Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Diane, Sorry that we all run across jerks who seem to forget that children have feeling too. Wish you were in East Tennessee, I'd fix you up the with best. Kathy in Tennessee Mom to - 6 - Keto kid since 02/00, Med free, seizures 95% reduced Mom to 'lil sis, a - 3 " Even to your old age and gray hairs I am He, I am He who will sustain you. I have made you and I will carry you; I will sustain you and I will rescue you. " Isaiah 46:4 On Wed, 13 Jun 2001 23:00:41 -0500 " Diane Wall " writes: > I have to tell you that I tried a new Ped yesturday. It is so > difficult to > get referred and I was so excited. I had Josh's files transferred. > He had > come down with a cold-=a nasty one and his ears hurt. > > The new Ped's first comments were-wow have I been waiting to meet > you. He > said in his 35 years of practice he has never seen anything like > this. He > said from his point of view the diet is entirely unmanageable. My > older son > was with us and quietly mentioned that we were approaching a year on > the > diet and that we were managing. He went on and on. Finally I asked > him to > check for an ear infection and when I had the prescription in > hand we > walked out. > > He made comments about it being a last resort, and the amount of > brain > damage from that amount of seizures must have been severe > etc........in > front of my kids. > > So now I am searching again for a Ped. Oh well, may-be one day the > diet > will be accepted as a much better alternative for intractable > epilepsy. > > Take care > Diane > Re: New to the group > > Date: Wed, 13 Jun 2001 09:24:57 -0600 > > > > Adele... > > > > I didn't address your question of how we decided to go on the > diet...not > > sure If I ever really covered that in the micro group either. Sev > was 10 > > months old and was not developing. He had been on 8 meds in > various > > combinations/doses and was have 38 seizures a day lasting up to 30 > minutes > > each. I found out about the diet on the internet and demanded > that we be > > able to give it a try. My neuro's response.... " You think your > miserable > > now...just wait till you get on that diet " I'll take this over > pumping > meds > > into Sev and halting his development any day! Once you settle > into it and > > accept it as your lifestyle, it's not that bad...I actually enjoy > it and > Sev > > likes his foods. Nan > > _________________________________________________________________ > > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > > > > _________________________________________________________________ > > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a > last > resort! " > > > > List is for parent to parent support only. > > It is important to get medical advice from a > professional > keto team! > > Subscribe: ketogenic-subscribe > > Unsubscribe: > ketogenic-unsubscribe > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2001 Report Share Posted September 2, 2001 Jeni There are all kinds of recipes floating around. Why don't you tell us what she liked to eat pre-diet and maybe we can give you some ideas? What ratio is she on? I had a terrible time getting Jess to eat for the first nine months of the diet, lowered the ratio a little bit so we could incorporate starches and bingo! no more problems. Looking back and knowing what I know now I actually think she was too ketotic and too acidic which really makes them not want to eat , mom of (8), ketokid since 2/98 Jeni Mullett wrote: Hi! My name is Jeni and my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months. She has been doing great on it up until about 2 weeks ago. She has not been wanting to eat the fats and proteins. We have been able to maintain ketosis somehow and she is still seizure free but she can't go on eating like she is. (mostly oil, juice and some egg and of course her fruits) I just started using the Stanford meal planner to do her plans myself but I'm not sure if I am entering new foods correctly. Can I just enter the # of grams in the serving and then the pro, carb and fat that is listed on the label or do I need to get the breakdown for 100g? I'm sure this sounds really dumb, but I want to make sure I am doing it right! Also any suggestions for where to find more normal like meals would be great! I'm getting really discouraged but she is sooo much better on the diet and we are trying to wean her meds (Phenobarb and then Depakote). She gets better with each decrease!! I can't bring myself to even think about giving up! Sorry I didn't mean to be so long! I would greatly appreciate any help!Jeni (mom to MaKenzie 2.6 Keto kid and Bo 5) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2001 Report Share Posted September 2, 2001 Jeni, When I add a food into the "food values" section of the meal planner, I enter whatever the values are on the label...... example, the serving size may be 54 grams according to the label, so I enter that, and then the protein, fat and carb values, then as soon as you enter those, the program automatically converts it to what the values are per 100 grams. Patti, mom to Katera new to the group Hi! My name is Jeni and my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months. She has been doing great on it up