Guest guest Posted July 1, 1999 Report Share Posted July 1, 1999 Cheri, the head banging thing is so classical ADHD also. I'm sure it happens with other problems too, but I remember that being a big issue at on of the ADHD seminars I went to, as well as flat shaking and rocking their cribs across the floor. How many rockers do we have in this group? My oldest daughter jumped so hard in her infant jumper she sheared the big spring in half and then rocked so much and so hard she ruined the backs on 2-3 sofa's and then went thru several rockers! I just remembered too that Clay my oldest son and Tylynn my grandson who have so many thinking problems were the feet kids. It was like their hands weren't there, they used their feet for everything. S. head banging >From: Cheri77777@... > > > > >>It has also helped his PDD/autistic behaviors (he is >>not autistic - just has lots of the behaviors) although he still likes >>to >>hit, bang his head against the crib > > used to bang his head on " whatever " he was next to when younger. I used >to be concerned about that not only form a cognitive perspective, but also >because he has a VP shunt. He gradually outgrew it and I was never offered >any reason as to why he did it, even though I inquired numerous times. > >Cheri > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 1999 Report Share Posted July 1, 1999 I used to bang my head. From an infant up to second grade. My mom was always getting evil looks from folks, because once in a while, I had black and blue marks all over my noggin. She couldn't believe that I banged it against the wood cradle at just a few months old - I'd smash my way through any blankets she'd put up to protect me. I was no. 6 of 7 kids and at one point I slept on a cot with wheels. I would bang my head on the wall. More than once I remember waking up a few feet away from the wall. In second grade my parents got me a cute yellow bed with a glass head board. They and all my older brothers and sisters told me, if I banged the glass with my head, I would bleed. Actually I think my siblings liked telling me horror stories of what would happen to my head if I banged it on the new head board. Guess what, I stopped banging. My mom told me I was only baby she had that didn't like to be held and cuddled. She said it broke her heart, I would twist and pull away from her touch. I think the banging and rocking was my way of getting the stimulation all infants need. Ever see those poor little Romanian infants in orphanages...they rock and sway back & forth? It wasn't my mom's fought, I just didn't want to be held. The fact is I have very sensitive skin...even to this day I can not tolerate certain fabrics, lose hairs, etc. touching me...my husband claims he married the princess from the princess and the pea...I can feel anything. But really it's not that bad, I did have a problem learning to read, but other than that I turned out okay...I graduated from college with honors and I am happily married in ALL ways. Oh well, I just thought I'd share with you that maybe head banging is not all that uncommon. Amy (mom to the younger, possible mito, developmental delay, microcepaly, bladder reflux to kidney, GI reflux and GI delay in emptying, CVI, and the best smile and giggle) head banging >From: Cheri77777@... > > > > >>It has also helped his PDD/autistic behaviors (he is >>not autistic - just has lots of the behaviors) although he still likes >>to >>hit, bang his head against the crib > > used to bang his head on " whatever " he was next to when younger. I used >to be concerned about that not only form a cognitive perspective, but also >because he has a VP shunt. He gradually outgrew it and I was never offered >any reason as to why he did it, even though I inquired numerous times. > >Cheri > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 1999 Report Share Posted July 1, 1999 Amy, , my rocker was the same way as you with not wanting me to hold or touch her, and she still is standoffish and complains if you chew by her or make an odd noise, very irritable and picky (not that you are). In fact as she got older she would rock like a mad person when she needed to be hugged or talk but refused either. I don't remember her banging her head but some of the boys in our family like to butt heads like goats and they hit hard and laugh! It scares me, but there skulls seem so hard and thick. S. head banging > > >>From: Cheri77777@... >> >> >> >> >>>It has also helped his PDD/autistic behaviors (he is >>>not autistic - just has lots of the behaviors) although he still likes >>>to >>>hit, bang his head against the crib >> >> used to bang his head on " whatever " he was next to when younger. I >used >>to be concerned about that not only form a cognitive perspective, but also >>because he has a VP shunt. He gradually outgrew it and I was never offered >>any reason as to why he did it, even though I inquired numerous times. >> >>Cheri >> >>--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 1999 Report Share Posted July 1, 1999 While none of