Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 ine, Thanks so much for the info. The addictive nature and your concerns about clobazam worries me. Rohan was arguing with the dr. saying he's always felt bad on AEds and he doesn't want the side effects etc. I did my best too but they want to try it for two weeks to see whether the sleep sz will be helped. Rohan was threatening to throw the pills out of the window! He's to have 10mg a night and will be seen by the dr. weekly. Is on the Kgd? If so as you wean you will see improvements in development. Wish you the best. Saro.....Rohan's mum DAVE CURTIS wrote: > has been on clobazam since February, Tegretol since November2000 > and Vigabatrin (sabril) since he was 3 months old. The clobazam > initially kept him seizure free for 9 weeks but then they returned with > a vengeance! It is usually only useful for a limited period of time, > is very addictive and tricky to wean off. has also gone to sleep > for the last three months and also seems extremely weak (he used to > stand and cruise) and refuses to stand or even sit. I seriously wonder > if it is the clobazam. > Hope this is of some help > > ine > Mum to 26 months, kgd since May, blind, complex partial seizures > from birth. developmentally delayed. > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > Quote Link to comment Share on other sites More sharing options...
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