Guest guest Posted April 30, 2005 Report Share Posted April 30, 2005 OMG ! I do know what it's like to be a sole caregiver to someone and how it just sucks the life-force out of you. You seem to have a great attitude about it regardless...... I wish your mother would be more open and willing to allow others to "take over" once in a while.... can you INSIST upon it? I mean, you HAVE to get breaks from it.... you HAVE to!!!!!!! i did this for 2 years -- 7 days/week -- and i aged about 10yrs over that 2yr period of time. GET HELP!!!!!!!! TAKE BREAKS!!!!!! PLEASE!!!!!!!!!! ((hugs)) jaaaana Re: my fall These are also go to put in the bathroom and let run when you may be all stuffed up. My husband and I live at home with my mother and she got pneumonia this week and she has a steamer and we just let it run in the bathroom with her, and believe it or not, it helped. She also has emphezema and severe COPD. She is on oxygen around the clock and can't get out to do things for herself so we live here with her to help care for her and do the things she can't. As of last year, I can no longer work due to my fibro and OA so my husband is the bread winner for him and I. I have a step father, but he is an over the road truck driver and only home 3 or 4 days a month. Right now until I apply for SSDI, we have no other alternative but to live at home with my parents. And believe me, depending on how my mother is doing, she can be like having a full time job. My mother also done this for her mother and the similarity is so strange. By that I mean, my grandmother wouldn't let anybody do anything for her other than my mother. My mother won't let anybody do anything for her other than me. Seems that I am the only one that can do anything right for her. And this can get awfully stressful and my doctor won't do much more for me other than ultracettes, neurontin, celebrex and flexerils. I don't think he wants to do anything stronger and my pain level has been like 12 this week!! Sorry to go babbling on....guess I'm just a little frazzled this week!! Frazzled enough to get into a screaming match with my sister yesterday, which didn't help the pain any. We did work out our differences today but that doesn't fix the stress. Help!!!! All I can do is sit and cry the past couple of days!! in Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2005 Report Share Posted May 1, 2005 , BLESS YOUR HEART. Let's hope now that your daughter learns from her mother, and when you get old and needing care; she will do the same for YOU! I still say you REALLY aught to take a few days away once in a while - as you said; maybe even just get a hotel room for a couple nights.... This is a lot of stress and responsibility for one person to take on alone and your mother MUST understand that. Hang in there my friend... you really are such a wonderful & selfless soul! Wish i could help take the load off for you... but, i CAN be here to hear you vent - so VENT AWAY!!!! alooooha, jaaana Re: Re: DIANA in Ohio Jaaana, my oldest daughter, who is a STNA, tries to do things for her occasionally, but my mother ends up having her get me to do the things for her she wants done. It gets tiring. She is all the time telling me she hates being a burden on me. And she's not a burden, I just wish I could get a day or 2 away to get a break away from home. A night or 2 in a hotel? LOL I took her to the ER Thursday and the doc said she had pneumonia and sent her home with ketek, an antibiotic and vicodin for the pain. NOW, I tried to tell her to take this medicine AFTER eating something and only take half a vicodin because she has never taken pain medicine. Last night she complains about cold sweats and being sick to her stomach. She DIDN'T hardly eat enough to feed any bird and she took a whole vicodin. She was fine up to this point. Of course I tried to explain this to her and of course she is convinced it's the ketek not agreeing with her, so she's not going to take any more of it!!! AAAUUUGGGG!!! Of course this sends my stress level up to, ooohhhh, through the roof!!! I go to bed last night with muscle spasms in my back so bad I had to take 2 flexerils to even get to sleep. And the back is still at it today. I love my mother, but she is more stubborn than any mule I have ever seen. So I know by Monday I will end up calling her doc, because she won't go back to the ER, and she will probably be admitted into the hospital. I'm waiting for her to just give up, and I know that is coming. She just found out last night that a close friend of her's passed away last Friday of the same disease as her and you could almost see the life force go out of her. But in the mean time, I am wearing down, slowly but surely and I can't get my fibro pain down to a minimum. Guess I should call my doc Monday!! I'm trying, but like her mother, no body can do anything right for my mother but me! And there are times I just want to pull out my hair. At least I found this wonderful group to vent, and that helps. in Ohio Quote Link to comment Share on other sites More sharing options...
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