this is funny one of my daughters now (35) rocked so hard the crib moved across the room every night. We finally put her in a bed at 18 months because we couldn't stop her. Then thru the years she would rock back and forth. Around 17 or 18 years old I learn about autism having different degrees and thought maybe she had that. She is definately ADHD She has grown up to be a fine young lady but not without a few problems. I went thru two cribs, 3 playpens, you name it. She was the only one of my 4 that I had these kinds of problems with. Two of the other have ADHD also and take medication. My son 36 and daughter 28. It has been a life saver for them. Since I have learned more about mito and of course Matty bringing everything to the four front we know it is mito, mito, mito. Alyce with seizures (no one understood) since birth and she is Mattys mom, and youngest daughter also born with a cleft palate and deaf in one ear. I could go on and on but it was funny all the baby stuff I went thru with Theresa. Your post struck a funny cord. By way of encouragement my children have grown up to be responsible and loving adults with all of their handicapps. I can't take credit they just did. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 1999 Report Share Posted July 1, 1999 Amy, Are you my Theresa? Yes she did all the same thing. And to some degree so does her brother and sisters even now. I am always cutting tags off of clothes. One grandson Mattys brother has to wear his socks inside out in order to not feel the seam. I can't tell you the time we have spent trying to find socks for a 5 year old without seams across the toes. If you barely touch theresa " s skin you would think we hit her with a baseball bat. Thank goodness we all understand and just laugh at her. My 28 year old has a terrible time with bras some little scraty thing that drives her nuts on every kind there is. Sometimes the smallest thing can drive you crazy.....I think what has helped in my family is accepting ourselves and not taking these things to seriously and just saying Oh well, and doing the best they can to work around these odd things like skin sensitivies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 1999 Report Share Posted July 1, 1999 >We finally put her in a bed >at 18 months because we couldn't stop her. >Then thru the years she would rock back and forth. Around 17 or 18 >years old I learn about autism having different degrees and thought >maybe she had that. She is definately ADHD I have seen lots of children do what you and speak of, but what you are describing is rocking, and what did was to bang his head. He was not strong enough to rock, but would lay on the floor and bang his head up and down. This is not something you want to see in a child with a shunt in his head! I have since wondered if there was some sort of abnormal brain sensation, since I now have abnormal brain sensations and I often tap my head with my hands, I think in an attempt to divert my attention from the uncomfortable sensations. Of course, I will never know why he did this. Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 1999 Report Share Posted July 1, 1999 >We finally put her in a bed >at 18 months because we couldn't stop her. >Then thru the years she would rock back and forth. Around 17 or 18 >years old I learn about autism having different degrees and thought >maybe she had that. She is definately ADHD I have seen lots of children do what you and speak of, but what you are describing is rocking, and what did was to bang his head. He was not strong enough to rock, but would lay on the floor and bang his head up and down. This is not something you want to see in a child with a shunt in his head! I have since wondered if there was some sort of abnormal brain sensation, since I now have abnormal brain sensations and I often tap my head with my hands, I think in an attempt to divert my attention from the uncomfortable sensations. Of course, I will never know why he did this. Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 1999 Report Share Posted July 1, 1999 , thank you for sharing this. is also the only 1 of my 4 who did the rocking thing and she has some cognitive problems. It is she who was preg out of wedlock, married a violently abusive man & had another son, left him and married a crack cocaine addict & had another son and a daughter by him. It is the 1st of her 2 sons I am raising. She is now 28 and with the 2nd man who is always in law trouble, pretty much traded the drugs for alcohol, but is so good (has all his own problems) in many ways. You may think we're weird but we love/hate Steve-perhaps many of you will understand this exactly and have been thru similar scenarios. is going to a business college training to be a medical aide. They do their best with the 2 they have and try to do what they can for these 2 boys but she is a very inward-directed person, memory problems galore, etc. She struggles but is so independent and like I said wouldn't let anyone near her physically or emotionally. It is