Re: NEED SOMEONE TO WRITE A NOTE

[Guest guest]

First, let me say... I hope you consider us friends. I know I do.

Have you sent her the "Letter to Normals"? I found that a couple of my friends understood a little more. If not, here it is:

The Letter To Normals Hello Family, Friends, and Anyone Wishing to Know Me, Allow me to begin by thanking you for taking the time out of your day to spend some time with me and get to know me better. A person’s time is their most valuable asset and yours is appreciated. I want to talk to you about Fibromyalgia (FM) and Chronic Myofascial Pain Syndrome (MPS). Many have never heard of these conditions and for those who have, many are misinformed. And because of this judgments are made that may not be correct… So I ask you to keep an open mind as I try to explain who I am and how FM/MPS has assaulted not only my life but those whom I love as well. You see, I suffer from a disease that you cannot see; a disease that there is no cure for and that keeps the medical community baffled at how to treat and battle this demon, who’s attacks are relentless. My pain works silently, stealing my joy and replacing it with tears. On the outside we look alike you and I; you wont see my scars as you would a person who, say, had suffered a car accident. You wont see my pain in the way you would a person undergoing chemo for cancer; however, my pain is just as real and just as debilitating. And in many ways my pain may be more destructive because people can’t see it and do not understand.... Please don’t get angry at my seemingly lack of interest in doing things; I punish myself enough I assure you. My tears are shed many times when no one is around. My embarrassment is covered by a joke or laughter, but inside I want to die.... Most of my "friends" are gone; even members of my own family have abandoned me. I have been accused of "playing games" for another’s sympathy. I have been called unreliable because I am forced to cancel plans I made at the last minute because the burning and pain in my legs or arms is so intense I cannot put my clothes on and I am left in my tears as I miss out on yet another activity I used to love and once participated in with enthusiasm. I feel like a child at times... Just the other day I put the sour cream I bought at the store in the pantry, on the shelf, instead of in the refrigerator; by the time I noticed it, it had spoiled. When I talk to people, many times I lose my train of thought in mid sentence or forget the simplest word needed to explain or describe something. Please try to understand how it feels to have another go behind me in my home to make sure the stove is off after I cook an occasional meal. Please try to understand how it feels to “lose” the laundry, only to find it in the stove instead of the dryer. As I try to maintain my dignity the Demon assaults me at every turn. Please try to understand…. Sleep, when I do get some, is restless and I wake often because of the pain the sheets have on my legs or because I twitch uncontrollably. I walk through many of my days in a daze with the Fibro-fog laughing at me as I stumble and grasp for clarity. And just because I can do a thing one day, that doesn’t mean I will be able to do the same thing the next day or next week. I may be able to take that walk after dinner on a warm July evening; the next day or even the in the next hour I may not be able to walk to the fridge to get a cold drink because my muscles have begun to cramp and lock up or spasm uncontrollably. And there are those who say “but you did that yesterday!” “What is your problem today?” The hurt I experience at those words scars me so deeply that I have let my family down again; and still they don’t understand…. On a brighter side I want you to know that I still have my sense of humor. If you take the time to spend with me you will see that. I love to tell that joke to make another’s face light up and smile at my wit. I love my kids and grandbabies and shine when they give me my hugs or ask me to fix their favorite toy. I am fun to be with if you will spend the time with me on my own playing field; is this too much to ask? I love you and want nothing more than to be a part of your life. And I have found that I can be a strong friend in many ways. Do you have a dream? I am your friend, your supporter and many times I will be the one to do the research for your latest project; many times I will be your biggest fan and the world will know how proud I am at your accomplishments and how honored I am to have you in my life. So you see, you and I are not that much different. I too have hopes, dreams, goals… and this demon…. Do you have an unseen demon that assaults you and no one else can see? Have you had to fight a fight that crushes you and brings you to your knees? I will be by your side, win or lose, I promise you that; I will be there in ways that I can. I will give all I can as I can, I promise you that. But I have to do this thing my way. Please understand that I am in such a fight myself and I know that I have little hope of a cure or effective treatments, at least right now. Please understand…. Thank you for spending your time with me today. I hope we can work through this thing, you and I. Please understand that I am just like you… Please understand…. Posted with permision / Written by J.Waller

If that doesn't work, I would ask her to join you by sharing the posts with her, so that she knows that it's not just you... but there are a lot of us suffering out there and are having trouble keeping our lives together.