until about 2 weeks ago. She has not been wanting to eat the fats and proteins. We have been able to maintain ketosis somehow and she is still seizure free but she can't go on eating like she is. (mostly oil, juice and some egg and of course her fruits) I just started using the Stanford meal planner to do her plans myself but I'm not sure if I am entering new foods correctly. Can I just enter the # of grams in the serving and then the pro, carb and fat that is listed on the label or do I need to get the breakdown for 100g? I'm sure this sounds really dumb, but I want to make sure I am doing it right! Also any suggestions for where to find more normal like meals would be great! I'm getting really discouraged but she is sooo much better on the diet and we are trying to wean her meds (Phenobarb and then Depakote). She gets better with each decrease!! I can't bring myself to even think about giving up! Sorry I didn't mean to be so long! I would greatly appreciate any help! Jeni (mom to MaKenzie 2.6 Keto kid and Bo 5) "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2001 Report Share Posted September 3, 2001 jeni... There are many recipes that the families on the list have found success with at the group site http://groups.yahoo.com/group/ketogenic/files Open the folders dealing with recipes...there are meals, snacks, deserts, etc. Hopefully some of this helps. Nan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2001 Report Share Posted September 3, 2001 jeni... There are many recipes that the families on the list have found success with at the group site http://groups.yahoo.com/group/ketogenic/files Open the folders dealing with recipes...there are meals, snacks, deserts, etc. Hopefully some of this helps. Nan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2001 Report Share Posted September 3, 2001 jeni... There are many recipes that the families on the list have found success with at the group site http://groups.yahoo.com/group/ketogenic/files Open the folders dealing with recipes...there are meals, snacks, deserts, etc. Hopefully some of this helps. Nan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2001 Report Share Posted September 3, 2001 Jeni, Welcome to our list. Yes, it sounds like you are doing the new food calculations correctly. Some mothers call the manufacturer and get the info per 100g, but I use the serving size, like you do. We get the fats into by making a pudding (coconut milk, oils, flavoring, and stevia-an herbal sweetener). We blend these and then freeze them. loves this " pudding. " Also, an idea about the protein: we've just started using some all-natural hotdogs (Shelton's brand). You find them in the frozen food section at a health food store. loves them (And I don't worry about the additives). Hang in there. Has she lost some weight? Maybe her calories need to be adjusted. Just a thought. Kathy in Tennessee Mom to - 6 - Keto kid since 02/00, Med free, seizures 95% reduced Mom to 'lil sis, a - 3 " Even to your old age and gray hairs I am He, I am He who will sustain you. I have made you and I will carry you; I will sustain you and I will rescue you. " Isaiah 46:4 On Sun, 2 Sep 2001 16:33:44 -0500 " Jeni Mullett " writes: > Hi! My name is Jeni and my daughter MaKenzie is 2 1/2. She has been > on the diet for 4 months. She has been doing great on it up until > about 2 weeks ago. She has not been wanting to eat the fats and > proteins. We have been able to maintain ketosis somehow and she is > still seizure free but she can't go on eating like she is. (mostly > oil, juice and some egg and of course her fruits) I just started > using the Stanford meal planner to do her plans myself but I'm not > sure if I am entering new foods correctly. Can I just enter the # > of grams in the serving and then the pro, carb and fat that is > listed on the label or do I need to get the breakdown for 100g? I'm > sure this sounds really dumb, but I want to make sure I am doing it > right! Also any suggestions for where to find more normal like > meals would be great! I'm getting really discouraged but she is > sooo much better on the diet and we are trying to wean her meds > (Phenobarb and then Depakote). She gets better with each decrease!! > I can't bring myself to even think about giving up! Sorry I didn't > mean to be so long! I would greatly appreciate any help! > Jeni (mom to MaKenzie 2.6 Keto kid and Bo 5) ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2001 Report Share Posted September 3, 2001 Jeni, Welcome to our list. Yes, it sounds like you are doing the new food calculations correctly. Some mothers call the manufacturer and get the info per 100g, but I use the serving size, like you do. We get the fats into by making a pudding (coconut milk, oils, flavoring, and stevia-an herbal sweetener). We blend these and then freeze them. loves this " pudding. " Also, an idea about the protein: we've just started using some all-natural hotdogs (Shelton's brand). You find them in the frozen food section at a health food store. loves them (And I don't worry about the additives). Hang in there. Has she lost some weight? Maybe her calories need to be adjusted. Just a thought. Kathy in Tennessee Mom to - 6 - Keto kid since 02/00, Med free, seizures 95% reduced Mom to 'lil sis, a - 3 " Even to your old age and gray hairs I am He, I am He who will sustain you. I have made you and I will carry you; I will sustain you and I will rescue you. " Isaiah 46:4 On Sun, 2 Sep 2001 16:33:44 -0500 " Jeni Mullett " writes: > Hi! My name is Jeni and my daughter MaKenzie is 2 1/2. She has been > on the diet for 4 months. She has been doing great on it up until > about 2 weeks ago. She has not been wanting to eat the fats and > proteins. We have been able to maintain ketosis somehow and she is > still seizure free but she can't go on eating like she is. (mostly > oil, juice and some egg and of course her fruits) I just started > using the Stanford meal planner to do her plans myself but I'm not > sure if I am entering new foods correctly. Can I just enter the # > of grams in the serving and then the pro, carb and fat that is > listed on the label or do I need to get the breakdown for 100g? I'm > sure this sounds really dumb, but I want to make sure I am doing it > right! Also any suggestions for where to find more normal like > meals would be great! I'm getting really discouraged but she is > sooo much better on the diet and we are trying to wean her meds > (Phenobarb and then Depakote). She gets better with each decrease!! > I can't bring myself to even think about giving up! Sorry I didn't > mean to be so long! I would greatly appreciate any help! > Jeni (mom to MaKenzie 2.6 Keto kid and Bo 5) ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2001 Report Share Posted September 3, 2001 Jeni, Welcome to our list. Yes, it sounds like you are doing the new food calculations correctly. Some mothers call the manufacturer and get the info per 100g, but I use the serving size, like you do. We get the fats into by making a pudding (coconut milk, oils, flavoring, and stevia-an herbal sweetener). We blend these and then freeze them. loves this " pudding. " Also, an idea about the protein: we've just started using some all-natural hotdogs (Shelton's brand). You find them in the frozen food section at a health food store. loves them (And I don't worry about the additives). Hang in there. Has she lost some weight? Maybe her calories need to be adjusted. Just a thought. Kathy in Tennessee Mom to - 6 - Keto kid since 02/00, Med free, seizures 95% reduced Mom to 'lil sis, a - 3 " Even to your old age and gray hairs I am He, I am He who will sustain you. I have made you and I will carry you; I will sustain you and I will rescue you. " Isaiah 46:4 On Sun, 2 Sep 2001 16:33:44 -0500 " Jeni Mullett " writes: > Hi! My name is Jeni and my daughter MaKenzie is 2 1/2. She has been > on the diet for 4 months. She has been doing great on it up until > about 2 weeks ago. She has not been wanting to eat the fats and > proteins. We have been able to maintain ketosis somehow and she is > still seizure free but she can't go on eating like she is. (mostly > oil, juice and some egg and of course her fruits) I just started > using the Stanford meal planner to do her plans myself but I'm not > sure if I am entering new foods correctly. Can I just enter the # > of grams in the serving and then the pro, carb and fat that is > listed on the label or do I need to get the breakdown for 100g? I'm > sure this sounds really dumb, but I want to make sure I am doing it > right! Also any suggestions for where to find more normal like > meals would be great! I'm getting really discouraged but she is > sooo much better on the diet and we are trying to wean her meds > (Phenobarb and then Depakote). She gets better with each decrease!! > I can't bring myself to even think about giving up! Sorry I didn't > mean to be so long! I would greatly appreciate any help! > Jeni (mom to MaKenzie 2.6 Keto kid and Bo 5) ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2001 Report Share Posted September 4, 2001 On Sun, 2 Sep 2001 16:33:44 -0500 "Jeni Mullett" writes: Hi! My name is Jeni and my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months. She has been doing great on it up until about 2 weeks ago. She has not been wanting to eat the fats and proteins. We have been able to maintain ketosis somehow and she is still seizure free but she can't go on eating like she is. (mostly oil, juice and some egg and of course her fruits) I was curious how high her ratio is?? to deep on ketosis could cause them to refuse foods. Also Depakote can cause her to me more acidic and would contribute to this! coudnt tolerate a higher ratio while on Dep....to acidic! Also what about adding digestive enzymes?? if shes not digesting foods properly and her tummy is upset, this might cause her to not want to eat. I just started using the Stanford meal planner to do her plans myself but I'm not sure if I am entering new foods correctly. Can I just enter the # of grams in the serving and then the pro, carb and fat that is listed on the label or do I need to get the breakdown for 100g My own rule of thumb is whent the package has their serving size above 75, I use the numbers on the package and just type in the amounts. If the package serving size is below 75, I call the manufacturer for their numbers per 100gms. it can make a big difference if say the package serving size is like 50gms, and they put less than 1 gram or 0...when in actuality its like .75...cuz