New to the group

[Guest guest]

I hadn't thought of the OJ drink! She never has been willing to drink the

cream or the egg nog. But she didn't like milk before the diet either so we

weren't surprised. The only way she would take the cream was when I frozen

into little bite size ice cube trays with flavor and sweetner. But she

started refusing those when we started having so much trouble finding

anything she will eat. Rubbermaid makes great trays for this. They have

fruit shapes, space shapes and cards (hearts, diamond, spades) SHe really

liked these for a while. Thanks for the OJ idea!

Jeni

Re: new to the group

> Oh, it's so tough when they won't eat. . .you can try

> egg nog or the chicken soup recipe in the files. .

> .doesn't really do the trick for , though. To

> tell you the truth, I usually just ride it out and

> make sure she gets enough fluid. Can you whip the

> cream with flavor and freeze for ice cream? I've also

> found that will not drink cream when she's in

> this mode. . .so I have several meal plans that have

> no cream -- most of the fat comes from mayo or butter.

> At 2.3, you probably have a fair amount of carb --

> could you make a type of Orange Julius using OJ, oil,

> cream and egg? Do you think she'd drink something

> like that with a fun straw or something. If you

> blended it, it might be a consistent ratio so that it

> didn't matter how much she'd drink. 's on too

> high a ratio for this to work, but at 2.3, you might

> be able to figure it. Good luck!--D

>

> ***

> What do you do when your

> > daughter doesn't want to

> > eat?

>

> =====

> DeEtte -- Mom to (, 6, keto-kid since 1/01, med-free, seizures greatly

reduced) and (, 4), sdale, AZ

>

> " I know God would never give me more than I can handle. . .I just wish he

didn't trust me so much. "

>

> __________________________________________________

>

[Guest guest]

That sounds too familiar!! Was he on sprinkles or liquid? When they first started her on it they used the liquid and she did become anorexic right away so we changed to sprinkles. I never thought of the correlation. Thanks!

Jeni

Re: new to the group On Sun, 2 Sep 2001 16:33:44 -0500 "Jeni Mullett" writes: Hi! My name is Jeni and my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months. She has been doing great on it up until about 2 weeks ago. She has not been wanting to eat the fats and proteins. We have been able to maintain ketosis somehow and she is still seizure free but she can't go on eating like she is. (mostly oil, juice and some egg and of course her fruits) I was curious how high her ratio is?? to deep on ketosis could cause themto refuse foods. Also Depakote can cause her to me more acidic and wouldcontribute to this! coudnt tolerate a higher ratio while on Dep....toacidic! Also what about adding digestive enzymes?? if shesnot digesting foods properly and her tummy is upset, this might cause her to notwant to eat. I just started using the Stanford meal planner to do her plans myself but I'm not sure if I am entering new foods correctly. Can I just enter the # of grams in the serving and then the pro, carb and fat that is listed on the label or do I need to get the breakdown for 100g My own rule of thumb is whent the package has their serving size above 75, Iuse the numbers on the package and just type in the amounts. If the packageserving size is below 75, I call the manufacturer for their numbers per 100gms.it can make a big difference if say the package serving size is like 50gms,and they put less than 1 gram or 0...when in actuality its like .75...cuz then per100 its 1.5 grams of carb....I donno...I dont trust their carb counts at loweramounts. This just happened on the spectrum mayo numbers. they canput 0 because its below 1 gram carb on 14 serving...but if you lookat the numbers I got from teh manufacturer per 100 it made a hugeratio difference!!!cyaBarb...s mom "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe

[Guest guest]

That sounds too familiar!! Was he on sprinkles or liquid? When they first started her on it they used the liquid and she did become anorexic right away so we changed to sprinkles. I never thought of the correlation. Thanks!

Jeni

Re: new to the group On Sun, 2 Sep 2001 16:33:44 -0500 "Jeni Mullett" writes: Hi! My name is Jeni and my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months. She has been doing great on it up until about 2 weeks ago. She has not been wanting to eat the fats and proteins. We have been able to maintain ketosis somehow and she is still seizure free but she can't go on eating like she is. (mostly oil, juice and some egg and of course her fruits) I was curious how high her ratio is?? to deep on ketosis could cause themto refuse foods. Also Depakote can cause her to me more acidic and wouldcontribute to this! coudnt tolerate a higher ratio while on Dep....toacidic! Also what about adding digestive enzymes?? if shesnot digesting foods properly and her tummy is upset, this might cause her to notwant to eat. I just started using the Stanford meal planner to do her plans myself but I'm not sure if I am entering new foods correctly. Can I just enter the # of grams in the serving and then the pro, carb and fat that is listed on the label or do I need to get the breakdown for 100g My own rule of thumb is whent the package has their serving size above 75, Iuse the numbers on the package and just type in the amounts. If the packageserving size is below 75, I call the manufacturer for their numbers per 100gms.it can make a big difference if say the package serving size is like 50gms,and they put less than 1 gram or 0...when in actuality its like .75...cuz then per100 its 1.5 grams of carb....I donno...I dont trust their carb counts at loweramounts. This just happened on the spectrum mayo numbers. they canput 0 because its below 1 gram carb on 14 serving...but if you lookat the numbers I got from teh manufacturer per 100 it made a hugeratio difference!!!cyaBarb...s mom "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe

[Guest guest]

Hi Jeni

Mike was on dep sprinkles- 9/day ( three with each meal)- he was 4

1/2 at the time and weighed 38 lbs. Far too much drug- it increased his

seizures and definately caused eating problems- as we reduced the dep-

and that was the only change we made- his seizures decreased and his eating

improved. There is a definate correlation for some kids. Be careful if

you decide to reduce dep though- it is a hard drug to wean. there are lots

of people on this list who can give good advice re: this.