There was another letter, I'll see if I can find it somewhere.

Hey, if you want you can give her my phone # (I'll e-mail privately if you'd like) and I'll tell her what it's like and that it's no picnic just trying to survive. And then you have to be prepared that she just might not be able to handle it.

Whatevery you do don't have me talk to her tonight... my allergies are so bad right now I have no voice. LOL Good for some, not for me.

Love ya Jaana and hope she will see what a great person you are.

Tigger

[Guest guest]

First, let me say... I hope you consider us friends. I know I do.

Have you sent her the "Letter to Normals"? I found that a couple of my friends understood a little more. If not, here it is:

The Letter To Normals Hello Family, Friends, and Anyone Wishing to Know Me, Allow me to begin by thanking you for taking the time out of your day to spend some time with me and get to know me better. A person’s time is their most valuable asset and yours is appreciated. I want to talk to you about Fibromyalgia (FM) and Chronic Myofascial Pain Syndrome (MPS). Many have never heard of these conditions and for those who have, many are misinformed. And because of this judgments are made that may not be correct… So I ask you to keep an open mind as I try to explain who I am and how FM/MPS has assaulted not only my life but those whom I love as well. You see, I suffer from a disease that you cannot see; a disease that there is no cure for and that keeps the medical community baffled at how to treat and battle this demon, who’s attacks are relentless. My pain works silently, stealing my joy and replacing it with tears. On the outside we look alike you and I; you wont see my scars as you would a person who, say, had suffered a car accident. You wont see my pain in the way you would a person undergoing chemo for cancer; however, my pain is just as real and just as debilitating. And in many ways my pain may be more destructive because people can’t see it and do not understand.... Please don’t get angry at my seemingly lack of interest in doing things; I punish myself enough I assure you. My tears are shed many times when no one is around. My embarrassment is covered by a joke or laughter, but inside I want to die.... Most of my "friends" are gone; even members of my own family have abandoned me. I have been accused of "playing games" for another’s sympathy. I have been called unreliable because I am forced to cancel plans I made at the last minute because the burning and pain in my legs or arms is so intense I cannot put my clothes on and I am left in my tears as I miss out on yet another activity I used to love and once participated in with enthusiasm. I feel like a child at times... Just the other day I put the sour cream I bought at the store in the pantry, on the shelf, instead of in the refrigerator; by the time I noticed it, it had spoiled. When I talk to people, many times I lose my train of thought in mid sentence or forget the simplest word needed to explain or describe something. Please try to understand how it feels to have another go behind me in my home to make sure the stove is off after I cook an occasional meal. Please try to understand how it feels to “lose” the laundry, only to find it in the stove instead of the dryer. As I try to maintain my dignity the Demon assaults me at every turn. Please try to understand…. Sleep, when I do get some, is restless and I wake often because of the pain the sheets have on my legs or because I twitch uncontrollably. I walk through many of my days in a daze with the Fibro-fog laughing at me as I stumble and grasp for clarity. And just because I can do a thing one day, that doesn’t mean I will be able to do the same thing the next day or next week. I may be able to take that walk after dinner on a warm July evening; the next day or even the in the next hour I may not be able to walk to the fridge to get a cold drink because my muscles have begun to cramp and lock up or spasm uncontrollably. And there are those who say “but you did that yesterday!” “What is your problem today?” The hurt I experience at those words scars me so deeply that I have let my family down again; and still they don’t understand…. On a brighter side I want you to know that I still have my sense of humor. If you take the time to spend with me you will see that. I love to tell that joke to make another’s face light up and smile at my wit. I love my kids and grandbabies and shine when they give me my hugs or ask me to fix their favorite toy. I am fun to be with if you will spend the time with me on my own playing field; is this too much to ask? I love you and want nothing more than to be a part of your life. And I have found that I can be a strong friend in many ways. Do you have a dream? I am your friend, your supporter and many times I will be the one to do the research for your latest project; many times I will be your biggest fan and the world will know how proud I am at your accomplishments and how honored I am to have you in my life. So you see, you and I are not that much different. I too have hopes, dreams, goals… and this demon…. Do you have an unseen demon that assaults you and no one else can see? Have you had to fight a fight that crushes you and brings you to your knees? I will be by your side, win or lose, I promise you that; I will be there in ways that I can. I will give all I can as I can, I promise you that. But I have to do this thing my way. Please understand that I am in such a fight myself and I know that I have little hope of a cure or effective treatments, at least right now. Please understand…. Thank you for spending your time with me today. I hope we can work through this thing, you and I. Please understand that I am just like you… Please understand…. Posted with permision / Written by J.Waller

