Sabril wean and supplements

[Guest guest]

Hi, all,

Just wanted to let you know that after the clonazepam and horrendous

withdrawal, we've broken through to the other side. What a difference. A

week with only 1 small seizure. Well, today we started the early a.m. out

with four biggies. So I guess the honeymoon is over. It may also be due

to the fact that she's getting congested with a cold. This weekend begins

the Sabril wean and anyone who's done that, PLEASE send any advice,

experience, etc.

Currently Esther takes 1 500mg pill twice a day. The neuro. suggested

cutting down the morning dose to 3/4 of a pill, and then cut off 1/4 of a

pill for each dose drop. However, he never said how much time to leave

between drops. I was thinking of 2 weeks for each would let us finish up

by New Years. Would this be too fast? Are there bad withdrawals with

Sabril? He didn't seem to know as much about a Sabril wean as he did about

clonazepam.

And with her cold, what do you all do for relief...immune building,

etc. The rest of us tank up on echinacea, colostrum and beat it. But

there are too many carbs in colostrum...don't know about echinacea. What

is something keto-friendly I could do to help? I don't want to just treat

the symptoms, although I'll do that to let her sleep at night.

Thanks to all.

mom of Esther (Aicardi syndrome)

----------------------------------------------------

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[Guest guest]

Hi ,

You must have had replies to this (I haven't been at the computer

for a while). My son came off Sabril after being on it for several

years, before we started the diet. In those days any drug weaned

off, was being replaced by another and we didn't see much

withdrwals except with Sabril. He rolled about on the floor and

was trying to 'escape from something' and was showing a lot of

partial behaviour. At the time we didn't know they were withdrawal

behaviours. Anyway he was taken to hospital from school by

ambulance, twice in one week. I don't know whether the problem was

because Rohan had been Sabril for a long time as well as it being one

of the best AEDs for him (while it worked)

I would go slow on weaning and time the time between drops in med

by how things are going.

Hope things go well for you.

Saro...Rohan's mum

Berke wrote:

Hi, all,

Just wanted to let you know that after the clonazepam and horrendous

withdrawal, we've broken through to the other side. What

a difference. A

week with only 1 small seizure. Well, today we started the

early a.m. out

with four biggies. So I guess the honeymoon is over.

It may also be due

to the fact that she's getting congested with a cold. This

weekend begins

the Sabril wean and anyone who's done that, PLEASE send any advice,

experience, etc.

Currently Esther takes 1 500mg pill twice a day. The neuro.

suggested

cutting down the morning dose to 3/4 of a pill, and then cut off

1/4 of a

pill for each dose drop. However, he never said how much

time to leave

between drops. I was thinking of 2 weeks for each would let

us finish up

by New Years. Would this be too fast? Are there bad

withdrawals with

Sabril? He didn't seem to know as much about a Sabril wean

as he did about

clonazepam.

And with her cold, what do you all do for relief...immune building,

etc. The rest of us tank up on echinacea, colostrum and beat

it. But

there are too many carbs in colostrum...don't know about echinacea.

What

is something keto-friendly I could do to help? I don't want

to just treat

the symptoms, although I'll do that to let her sleep at night.

Thanks to all.

mom of Esther (Aicardi syndrome)

----------------------------------------------------

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Sign Up Today - Only $9.95 per month!

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