Best of Luck

Faye

Jeni Mullett wrote:

That sounds

too familiar!! Was he on sprinkles or liquid? When they first

started her on it they used the liquid and she did become anorexic right

away so we changed to sprinkles. I never thought of the correlation.

Thanks!Jeni

Re: new to the

group

On Sun, 2 Sep 2001 16:33:44 -0500 "Jeni Mullett"

writes: Hi! My name is Jeni and

my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months.

She has been doing great on it up until about 2 weeks ago. She has

not been wanting to eat the fats and proteins. We have been able

to maintain ketosis somehow and she is still seizure free but she can't

go on eating like she is. (mostly oil, juice and some egg and of course

her fruits) I was curious how high

her ratio is?? to deep on ketosis could cause themto refuse

foods. Also Depakote can cause her to me more acidic and wouldcontribute

to this! coudnt tolerate a higher ratio while on Dep....toacidic!

Also what about adding digestive enzymes?? if shesnot digesting foods

properly and her tummy is upset, this might cause her to notwant to eat.

I just started using the Stanford meal planner to do her plans myself but

I'm not sure if I am entering new foods correctly. Can I just enter

the # of grams in the serving and then the pro, carb and fat that is listed

on the label or do I need to get the breakdown for 100g My

own rule of thumb is whent the package has their serving size above 75,

Iuse the numbers on the package and just type in the amounts.

If the packageserving size is below 75, I call the manufacturer for their

numbers per 100gms.it can make a big difference if say the package serving

size is like 50gms,and they put less than 1 gram or 0...when in actuality

its like .75...cuz then per100 its 1.5 grams of carb....I donno...I dont

trust their carb counts at loweramounts. This just happened on the

spectrum mayo numbers. they canput 0 because its below 1 gram

carb on 14 serving...but if you lookat the numbers I got from teh manufacturer

per 100 it made a hugeratio difference!!!cyaBarb...s mom

"The Ketogenic Diet....a realistic treatment option, NOT

just a last resort!"

List is for parent to parent support only.

It is important to get medical advice from a professional keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

Hi Jeni

Mike was on dep sprinkles- 9/day ( three with each meal)- he was 4

1/2 at the time and weighed 38 lbs. Far too much drug- it increased his

seizures and definately caused eating problems- as we reduced the dep-

and that was the only change we made- his seizures decreased and his eating

improved. There is a definate correlation for some kids. Be careful if

you decide to reduce dep though- it is a hard drug to wean. there are lots

of people on this list who can give good advice re: this.

Best of Luck

Faye

Jeni Mullett wrote:

That sounds

too familiar!! Was he on sprinkles or liquid? When they first

started her on it they used the liquid and she did become anorexic right

away so we changed to sprinkles. I never thought of the correlation.

Thanks!Jeni

Re: new to the

group

On Sun, 2 Sep 2001 16:33:44 -0500 "Jeni Mullett"

writes: Hi! My name is Jeni and

my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months.

She has been doing great on it up until about 2 weeks ago. She has

not been wanting to eat the fats and proteins. We have been able

to maintain ketosis somehow and she is still seizure free but she can't

go on eating like she is. (mostly oil, juice and some egg and of course

her fruits) I was curious how high

her ratio is?? to deep on ketosis could cause themto refuse

foods. Also Depakote can cause her to me more acidic and wouldcontribute

to this! coudnt tolerate a higher ratio while on Dep....toacidic!

Also what about adding digestive enzymes?? if shesnot digesting foods

properly and her tummy is upset, this might cause her to notwant to eat.

I just started using the Stanford meal planner to do her plans myself but

I'm not sure if I am entering new foods correctly. Can I just enter

the # of grams in the serving and then the pro, carb and fat that is listed

on the label or do I need to get the breakdown for 100g My

own rule of thumb is whent the package has their serving size above 75,

Iuse the numbers on the package and just type in the amounts.

If the packageserving size is below 75, I call the manufacturer for their

numbers per 100gms.it can make a big difference if say the package serving

size is like 50gms,and they put less than 1 gram or 0...when in actuality

its like .75...cuz then per100 its 1.5 grams of carb....I donno...I dont

trust their carb counts at loweramounts. This just happened on the

spectrum mayo numbers. they canput 0 because its below 1 gram

carb on 14 serving...but if you lookat the numbers I got from teh manufacturer

per 100 it made a hugeratio difference!!!cyaBarb...s mom

"The Ketogenic Diet....a realistic treatment option, NOT

just a last resort!"

List is for parent to parent support only.

It is important to get medical advice from a professional keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

Faye:

I talked with out keto team today and we are going to reduce the Depakote. MaKenzie is on 250 TID and is only 23 lbs. They told me to cut back 125mg a day for 5 days and then another 125mg. Does this sound too fast? As much as I hate the drugs and want her off I am always so scared to cut back and possibly start having seizures again! Since she is on sprinkles I don't really know how you could go any slower than 125mg at a time? Any thoughts?