If that doesn't work, I would ask her to join you by sharing the posts with her, so that she knows that it's not just you... but there are a lot of us suffering out there and are having trouble keeping our lives together.

There was another letter, I'll see if I can find it somewhere.

Hey, if you want you can give her my phone # (I'll e-mail privately if you'd like) and I'll tell her what it's like and that it's no picnic just trying to survive. And then you have to be prepared that she just might not be able to handle it.

Whatevery you do don't have me talk to her tonight... my allergies are so bad right now I have no voice. LOL Good for some, not for me.

Love ya Jaana and hope she will see what a great person you are.

Tigger

[Guest guest]

Hi Jaana,

I would be happy to write a letter describing fibro-fog and how FMS affects our days and steals our lives, the obstacles we face and the challenges we strive to conquer, the chronic pain and the lack of understanding and the isolating we feel - the guilt we carry because we are no longer able to keep up with friends who have since drifted away. etc etc etc

I am unsure if you are wanting one letter, and by anyone specific - or if you wanted a few of us to each do a posting about it and you send them all to her?

Karis

NEED SOMEONE TO WRITE A NOTE

HELP!!!

OK - here's the situation: My relationship with my best friend is in jeopardy - and to make a long story short: i believe this whole misunderstanding is due to FIBRO-BRAIN and FATIGUE.

I consider myself a good listener (in fact, 75% of our conversations are usually regarding what is going on with her) ....and i care about my best friend SO VERY MUCH and always want to be there for her and support her --- however, there have been times when I struggle to be a good listener because i'm just so distracted by my pain and my mind is scrambled and it's hard to focus and I will occasionally completely forget about something important she had discussed with me before, and.... well... I think you all know what i mean... (??)

She has ceased talking to me because of what I SUSPECT was due to one incident where i asked her "what are your plans tonight?", and she said; "DON'T YOU EVEN READ MY EMAILS??" --- eeek.... yes.... i do.... but it slipped my mind..... and maybe this was the "last straw" or something for her.

I don't want to lose my one and last friend - I have tried to explain my condition to her a couple times, but I am not sure if she really grasped the extent of it nor has she ever really shown any interest in hearing more about it, so i just stopped talking about it with her (aside from the occassional complaints; "GADS, I'm hurtin' BAD today!" - and then moving on to other topics).

I tried once again to apologize to her (in an email - because she wont take my calls) that if I sometimes seem distracted or forgetful and to please understand that i do try so hard but sometimes this whole Fibro-fog overcomes me.

No response.

I've got a feeling that she doesn't believe me! Can someone please write a post explaining what it's like to have fibro-fog so that maybe i can share it with her and let her see that i am not intentionally neglecting her - and that it really is so much out of my control no matter how hard i try sometimes. If it comes from other people with FMS, then perhaps she will see that i'm not just making "excuses" for myself and that this is a real thing...?

I feel like a desperado over here scrambling to hold on to the last friend i've got in the world and it's scaring me to death that i might lose her to FMS like i've lost all the other friends i had before i got sick.

