Guest guest Posted May 17, 1999 Report Share Posted May 17, 1999 In a message dated 5/15/99 10:21:29 PM Pacific Daylight Time, mitodad@... writes: << So Kate, don't worry too much about what you were told about Complex II. A lot can happen, and in reality, none of us have a prognosis - mito or not. An accident can happen at any moment! ------------ Ken >> Dear Ken, You had my hopes up so high by your subject line!!!! Take the right antacid, and the prognosis will improve!!! Staci and I are both on the Prevacid, that works like Prilosec, but has smaller granules that go through the cath-tip syringe and bolus ext. tube for her Mic-Key button. Actually, we went to Abilities Expo today, and bought Staci a real sign of progress: A Rifton Blue Wave Potty Chair, like they use at Kindergarden!! And the Magic Bullet Suppositories to bring about the Poopies that she'll do into the Blue Wave!! Our Nurse reported that she had a real gusher of a second poop--through the legs of the diaper and over the chux underpad. We're going to get a talking device, their show special of $899 is good to July. Will post in a few days re: what else was at Abil. Expo...or look at www.abilitiesexpo.com Take care, and God Bless each and every one! Love, Kate Echert, Long Beach, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 1999 Report Share Posted May 17, 1999 In a message dated 5/15/99 10:21:29 PM Pacific Daylight Time, mitodad@... writes: << So Kate, don't worry too much about what you were told about Complex II. A lot can happen, and in reality, none of us have a prognosis - mito or not. An accident can happen at any moment! ------------ Ken >> Dear Ken, You had my hopes up so high by your subject line!!!! Take the right antacid, and the prognosis will improve!!! Staci and I are both on the Prevacid, that works like Prilosec, but has smaller granules that go through the cath-tip syringe and bolus ext. tube for her Mic-Key button. Actually, we went to Abilities Expo today, and bought Staci a real sign of progress: A Rifton Blue Wave Potty Chair, like they use at Kindergarden!! And the Magic Bullet Suppositories to bring about the Poopies that she'll do into the Blue Wave!! Our Nurse reported that she had a real gusher of a second poop--through the legs of the diaper and over the chux underpad. We're going to get a talking device, their show special of $899 is good to July. Will post in a few days re: what else was at Abil. Expo...or look at www.abilitiesexpo.com Take care, and God Bless each and every one! Love, Kate Echert, Long Beach, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 1999 Report Share Posted May 17, 1999 In a message dated 5/15/99 10:21:29 PM Pacific Daylight Time, mitodad@... writes: << So Kate, don't worry too much about what you were told about Complex II. A lot can happen, and in reality, none of us have a prognosis - mito or not. An accident can happen at any moment! ------------ Ken >> Dear Ken, You had my hopes up so high by your subject line!!!! Take the right antacid, and the prognosis will improve!!! Staci and I are both on the Prevacid, that works like Prilosec, but has smaller granules that go through the cath-tip syringe and bolus ext. tube for her Mic-Key button. Actually, we went to Abilities Expo today, and bought Staci a real sign of progress: A Rifton Blue Wave Potty Chair, like they use at Kindergarden!! And the Magic Bullet Suppositories to bring about the Poopies that she'll do into the Blue Wave!! Our Nurse reported that she had a real gusher of a second poop--through the legs of the diaper and over the chux underpad. We're going to get a talking device, their show special of $899 is good to July. Will post in a few days re: what else was at Abil. Expo...or look at www.abilitiesexpo.com Take care, and God Bless each and every one! Love, Kate Echert, Long Beach, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 1999 Report Share Posted May 17, 1999 In a message dated 5/17/1999 2:18:40 AM Eastern Daylight Time, Ken writes: > and in reality, none of us have a prognosis - mito or not. > An accident can happen at any moment! Strange how this actually has an encouraging sound to it. (Grin.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 1999 Report Share Posted May 17, 1999 In a message dated 5/17/1999 2:18:40 AM Eastern Daylight Time, Ken writes: > and in reality, none of us have a prognosis - mito or not. > An accident can happen at any moment! Strange how this actually has an encouraging sound to it. (Grin.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 1999 Report Share Posted May 17, 1999 In a message dated 5/17/1999 2:18:40 AM Eastern Daylight Time, Ken writes: > and in reality, none of us have a prognosis - mito or not. > An accident can happen at any moment! Strange how this actually has an encouraging sound to it. (Grin.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 1999 Report Share Posted May 17, 1999 , You hit it on the head, why would this sound encouraging to us, that is so strange, yet it hit me the same way, almost like a deep relieved sigh feeling! S. Re: Prognosis and antacids\\Abilities Expo Finds >From: Arrants@... > >In a message dated 5/17/1999 2:18:40 AM Eastern Daylight Time, Ken writes: > >> and in reality, none of us have a prognosis - mito or not. >> An accident can happen at any moment! > >Strange how this actually has an encouraging sound to it. (Grin.) > > > >------------------------------------------------------------------------ >Are you hogging all the fun? >http://www.onelist.com >Friends tell friends about ONElist! >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
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