Jeni

Re: new to the group On Sun, 2 Sep 2001 16:33:44 -0500 "Jeni Mullett" writes: Hi! My name is Jeni and my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months. She has been doing great on it up until about 2 weeks ago. She has not been wanting to eat the fats and proteins. We have been able to maintain ketosis somehow and she is still seizure free but she can't go on eating like she is. (mostly oil, juice and some egg and of course her fruits) I was curious how high her ratio is?? to deep on ketosis could cause themto refuse foods. Also Depakote can cause her to me more acidic and wouldcontribute to this! coudnt tolerate a higher ratio while on Dep....toacidic! Also what about adding digestive enzymes?? if shesnot digesting foods properly and her tummy is upset, this might cause her to notwant to eat. I just started using the Stanford meal planner to do her plans myself but I'm not sure if I am entering new foods correctly. Can I just enter the # of grams in the serving and then the pro, carb and fat that is listed on the label or do I need to get the breakdown for 100g My own rule of thumb is whent the package has their serving size above 75, Iuse the numbers on the package and just type in the amounts. If the packageserving size is below 75, I call the manufacturer for their numbers per 100gms.it can make a big difference if say the package serving size is like 50gms,and they put less than 1 gram or 0...when in actuality its like .75...cuz then per100 its 1.5 grams of carb....I donno...I dont trust their carb counts at loweramounts. This just happened on the spectrum mayo numbers. they canput 0 because its below 1 gram carb on 14 serving...but if you lookat the numbers I got from teh manufacturer per 100 it made a hugeratio difference!!!cyaBarb...s mom "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe

[Guest guest]

It definitely seems that the closer you get to the end of the wean, the

worse it becomes. You might be able to maintain your neuro's schedule initially

(although it sounds pretty fast to me too) but be prepared to have to go

quite slow as you get to the end

kevin cooper wrote:

Hi Jeni

I'm sure you will get lots of advice on this one- many of us have gone

through the dreaded dep wean. To me your wean schedule is pretty fast.

When we weaned Mike off dep we started with 125 drop every two weeks .

Like you our neuro suggested one every 5ive days but based one the advice

of outhers on this list who had already done the wean we went slower. Dep

is known to cause withdrawl in some kids. Sometimes it is an increase in

seizures- (temporary) and sometines it is a increases in behavorial issues-

either way if you take it slow there is not such a dramatic effect on the

body and the child has time to adjust. I'n not sure how much dep you intend

to drop. We had no problems with Mike until we got to the last two pillls-

we were completely taking him off it due to liver toxicity. If you are

jsut dropping a couple of sprinkles you should be OK- but don't panic if

you see a couple of seizures- these are probably withdrawl and will go

away. Some people actually open the sprinkle caps and pour 1/2 the

contents over the food to allow the wean to go slower- we did this at the

end of the wean.

Anyway enough rambling. I would bet that with even the drop in the

first pill you will see some improvement in Mackenzie's eating. I wish

you well. The feeding issue is so hard. At first I thought it was the diet

or the food I was preparing- never thought it was the drugs. THings changed

so quickly for us- I hope the same for you.

Faye

Jeni Mullett wrote:

Faye:I talked

with out keto team today and we are going to reduce the Depakote.

MaKenzie is on 250 TID and is only 23 lbs. They told me to cut back

125mg a day for 5 days and then another 125mg. Does this sound too

fast? As much as I hate the drugs and want her off I am always so

scared to cut back and possibly start having seizures again! Since

she is on sprinkles I don't really know how you could go any slower than

125mg at a time? Any thoughts?Jeni

Re: new to the

group

On Sun, 2 Sep 2001 16:33:44 -0500 "Jeni Mullett"

writes: Hi! My name is Jeni and

my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months.

She has been doing great on it up until about 2 weeks ago. She has

not been wanting to eat the fats and proteins. We have been able

to maintain ketosis somehow and she is still seizure free but she can't

go on eating like she is. (mostly oil, juice and some egg and of course

her fruits) I was curious how high

her ratio is?? to deep on ketosis could cause themto refuse

foods. Also Depakote can cause her to me more acidic and wouldcontribute

to this! coudnt tolerate a higher ratio while on Dep....toacidic!

Also what about adding digestive enzymes?? if shesnot digesting foods

properly and her tummy is upset, this might cause her to notwant to eat.

I just started using the Stanford meal planner to do her plans myself but

I'm not sure if I am entering new foods correctly. Can I just enter

the # of grams in the serving and then the pro, carb and fat that is listed

on the label or do I need to get the breakdown for 100g My

own rule of thumb is whent the package has their serving size above 75,

Iuse the numbers on the package and just type in the amounts.

If the packageserving size is below 75, I call the manufacturer for their

numbers per 100gms.it can make a big difference if say the package serving

size is like 50gms,and they put less than 1 gram or 0...when in actuality

its like .75...cuz then per100 its 1.5 grams of carb....I donno...I dont

trust their carb counts at loweramounts. This just happened on the

spectrum mayo numbers. they canput 0 because its below 1 gram

carb on 14 serving...but if you lookat the numbers I got from teh manufacturer

per 100 it made a hugeratio difference!!!cyaBarb...s mom

"The Ketogenic Diet....a realistic treatment option, NOT

just a last resort!"

List is for parent to parent support only.

It is important to get medical advice from a professional keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

It definitely seems that the closer you get to the end of the wean, the

worse it becomes. You might be able to maintain your neuro's schedule initially

(although it sounds pretty fast to me too) but be prepared to have to go

quite slow as you get to the end

kevin cooper wrote:

Hi Jeni

I'm sure you will get lots of advice on this one- many of us have gone

through the dreaded dep wean. To me your wean schedule is pretty fast.

When we weaned Mike off dep we started with 125 drop every two weeks .

Like you our neuro suggested one every 5ive days but based one the advice

of outhers on this list who had already done the wean we went slower. Dep

is known to cause withdrawl in some kids. Sometimes it is an increase in

seizures- (temporary) and sometines it is a increases in behavorial issues-

either way if you take it slow there is not such a dramatic effect on the

body and the child has time to adjust. I'n not sure how much dep you intend

to drop. We had no problems with Mike until we got to the last two pillls-

we were completely taking him off it due to liver toxicity. If you are

jsut dropping a couple of sprinkles you should be OK- but don't panic if

you see a couple of seizures- these are probably withdrawl and will go

away. Some people actually open the sprinkle caps and pour 1/2 the

contents over the food to allow the wean to go slower- we did this at the

end of the wean.