Any help would be GREATLY appreciated!!! I know this may not be the answer to save my friendship - but i don't know what else to do.

thanks....

aloooooooha

jaaaaaaaaaaana1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

[Guest guest]

Hi Jaana,

I would be happy to write a letter describing fibro-fog and how FMS affects our days and steals our lives, the obstacles we face and the challenges we strive to conquer, the chronic pain and the lack of understanding and the isolating we feel - the guilt we carry because we are no longer able to keep up with friends who have since drifted away. etc etc etc

I am unsure if you are wanting one letter, and by anyone specific - or if you wanted a few of us to each do a posting about it and you send them all to her?

Karis

NEED SOMEONE TO WRITE A NOTE

HELP!!!

OK - here's the situation: My relationship with my best friend is in jeopardy - and to make a long story short: i believe this whole misunderstanding is due to FIBRO-BRAIN and FATIGUE.

I consider myself a good listener (in fact, 75% of our conversations are usually regarding what is going on with her) ....and i care about my best friend SO VERY MUCH and always want to be there for her and support her --- however, there have been times when I struggle to be a good listener because i'm just so distracted by my pain and my mind is scrambled and it's hard to focus and I will occasionally completely forget about something important she had discussed with me before, and.... well... I think you all know what i mean... (??)

She has ceased talking to me because of what I SUSPECT was due to one incident where i asked her "what are your plans tonight?", and she said; "DON'T YOU EVEN READ MY EMAILS??" --- eeek.... yes.... i do.... but it slipped my mind..... and maybe this was the "last straw" or something for her.

I don't want to lose my one and last friend - I have tried to explain my condition to her a couple times, but I am not sure if she really grasped the extent of it nor has she ever really shown any interest in hearing more about it, so i just stopped talking about it with her (aside from the occassional complaints; "GADS, I'm hurtin' BAD today!" - and then moving on to other topics).

I tried once again to apologize to her (in an email - because she wont take my calls) that if I sometimes seem distracted or forgetful and to please understand that i do try so hard but sometimes this whole Fibro-fog overcomes me.

No response.

I've got a feeling that she doesn't believe me! Can someone please write a post explaining what it's like to have fibro-fog so that maybe i can share it with her and let her see that i am not intentionally neglecting her - and that it really is so much out of my control no matter how hard i try sometimes. If it comes from other people with FMS, then perhaps she will see that i'm not just making "excuses" for myself and that this is a real thing...?

I feel like a desperado over here scrambling to hold on to the last friend i've got in the world and it's scaring me to death that i might lose her to FMS like i've lost all the other friends i had before i got sick.

Any help would be GREATLY appreciated!!! I know this may not be the answer to save my friendship - but i don't know what else to do.

thanks....

aloooooooha

jaaaaaaaaaaana1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

[Guest guest]

Karis, any one letter or a group of letters would be so much appreciated. I just think that my friend doesn't believe or understand that this is a CONDITION - not an excuse or negligence or not caring, because i do care so much down to the core of my heart & love her so much, it's just that some days i am just dazed and foggy and sometimes completely forgetful.

Thank you so much for any help you have to offer!!

aloooha!

jaana

NEED SOMEONE TO WRITE A NOTE

HELP!!!

OK - here's the situation: My relationship with my best friend is in jeopardy - and to make a long story short: i believe this whole misunderstanding is due to FIBRO-BRAIN and FATIGUE.

I consider myself a good listener (in fact, 75% of our conversations are usually regarding what is going on with her) ....and i care about my best friend SO VERY MUCH and always want to be there for her and support her --- however, there have been times when I struggle to be a good listener because i'm just so distracted by my pain and my mind is scrambled and it's hard to focus and I will occasionally completely forget about something important she had discussed with me before, and.... well... I think you all know what i mean... (??)

She has ceased talking to me because of what I SUSPECT was due to one incident where i asked her "what are your plans tonight?", and she said; "DON'T YOU EVEN READ MY EMAILS??" --- eeek.... yes.... i do.... but it slipped my mind..... and maybe this was the "last straw" or something for her.

I don't want to lose my one and last friend - I have tried to explain my condition to her a couple times, but I am not sure if she really grasped the extent of it nor has she ever really shown any interest in hearing more about it, so i just stopped talking about it with her (aside from the occassional complaints; "GADS, I'm hurtin' BAD today!" - and then moving on to other topics).

