Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 Anyone ever notice what a pain in the butt yahoo can be?? The other day I went and looked at some of the pictures of the kids, then when I went to check the members section to see a list, it told me I wasn't one! I give it my yahoo id and stuff, still wouldn't work Now I tried to get to this message, it told me to sign it, so I did, then it said oops, you are a not a member of epilepsycured I know that - and I don't want to be!! Sheesh,.... sorry just had to vent Figure I am doing great as long as I only have the little annoyances in life to vent about - lets hope we keep it that way LOL prausa@... wrote: > Barb...thought you'd be particularly interested in this post. It's > from a parent on the epilepsycured list. I know you've posted many > times on the work of Dr. Blaylock. This parent visited him in his > clinic " Advanced Nutritional Concepts " in Mississippi and > included Dr. Blaylock's recommendations for a start up program to help > stop their daughter's seizures. I thought it was interesting...Nan > http://groups.yahoo.com/group/epilepsycured/message/2485 > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 Anyone ever notice what a pain in the butt yahoo can be?? The other day I went and looked at some of the pictures of the kids, then when I went to check the members section to see a list, it told me I wasn't one! I give it my yahoo id and stuff, still wouldn't work Now I tried to get to this message, it told me to sign it, so I did, then it said oops, you are a not a member of epilepsycured I know that - and I don't want to be!! Sheesh,.... sorry just had to vent Figure I am doing great as long as I only have the little annoyances in life to vent about - lets hope we keep it that way LOL prausa@... wrote: > Barb...thought you'd be particularly interested in this post. It's > from a parent on the epilepsycured list. I know you've posted many > times on the work of Dr. Blaylock. This parent visited him in his > clinic " Advanced Nutritional Concepts " in Mississippi and > included Dr. Blaylock's recommendations for a start up program to help > stop their daughter's seizures. I thought it was interesting...Nan > http://groups.yahoo.com/group/epilepsycured/message/2485 > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 Anyone ever notice what a pain in the butt yahoo can be?? The other day I went and looked at some of the pictures of the kids, then when I went to check the members section to see a list, it told me I wasn't one! I give it my yahoo id and stuff, still wouldn't work Now I tried to get to this message, it told me to sign it, so I did, then it said oops, you are a not a member of epilepsycured I know that - and I don't want to be!! Sheesh,.... sorry just had to vent Figure I am doing great as long as I only have the little annoyances in life to vent about - lets hope we keep it that way LOL prausa@... wrote: > Barb...thought you'd be particularly interested in this post. It's > from a parent on the epilepsycured list. I know you've posted many > times on the work of Dr. Blaylock. This parent visited him in his > clinic " Advanced Nutritional Concepts " in Mississippi and > included Dr. Blaylock's recommendations for a start up program to help > stop their daughter's seizures. I thought it was interesting...Nan > http://groups.yahoo.com/group/epilepsycured/message/2485 > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 yipes ... I have our archives open so anyone get get info from them...didn't even stop to think that some groups aren't 'open'. Anyway...here's the post... From: " Tim " <timsgolf@a...> Date: Tue Jul 24, 2001 4:45 pm Subject: Our daughter, Lydia... ALL: I've been hanging around here of late, mostly lurking, but now I have something to say. Lydia is 6 years old and has intractable epilepsy. Onset was sudden and unexpected on 8/12/2000. Her seizures are complex-partial, but surgery has been ruled out due to their non-dominant, multifocal nature. She is now on her sixth different AED combination. Monotherapy has never worked. Her medical and developmental history was completely normal prior to onset. We suspect the etiology is vaccine-related, but UNTIL YESTERDAY, no local physician would agree with us. The bottom line is for the last 11 months we have pretty much stuck to mainstream medicine, having been followed by a pediatric neurologist here at home, plus further evaluation by pediatric epileptologists in Miami, FL. We felt hamstrung due to a total lack of local practitioners from the alternative/complementary side of the house. We had resigned ourselves to having to make some difficult decisions as to how best to spend our meager resources out of state. As you all know, trying to find THE best place to go, or THE best protocol to use for your particular situation can be an all-consuming experience in its own right. I think I have described our current