then per 100 its 1.5 grams of carb....I donno...I dont trust their carb counts at lower amounts. This just happened on the spectrum mayo numbers. they can put 0 because its below 1 gram carb on 14 serving...but if you look at the numbers I got from teh manufacturer per 100 it made a huge ratio difference!!! cya Barb...s mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2001 Report Share Posted September 4, 2001 On Sun, 2 Sep 2001 16:33:44 -0500 "Jeni Mullett" writes: Hi! My name is Jeni and my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months. She has been doing great on it up until about 2 weeks ago. She has not been wanting to eat the fats and proteins. We have been able to maintain ketosis somehow and she is still seizure free but she can't go on eating like she is. (mostly oil, juice and some egg and of course her fruits) I was curious how high her ratio is?? to deep on ketosis could cause them to refuse foods. Also Depakote can cause her to me more acidic and would contribute to this! coudnt tolerate a higher ratio while on Dep....to acidic! Also what about adding digestive enzymes?? if shes not digesting foods properly and her tummy is upset, this might cause her to not want to eat. I just started using the Stanford meal planner to do her plans myself but I'm not sure if I am entering new foods correctly. Can I just enter the # of grams in the serving and then the pro, carb and fat that is listed on the label or do I need to get the breakdown for 100g My own rule of thumb is whent the package has their serving size above 75, I use the numbers on the package and just type in the amounts. If the package serving size is below 75, I call the manufacturer for their numbers per 100gms. it can make a big difference if say the package serving size is like 50gms, and they put less than 1 gram or 0...when in actuality its like .75...cuz then per 100 its 1.5 grams of carb....I donno...I dont trust their carb counts at lower amounts. This just happened on the spectrum mayo numbers. they can put 0 because its below 1 gram carb on 14 serving...but if you look at the numbers I got from teh manufacturer per 100 it made a huge ratio difference!!! cya Barb...s mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2001 Report Share Posted September 5, 2001 Her ratio was at 2.5:1 and her ketones have been large in the morning and extra large at night. We talked with ouru team yesterday and lowered her to 2.3:1. So hopefully she will start eating better. She did eat breakfast and lunch today fairly well but at dinner she refused everything I offered except for grapes, OJ and oil. I think if we can get her ketones down she'll be better. I didn't know the Dep could cause her to be more acidic. That could be contributing too. We just had her levels checked Mon. and her Dep has gone from 48 to 104 in just a month due to the Phenb wean. We continue to pray that her ketones lower soon and she starts eating well again. I am getting so discouraged. Re: new to the group On Sun, 2 Sep 2001 16:33:44 -0500 "Jeni Mullett" writes: Hi! My name is Jeni and my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months. She has been doing great on it up until about 2 weeks ago. She has not been wanting to eat the fats and proteins. We have been able to maintain ketosis somehow and she is still seizure free but she can't go on eating like she is. (mostly oil, juice and some egg and of course her fruits) I was curious how high her ratio is?? to deep on ketosis could cause them to refuse foods. Also Depakote can cause her to me more acidic and would contribute to this! coudnt tolerate a higher ratio while on Dep....to acidic! Also what about adding digestive enzymes?? if shes not digesting foods properly and her tummy is upset, this might cause her to not want to eat. I just started using the Stanford meal planner to do her plans myself but I'm not sure if I am entering new foods correctly. Can I just enter the # of grams in the serving and then the pro, carb and fat that is listed on the label or do I need to get the breakdown for 100g My own rule of thumb is whent the package has their serving size above 75, I use the numbers on the package and just type in the amounts. If the package serving size is below 75, I call the manufacturer for their numbers per 100gms. it can make a big difference if say the package serving size is like 50gms, and they put less than 1 gram or 0...when in actuality its like .75...cuz then per 100 its 1.5 grams of carb....I donno...I dont trust their carb counts at lower amounts. This just happened on the spectrum mayo numbers. they can put 0 because its below 1 gram carb on 14 serving...but if you look at the numbers I got from teh manufacturer per 100 it made a huge ratio difference!!! cya Barb...s mom "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2001 Report Share Posted September 5, 2001 Her ratio was at 2.5:1 and her ketones have been large in the morning and extra large at night. We talked with ouru team yesterday and lowered her to 2.3:1. So hopefully she will start eating better. She did eat breakfast and lunch today fairly well but at dinner she refused everything I offered except for grapes, OJ and oil. I think if we can get her ketones down she'll be better. I didn't