Anyway enough rambling. I would bet that with even the drop in the

first pill you will see some improvement in Mackenzie's eating. I wish

you well. The feeding issue is so hard. At first I thought it was the diet

or the food I was preparing- never thought it was the drugs. THings changed

so quickly for us- I hope the same for you.

Faye

Jeni Mullett wrote:

Faye:I talked

with out keto team today and we are going to reduce the Depakote.

MaKenzie is on 250 TID and is only 23 lbs. They told me to cut back

125mg a day for 5 days and then another 125mg. Does this sound too

fast? As much as I hate the drugs and want her off I am always so

scared to cut back and possibly start having seizures again! Since

she is on sprinkles I don't really know how you could go any slower than

125mg at a time? Any thoughts?Jeni

Re: new to the

group

On Sun, 2 Sep 2001 16:33:44 -0500 "Jeni Mullett"

writes: Hi! My name is Jeni and

my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months.

She has been doing great on it up until about 2 weeks ago. She has

not been wanting to eat the fats and proteins. We have been able

to maintain ketosis somehow and she is still seizure free but she can't

go on eating like she is. (mostly oil, juice and some egg and of course

her fruits) I was curious how high

her ratio is?? to deep on ketosis could cause themto refuse

foods. Also Depakote can cause her to me more acidic and wouldcontribute

to this! coudnt tolerate a higher ratio while on Dep....toacidic!

Also what about adding digestive enzymes?? if shesnot digesting foods

properly and her tummy is upset, this might cause her to notwant to eat.

I just started using the Stanford meal planner to do her plans myself but

I'm not sure if I am entering new foods correctly. Can I just enter

the # of grams in the serving and then the pro, carb and fat that is listed

on the label or do I need to get the breakdown for 100g My

own rule of thumb is whent the package has their serving size above 75,

Iuse the numbers on the package and just type in the amounts.

If the packageserving size is below 75, I call the manufacturer for their

numbers per 100gms.it can make a big difference if say the package serving

size is like 50gms,and they put less than 1 gram or 0...when in actuality

its like .75...cuz then per100 its 1.5 grams of carb....I donno...I dont

trust their carb counts at loweramounts. This just happened on the

spectrum mayo numbers. they canput 0 because its below 1 gram

carb on 14 serving...but if you lookat the numbers I got from teh manufacturer

per 100 it made a hugeratio difference!!!cyaBarb...s mom

"The Ketogenic Diet....a realistic treatment option, NOT

just a last resort!"

List is for parent to parent support only.

It is important to get medical advice from a professional keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

It definitely seems that the closer you get to the end of the wean, the

worse it becomes. You might be able to maintain your neuro's schedule initially

(although it sounds pretty fast to me too) but be prepared to have to go

quite slow as you get to the end

kevin cooper wrote:

Hi Jeni

I'm sure you will get lots of advice on this one- many of us have gone

through the dreaded dep wean. To me your wean schedule is pretty fast.

When we weaned Mike off dep we started with 125 drop every two weeks .

Like you our neuro suggested one every 5ive days but based one the advice

of outhers on this list who had already done the wean we went slower. Dep

is known to cause withdrawl in some kids. Sometimes it is an increase in

seizures- (temporary) and sometines it is a increases in behavorial issues-

either way if you take it slow there is not such a dramatic effect on the

body and the child has time to adjust. I'n not sure how much dep you intend

to drop. We had no problems with Mike until we got to the last two pillls-

we were completely taking him off it due to liver toxicity. If you are

jsut dropping a couple of sprinkles you should be OK- but don't panic if

you see a couple of seizures- these are probably withdrawl and will go

away. Some people actually open the sprinkle caps and pour 1/2 the

contents over the food to allow the wean to go slower- we did this at the

end of the wean.

Anyway enough rambling. I would bet that with even the drop in the

first pill you will see some improvement in Mackenzie's eating. I wish

you well. The feeding issue is so hard. At first I thought it was the diet

or the food I was preparing- never thought it was the drugs. THings changed

so quickly for us- I hope the same for you.

Faye

Jeni Mullett wrote:

Faye:I talked

with out keto team today and we are going to reduce the Depakote.

MaKenzie is on 250 TID and is only 23 lbs. They told me to cut back

125mg a day for 5 days and then another 125mg. Does this sound too

fast? As much as I hate the drugs and want her off I am always so

scared to cut back and possibly start having seizures again! Since

she is on sprinkles I don't really know how you could go any slower than

125mg at a time? Any thoughts?Jeni

Re: new to the

group

On Sun, 2 Sep 2001 16:33:44 -0500 "Jeni Mullett"

writes: Hi! My name is Jeni and

my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months.

She has been doing great on it up until about 2 weeks ago. She has

not been wanting to eat the fats and proteins. We have been able

to maintain ketosis somehow and she is still seizure free but she can't

go on eating like she is. (mostly oil, juice and some egg and of course

her fruits) I was curious how high

her ratio is?? to deep on ketosis could cause themto refuse

foods. Also Depakote can cause her to me more acidic and wouldcontribute

to this! coudnt tolerate a higher ratio while on Dep....toacidic!

Also what about adding digestive enzymes?? if shesnot digesting foods

properly and her tummy is upset, this might cause her to notwant to eat.

I just started using the Stanford meal planner to do her plans myself but

I'm not sure if I am entering new foods correctly. Can I just enter

the # of grams in the serving and then the pro, carb and fat that is listed

on the label or do I need to get the breakdown for 100g My

own rule of thumb is whent the package has their serving size above 75,

Iuse the numbers on the package and just type in the amounts.

