Guest guest Posted April 11, 2000 Report Share Posted April 11, 2000 Hi All, Well with or without insurance approval I have decided to go to Chicago for evaluation and possible surgery. I know this question has been asked about a million times so i apologize in advance to all the old members........... I need to somehow physically get this bedridden, wheelchair bound, extremely dizzy, orthostatically intolerant, dysautonomic body TO Chicago from Houston!!!!!!!!! I'm a " white knuckle " flyer partly because it brings about all my dysautonomia symptoms (racing heart, chest pain, anxiety,pre-syncope, low BP etc.) so I hesitate to fly. I have booked myself on the train which has a special " disabled " car, private bath and meals delivered. It is an 18 hour train ride plus a 5 hour ride to the train station. I was pretty sure this was the way to go but have since heard form a couple of people that the train motion will really exacerbate my dizziness and vertigo! Yikes what way is best???????? BEAM ME UP SCOTTY!!!!!!!! Any advice is greatly appreciated-as usual! Take care, nne Brainstem compression, " tight " foramen magnum, probable cervical stenosis,dysautonomia/POTS, peripheral neuropathy, MVPS etc. etc etc. Surgery scheduled with Dr. Heffez 4/26/00 Quote Link to comment Share on other sites More sharing options...
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