know the Dep could cause her to be more acidic. That could be contributing too. We just had her levels checked Mon. and her Dep has gone from 48 to 104 in just a month due to the Phenb wean. We continue to pray that her ketones lower soon and she starts eating well again. I am getting so discouraged. Re: new to the group On Sun, 2 Sep 2001 16:33:44 -0500 "Jeni Mullett" writes: Hi! My name is Jeni and my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months. She has been doing great on it up until about 2 weeks ago. She has not been wanting to eat the fats and proteins. We have been able to maintain ketosis somehow and she is still seizure free but she can't go on eating like she is. (mostly oil, juice and some egg and of course her fruits) I was curious how high her ratio is?? to deep on ketosis could cause them to refuse foods. Also Depakote can cause her to me more acidic and would contribute to this! coudnt tolerate a higher ratio while on Dep....to acidic! Also what about adding digestive enzymes?? if shes not digesting foods properly and her tummy is upset, this might cause her to not want to eat. I just started using the Stanford meal planner to do her plans myself but I'm not sure if I am entering new foods correctly. Can I just enter the # of grams in the serving and then the pro, carb and fat that is listed on the label or do I need to get the breakdown for 100g My own rule of thumb is whent the package has their serving size above 75, I use the numbers on the package and just type in the amounts. If the package serving size is below 75, I call the manufacturer for their numbers per 100gms. it can make a big difference if say the package serving size is like 50gms, and they put less than 1 gram or 0...when in actuality its like .75...cuz then per 100 its 1.5 grams of carb....I donno...I dont trust their carb counts at lower amounts. This just happened on the spectrum mayo numbers. they can put 0 because its below 1 gram carb on 14 serving...but if you look at the numbers I got from teh manufacturer per 100 it made a huge ratio difference!!! cya Barb...s mom "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2001 Report Share Posted September 5, 2001 Thanks for the advice on the calculations! We do think she is too ketonic and just dropped her ratio to 2.3:1 yesterday so hopefully she will start wanting to eat soon!! What do you do when your daughter doesn't want to eat? Makenzie has not had any vomiting but will refuse anything but fruits and oil and OJ. If she doesn't eat won't she just get more ketonic? Should I just let her eat the fruit or will that bring her completly out? Re: new to the group > Gotta totally agree with Barb here. . . I relied on > the Spectrum label numbers per 14 g and when I got the > right numbers thanks to Barb, you wouldn't have > believed how out of whack my meal plans were. When I > got things straightened out, I actually had to drop > the ratio to increase it (cuz' using the wrong > numbers, she was actually on a much lower ratio than > I'd thought -- like 2.5 actual compared to 3.8 which I > was calculating). She's doing much better, although > fighting the side effects of being too ketotic. Just > started eating again on Sunday after two days of > refusing food and throwing up what little she was > eating (sounds a little like your daughter -- perhaps > she's actually too ketotic, or may have an illness > coming on). I'll hang tight here and may even need to > drop a little lower. (Whispering here. . . the daily > night-time seizures have disappeared with this change. > . .although I know my daugther and this danged > disorder too well to get my hopes up too much!). > > Anyway, sorry to get off track. . .suffice it to say > that I'd get a little more exact on your calculations, > too. Best of luck and keep those questions coming! > You'll be overwhelmed for awhile and then be amazed at > how much knowledge you've accumulated -- posts that > didn't make any sense (like mine probably doesn't) -- > will make a lot of sense a few months from now. > > You're doing a great thing for your child.--D > > *** > > > My own rule of thumb is whent the package has their > > serving size above > > 75, I > > use the numbers on the package and just type in the > > amounts. If the > > package > > serving size is below 75, I call the manufacturer > > for their numbers per > > 100gms. > > it can make a big difference if say the package > > serving size is like > > 50gms, > > and they put less than 1 gram or 0...when in > > actuality its like .75...cuz > > then per > > 100 its 1.5 grams of carb....I donno...I dont trust > > their carb counts at > > lower > > amounts. This just happened on the spectrum mayo > > numbers. they can > > put 0 because its below 1 gram carb on 14 > > serving...but if you look > > at the numbers I got from teh manufacturer per 100 > > it made a huge > > ratio difference!!! > > ===== > DeEtte -- Mom to (, 6, keto-kid since 1/01, med-free, seizures greatly reduced) and (, 4), sdale, AZ > > " I know God would never give me more than I can handle. . .I just wish he didn't trust me so much. " > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2001 Report Share Posted September 5, 2001 Thanks for the advice on the calculations! We do think she