3 weeks down- with a question

[Guest guest]

Hi everyone,

I'm 3 weeks off meds, no Cytomel so I'm feeling it. I'm getting that especially

beautiful " turtle eye " look that I've missed so much over the last year, and I'm

counting the days until my neck are swells! Seriously, I talked to my endo the

other day. Since I've been Tg positive, scan negative the last 2 years, she said

that I can get my Tg checked in 1 more week. If it's elevated she going to go

ahead and do an ultrasound to try to find it. If that doesn't show anything she

said she'd do an MRI. Both tests would be done on my neck and chest, thank

goodness.

Now this is her plan: if the Tg is positive,and the ultrasound/MRI show

something operable, then she wants me to go on my meds again and schedule

surgery, then back off my meds " at my convenience " (although I can't for the

life of me figure out when it is convenient to feel like crap for about 2

months). Does this sound like it's more difficult to you? It seems to me that it

would be easier to dose me while I'm hypo, then recover and do surgery to cover

all bases. But maybe I wouldn't need to go hypo again after surgery. I'm

confused! If still nothing shows up on either test, then she will dose me again

with 100 mc RAI and scan after. If this happens I do plan to ask for 150 mc RAI

but I don't know if she'll go for it.

Thanks for the input!

Peace, Love and all that Hippie Stuff!

38 years old dx pap thyca with lymph node involvement 6/98 tt 9/98 29.9 mc RAI

10/98

Tg 28 6/99 29.9 mc RAI 7/99 scan negative

Tg >100 (can't remember now) scan negative 100 mc RAI 8/00

Tg fluctuating between 2.6 and 3.2 while supressed this past year

[Guest guest]

, It is comman practice to take out with surgery what you can

and dose the rest. And it makes sense so that you have a smaller area

to obliterate. It is too bad that she didn't go ahead and run the

tests before you went hypo.. it would have saved you some hypo time.

Good luck, Bekki in TX; tt & rai'89; rai 7/00; mid-neck dissection

> 2/01; 5/01-finished 6 weeks EBR

>

> Now this is her plan: if the Tg is positive,and the ultrasound/MRI

show something operable, then she wants me to go on my meds again and

schedule surgery, then back off my meds " at my convenience " (although

I can't for the life of me figure out when it is convenient to feel

like crap for about 2 months). Does this sound like it's more

difficult to you? It seems to me that it would be easier to dose me

while I'm hypo, then recover and do surgery to cover all bases. But

maybe I wouldn't need to go hypo again after surgery. >

> Thanks for the input!

> Peace, Love and all that Hippie Stuff!

>

>

> 38 years old dx pap thyca with lymph node involvement 6/98 tt 9/98

29.9 mc RAI 10/98

> Tg 28 6/99 29.9 mc RAI 7/99 scan negative

> Tg >100 (can't remember now) scan negative 100 mc RAI 8/00

> Tg fluctuating between 2.6 and 3.2 while supressed this past year

>

>

>

[Guest guest]

Hi everyone...

I think I understand what most of the abbreviations

mean but I'm confused about " EBR " . Can anyone post a

list of common thyca abbreviations that appear in many

of the posts (ie: TT=thyroidectomry, etc). Thanks!

=====

Christy, 42

Las Vegas, NV

01/18/01 suspicious FNA; 2/26/01 LL; 3/10/01 TT (2.5 cm follicular w/minimal

invasion and .9 cm incidental encapsulated papillary); 3/28/01 145 mCi RAI;

4/7/01 base scan following RAI, no mets

__________________________________________________

[Guest guest]

PT - Partial Thyroidectomy

RAI - Radioactive Iodine

EBR - External Beam Radiation (only for the extreme metastasized cases)

TBS - Total Body Scan

Tg - Thyroglobulin

YMMV - Your mileage may vary

That's all I can think of off the top of my head. I know there are more but

the group will help fill you in.

Papillary Thyroid Cancer w/ Lymph Node involvement

pt 3/1/00, tt 4/12/00

RAI 100 mCi's 5/26/00

Tg 8.8 while suppressed - Tg 357 with TSH of 96 on 12/27/00

2nd RAI 150 mCi's 1/19/01

threegolfers@...

Re: Re: 3 weeks down- with a question

> Hi everyone...

>

> I think I understand what most of the abbreviations

> mean but I'm confused about " EBR " . Can anyone post a

> list of common thyca abbreviations that appear in many

> of the posts (ie: TT=thyroidectomry, etc). Thanks!

>

>

>

>

>

> =====

> Christy, 42

> Las Vegas, NV

>

> 01/18/01 suspicious FNA; 2/26/01 LL; 3/10/01 TT (2.5 cm follicular

w/minimal invasion and .9 cm incidental encapsulated papillary); 3/28/01 145

mCi RAI; 4/7/01 base scan following RAI, no mets

>

> __________________________________________________

>

[Guest guest]

PT - Partial Thyroidectomy

RAI - Radioactive Iodine

EBR - External Beam Radiation (only for the extreme metastasized cases)

TBS - Total Body Scan

Tg - Thyroglobulin

YMMV - Your mileage may vary

That's all I can think of off the top of my head. I know there are more but

the group will help fill you in.

Papillary Thyroid Cancer w/ Lymph Node involvement

pt 3/1/00, tt 4/12/00

RAI 100 mCi's 5/26/00

Tg 8.8 while suppressed - Tg 357 with TSH of 96 on 12/27/00

2nd RAI 150 mCi's 1/19/01

threegolfers@...

Re: Re: 3 weeks down- with a question

> Hi everyone...

>

> I think I understand what most of the abbreviations

> mean but I'm confused about " EBR " . Can anyone post a

> list of common thyca abbreviations that appear in many

> of the posts (ie: TT=thyroidectomry, etc). Thanks!

>

>

>

>

>

> =====

> Christy, 42

> Las Vegas, NV

>

> 01/18/01 suspicious FNA; 2/26/01 LL; 3/10/01 TT (2.5 cm follicular

w/minimal invasion and .9 cm incidental encapsulated papillary); 3/28/01 145

mCi RAI; 4/7/01 base scan following RAI, no mets

>

> __________________________________________________

>

[Guest guest]

PT - Partial Thyroidectomy

RAI - Radioactive Iodine

EBR - External Beam Radiation (only for the extreme metastasized cases)

TBS - Total Body Scan

Tg - Thyroglobulin

YMMV - Your mileage may vary

That's all I can think of off the top of my head. I know there are more but

the group will help fill you in.

Papillary Thyroid Cancer w/ Lymph Node involvement

pt 3/1/00, tt 4/12/00

RAI 100 mCi's 5/26/00

Tg 8.8 while suppressed - Tg 357 with TSH of 96 on 12/27/00

2nd RAI 150 mCi's 1/19/01

threegolfers@...

Re: Re: 3 weeks down- with a question

> Hi everyone...

>

> I think I understand what most of the abbreviations

> mean but I'm confused about " EBR " . Can anyone post a

> list of common thyca abbreviations that appear in many

> of the posts (ie: TT=thyroidectomry, etc). Thanks!

>

>

>

>

>

> =====

> Christy, 42

> Las Vegas, NV

>

> 01/18/01 suspicious FNA; 2/26/01 LL; 3/10/01 TT (2.5 cm follicular

w/minimal invasion and .9 cm incidental encapsulated papillary); 3/28/01 145

mCi RAI; 4/7/01 base scan following RAI, no mets

>

> __________________________________________________

>