like she is determined to stand alone or fall-period. Yet she is the most generous, intuitive with others, has the ptosis. heart issues, anemia iron doesn't fix...........How I hate this disease which worst of all it seems almost impossible to diagnose and harder yet to treat with no one outside understanding but misjudging and condeming- never mind, I won't get on my soapbox. S. Re: head banging From: mprosser@... ( Prosser) While none of this is funny one of my daughters now (35) rocked so hard the crib moved across the room every night. We finally put her in a bed at 18 months because we couldn't stop her. Then thru the years she would rock back and forth. Around 17 or 18 years old I learn about autism having different degrees and thought maybe she had that. She is definately ADHD She has grown up to be a fine young lady but not without a few problems. I went thru two cribs, 3 playpens, you name it. She was the only one of my 4 that I had these kinds of problems with. Two of the other have ADHD also and take medication. My son 36 and daughter 28. It has been a life saver for them. Since I have learned more about mito and of course Matty bringing everything to the four front we know it is mito, mito, mito. Alyce with seizures (no one understood) since birth and she is Mattys mom, and youngest daughter also born with a cleft palate and deaf in one ear. I could go on and on but it was funny all the baby stuff I went thru with Theresa. Your post struck a funny cord. By way of encouragement my children have grown up to be responsible and loving adults with all of their handicapps. I can't take credit they just did. --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 1999 Report Share Posted July 1, 1999 OH, , what a good idea wearing the socks inside out, we will try that with Jordan! S. Re: head banging From: mprosser@... ( Prosser) Amy, Are you my Theresa? Yes she did all the same thing. And to some degree so does her brother and sisters even now. I am always cutting tags off of clothes. One grandson Mattys brother has to wear his socks inside out in order to not feel the seam. I can't tell you the time we have spent trying to find socks for a 5 year old without seams across the toes. If you barely touch theresa " s skin you would think we hit her with a baseball bat. Thank goodness we all understand and just laugh at her. My 28 year old has a terrible time with bras some little scraty thing that drives her nuts on every kind there is. Sometimes the smallest thing can drive you crazy.....I think what has helped in my family is accepting ourselves and not taking these things to seriously and just saying Oh well, and doing the best they can to work around these odd things like skin sensitivies. --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 1999 Report Share Posted July 1, 1999 well it is a hard row to go but understanding goes a long way. Theresa now has serious diabetes . Still doesn't like to be touched and very sensitive to what she calls painful (we all shake our heads) At 16 years a doctor told me she was like swiss cheese. Some really great hard places and then all of a sudden you fall thru a hole. I regret some of the discipline she had. I am sure most of the time she didn't even know why she was getting it. Can verbalize a little better in trying to explain how she feels. Today she said she was fighting with herself in that her mood swings can be odd. What is great is that her character is taking over at moments when she wants to be mean . I am afraid she is developing some serious problems and Iam going with her to a doctors visit on the 22nd. I'll be explaining about Matty and hopefully this doctor will be able to treat Theresa better with more family information..I will go with my trusty file. When she started telling me all her symptoms I asked her if she was listening to herself and didn't she think they sounded exactly like Mattys. She got real quiet and said ya I guess your right. And then she said she was scared. I am too... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 1999 Report Share Posted July 2, 1999 You are correct Cheri. S. Re: head banging >From: Cheri77777@... > > > > >>We finally put her in a bed >>at 18 months because we couldn't stop her. >>Then thru the years she would rock back and forth. Around 17 or 18 >>years old I learn about autism having different degrees and thought >>maybe she had that. She is definately ADHD > > >I have seen lots of children do what you and speak of, but what you are >describing is rocking, and what did was to bang his head. He was not >strong enough to rock, but would lay on the floor and bang his head up and >down. This is not something you want to see in a child with a shunt in his >head! I have since wondered if there was some sort of abnormal brain >sensation, since I now have abnormal brain sensations and I often tap my head >with my hands, I think in an attempt to divert my attention from the >uncomfortable sensations. Of course, I will never know why he did this. > >Cheri > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 1999 Report Share Posted July 2, 1999 You are correct Cheri. S. Re: head banging >From: Cheri77777@... > > > > >>We finally put her in a bed >>at 18 months because we couldn't stop her. >>Then thru the years she would rock back and forth. Around 17 or 18 >>years old I learn about autism having different degrees and thought >>maybe she had that. She is definately ADHD > > >I have seen lots of children do what you and speak of, but what you are >describing is rocking, and what did was to bang his head. He was not >strong enough to rock, but would lay on the floor and bang his head up and >down. This is not something you want to see in a child with a shunt in his >head! I have since wondered if there was some sort of abnormal brain >sensation, since I now have abnormal brain sensations and I often tap my head >with my hands, I think in an attempt to divert my attention from the >uncomfortable sensations. Of course, I will never know why he did this. > >Cheri > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 1999 Report Share Posted July 2, 1999 Oh, , I'm glad you are going with your daughter and best of luck. I'm glad she is listening to you and trying to get help. S. Re: head banging From: mprosser@... ( Prosser) well it is a hard row to go but understanding goes a long way. Theresa now has serious diabetes . Still doesn't like to be touched and very sensitive to what she calls painful (we all shake our heads) At 16 years a doctor told me she was like swiss cheese. Some really great hard places and then all of a sudden you fall thru a hole. I regret some of the discipline she had. I am sure most of the time she didn't even know why she was getting it. Can verbalize a little better in trying to explain how she feels. Today she said she was fighting with herself in that her mood swings can be odd. What is great is that her character is taking over at moments when she wants to be mean . I am afraid she is developing some serious problems and Iam going with her to a doctors visit on the 22nd. I'll be explaining about Matty and hopefully this doctor will be able to treat Theresa better with more family information..I will go with my trusty file. When she started telling me all her symptoms I asked her if she was listening to herself and didn't she think they sounded exactly like Mattys. She got real quiet and said ya I guess your right. And then she said she was scared. I am too... --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 1999 Report Share Posted July 2, 1999 Oh, , I'm glad you are going with your daughter and best of luck. I'm glad she is listening to you and trying to get help. S. Re: head banging From: mprosser@... ( Prosser) well it is a hard row to go but understanding goes a long way. Theresa now has serious diabetes . Still doesn't like to be touched and very sensitive to what she calls painful (we all shake our heads) At 16 years a doctor told me she was like swiss cheese. Some really great hard places and then all of a sudden you fall thru a hole. I regret some of the discipline she had. I am sure most of the time she didn't even know why she was getting it. Can verbalize a little better in trying to explain how she feels. Today she said she was fighting with herself in that her mood swings can be odd. What is great is that her character is taking over at moments when she wants to be mean . I am afraid she is developing some serious problems and Iam going with her to a doctors visit on the 22nd. I'll be explaining about Matty and hopefully this doctor will be able to treat Theresa better with more family information..I will go with my trusty file. When she started telling me all her symptoms I asked her if she was listening to herself and didn't she think they sounded exactly like Mattys. She got real quiet and said ya I guess your right. And then she said she was scared. I am too... --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 1999 Report Share Posted July 2, 1999 Oh, , I'm glad you are going with your daughter and best of luck. I'm glad she is listening to you and trying to get help. S. Re: head banging From: mprosser@... ( Prosser) well it is a hard row to go but understanding goes a long way. Theresa now has serious diabetes . Still doesn't like to be touched and very sensitive to what she calls painful (we all shake our heads) At 16 years a doctor told me she was like swiss cheese. Some really great hard places and then all of a sudden you fall thru a hole. I regret some of the discipline she had. I am sure most of the time she didn't even know why she was getting it. Can verbalize a little better in trying to explain how she feels. Today she said she was fighting with herself in that her mood swings can be odd. What is great is that her character is taking over at moments when she wants to be mean . I am afraid she is developing some serious problems and Iam going with her to a doctors visit on the 22nd. I'll be explaining about Matty and hopefully this doctor will be able to treat Theresa better with more