Guest guest Posted August 4, 2000 Report Share Posted August 4, 2000 Mark, You have a great idea! There are so many on the Crew who are very productive people, for example, authors, students, active volunteers, independent business owners, builder, active in church. This is a great story of making the best of a little or looking out the glass half full instead of half empty. Hopefully, the strength of character, courage, the true meaning of life would also play into the script. This is the best way to get $ is to get positive attention. Isn't it? Hope you are having a good summer. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2000 Report Share Posted August 4, 2000 Mark, You have a great idea! There are so many on the Crew who are very productive people, for example, authors, students, active volunteers, independent business owners, builder, active in church. This is a great story of making the best of a little or looking out the glass half full instead of half empty. Hopefully, the strength of character, courage, the true meaning of life would also play into the script. This is the best way to get $ is to get positive attention. Isn't it? Hope you are having a good summer. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2000 Report Share Posted August 4, 2000 Mark, You have a great idea! There are so many on the Crew who are very productive people, for example, authors, students, active volunteers, independent business owners, builder, active in church. This is a great story of making the best of a little or looking out the glass half full instead of half empty. Hopefully, the strength of character, courage, the true meaning of life would also play into the script. This is the best way to get $ is to get positive attention. Isn't it? Hope you are having a good summer. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 In a message dated 8/5/00 2:48:17 PM Pacific Daylight Time, .L.Przybysz.3@... writes: << g o >> and others, Have you seen Oprah's show about making " miracles " by doing things for others---ie, crocheting (because that is all one person could do well) blankets for children in hospitals, something like 100,000 plus of them over the last several years, which made her life seem full? Also, the part of her show called " remembering your Spirit " brings to mind all of you. When I see these I think of my NF2 crew friends and how we could definitely be a part of these. The Crew figures in to so much here. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 I think there are plenty of people on the Crew who are making the best out of a little that are leading productive lives by standards they/we have invented and not necessarily by standards that society in general has set for " productivity. " I would insist that those alternative standards are where the meaning is coming through and if a show focused on conventional standards of " productivity, " then it would be a major insult to all of us living with NF2. I would have felt majorly alienated by my sisters and brothers with NF2 if I had seen a show that only focused on people who had done this or done that " despite NF2 " a few years ago when I was in such poor shape physically--it sends the message that " hey, they did it--why haven't you? what's wrong with you? " And at that time I just wanted to know that I was fulfilling a purpose just being alive and sharing experiences with other people... and then the time came to share whatever was planted in those times with more and more people, so I am grateful I had that time (even though it wasn't easy and even though I have struggled with guilt that I got another go around at the life of being out and about in the world when many other people haven't). I agree strength, courage, and meaning of life would definitely play into the script if the focus was on NF2, but I am not so sure anymore that those are even remotely related to measures of success that rate individuals as " productive " . Hugs and smiles, Message: 21 Date: Sat, 5 Aug 2000 00:53:52 EDT From: vjpcook@...: Re: Volunteering/PR > Mark, You have a great idea! There are so many on the Crew who are very productivepeople, for example, authors, students, active volunteers, independent business owners, builder, active in church. This is a great story of making the best of a little or looking out the glass half full instead of half empty. Hopefully, the strength of character, courage, the true meaning of life would also play into the script. This is the best way to get $ is to get positive attention. Isn't it? Hope you are having a good summer. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 I think there are plenty of people on the Crew who are making the best out of a little that are leading productive lives by standards they/we have invented and not necessarily by standards that society in general has set for " productivity. " I would insist that those alternative standards are where the meaning is coming through and if a show focused on conventional standards of " productivity, " then it would be a major insult to all of us living with NF2. I would have felt majorly alienated by my sisters and brothers with NF2 if I had seen a show that only focused on people who had done this or done that " despite NF2 " a few years ago when I was in such poor shape physically--it sends the message that " hey, they did it--why haven't you? what's wrong with you? " And at that time I just wanted to know that I was fulfilling a purpose just being alive and sharing experiences with other people... and then the time came to share whatever was planted in those times with more and more people, so I am grateful I had that time (even though it wasn't easy and even though I have struggled with guilt that I got another go around at the life of being out and about in the world when many other people haven't). I agree strength, courage, and meaning of life would definitely play into the script if the focus was on NF2, but I am not so sure anymore that those are even remotely related to measures of success that rate individuals as " productive " . Hugs and smiles, Message: 21 Date: Sat, 5 Aug 2000 00:53:52 EDT From: vjpcook@...: Re: Volunteering/PR > Mark, You have a great idea! There are so many on the Crew who are very productivepeople, for example, authors, students, active volunteers, independent business owners, builder, active in church. This is a great story of making the best of a little or looking out the glass half full instead of half empty. Hopefully, the strength of character, courage, the true meaning of life would also play into the script. This is the best way to get $ is to get positive attention. Isn't it? Hope you are having a good summer. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 I think there are plenty of people on the Crew who are making the best out of a little that are leading productive lives by standards they/we have invented and not necessarily by standards that society in general has set for " productivity. " I would insist that those alternative standards are where the meaning is coming through and if a show focused on conventional standards of " productivity, " then it would be a major insult to all of us living with NF2. I would have felt majorly alienated by my sisters and brothers with NF2 if I had seen a show that only focused on people who had done this or done that " despite NF2 " a few years ago when I was in such poor shape physically--it sends the message that " hey, they did it--why haven't you? what's wrong with you? " And at that time I just wanted to know that I was fulfilling a purpose just being alive and sharing experiences with other people... and then the time came to share whatever was planted in those times with more and more people, so I am grateful I had that time (even though it wasn't easy and even though I have struggled with guilt that I got another go around at the life of being out and about in the world when many other people haven't). I agree strength, courage, and meaning of life would definitely play into the script if the focus was on NF2, but I am not so sure anymore that those are even remotely related to measures of success that rate individuals as " productive " . Hugs and smiles, Message: 21 Date: Sat, 5 Aug 2000 00:53:52 EDT From: vjpcook@...: Re: Volunteering/PR > Mark, You have a great idea! There are so many on the Crew who are very productivepeople, for example, authors, students, active volunteers, independent business owners, builder, active in church. This is a great story of making the best of a little or looking out the glass half full instead of half empty. Hopefully, the strength of character, courage, the true meaning of life would also play into the script. This is the best way to get $ is to get positive attention. Isn't it? Hope you are having a good summer. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 Well said! Living a productive life for me is sometimes just getting out of bed in the morning and I know that I am not as bad off as most. I have developed ways of coping and doing things for myself that some people think I am NUTS!!!!! We are all so very different in the way that this disease has affected our lives. It would be totally unfair to compare one of us against the other!!!!! We all do what we have to do to make it from day to day. Some of us have a far greater struggle!!!! My hat goes off to Sheryn , Jimmy and just to name a few!!!!!! I am sure there are many others on the crew but these are a few that I have gotten to know well!!!! Take care! Marnie Quote Link to comment Share on other sites More sharing options...
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