is too ketonic and just dropped her ratio to 2.3:1 yesterday so hopefully she will start wanting to eat soon!! What do you do when your daughter doesn't want to eat? Makenzie has not had any vomiting but will refuse anything but fruits and oil and OJ. If she doesn't eat won't she just get more ketonic? Should I just let her eat the fruit or will that bring her completly out? Re: new to the group > Gotta totally agree with Barb here. . . I relied on > the Spectrum label numbers per 14 g and when I got the > right numbers thanks to Barb, you wouldn't have > believed how out of whack my meal plans were. When I > got things straightened out, I actually had to drop > the ratio to increase it (cuz' using the wrong > numbers, she was actually on a much lower ratio than > I'd thought -- like 2.5 actual compared to 3.8 which I > was calculating). She's doing much better, although > fighting the side effects of being too ketotic. Just > started eating again on Sunday after two days of > refusing food and throwing up what little she was > eating (sounds a little like your daughter -- perhaps > she's actually too ketotic, or may have an illness > coming on). I'll hang tight here and may even need to > drop a little lower. (Whispering here. . . the daily > night-time seizures have disappeared with this change. > . .although I know my daugther and this danged > disorder too well to get my hopes up too much!). > > Anyway, sorry to get off track. . .suffice it to say > that I'd get a little more exact on your calculations, > too. Best of luck and keep those questions coming! > You'll be overwhelmed for awhile and then be amazed at > how much knowledge you've accumulated -- posts that > didn't make any sense (like mine probably doesn't) -- > will make a lot of sense a few months from now. > > You're doing a great thing for your child.--D > > *** > > > My own rule of thumb is whent the package has their > > serving size above > > 75, I > > use the numbers on the package and just type in the > > amounts. If the > > package > > serving size is below 75, I call the manufacturer > > for their numbers per > > 100gms. > > it can make a big difference if say the package > > serving size is like > > 50gms, > > and they put less than 1 gram or 0...when in > > actuality its like .75...cuz > > then per > > 100 its 1.5 grams of carb....I donno...I dont trust > > their carb counts at > > lower > > amounts. This just happened on the spectrum mayo > > numbers. they can > > put 0 because its below 1 gram carb on 14 > > serving...but if you look > > at the numbers I got from teh manufacturer per 100 > > it made a huge > > ratio difference!!! > > ===== > DeEtte -- Mom to (, 6, keto-kid since 1/01, med-free, seizures greatly reduced) and (, 4), sdale, AZ > > " I know God would never give me more than I can handle. . .I just wish he didn't trust me so much. " > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2001 Report Share Posted September 5, 2001 Oh, it's so tough when they won't eat. . .you can try egg nog or the chicken soup recipe in the files. . ..doesn't really do the trick for , though. To tell you the truth, I usually just ride it out and make sure she gets enough fluid. Can you whip the cream with flavor and freeze for ice cream? I've also found that will not drink cream when she's in this mode. . .so I have several meal plans that have no cream -- most of the fat comes from mayo or butter. At 2.3, you probably have a fair amount of carb -- could you make a type of Orange Julius using OJ, oil, cream and egg? Do you think she'd drink something like that with a fun straw or something. If you blended it, it might be a consistent ratio so that it didn't matter how much she'd drink. 's on too high a ratio for this to work, but at 2.3, you might be able to figure it. Good luck!--D *** What do you do when your > daughter doesn't want to > eat? ===== DeEtte -- Mom to (, 6, keto-kid since 1/01, med-free, seizures greatly reduced) and (, 4), sdale, AZ " I know God would never give me more than I can handle. . .I just wish he didn't trust me so much. " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2001 Report Share Posted September 6, 2001 Hi Jeni When my son was on Depakote he refused to eat. His dep levels were high and he was becoming toxic. At this time meals were horrendous- took a couple of hours to just finish one meal, with tons of bribery,tears and fighting- this was a really bad time for us. It started to improve with dropping the first depakote- he started to eat again. Did not stop completely untiil all the dep was gone but think about the drug as your problem. During this time I changed calories, ratios whatever I could to try to gethim less acidotic- although he never really was too acidotic. Nothing helped until we reduced drugs. Depakote makes some kids anorexic at high doses. Faye Jeni Mullett wrote: Her ratio was at 2.5:1 and her ketones have been large in the morning and extra large at night. We talked with ouru team yesterday and lowered her to 2.3:1. So hopefully she will start eating better. She did eat breakfast and lunch today fairly well but at dinner she refused everything I offered except for grapes, OJ and oil. I think if we can get her ketones down she'll be better. I didn't know the Dep