family information..I will go with my trusty file. When she started telling me all her symptoms I asked her if she was listening to herself and didn't she think they sounded exactly like Mattys. She got real quiet and said ya I guess your right. And then she said she was scared. I am too... --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 1999 Report Share Posted July 2, 1999 Could you explain why they would have you do this brush thing? S. Re: head banging From: nmnett@... (nicole nett) We have been doing alot for 's tactile defensiveness. His OT started us on the brushing program, which is where you use a surgical scrub brush all over the body (except face and belly) you push hard enough that i doesn't tickle. resisted it at first, but now when I do it, he puts his arm out to " help " me. We also do joint compression, which he could care less for. I'm not sure who I was writing this to (I got lost in all of the replys) but hope it helps! --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 1999 Report Share Posted July 2, 1999 Could you explain why they would have you do this brush thing? S. Re: head banging From: nmnett@... (nicole nett) We have been doing alot for 's tactile defensiveness. His OT started us on the brushing program, which is where you use a surgical scrub brush all over the body (except face and belly) you push hard enough that i doesn't tickle. resisted it at first, but now when I do it, he puts his arm out to " help " me. We also do joint compression, which he could care less for. I'm not sure who I was writing this to (I got lost in all of the replys) but hope it helps! --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 1999 Report Share Posted July 2, 1999 Could you explain why they would have you do this brush thing? S. Re: head banging From: nmnett@... (nicole nett) We have been doing alot for 's tactile defensiveness. His OT started us on the brushing program, which is where you use a surgical scrub brush all over the body (except face and belly) you push hard enough that i doesn't tickle. resisted it at first, but now when I do it, he puts his arm out to " help " me. We also do joint compression, which he could care less for. I'm not sure who I was writing this to (I got lost in all of the replys) but hope it helps! --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 1999 Report Share Posted July 2, 1999 - What you are describing is tactile defensiveness. It is a neurological disorder. I don't know how much it would help an adult, but sensory motor integration therapy for kids can be extremely helpful. It made a world of difference for my son. Laurie > Are you my Theresa? Yes she did all the same thing. And to some degree > so does her brother and sisters even now. I am always cutting tags off > of clothes. One grandson Mattys brother has to wear his socks inside > out in order to not feel the seam. I can't tell you the time we have > spent trying to find socks for a 5 year old without seams across the > toes. If you barely touch theresa " s skin you would think we hit her > with a baseball bat. Thank goodness we all understand and just laugh at > her. My 28 year old has a terrible time with bras some little scraty > thing that drives her nuts on every kind there is. Sometimes the > smallest thing can drive you crazy.....I think what has helped in my > family is accepting ourselves and not taking these things to seriously > and just saying Oh well, and doing the best they can to work around > these odd things like skin sensitivies. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 1999 Report Share Posted July 2, 1999 At least I do not feel alone anymore with Clayton banging his head. Thanks guys. Love, Sharon and her boys - Jake (6), Cole (2) and Clayton (2 - and mito, etc.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 1999 Report Share Posted July 3, 1999 - Tactile defensiveness is a neurological problem. The brain doesn't interpret tactile information properly. For my son, having air hit his arms when wearing short sleeve shirts was interpreted as painful. He could not tolerate tactile input at all. When someone has this kind of problem, therapy can be done to help the brain to mature and be able to appropriately interpret the input. The brushing is one of the therapies for this. It is done in a specific manner with a specific find of brush. To be really beneficial, it needs to be done every couple of hours. Part of the same therapy is cocontration of the joints. Again, this is a specific way to have the brain recongnize the joints. Jumping causes cocontration of the leg joints. This is all part of sensory motor integration therapy and is usually done by an OT or PT. The parents are usually taught how to do the brushing and cocontration, so it can be done on a regular schedule at home. The school I worked in provided this every two hours for two students who were extreme tactile defensiveness. Laurie Quote Link to comment Share on other sites More sharing options...
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