I tried once again to apologize to her (in an email - because she wont take my calls) that if I sometimes seem distracted or forgetful and to please understand that i do try so hard but sometimes this whole Fibro-fog overcomes me.

No response.

I've got a feeling that she doesn't believe me! Can someone please write a post explaining what it's like to have fibro-fog so that maybe i can share it with her and let her see that i am not intentionally neglecting her - and that it really is so much out of my control no matter how hard i try sometimes. If it comes from other people with FMS, then perhaps she will see that i'm not just making "excuses" for myself and that this is a real thing...?

I feel like a desperado over here scrambling to hold on to the last friend i've got in the world and it's scaring me to death that i might lose her to FMS like i've lost all the other friends i had before i got sick.

Any help would be GREATLY appreciated!!! I know this may not be the answer to save my friendship - but i don't know what else to do.

thanks....

aloooooooha

jaaaaaaaaaaana1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

[Guest guest]

Karis, any one letter or a group of letters would be so much appreciated. I just think that my friend doesn't believe or understand that this is a CONDITION - not an excuse or negligence or not caring, because i do care so much down to the core of my heart & love her so much, it's just that some days i am just dazed and foggy and sometimes completely forgetful.

Thank you so much for any help you have to offer!!

aloooha!

jaana

NEED SOMEONE TO WRITE A NOTE

HELP!!!

OK - here's the situation: My relationship with my best friend is in jeopardy - and to make a long story short: i believe this whole misunderstanding is due to FIBRO-BRAIN and FATIGUE.

I consider myself a good listener (in fact, 75% of our conversations are usually regarding what is going on with her) ....and i care about my best friend SO VERY MUCH and always want to be there for her and support her --- however, there have been times when I struggle to be a good listener because i'm just so distracted by my pain and my mind is scrambled and it's hard to focus and I will occasionally completely forget about something important she had discussed with me before, and.... well... I think you all know what i mean... (??)

She has ceased talking to me because of what I SUSPECT was due to one incident where i asked her "what are your plans tonight?", and she said; "DON'T YOU EVEN READ MY EMAILS??" --- eeek.... yes.... i do.... but it slipped my mind..... and maybe this was the "last straw" or something for her.

I don't want to lose my one and last friend - I have tried to explain my condition to her a couple times, but I am not sure if she really grasped the extent of it nor has she ever really shown any interest in hearing more about it, so i just stopped talking about it with her (aside from the occassional complaints; "GADS, I'm hurtin' BAD today!" - and then moving on to other topics).

I tried once again to apologize to her (in an email - because she wont take my calls) that if I sometimes seem distracted or forgetful and to please understand that i do try so hard but sometimes this whole Fibro-fog overcomes me.

No response.

I've got a feeling that she doesn't believe me! Can someone please write a post explaining what it's like to have fibro-fog so that maybe i can share it with her and let her see that i am not intentionally neglecting her - and that it really is so much out of my control no matter how hard i try sometimes. If it comes from other people with FMS, then perhaps she will see that i'm not just making "excuses" for myself and that this is a real thing...?

I feel like a desperado over here scrambling to hold on to the last friend i've got in the world and it's scaring me to death that i might lose her to FMS like i've lost all the other friends i had before i got sick.

Any help would be GREATLY appreciated!!! I know this may not be the answer to save my friendship - but i don't know what else to do.

thanks....

aloooooooha

jaaaaaaaaaaana1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

[Guest guest]

Dear Jaana,

I'm so sorry about your friend. Some people just don't "get it." The people I have left in my life know that sometimes I may disappear off the face of the planet for weeks at a time and that my memory ain't what it used to be.

You can tell her from me that you are a wonderful person who would never do anything intentionally to harm the friendship between the two of you. That our disease causes short-term memory loss and it's nothing personal.

I hope that it works out. Remember, you have a ton of cyber-friends who think the world of you! Hugs.

Love & Peace,Annette

"The time is always right to do what is right" - Luther King, Jr.

NEED SOMEONE TO WRITE A NOTE

HELP!!!

