Guest guest Posted May 4, 1998 Report Share Posted May 4, 1998 Sue, good is home! What is psuedo, I know the word means false but I don't understand what it means in referance to the trache. S. 's home! > > >Hi Everyone, > I just wanted to let you all know is finally home. He's in >watching the new Mc movie as I type. ) The ped still isn't >really sure what, if anything, had. He said could have just >been colonized with pseudo and not had a real infection. His white cell >count was normal and other than one time, he didn't run a fever. We did >decide to change the trach more often--once every 2 or 3 weeks instead of >once a month. Maybe that will help keep the pseudo at bay. I did want to >extend a big thank-you to everyone who sent well wishes and those who >thought about us but just didn't have time to e. ) Your thoughtfullness >is appreciated. Take care everyone... > >Sue ( & Jack)-worn out parents to the greatest kids on earth-- >Chris-8: Leigh's Disease, MR (mild), hypotonia, non-walker/talker >-7: Leigh's Disease, MR (mild), hypotonia, non-walker/talker, trach >tube (tracheomalasia), g-tube/fundo http://jscb.home.mindspring.com > > >------------------------------------------------------------------------ >Congratulations to TOWERSHIGH, our latest ONElist of the Week. >http://www.onelist.com >Visit our homepage and share with us how ONElist is changing YOUR life! >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 1998 Report Share Posted May 4, 1998 Thanks for explaining Sue. S. Re: 's home! > > >Hi , > I'm sorry, I should have spelled it out. I was talking about >psuedomonas. It's a nasty bacteria that everyone has, but I guess kids with >trachs are quite suceptable (I can't spell tonight!) to it colonizing and/or >it overloading the trachea causing tracheitis or other trach infections. It >loves moist places and is a real hard thing to get rid of. That's my best >understanding of it. ) > >Sue & Jack-worn out parents to the greatest kids on earth-- >Chris-8: Leigh's Disease, MR (mild), hypotonia, non-walker/talker >-7: Leigh's Disease, MR (mild), hypotonia, non-walker/talker, trach >tube (tracheomalasia), g-tube/fundo http://jscb.home.mindspring.com > > >------------------------------------------------------------------------ >ONElist: Where Star Wars fans unite! >http://www.onelist.com >Find your Star Wars list today! >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 1999 Report Share Posted May 4, 1999 Hi , I'm sorry, I should have spelled it out. I was talking about psuedomonas. It's a nasty bacteria that everyone has, but I guess kids with trachs are quite suceptable (I can't spell tonight!) to it colonizing and/or it overloading the trachea causing tracheitis or other trach infections. It loves moist places and is a real hard thing to get rid of. That's my best understanding of it. ) Sue & Jack-worn out parents to the greatest kids on earth-- Chris-8: Leigh's Disease, MR (mild), hypotonia, non-walker/talker -7: Leigh's Disease, MR (mild), hypotonia, non-walker/talker, trach tube (tracheomalasia), g-tube/fundo http://jscb.home.mindspring.com Quote Link to comment Share on other sites More sharing options...
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