If the packageserving size is below 75, I call the manufacturer for their

numbers per 100gms.it can make a big difference if say the package serving

size is like 50gms,and they put less than 1 gram or 0...when in actuality

its like .75...cuz then per100 its 1.5 grams of carb....I donno...I dont

trust their carb counts at loweramounts. This just happened on the

spectrum mayo numbers. they canput 0 because its below 1 gram

carb on 14 serving...but if you lookat the numbers I got from teh manufacturer

per 100 it made a hugeratio difference!!!cyaBarb...s mom

"The Ketogenic Diet....a realistic treatment option, NOT

just a last resort!"

List is for parent to parent support only.

It is important to get medical advice from a professional keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

Hi Jeni

I'm sure you will get lots of advice on this one- many of us have gone

through the dreaded dep wean. To me your wean schedule is pretty fast.

When we weaned Mike off dep we started with 125 drop every two weeks .

Like you our neuro suggested one every 5ive days but based one the advice

of outhers on this list who had already done the wean we went slower. Dep

is known to cause withdrawl in some kids. Sometimes it is an increase in

seizures- (temporary) and sometines it is a increases in behavorial issues-

either way if you take it slow there is not such a dramatic effect on the

body and the child has time to adjust. I'n not sure how much dep you intend

to drop. We had no problems with Mike until we got to the last two pillls-

we were completely taking him off it due to liver toxicity. If you are

jsut dropping a couple of sprinkles you should be OK- but don't panic if

you see a couple of seizures- these are probably withdrawl and will go

away. Some people actually open the sprinkle caps and pour 1/2 the

contents over the food to allow the wean to go slower- we did this at the

end of the wean.

Anyway enough rambling. I would bet that with even the drop in the

first pill you will see some improvement in Mackenzie's eating. I wish

you well. The feeding issue is so hard. At first I thought it was the diet

or the food I was preparing- never thought it was the drugs. THings changed

so quickly for us- I hope the same for you.

Faye

Jeni Mullett wrote:

Faye:I

talked with out keto team today and we are going to reduce the Depakote.

MaKenzie is on 250 TID and is only 23 lbs. They told me to cut back

125mg a day for 5 days and then another 125mg. Does this sound too

fast? As much as I hate the drugs and want her off I am always so

scared to cut back and possibly start having seizures again! Since

she is on sprinkles I don't really know how you could go any slower than

125mg at a time? Any thoughts?Jeni

Re: new to the

group

On Sun, 2 Sep 2001 16:33:44 -0500 "Jeni Mullett"

writes: Hi! My name is Jeni and

my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months.

She has been doing great on it up until about 2 weeks ago. She has

not been wanting to eat the fats and proteins. We have been able

to maintain ketosis somehow and she is still seizure free but she can't

go on eating like she is. (mostly oil, juice and some egg and of course

her fruits) I was curious how high

her ratio is?? to deep on ketosis could cause themto refuse

foods. Also Depakote can cause her to me more acidic and wouldcontribute

to this! coudnt tolerate a higher ratio while on Dep....toacidic!

Also what about adding digestive enzymes?? if shesnot digesting foods

properly and her tummy is upset, this might cause her to notwant to eat.

I just started using the Stanford meal planner to do her plans myself but

I'm not sure if I am entering new foods correctly. Can I just enter

the # of grams in the serving and then the pro, carb and fat that is listed

on the label or do I need to get the breakdown for 100g My

own rule of thumb is whent the package has their serving size above 75,

Iuse the numbers on the package and just type in the amounts.

If the packageserving size is below 75, I call the manufacturer for their

numbers per 100gms.it can make a big difference if say the package serving

size is like 50gms,and they put less than 1 gram or 0...when in actuality

its like .75...cuz then per100 its 1.5 grams of carb....I donno...I dont

trust their carb counts at loweramounts. This just happened on the

spectrum mayo numbers. they canput 0 because its below 1 gram

carb on 14 serving...but if you lookat the numbers I got from teh manufacturer

per 100 it made a hugeratio difference!!!cyaBarb...s mom

"The Ketogenic Diet....a realistic treatment option, NOT

just a last resort!"

List is for parent to parent support only.

It is important to get medical advice from a professional keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

We are currently decreasing the depakote and adding Topomax. Our neuro would not let us try the diet while on depakote so we are switching to Topamax. lin was up to 9 capsules of the 125 mg sprinkles. We have been cutting out one capsule every three days. That is pretty quick considering we increased one capsule a week when we were starting on depakote. But we haven't noticed too many difficulties with going down this quickly. He is still having 5 - 10 drops a day which is how many he usually has. He is a little weepy. We're hoping that the Topamax will do the trick (we're up to 3 capsules so far) but if not, we'll be starting the diet.

take care,

kathy

Reply-To: ketogenic

Date: Sat, 08 Sep 2001 07:07:27 -0300

To: ketogenic

Subject: Re: new to the group

Hi Jeni

I'm sure you will get lots of advice on this one- many of us have gone through the dreaded dep wean. To me your wean schedule is pretty fast. When we weaned Mike off dep we started with 125 drop every two weeks . Like you our neuro suggested one every 5ive days but based one the advice of outhers on this list who had already done the wean we went slower. Dep is known to cause withdrawl in some kids. Sometimes it is an increase in seizures- (temporary) and sometines it is a increases in behavorial issues- either way if you take it slow there is not such a dramatic effect on the body and the child has time to adjust. I'n not sure how much dep you intend to drop. We had no problems with Mike until we got to the last two pillls- we were completely taking him off it due to liver toxicity. If you are jsut dropping a couple of sprinkles you should be OK- but don't panic if you see a couple of seizures- these are probably withdrawl and will go away. Some people actually open the sprinkle caps and pour 1/2 the contents over the food to allow the wean to go slower- we did this at the end of the wean.