could cause her to be more acidic. That could be contributing too. We just had her levels checked Mon. and her Dep has gone from 48 to 104 in just a month due to the Phenb wean. We continue to pray that her ketones lower soon and she starts eating well again. I am getting so discouraged. Re: new to the group On Sun, 2 Sep 2001 16:33:44 -0500 "Jeni Mullett" writes: Hi! My name is Jeni and my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months. She has been doing great on it up until about 2 weeks ago. She has not been wanting to eat the fats and proteins. We have been able to maintain ketosis somehow and she is still seizure free but she can't go on eating like she is. (mostly oil, juice and some egg and of course her fruits) I was curious how high her ratio is?? to deep on ketosis could cause themto refuse foods. Also Depakote can cause her to me more acidic and wouldcontribute to this! coudnt tolerate a higher ratio while on Dep....toacidic! Also what about adding digestive enzymes?? if shesnot digesting foods properly and her tummy is upset, this might cause her to notwant to eat. I just started using the Stanford meal planner to do her plans myself but I'm not sure if I am entering new foods correctly. Can I just enter the # of grams in the serving and then the pro, carb and fat that is listed on the label or do I need to get the breakdown for 100g My own rule of thumb is whent the package has their serving size above 75, Iuse the numbers on the package and just type in the amounts. If the packageserving size is below 75, I call the manufacturer for their numbers per 100gms.it can make a big difference if say the package serving size is like 50gms,and they put less than 1 gram or 0...when in actuality its like .75...cuz then per100 its 1.5 grams of carb....I donno...I dont trust their carb counts at loweramounts. This just happened on the spectrum mayo numbers. they canput 0 because its below 1 gram carb on 14 serving...but if you lookat the numbers I got from teh manufacturer per 100 it made a hugeratio difference!!!cyaBarb...s mom "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2001 Report Share Posted September 6, 2001 Hi Jeni When my son was on Depakote he refused to eat. His dep levels were high and he was becoming toxic. At this time meals were horrendous- took a couple of hours to just finish one meal, with tons of bribery,tears and fighting- this was a really bad time for us. It started to improve with dropping the first depakote- he started to eat again. Did not stop completely untiil all the dep was gone but think about the drug as your problem. During this time I changed calories, ratios whatever I could to try to gethim less acidotic- although he never really was too acidotic. Nothing helped until we reduced drugs. Depakote makes some kids anorexic at high doses. Faye Jeni Mullett wrote: Her ratio was at 2.5:1 and her ketones have been large in the morning and extra large at night. We talked with ouru team yesterday and lowered her to 2.3:1. So hopefully she will start eating better. She did eat breakfast and lunch today fairly well but at dinner she refused everything I offered except for grapes, OJ and oil. I think if we can get her ketones down she'll be better. I didn't know the Dep could cause her to be more acidic. That could be contributing too. We just had her levels checked Mon. and her Dep has gone from 48 to 104 in just a month due to the Phenb wean. We continue to pray that her ketones lower soon and she starts eating well again. I am getting so discouraged. Re: new to the group On Sun, 2 Sep 2001 16:33:44 -0500 "Jeni Mullett" writes: Hi! My name is Jeni and my daughter MaKenzie is 2 1/2. She has been on the diet for 4 months. She has been doing great on it up until about 2 weeks ago. She has not been wanting to eat the fats and proteins. We have been able to maintain ketosis somehow and she is still seizure free but she can't go on eating like she is. (mostly oil, juice and some egg and of course her fruits) I was curious how high her ratio is?? to deep on ketosis could cause themto refuse foods. Also Depakote can cause her to me more acidic and wouldcontribute to this! coudnt tolerate a higher ratio while on Dep....toacidic! Also what about adding digestive enzymes?? if shesnot digesting foods properly and her tummy is upset, this might cause her to notwant to eat. I just started using the Stanford meal planner to do her plans myself but I'm not sure if I am entering new foods correctly. Can I just enter the # of grams in the serving and then the pro, carb and fat that is listed on the label or do I need to get the breakdown for 100g My own rule of thumb is whent the package has their serving size above 75, Iuse the numbers on the package and just type in the amounts. If the packageserving size is below 75, I call the manufacturer for their numbers per 100gms.it can make a big difference if say the package serving size is like 50gms,and they put less than 1 gram or 0...when in actuality its like .75...cuz then per100 its 1.5 grams of carb....I donno...I dont trust their carb counts at loweramounts. This just happened on the spectrum mayo numbers. they canput 0 because its below 1 gram carb on 14 serving...but if you lookat the numbers I got from teh manufacturer per 100 it made a hugeratio difference!!!cyaBarb...s mom "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2001 Report Share Posted September 6, 2001 Best wishes to you and , ..... I know you'll get a lot of support and encouragement here. Patti, mom to Katera age 5, Keto Kid since 10-10-2000..... med free.... last seizure (one with fever) in May '01. new to the group Hello. I have a 3yr.old boy starting on the diet at home. Doctor and nutri. from Vanderbilt Hospital, Nashville, TN will be following . has a feeding tube and he gets nothing by mouth. Child has a approx. 