Guest guest Posted February 27, 1998 Report Share Posted February 27, 1998 > Morning All. Yesterday someone posted about the trouble of breathing may be Chiari related? Please post again as I deleted instead of printing. Brain dysfunction! Lou it was Chip that posted saying that trouble with breathing could possibly be a sign of brainstem compression or dysfunction, and anyone experiencing respiratory problems should seek help. To all this is why I constantly post big questions about the articles and the dynamics of what the doc's are looking at. It still is for us the single most important issue and one that I worry about constantly. Chiari can cause vocal cord impairment, this can be another clue to brainstem issues, changes in voice, stridor ( noisy breathing on the in breath), and difficulty in swallowing. These are big clues that should not be ignored and if you are experiencing any of these seek help. Kym Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 1998 Report Share Posted February 27, 1998 > Morning All. Yesterday someone posted about the trouble of breathing may be Chiari related? Please post again as I deleted instead of printing. Brain dysfunction! Lou it was Chip that posted saying that trouble with breathing could possibly be a sign of brainstem compression or dysfunction, and anyone experiencing respiratory problems should seek help. To all this is why I constantly post big questions about the articles and the dynamics of what the doc's are looking at. It still is for us the single most important issue and one that I worry about constantly. Chiari can cause vocal cord impairment, this can be another clue to brainstem issues, changes in voice, stridor ( noisy breathing on the in breath), and difficulty in swallowing. These are big clues that should not be ignored and if you are experiencing any of these seek help. Kym Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 1998 Report Share Posted February 27, 1998 > Morning All. Yesterday someone posted about the trouble of breathing may be Chiari related? Please post again as I deleted instead of printing. Brain dysfunction! Lou it was Chip that posted saying that trouble with breathing could possibly be a sign of brainstem compression or dysfunction, and anyone experiencing respiratory problems should seek help. To all this is why I constantly post big questions about the articles and the dynamics of what the doc's are looking at. It still is for us the single most important issue and one that I worry about constantly. Chiari can cause vocal cord impairment, this can be another clue to brainstem issues, changes in voice, stridor ( noisy breathing on the in breath), and difficulty in swallowing. These are big clues that should not be ignored and if you are experiencing any of these seek help. Kym Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 Morning All. Yesterday someone posted about the trouble of breathing may be Chiari related? Please post again as I deleted instead of printing. Brain dysfunction! Sorry about that! Also may pain doctor was saying last time I saw him about a microchip implant in the back of the neck for pain? Does anyone know about this? This is the only thing I can remember from the visit as much does not sink in. Thanks for the help. Lou. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 ,respirations come from the brainstem. With brainstem herniation a patient wil have trouble breathing. In ACM it's a serious sign. Some folks don't ever find out they have ACM--But the family does--when an autopsy is performed in the event of suden death. That's total herniation-los of respirations and heartbeat. I had those symptoms in 196-I was petrified, because I realized I was really having to THINK in order to breathe! I had a V/ p shunt placed and I am doing prety good so far. ;-) a wink and a smile can last quite a while. Marcia,aka Me2,ACM1,V/P shunt not decompressed _______________________________________________________ Get 100% FREE Internet Access powered by Excite Visit http://freelane.excite.com/freeisp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 ,respirations come from the brainstem. With brainstem herniation a patient wil have trouble breathing. In ACM it's a serious sign. Some folks don't ever find out they have ACM--But the family does--when an autopsy is performed in the event of suden death. That's total herniation-los of respirations and heartbeat. I had those symptoms in 196-I was petrified, because I realized I was really having to THINK in order to breathe! I had a V/ p shunt placed and I am doing prety good so far. ;-) a wink and a smile can last quite a while. Marcia,aka Me2,ACM1,V/P shunt not decompressed _______________________________________________________ Get 100% FREE Internet Access powered by Excite Visit http://freelane.excite.com/freeisp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 ,respirations come from the brainstem. With brainstem herniation a patient wil have trouble breathing. In ACM it's a serious sign. Some folks don't ever find out they have ACM--But the family does--when an autopsy is performed in the event of suden death. That's total herniation-los of respirations and heartbeat. I had those symptoms in 196-I was petrified, because I realized I was really having to THINK in order to breathe! I had a V/ p shunt placed and I am doing prety good so far. ;-) a wink and a smile can last quite a while. Marcia,aka Me2,ACM1,V/P shunt not decompressed _______________________________________________________ Get 100% FREE Internet Access powered by Excite Visit http://freelane.excite.com/freeisp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 Re: please repeat > ,respirations come from the brainstem. With brainstem herniation a > patient wil have trouble breathing. In ACM it's a serious sign. Some folks > don't ever find out they have ACM--But the family does--when an autopsy is > performed in the event of suden death. That's total herniation-los of > respirations and heartbeat. > I had those symptoms in 196-I was petrified, because I realized I was really > having to THINK in order to breathe! I had a V/ p shunt placed and I am > doing prety good so far. > Actually, there is a form of sleep apnea called central sleep apnea which is also known as Ondine's curse (spelling may not be right there) which is that the person has to remember to breathe and doesnt have it happen automatically. It is interesting to note that both Central and Obstructive sleep apnea can be caused by Chiari but I never thought about the fact that having been diagnosed with obstructive, I could later get central from another route. I can be sitting watching TV and suddenly realise I need to breathe, too. Something to think about.... chows@... Australia Chow Addiction Society Founder and Lifetime Member #1 Are you OLD when you enjoy a good headbanger song with others over 40? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 Re: please repeat > ,respirations come from the brainstem. With brainstem herniation a > patient wil have trouble breathing. In ACM it's a serious sign. Some folks > don't ever find out they have ACM--But the family does--when an autopsy is > performed in the event of suden death. That's total herniation-los of > respirations and heartbeat. > I had those symptoms in 196-I was petrified, because I realized I was really > having to THINK in order to breathe! I had a V/ p shunt placed and I am > doing prety good so far. > Actually, there is a form of sleep apnea called central sleep apnea which is also known as Ondine's curse (spelling may not be right there) which is that the person has to remember to breathe and doesnt have it happen automatically. It is interesting to note that both Central and Obstructive sleep apnea can be caused by Chiari but I never thought about the fact that having been diagnosed with obstructive, I could later get central from another route. I can be sitting watching TV and suddenly realise I need to breathe, too. Something to think about.... chows@... Australia Chow Addiction Society Founder and Lifetime Member #1 Are you OLD when you enjoy a good headbanger song with others over 40? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 Re: please repeat > ,respirations come from the brainstem. With brainstem herniation a > patient wil have trouble breathing. In ACM it's a serious sign. Some folks > don't ever find out they have ACM--But the family does--when an autopsy is > performed in the event of suden death. That's total herniation-los of > respirations and heartbeat. > I had those symptoms in 196-I was petrified, because I realized I was really > having to THINK in order to breathe! I had a V/ p shunt placed and I am > doing prety good so far. > Actually, there is a form of sleep apnea called central sleep apnea which is also known as Ondine's curse (spelling may not be right there) which is that the person has to remember to breathe and doesnt have it happen automatically. It is interesting to note that both Central and Obstructive sleep apnea can be caused by Chiari but I never thought about the fact that having been diagnosed with obstructive, I could later get central from another route. I can be sitting watching TV and suddenly realise I need to breathe, too. Something to think about.... chows@... Australia Chow Addiction Society Founder and Lifetime Member #1 Are you OLD when you enjoy a good headbanger song with others over 40? Quote Link to comment Share on other sites More sharing options...
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