Anyway enough rambling. I would bet that with even the drop in the first pill you will see some improvement in Mackenzie's eating. I wish you well. The feeding issue is so hard. At first I thought it was the diet or the food I was preparing- never thought it was the drugs. THings changed so quickly for us- I hope the same for you.

Faye

Jeni Mullett wrote:

Faye:I talked with out keto team today and we are going to reduce the Depakote. MaKenzie is on 250 TID and is only 23 lbs. They told me to cut back 125mg a day for 5 days and then another 125mg. Does this sound too fast? As much as I hate the drugs and want her off I am always so scared to cut back and possibly start having seizures again! Since she is on sprinkles I don't really know how you could go any slower than 125mg at a time? Any thoughts?Jeni

Re: new to the group

On Sun, 2 Sep 2001 16:33:44 -0500 " Jeni Mullett " writes: Hi! My name is Jeni and my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months. She has been doing great on it up until about 2 weeks ago. She has not been wanting to eat the fats and proteins. We have been able to maintain ketosis somehow and she is still seizure free but she can't go on eating like she is. (mostly oil, juice and some egg and of course her fruits) I was curious how high her ratio is?? to deep on ketosis could cause themto refuse foods. Also Depakote can cause her to me more acidic and wouldcontribute to this! coudnt tolerate a higher ratio while on Dep....toacidic! Also what about adding digestive enzymes?? if shesnot digesting foods properly and her tummy is upset, this might cause her to notwant to eat. I just started using the Stanford meal planner to do her plans myself but I'm not sure if I am entering new foods correctly. Can I just enter the # of grams in the serving and then the pro, carb and fat that is listed on the label or do I need to get the breakdown for 100g My own rule of thumb is whent the package has their serving size above 75, Iuse the numbers on the package and just type in the amounts. If the packageserving size is below 75, I call the manufacturer for their numbers per 100gms.it can make a big difference if say the package serving size is like 50gms,and they put less than 1 gram or 0...when in actuality its like .75...cuz then per100 its 1.5 grams of carb....I donno...I dont trust their carb counts at loweramounts. This just happened on the spectrum mayo numbers. they canput 0 because its below 1 gram carb on 14 serving...but if you lookat the numbers I got from teh manufacturer per 100 it made a hugeratio difference!!!cyaBarb...s mom

" The Ketogenic Diet....a realistic treatment option, NOT just a last resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

We are currently decreasing the depakote and adding Topomax. Our neuro would not let us try the diet while on depakote so we are switching to Topamax. lin was up to 9 capsules of the 125 mg sprinkles. We have been cutting out one capsule every three days. That is pretty quick considering we increased one capsule a week when we were starting on depakote. But we haven't noticed too many difficulties with going down this quickly. He is still having 5 - 10 drops a day which is how many he usually has. He is a little weepy. We're hoping that the Topamax will do the trick (we're up to 3 capsules so far) but if not, we'll be starting the diet.

take care,

kathy

Reply-To: ketogenic

Date: Sat, 08 Sep 2001 07:07:27 -0300

To: ketogenic

Subject: Re: new to the group

Hi Jeni

I'm sure you will get lots of advice on this one- many of us have gone through the dreaded dep wean. To me your wean schedule is pretty fast. When we weaned Mike off dep we started with 125 drop every two weeks . Like you our neuro suggested one every 5ive days but based one the advice of outhers on this list who had already done the wean we went slower. Dep is known to cause withdrawl in some kids. Sometimes it is an increase in seizures- (temporary) and sometines it is a increases in behavorial issues- either way if you take it slow there is not such a dramatic effect on the body and the child has time to adjust. I'n not sure how much dep you intend to drop. We had no problems with Mike until we got to the last two pillls- we were completely taking him off it due to liver toxicity. If you are jsut dropping a couple of sprinkles you should be OK- but don't panic if you see a couple of seizures- these are probably withdrawl and will go away. Some people actually open the sprinkle caps and pour 1/2 the contents over the food to allow the wean to go slower- we did this at the end of the wean.

Anyway enough rambling. I would bet that with even the drop in the first pill you will see some improvement in Mackenzie's eating. I wish you well. The feeding issue is so hard. At first I thought it was the diet or the food I was preparing- never thought it was the drugs. THings changed so quickly for us- I hope the same for you.

Faye

Jeni Mullett wrote:

Faye:I talked with out keto team today and we are going to reduce the Depakote. MaKenzie is on 250 TID and is only 23 lbs. They told me to cut back 125mg a day for 5 days and then another 125mg. Does this sound too fast? As much as I hate the drugs and want her off I am always so scared to cut back and possibly start having seizures again! Since she is on sprinkles I don't really know how you could go any slower than 125mg at a time? Any thoughts?Jeni

Re: new to the group

On Sun, 2 Sep 2001 16:33:44 -0500 " Jeni Mullett " writes: Hi! My name is Jeni and my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months. She has been doing great on it up until about 2 weeks ago. She has not been wanting to eat the fats and proteins. We have been able to maintain ketosis somehow and she is still seizure free but she can't go on eating like she is. (mostly oil, juice and some egg and of course her fruits) I was curious how high her ratio is?? to deep on ketosis could cause themto refuse foods. Also Depakote can cause her to me more acidic and wouldcontribute to this! coudnt tolerate a higher ratio while on Dep....toacidic! Also what about adding digestive enzymes?? if shesnot digesting foods properly and her tummy is upset, this might cause her to notwant to eat. I just started using the Stanford meal planner to do her plans myself but I'm not sure if I am entering new foods correctly. Can I just enter the # of grams in the serving and then the pro, carb and fat that is listed on the label or do I need to get the breakdown for 100g My own rule of thumb is whent the package has their serving size above 75, Iuse the numbers on the package and just type in the amounts. If the packageserving size is below 75, I call the manufacturer for their numbers per 100gms.it can make a big difference if say the package serving size is like 50gms,and they put less than 1 gram or 0...when in actuality its like .75...cuz then per100 its 1.5 grams of carb....I donno...I dont trust their carb counts at loweramounts. This just happened on the spectrum mayo numbers. they canput 0 because its below 1 gram carb on 14 serving...but if you lookat the numbers I got from teh manufacturer per 100 it made a hugeratio difference!!!cyaBarb...s mom