attitude in a prior post as feeling " frozen " , not really knowing what the best thing to do is. Yesterday, we finally got a little guidance, alot of legitimation for the nutritional approach, and some direction, something to try.. Many of these things you all are already well aware of, and I've read discussions regarding them, but without someone to give us a kickstart, we were scared to try any of them. After all, so many things are so contradictory, and there are so many ways one thing will affect another when they are used in combination, that theexpert kickstart, at least in our case, was exactly what we needed atthis point in time. We spent almost four hours in a nutritional consultation. The doctor we saw was Blaylock, author of " Excitotoxins: The Taste That Kills " . This past February, Dr. Blaylock retired his neurosurgery practice to open a clinic called " Advanced Nutritional Concepts " . Dr. Blaylock has become interested in epilepsy, autism, etc..., and has some very persuasive explanations about the biochemistry involved. He was able to tie together, for example, some of the complex and intricate relational ties between potential vaccine damage to the brain, toxic insults, immune and metabolic reactions, the vicious cycle of neuron death or neuron hyper-exciteability that ensues, etc..., all based on solid biochemical evidence. It was a most enlightening meeting from an educational perspective, most of it, in fact, went way over my head, but the big picture was his emphasis, so I did comprehend some of it, at least.His treatment recommendations for Lydia are as follows: (1) He ordered the following lab tests: (a) gluten/casein peptide test; ( candida intensive culture with MIC sensitivities; © amino acid analysis - plasma; (d) toxic element clearance profile When those results are received, we will come back in for F/U, and additions, deletions, modifications, and any needed fine tuning will be done to the initial treatment recommendations, which are: (1) massive dietary changes; it seems to be a sort of modified G/C free diet; (2) Brain Support - his own compound which includes DHA, acetyl-l- carnitine, ginkgo biloba, and a small amount of choline; (3) Kirkman Labs Super Nu-Thera Powder - includes Vitamin A, Vitamin D, Vitamin C, Vitamin B1, Vitamin B2, Vitamin B6, Niacinamide, Vitamin B12, Pantothenic Acid, Vitamin E, Folic Acid, Biotin, Magnesium, Zinc, Manganese, Selenium, (4) Alpha-Lipoic Acid (5) Methylcobalamin (6) Taurine (7) Quercetin We are anxious and eager regarding this turn of events, and hopefully if there is someone else who sees this list who finds themselves in a similar dilemna to ours, this post will be helpful. Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 prausa@... wrote: > yipes ... > > I have our archives open so anyone get get info from them...didn't > even stop to think that some groups aren't 'open'. Anyway...here's > the post... Thanks Nan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 prausa@... wrote: > yipes ... > > I have our archives open so anyone get get info from them...didn't > even stop to think that some groups aren't 'open'. Anyway...here's > the post... Thanks Nan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2001 Report Share Posted August 15, 2001 On Tue, 07 Aug 2001 20:49:34 -0000 prausa@... writes: Barb...thought you'd be particularly interested in this post. It's from a parent on the epilepsycured list. I know you've posted many times on the work of Dr. Blaylock. This parent visited him in his clinic "Advanced Nutritional Concepts" in Mississippi and included Dr. Blaylock's recommendations for a start up program to help stop their daughter's seizures. I thought it was interesting...Nan Hey Nan... yes I read the full post, and its very interesting indeed!!! I read Blaylocks book and hes really good!! Hmmmm mississippi huh??? never been there...Hmmmm keep me posted on any developements as they happen...Please! Id be really interested in following this! cya Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2001 Report Share Posted August 15, 2001 On Tue, 07 Aug 2001 20:49:34 -0000 prausa@... writes: Barb...thought you'd be particularly interested in this post. It's from a parent on the epilepsycured list. I know you've posted many times on the work of Dr. Blaylock. This parent visited him in his clinic "Advanced Nutritional Concepts" in Mississippi and included Dr. Blaylock's recommendations for a start up program to help stop their daughter's seizures. I thought it was interesting...Nan Hey Nan... yes I read the full post, and its very interesting indeed!!! I read Blaylocks book and hes really good!! Hmmmm mississippi huh??? never been there...Hmmmm keep me posted on any developements as they happen...Please! Id be really interested in following this! cya Barb Quote Link to comment Share on other sites More sharing options...
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