Guest guest Posted July 4, 2003 Report Share Posted July 4, 2003 Robyn, Thank you for posting these. I have my real computer back (since yesterday) but I lost all my bookmarks, addresses, everything! I'm starting over gathering info & making it my own, so it was good to be able to find these & bookmark them. Still don't have my printer installed, & noticed this morning there's no sound ( hooked everything up, so when he wakes up I'll ask him why). I would advise everyone to never buy a Dell computer. The computer is great, but the tech support/service is the worst I have ever encountered. RE: Autoimmune Enteropathy--new member -----Original Message-----From: e O'Hara At first I was on a mission to get a diagnosis--which I still don't entirely have--and became a fanatic at charting symptoms, etc. I still keep a list of things for my Doc appt, and copies of my medical records, but I'm at a point where what is-is. <<< Okay, LOL! This is TOTALLY how I've been with Samren. I have a food intake diary, a symptom diary, a behavior change, diary, you name it and I've got it! And now that he has started the steroids I'm SO tempted to start a log about every little thing he does (trying to track side effects), but our doctor said NOT to drive ourselves crazy with it. He said we should try to do this as a "Gestalt thing"--in other words, look at Samren's whole person (body, mind, spirit) and then evaluate how he's doing as a whole week by week. Now that I've heard from so many of you how important it is for me not to get so obsessed with the details I can't control, I see that Samren's GI's instructions where meant as a way to protect us from driving ourselves crazy with worry (looking for things to go wrong). Unlike you Kathy, I really struggle with stress, worry, and control. I envy people like you!!! ;-) AnitaPlease visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
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