" The Ketogenic Diet....a realistic treatment option, NOT just a last resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

Thanks! I thought 5 days seemed fast too. From past experience we know that MaKenzie can respond to even little changes a great deal. We are going to go down 125 and then wait a week or two and see how she is doing before dropping the second. Our nurse thinks I'm so "funny" for wanting to go slower, but I just can't see going to fast and regretting it!!

Jeni

Re: new to the group On Sun, 2 Sep 2001 16:33:44 -0500 "Jeni Mullett" writes: Hi! My name is Jeni and my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months. She has been doing great on it up until about 2 weeks ago. She has not been wanting to eat the fats and proteins. We have been able to maintain ketosis somehow and she is still seizure free but she can't go on eating like she is. (mostly oil, juice and some egg and of course her fruits) I was curious how high her ratio is?? to deep on ketosis could cause themto refuse foods. Also Depakote can cause her to me more acidic and wouldcontribute to this! coudnt tolerate a higher ratio while on Dep....toacidic! Also what about adding digestive enzymes?? if shesnot digesting foods properly and her tummy is upset, this might cause her to notwant to eat. I just started using the Stanford meal planner to do her plans myself but I'm not sure if I am entering new foods correctly. Can I just enter the # of grams in the serving and then the pro, carb and fat that is listed on the label or do I need to get the breakdown for 100g My own rule of thumb is whent the package has their serving size above 75, Iuse the numbers on the package and just type in the amounts. If the packageserving size is below 75, I call the manufacturer for their numbers per 100gms.it can make a big difference if say the package serving size is like 50gms,and they put less than 1 gram or 0...when in actuality its like .75...cuz then per100 its 1.5 grams of carb....I donno...I dont trust their carb counts at loweramounts. This just happened on the spectrum mayo numbers. they canput 0 because its below 1 gram carb on 14 serving...but if you lookat the numbers I got from teh manufacturer per 100 it made a hugeratio difference!!!cyaBarb...s mom "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe

[Guest guest]

Thanks! I thought 5 days seemed fast too. From past experience we know that MaKenzie can respond to even little changes a great deal. We are going to go down 125 and then wait a week or two and see how she is doing before dropping the second. Our nurse thinks I'm so "funny" for wanting to go slower, but I just can't see going to fast and regretting it!!

Jeni

Re: new to the group On Sun, 2 Sep 2001 16:33:44 -0500 "Jeni Mullett" writes: Hi! My name is Jeni and my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months. She has been doing great on it up until about 2 weeks ago. She has not been wanting to eat the fats and proteins. We have been able to maintain ketosis somehow and she is still seizure free but she can't go on eating like she is. (mostly oil, juice and some egg and of course her fruits) I was curious how high her ratio is?? to deep on ketosis could cause themto refuse foods. Also Depakote can cause her to me more acidic and wouldcontribute to this! coudnt tolerate a higher ratio while on Dep....toacidic! Also what about adding digestive enzymes?? if shesnot digesting foods properly and her tummy is upset, this might cause her to notwant to eat. I just started using the Stanford meal planner to do her plans myself but I'm not sure if I am entering new foods correctly. Can I just enter the # of grams in the serving and then the pro, carb and fat that is listed on the label or do I need to get the breakdown for 100g My own rule of thumb is whent the package has their serving size above 75, Iuse the numbers on the package and just type in the amounts. If the packageserving size is below 75, I call the manufacturer for their numbers per 100gms.it can make a big difference if say the package serving size is like 50gms,and they put less than 1 gram or 0...when in actuality its like .75...cuz then per100 its 1.5 grams of carb....I donno...I dont trust their carb counts at loweramounts. This just happened on the spectrum mayo numbers. they canput 0 because its below 1 gram carb on 14 serving...but if you lookat the numbers I got from teh manufacturer per 100 it made a hugeratio difference!!!cyaBarb...s mom "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe

[Guest guest]

Thanks! I thought 5 days seemed fast too. From past experience we know that MaKenzie can respond to even little changes a great deal. We are going to go down 125 and then wait a week or two and see how she is doing before dropping the second. Our nurse thinks I'm so "funny" for wanting to go slower, but I just can't see going to fast and regretting it!!

Jeni

Re: new to the group On Sun, 2 Sep 2001 16:33:44 -0500 "Jeni Mullett" writes: Hi! My name is Jeni and my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months. She has been doing great on it up until about 2 weeks ago. She has not been wanting to eat the fats and proteins. We have been able to maintain ketosis somehow and she is still seizure free but she can't go on eating like she is. (mostly oil, juice and some egg and of course her fruits) I was curious how high her ratio is?? to deep on ketosis could cause themto refuse foods. Also Depakote can cause her to me more acidic and wouldcontribute to this! coudnt tolerate a higher ratio while on Dep....toacidic! Also what about adding digestive enzymes?? if shesnot digesting foods properly and her tummy is upset, this might cause her to notwant to eat. I just started using the Stanford meal planner to do her plans myself but I'm not sure if I am entering new foods correctly. Can I just enter the # of grams in the serving and then the pro, carb and fat that is listed on the label or do I need to get the breakdown for 100g My own rule of thumb is whent the package has their serving size above 75, Iuse the numbers on the package and just type in the amounts. If the packageserving size is below 75, I call the manufacturer for their numbers per 100gms.it can make a big difference if say the package serving size is like 50gms,and they put less than 1 gram or 0...when in actuality its like .75...cuz then per100 its 1.5 grams of carb....I donno...I dont trust their carb counts at loweramounts. This just happened on the spectrum mayo numbers. they canput 0 because its below 1 gram carb on 14 serving...but if you lookat the numbers I got from teh manufacturer per 100 it made a hugeratio difference!!!cyaBarb...s mom "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe

[Guest guest]

I know about Gwen's strange beliefs but I still think her first book

has some really good points. I don't agree with her on a lot of

things but her IE approach and looking to God to make it happen are

good.

