Guest guest Posted June 14, 1999 Report Share Posted June 14, 1999 Today was recital day. Alycia was just beautiful with her hair all up in a bun and all dressed in white with sequins. She looked like a little angel! She and all the little girls did very will with their performance. They managed to perform some semblance of the routine, as much as one would expect from 4 year olds. They were all really adorable. It was so precious to see Alycia and her helper trailing along the end of the " fairy train " . The audience really clapped hard for them (the whole town knows Alycia). At the end, Alycia faced the audience and gave a bow which sent them roaring in laughter! The most heart reaching thing was when we were leaving, a boy who was probably about 12, tapped Alycia on the shoulder and gave her a thumbs up! The people in our town are just so supportive. Later, I ran into a woman that I knew from the Ed Reform committee. We were getting ice cream for Alycia and she said that was wonderful but that we should make sure that we give her juice or gatorade to replace her electrolytes. She said that just the heat would cause her to burn up calories and that chances are she lost alot fluids and electrolytes from sweating. I asked how she knew so much and she told me she was a dietician and worked with a child with mito disease. ....small world, isn't it? Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 1999 Report Share Posted June 15, 1999 Oh, Lori, I do remember those days...my Frances had her first ballet recital when she was 4, and they really were all over the place...Frances especially. Seems I recall her keeping one hand on her face most of the time. Her first costume was white, too! She was a French poodle, ears and all. One of the happiest things about your post was that it underscored just how much of a " normal " life Alycia has, even with the mito. Frances does not have mito, so far as we know, and yet your description of Alycia's recital put me right back into that auditorium of 10 years ago, watching my child on stage and hoping she wouldn't get too distracted! A wonderful memory...thank you. Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 1999 Report Share Posted June 15, 1999 Lori- Thanks for sharing Alycia's wonderful experience and pride you feel in being her mother. Laurie > Today was recital day. Alycia was just beautiful with her hair all up > in a bun and all dressed in white with sequins. She looked like a > little angel! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 1999 Report Share Posted June 15, 1999 Lori, I could just visualize Alycia out there all dressed up, I love the descriptive way you wrote. I am so happy you guys had a super time. S. The recital > > >Today was recital day. Alycia was just beautiful with her hair all up >in a bun and all dressed in white with sequins. She looked like a >little angel! > >She and all the little girls did very will with their performance. >They managed to perform some semblance of the routine, as much as one >would expect from 4 year olds. They were all really adorable. It was >so precious to see Alycia and her helper trailing along the end of the > " fairy train " . The audience really clapped hard for them (the whole >town knows Alycia). At the end, Alycia faced the audience and gave a >bow which sent them roaring in laughter! > >The most heart reaching thing was when we were leaving, a boy who was >probably about 12, tapped Alycia on the shoulder and gave her a thumbs >up! The people in our town are just so supportive. > >Later, I ran into a woman that I knew from the Ed Reform committee. >We were getting ice cream for Alycia and she said that was wonderful >but that we should make sure that we give her juice or gatorade to >replace her electrolytes. She said that just the heat would cause her >to burn up calories and that chances are she lost alot fluids and >electrolytes from sweating. I asked how she knew so much and she told >me she was a dietician and worked with a child with mito disease. >...small world, isn't it? > >Lori > > >------------------------------------------------------------------------ >Make your voice heard! >http://www.onelist.com >Sign up for the ONElist Weekly Survey. Go to homepage for details. >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 1999 Report Share Posted June 15, 1999 Lori, I could just visualize Alycia out there all dressed up, I love the descriptive way you wrote. I am so happy you guys had a super time. S. The recital > > >Today was recital day. Alycia was just beautiful with her hair all up >in a bun and all dressed in white with sequins. She looked like a >little angel! > >She and all the little girls did very will with their performance. >They managed to perform some semblance of the routine, as much as one >would expect from 4 year olds. They were all really adorable. It was >so precious to see Alycia and her helper trailing along the end of the > " fairy train " . The audience really clapped hard for them (the whole >town knows Alycia). At the end, Alycia faced the audience and gave a >bow which sent them roaring in laughter! > >The most heart reaching thing was when we were leaving, a boy who was >probably about 12, tapped Alycia on the shoulder and gave her a thumbs >up! The people in our town are just so supportive. > >Later, I ran into a woman that I knew from the Ed Reform committee. >We were getting ice cream for Alycia and she said that was wonderful >but that we should make sure that we give her juice or gatorade to >replace her electrolytes. She said that just the heat would cause her >to burn up calories and that chances are she lost alot fluids and >electrolytes from sweating. I asked how she knew so much and she told >me she was a dietician and worked with a child with mito disease. >...small world, isn't it? > >Lori > > >------------------------------------------------------------------------ >Make your voice heard! >http://www.onelist.com >Sign up for the ONElist Weekly Survey. Go to homepage for details. >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 1999 Report Share Posted June 15, 1999 YEAH Alycia. Glad it went well. Love, Sharon mommy to Jake (6)(ADHD and too smart for his own good) and fraternal twins (3/30/97) - Cole -(nda and cute as a button) and Clayton (mitochondrial disorder (presumed to be complex I), eosinophilic gastroenteritis, food allergies (milk, soy, eggs, wheat), g-tube, Nissen, latex allergy, DD, sensory integration disorder, tremors, etc........., and the world's best smile) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 1999 Report Share Posted June 16, 1999 Hi , Thank you for sharing *your* memories with me. I bet Frances was the cutest dressed as a French Poodle! How adorable! What a cute picture you painted with your description. I am glad I was able to bring back some happy memories for you. Lori Quote Link to comment Share on other sites More sharing options...
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