomel, a T3 drug that clears the system in about 2 weeks, during the early weeks of hypo hell. It really helps minimize the symptoms during this time, so that one just feels bad during the last 2 weeks before RAI. You might ask your doc to prescribe it for you. > Another question I had was about what i can do in the hospital. I was > planning on bringing my embroidery but then it seems that it would be > contaminated and will that just go away in time? I wouldnt want to > wash it. I just took crossword puzzles, a paperback book & a TV Guide to help me channel-surf. Things like handwork tend to get contaminated, due to your hands sweating on them. Hospitals differ in their rules; some might keep the item for a few months; others might let you take it home if you promise to store it. Personally, I wouldn't want to mess w/ that. Nina geiger@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Jan-- I am in day 6 of ... no thyroid medication in > readiness for RAI on May 30th. A lot of us take Cytomel, a T3 drug that clears the system in about 2 weeks, during the early weeks of hypo hell. It really helps minimize the symptoms during this time, so that one just feels bad during the last 2 weeks before RAI. You might ask your doc to prescribe it for you. > Another question I had was about what i can do in the hospital. I was > planning on bringing my embroidery but then it seems that it would be > contaminated and will that just go away in time? I wouldnt want to > wash it. I just took crossword puzzles, a paperback book & a TV Guide to help me channel-surf. Things like handwork tend to get contaminated, due to your hands sweating on them. Hospitals differ in their rules; some might keep the item for a few months; others might let you take it home if you promise to store it. Personally, I wouldn't want to mess w/ that. Nina geiger@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 JanS@... wrote: > I didnt know until a little while ago that I would have to have > scans for the rest of my life either. This is all a real shock to me > as well as my family Jan, The good news is, it gets better :-). Different doctors favor different schedules, but after 3 consecutive clean scans (over 24 months) I was only scanned every 3 years. Now that I've been clean for 11 years, I'm only scheduled for a scan every five years. Hypo hell is never going to be fun, but it's a lot more bearable when you don't have to do it as often! ellen -- mailto:ellen@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Nina, (that was a favorite aunt's name so it makes me smile) Thanks for the information. I did take Cytomel for a couple weeks right after the surgery. Now I am getting ready for my first RAI. Your ideas about " throw away " stuff that I can take to the hospital sounds so easy. Forget catchin up on my redwork for the current quilt I am making. Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Some of the shock and difficult comes because my former husband died a sudden death 1 1/2 years ago of brain cancer. I have three boys and they have been trying to recover from that blow. Having this on top of their loss has been really really hard for me. Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Some of the shock and difficult comes because my former husband died a sudden death 1 1/2 years ago of brain cancer. I have three boys and they have been trying to recover from that blow. Having this on top of their loss has been really really hard for me. Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Some of the shock and difficult comes because my former husband died a sudden death 1 1/2 years ago of brain cancer. I have three boys and they have been trying to recover from that blow. Having this on top of their loss has been really really hard for me. Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Oh you may not have to scan for the rest of your life. At least at some point it will be longer in between scans or you maybe be able to use Thyrogen so scanning won't inlcude the hassles of being hypo too. I've scanned 7 times, but most people have a couple of clean scans and then go for a several years in between. I have papillary with a follicular variant too. That is the most common variant of papillary. You seem to be doing fine with Yahoo! Marilyn JanS@... wrote: > Marilyn, > I notice that you put various bits of information on the bottom of > your email like when you were diagnosed and how many scans you have > had etc. The cancer I have is both pap and fall and went into my > lymph nodes but more than that I dont know. I didnt know until a > little while ago that I would have to have scans for the rest of my > life either. This is all a real shock to me as well as my family and > I am sure it must have been so for you (as well as other members of > this list). > By the way, I am brand new to Yahoo and thus am a bit clumsy about > navigating in here but am getting the hang of it. > Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Oh you may not have to scan for the rest of your life. At least at some point it will be longer in between scans or you maybe be able to use Thyrogen so scanning won't inlcude the hassles of being hypo too. I've scanned 7 times, but most people have a couple of clean scans and then go for a several years in between. I have papillary with a follicular variant too. That is the most common variant of papillary. You seem to be doing fine with Yahoo! Marilyn JanS@... wrote: > Marilyn, > I notice that you put various bits of information on the bottom of > your email like when you were diagnosed and how many scans you have > had etc. The cancer I have is both pap and fall and went into my > lymph nodes but more than that I dont know. I didnt know until a > little while ago that I would have to have scans for the rest of my > life either. This is all a real shock to me as well as my family and > I am sure it must have been so for you (as well as other members of > this list). > By the way, I am brand new to Yahoo and thus am a bit clumsy about > navigating in here but am getting the hang of it. > Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Ellen, By the way, could you tell me what a scan consists of exactly? I dont even know!!!! Jan > The good news is, it gets better :-). Different doctors favor > different schedules, but after 3 consecutive clean scans (over 24 > months) I was only scanned every 3 years. Now that I've been clean > for 11 years, I'm only scheduled for a scan every five years. Hypo > hell is never going to be fun, but it's a lot more bearable when you > don't have to do it as often! > > ellen > -- > mailto:ellen@e... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Ellen, By the way, could you tell me what a scan consists of exactly? I dont even know!!!! Jan > The good news is, it gets better :-). Different doctors favor > different schedules, but after 3 consecutive clean scans (over 24 > months) I was only scanned every 3 years. Now that I've been clean > for 11 years, I'm only scheduled for a scan every five years. Hypo > hell is never going to be fun, but it's a lot more bearable when you > don't have to do it as often! > > ellen > -- > mailto:ellen@e... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Ellen, By the way, could you tell me what a scan consists of exactly? I dont even know!!!! Jan > The good news is, it gets better :-). Different doctors favor > different schedules, but after 3 consecutive clean scans (over 24 > months) I was only scanned every 3 years. Now that I've been clean > for 11 years, I'm only scheduled for a scan every five years. Hypo > hell is never going to be fun, but it's a lot more bearable when you > don't have to do it as often! > > ellen > -- > mailto:ellen@e... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Welcome! I am new, less than 24 hours old here myself. I am a tad overwhelmed by all of the information, but at the same time, feel as though I was led here for a reason. I have found out more about ThyCa in less than 24 hours than I have known in the last 36 years! I see a lot of hope and valuable help here. Currently, I am going hypo for a scan. Nice to know I'm not the only 'newbie' here. ===== ... 3/25/65 tt Papillary ThyCa w/lymph node mets HPTH 3 days post radical tt 3/25/82 Recurrence in neck/ & R chest Tx w/RAI 131 176 mCi hx kidney stones __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Welcome! I am new, less than 24 hours old here myself. I am a tad overwhelmed by all of the information, but at the same time, feel as though I was led here for a reason. I have found out more about ThyCa in less than 24 hours than I have known in the last 36 years! I see a lot of hope and valuable help here. Currently, I am going hypo for a scan. Nice to know I'm not the only 'newbie' here. ===== ... 3/25/65 tt Papillary ThyCa w/lymph node mets HPTH 3 days post radical tt 3/25/82 Recurrence in neck/ & R chest Tx w/RAI 131 176 mCi hx kidney stones __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2001 Report Share Posted August 1, 2001 Kendra- My surgery was 01/01 w/ RAI in 03/01. It took me one adjustment (thus 12 weeks till we knew for sure) to get my synthroid adjusted. Since then (June), it took about another month before the hair fallout stopped for me. Heart palps and skipped beats are still an occasional issue for me. Hope this helps. Barb TT Jan 01 ~3 cm pap thyca RAI 100mCi Mar 01 > New member > > > Hi Thyca-group, > > I recently joined your group and I > realize I have a > lot to learn. > In 1991 my dr noticed goiter after I had my first child and to > make a long > story short, 1/01 -had ultrasound, 3/01-surgery, 5/01 surgery and > RAI (how > much?) and scan and now 2 months on .15 levoxyl. > I'm wondering what others may have > experienced after > surgery and RAI. I am occassionally have heart palpitations and > still losing > my hair. Just wondering if this is fairly normal. > Thanks, Kendra > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2001 Report Share Posted August 1, 2001 Kendra- My surgery was 01/01 w/ RAI in 03/01. It took me one adjustment (thus 12 weeks till we knew for sure) to get my synthroid adjusted. Since then (June), it took about another month before the hair fallout stopped for me. Heart palps and skipped beats are still an occasional issue for me. Hope this helps. Barb TT Jan 01 ~3 cm pap thyca RAI 100mCi Mar 01 > New member > > > Hi Thyca-group, > > I recently joined your group and I > realize I have a > lot to learn. > In 1991 my dr noticed goiter after I had my first child and to > make a long > story short, 1/01 -had ultrasound, 3/01-surgery, 5/01 surgery and > RAI (how > much?) and scan and now 2 months on .15 levoxyl. > I'm wondering what others may have > experienced after > surgery and RAI. I am occassionally have heart palpitations and > still losing > my hair. Just wondering if this is fairly normal. > Thanks, Kendra > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2001 Report Share Posted August 1, 2001 Kendra- My surgery was 01/01 w/ RAI in 03/01. It took me one adjustment (thus 12 weeks till we knew for sure) to get my synthroid adjusted. Since then (June), it took about another month before the hair fallout stopped for me. Heart palps and skipped beats are still an occasional issue for me. Hope this helps. Barb TT Jan 01 ~3 cm pap thyca RAI 100mCi Mar 01 > New member > > > Hi Thyca-group, > > I recently joined your group and I > realize I have a > lot to learn. > In 1991 my dr noticed goiter after I had my first child and to > make a long > story short, 1/01 -had ultrasound, 3/01-surgery, 5/01 surgery and > RAI (how > much?) and scan and now 2 months on .15 levoxyl. > I'm wondering what others may have > experienced after > surgery and RAI. I am occassionally have heart palpitations and > still losing > my hair. Just wondering if this is fairly normal. > Thanks, Kendra > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.