>

> Hi there, I am new to this group. Hmmm, a little about me......I

used to be a big fan of the Weigh Down Workship (Gwen Shamblin). I was

pretty successful with that program, but she developed some strange

beliefs and over time her program became almost cultish (in my

opinion). So I found out about Intuitive Eating and it seems to be a

nice, happy medium. I just had a baby and am needing to lose some

major weight!!!!!!

>

[Guest guest]

I know about Gwen's strange beliefs but I still think her first book

has some really good points. I don't agree with her on a lot of

things but her IE approach and looking to God to make it happen are

good.

>

> Hi there, I am new to this group. Hmmm, a little about me......I

used to be a big fan of the Weigh Down Workship (Gwen Shamblin). I was

pretty successful with that program, but she developed some strange

beliefs and over time her program became almost cultish (in my

opinion). So I found out about Intuitive Eating and it seems to be a

nice, happy medium. I just had a baby and am needing to lose some

major weight!!!!!!

>

[Guest guest]

I know about Gwen's strange beliefs but I still think her first book

has some really good points. I don't agree with her on a lot of

things but her IE approach and looking to God to make it happen are

good.

>

> Hi there, I am new to this group. Hmmm, a little about me......I

used to be a big fan of the Weigh Down Workship (Gwen Shamblin). I was

pretty successful with that program, but she developed some strange

beliefs and over time her program became almost cultish (in my

opinion). So I found out about Intuitive Eating and it seems to be a

nice, happy medium. I just had a baby and am needing to lose some

major weight!!!!!!

>

[Guest guest]

Wecome and Congratulations on your baby! I think that the process of losing

baby weight

(I gained 65lb with my first, 60lbs with my second and 73lbs with my twins!) can

be the

most challenging when it comes to leaving diet mentality behind! You are so

smart for

deciding to start the IE process now! I hope that you'll find great support

here and success

with your IE journey!

>

> Hi there, I am new to this group. Hmmm, a little about me......I used to be a

big fan of

the Weigh Down Workship (Gwen Shamblin). I was pretty successful with that

program, but

she developed some strange beliefs and over time her program became almost

cultish (in

my opinion). So I found out about Intuitive Eating and it seems to be a nice,

happy

medium. I just had a baby and am needing to lose some major weight!!!!!!

>

[Guest guest]

Wecome and Congratulations on your baby! I think that the process of losing

baby weight

(I gained 65lb with my first, 60lbs with my second and 73lbs with my twins!) can

be the

most challenging when it comes to leaving diet mentality behind! You are so

smart for

deciding to start the IE process now! I hope that you'll find great support

here and success

with your IE journey!

>

> Hi there, I am new to this group. Hmmm, a little about me......I used to be a

big fan of

the Weigh Down Workship (Gwen Shamblin). I was pretty successful with that

program, but

she developed some strange beliefs and over time her program became almost

cultish (in

my opinion). So I found out about Intuitive Eating and it seems to be a nice,

happy

medium. I just had a baby and am needing to lose some major weight!!!!!!

>

[Guest guest]

Wecome and Congratulations on your baby! I think that the process of losing

baby weight

(I gained 65lb with my first, 60lbs with my second and 73lbs with my twins!) can

be the

most challenging when it comes to leaving diet mentality behind! You are so

smart for

deciding to start the IE process now! I hope that you'll find great support

here and success

with your IE journey!

>

> Hi there, I am new to this group. Hmmm, a little about me......I used to be a

big fan of

the Weigh Down Workship (Gwen Shamblin). I was pretty successful with that

program, but

she developed some strange beliefs and over time her program became almost

cultish (in

my opinion). So I found out about Intuitive Eating and it seems to be a nice,

happy

medium. I just had a baby and am needing to lose some major weight!!!!!!

>

[Guest guest]

Hi Julz,

I hope that IE sticks for you. Having a community for support has

really helped me, and I hope it helps you, too.

Congratulations on recognizing the eating habits that you have.

Recognizing habits is the first step to changing them.

Best wishes,

Amy

>

> I am new to this group and so happy that I found you! I had

> read " Intuitive Eating " years ago, but never found a support group

and

> always went back to dieting. I am to the point where I can " diet "

for

> about 1 week and then I rebel. I have been listening to my hunger

and

> fullness the last 4 days. I notice how many habits I have that

revolve

> around eating. Since I have been shopping for Christmas lately, I

> noticed how just a trip to the mall evokes eating thoughts. I am

not

> hungry, but I want to get a treat. I also notice that I want to

drive

> into Starbucks after I drop my daughter and her friend off at

school to

> treat myself to a hot chocolate, even when I am not hungry, like

it's a

> reward for myself and I am alone with the food. It is really an

eye

> opener to notice these habits. I love to see all the information

on

> this site. I feel like a " normal " person when I eat from hunger

and

> fullness. I know I have a lot to learn.

>

> Julz

>

[Guest guest]

I'm not sure what the group does? Write messages here? Read books about

intuitive eating?

Annie