50-70 seizures a day and is on Phenobarb, Mysoline, Kepra, and Tegretal and still no control. We have tried all medications that our doctor knows to try so the ketogenic diet is what we are going to try now. Just waiting on all of formula and supplies to get started. , and , Kodak,TN. "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2001 Report Share Posted September 6, 2001 Best wishes to you and , ..... I know you'll get a lot of support and encouragement here. Patti, mom to Katera age 5, Keto Kid since 10-10-2000..... med free.... last seizure (one with fever) in May '01. new to the group Hello. I have a 3yr.old boy starting on the diet at home. Doctor and nutri. from Vanderbilt Hospital, Nashville, TN will be following . has a feeding tube and he gets nothing by mouth. Child has a approx. 50-70 seizures a day and is on Phenobarb, Mysoline, Kepra, and Tegretal and still no control. We have tried all medications that our doctor knows to try so the ketogenic diet is what we are going to try now. Just waiting on all of formula and supplies to get started. , and , Kodak,TN. "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2001 Report Share Posted September 6, 2001 Best wishes to you and , ..... I know you'll get a lot of support and encouragement here. Patti, mom to Katera age 5, Keto Kid since 10-10-2000..... med free.... last seizure (one with fever) in May '01. new to the group Hello. I have a 3yr.old boy starting on the diet at home. Doctor and nutri. from Vanderbilt Hospital, Nashville, TN will be following . has a feeding tube and he gets nothing by mouth. Child has a approx. 50-70 seizures a day and is on Phenobarb, Mysoline, Kepra, and Tegretal and still no control. We have tried all medications that our doctor knows to try so the ketogenic diet is what we are going to try now. Just waiting on all of formula and supplies to get started. , and , Kodak,TN. "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2001 Report Share Posted September 6, 2001 Hi, Can you reduce or eliminate any meds before starting the diet? I would recommend it. Be very careful about eliminating tegretol. We ended up in emergency with status. Good luck, Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2001 Report Share Posted September 6, 2001 Hi, Can you reduce or eliminate any meds before starting the diet? I would recommend it. Be very careful about eliminating tegretol. We ended up in emergency with status. Good luck, Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2001 Report Share Posted September 6, 2001 Hi, Can you reduce or eliminate any meds before starting the diet? I would recommend it. Be very careful about eliminating tegretol. We ended up in emergency with status. Good luck, Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2001 Report Share Posted September 6, 2001 I hadn't thought of the OJ drink! She never has been willing to drink the cream or the egg nog. But she didn't like milk before the diet either so we weren't surprised. The only way she would take the cream was when I frozen into little bite size ice cube trays with flavor and sweetner. But she started refusing those when we started having so much trouble finding anything she will eat. Rubbermaid makes great trays for this. They have fruit shapes, space shapes and cards (hearts, diamond, spades) SHe really liked these for a while. Thanks for the OJ idea! Jeni Re: new to the group > Oh, it's so tough when they won't eat. . .you can try > egg nog or the chicken soup recipe in the files. . > .doesn't really do the trick for , though. To > tell you the truth, I usually just ride it out and > make sure she gets enough fluid. Can you whip the > cream with flavor and freeze for ice cream? I've also > found that will not drink cream when she's in > this mode. . .so I have several meal plans that have > no cream -- most of the fat comes from mayo or butter. > At 2.3, you probably have a fair amount of carb -- > could you make a type of Orange Julius using OJ, oil, > cream and egg? Do you think she'd drink something > like that with a fun straw or something. If you > blended it, it might be a consistent ratio so that it > didn't matter how much she'd drink. 's on too > high a ratio for this to work, but at 2.3, you might > be able to figure it. Good luck!--D > > *** > What do you do when your > > daughter doesn't want to > > eat? > > ===== > DeEtte -- Mom to (, 6, keto-kid since 1/01, med-free, seizures greatly reduced) and (, 4), sdale, AZ > > " I know God would never give me more than I can handle. . .I just wish he didn't trust me so much. " > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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