OK - here's the situation: My relationship with my best friend is in jeopardy - and to make a long story short: i believe this whole misunderstanding is due to FIBRO-BRAIN and FATIGUE.

I consider myself a good listener (in fact, 75% of our conversations are usually regarding what is going on with her) ....and i care about my best friend SO VERY MUCH and always want to be there for her and support her --- however, there have been times when I struggle to be a good listener because i'm just so distracted by my pain and my mind is scrambled and it's hard to focus and I will occasionally completely forget about something important she had discussed with me before, and.... well... I think you all know what i mean... (??)

She has ceased talking to me because of what I SUSPECT was due to one incident where i asked her "what are your plans tonight?", and she said; "DON'T YOU EVEN READ MY EMAILS??" --- eeek.... yes.... i do.... but it slipped my mind..... and maybe this was the "last straw" or something for her.

I don't want to lose my one and last friend - I have tried to explain my condition to her a couple times, but I am not sure if she really grasped the extent of it nor has she ever really shown any interest in hearing more about it, so i just stopped talking about it with her (aside from the occassional complaints; "GADS, I'm hurtin' BAD today!" - and then moving on to other topics).

I tried once again to apologize to her (in an email - because she wont take my calls) that if I sometimes seem distracted or forgetful and to please understand that i do try so hard but sometimes this whole Fibro-fog overcomes me.

No response.

I've got a feeling that she doesn't believe me! Can someone please write a post explaining what it's like to have fibro-fog so that maybe i can share it with her and let her see that i am not intentionally neglecting her - and that it really is so much out of my control no matter how hard i try sometimes. If it comes from other people with FMS, then perhaps she will see that i'm not just making "excuses" for myself and that this is a real thing...?

I feel like a desperado over here scrambling to hold on to the last friend i've got in the world and it's scaring me to death that i might lose her to FMS like i've lost all the other friends i had before i got sick.

Any help would be GREATLY appreciated!!! I know this may not be the answer to save my friendship - but i don't know what else to do.

thanks....

aloooooooha

jaaaaaaaaaaana1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

[Guest guest]

I know exactly what you mean. I am constantly asking people things I have already asked or have already been told. Your friend just needs to understand that this is a part of fibro that we all have to live with. In fact, I usually start my questions with "you probably already told me this, but...." Most of my friends and family understand this now.

I hope everything works out for you. Good luck!

Terri MW

NEED SOMEONE TO WRITE A NOTE

HELP!!!

OK - here's the situation: My relationship with my best friend is in jeopardy - and to make a long story short: i believe this whole misunderstanding is due to FIBRO-BRAIN and FATIGUE.

I consider myself a good listener (in fact, 75% of our conversations are usually regarding what is going on with her) ....and i care about my best friend SO VERY MUCH and always want to be there for her and support her --- however, there have been times when I struggle to be a good listener because i'm just so distracted by my pain and my mind is scrambled and it's hard to focus and I will occasionally completely forget about something important she had discussed with me before, and.... well... I think you all know what i mean... (??)

She has ceased talking to me because of what I SUSPECT was due to one incident where i asked her "what are your plans tonight?", and she said; "DON'T YOU EVEN READ MY EMAILS??" --- eeek.... yes.... i do.... but it slipped my mind..... and maybe this was the "last straw" or something for her.

I don't want to lose my one and last friend - I have tried to explain my condition to her a couple times, but I am not sure if she really grasped the extent of it nor has she ever really shown any interest in hearing more about it, so i just stopped talking about it with her (aside from the occassional complaints; "GADS, I'm hurtin' BAD today!" - and then moving on to other topics).

I tried once again to apologize to her (in an email - because she wont take my calls) that if I sometimes seem distracted or forgetful and to please understand that i do try so hard but sometimes this whole Fibro-fog overcomes me.

No response.

I've got a feeling that she doesn't believe me! Can someone please write a post explaining what it's like to have fibro-fog so that maybe i can share it with her and let her see that i am not intentionally neglecting her - and that it really is so much out of my control no matter how hard i try sometimes. If it comes from other people with FMS, then perhaps she will see that i'm not just making "excuses" for myself and that this is a real thing...?

I feel like a desperado over here scrambling to hold on to the last friend i've got in the world and it's scaring me to death that i might lose her to FMS like i've lost all the other friends i had before i got sick.

Any help would be GREATLY appreciated!!! I know this may not be the answer to save my friendship - but i don't know what else to do.

thanks....

aloooooooha

jaaaaaaaaaaana1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't

matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

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[Guest guest]

Same here. I took the time to print that letter out and to send it to all the people in my life I needed to read that, and NO ONE said a damn thing. They probably didn't even read it. Waste of friggin' stamps on my part. Now I know better not to bother though. Can you tell I'm in a bad mood?

~*Kerrie*~

Re: NEED SOMEONE TO WRITE A NOTE--Tigger

Tigger, ofcourse i consider you a friend - absolutely! Everyone here!!! Now i only need all of your phone numbers so i can call you all on the weekends and have yack sessions.... :-)

re: The Letter to Normals -- yep.... i did send that to her and everyone in my family (although i altered it slightly to be specific to me) ..... and NOBODY responded to it or even acknowledged it.

There's a pattern in my life: I seem to always place myself in the position of being in relationships with people who treat me like a doormat or people who make me feel like i'm walking on eggshells.

I've been told before by many people that i really need to grow a backbone. I'm working on it... and maybe one way to take a step in that direction is to stand up for myself & not accept being rejected for some mysterious reason (AGAIN) by my friend. I don't know....

Anyway - thanks for the advise! It would have been a great one had i not already tried it! LOL!!!!!! -- as far as having her join the group or you talking to her on the phone: oooooooh, nooooooooo wayyyyy...... she would freak out even if she found out I was talking about her here on this forum (even though i am not using her name - she'd FREAK) . Anyway; she wont even accept my phone calls.

But, i'll take your number! hehe!!!!!! I get free long distance on weekends - I'd love to call you once in a while and we can talk about our new home-to-be over there at 's. :-)

(((hugs))) (the big SAMOAN kind that you like) ;-)

alooooooooooooha!

jaaaaaaaaaana

Alooooooooha!

jaaaaaaaaana

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Checked by AVG Anti-Virus.

Version: 7.0.322 / Virus Database: 266.11.15 - Release Date: 5-22-2005

[Guest guest]

Same here. I took the time to print that letter out and to send it to all the people in my life I needed to read that, and NO ONE said a damn thing. They probably didn't even read it. Waste of friggin' stamps on my part. Now I know better not to bother though. Can you tell I'm in a bad mood?

~*Kerrie*~

Re: NEED SOMEONE TO WRITE A NOTE--Tigger

Tigger, ofcourse i consider you a friend - absolutely! Everyone here!!! Now i only need all of your phone numbers so i can call you all on the weekends and have yack sessions.... :-)

re: The Letter to Normals -- yep.... i did send that to her and everyone in my family (although i altered it slightly to be specific to me) ..... and NOBODY responded to it or even acknowledged it.

There's a pattern in my life: I seem to always place myself in the position of being in relationships with people who treat me like a doormat or people who make me feel like i'm walking on eggshells.

I've been told before by many people that i really need to grow a backbone. I'm working on it... and maybe one way to take a step in that direction is to stand up for myself & not accept being rejected for some mysterious reason (AGAIN) by my friend. I don't know....

Anyway - thanks for the advise! It would have been a great one had i not already tried it! LOL!!!!!! -- as far as having her join the group or you talking to her on the phone: oooooooh, nooooooooo wayyyyy...... she would freak out even if she found out I was talking about her here on this forum (even though i am not using her name - she'd FREAK) . Anyway; she wont even accept my phone calls.

But, i'll take your number! hehe!!!!!! I get free long distance on weekends - I'd love to call you once in a while and we can talk about our new home-to-be over there at 's. :-)

(((hugs))) (the big SAMOAN kind that you like) ;-)

alooooooooooooha!

jaaaaaaaaaana

Alooooooooha!

jaaaaaaaaana

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.322 / Virus Database: 266.11.15 - Release Date: 5-22-2005