Support Groups

[Guest guest]

Alison,

Since 1999, I have used support groups to assist me with resolution of my

vulvar disorders, plus, I had the fortunate situation to already be working

towards a career as a sexuality educator (complete and working on additional

certification) and as a sexual psychologist (still in school working on the

license for counseling) when my disorder arouse.

With my work as an educator, I have completed a research paper that

discusses the benefits of online support groups and have presented this to

professional organizations as continuing education credits hoping to open

their eyes to the benefits of referring women to these groups for additional

support. The title, " Psychosocial Dynamics of Online Support Groups for Women

with Vulvar Disorders. "

The article is being prepared for publishing, however, I would be willing

to share the information with you so that you can use it for credibility for

your project. Also the reference page can lead you to additional resources

for your paper.

The more we all work towards advocacy for women's sexual health care

issues, the more attention this area will receive. Glad to hear you have an

opportunity to spread some awareness!

Love,

www.sexualitytutor.com

[Guest guest]

I followed a similar 'open book' philosophy when diagnosed last May. My wife and I decided to enlist as many friends as possible for our personal support group - family, friends, others we knew who had had PCa - we had nearly 100 on our email distribution list. Once made known to our church friends, other couples we did not know that also had PCa came forward to offer their support and experiences as well. We found sharing our situation both comforting and reassuring knowing that others had successfully weathered the storm with a variety of treatment choices - most comforting was knowing how many had successful treatments as far back as 10-12 years ago and all have undetectable PSA's to this day.

This group of people were so important to us that we have begun work with a local hospital to establish a new Us TOO PCa support group to help others newly diagnosed find their way thru the maze of information and available treatment options. If anyone lives near Plano TX, pls advise and I will be sure to invite you to our first formal meeting set for 9/9.

Tom

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[Guest guest]

I followed a similar 'open book' philosophy when diagnosed last May. My wife and I decided to enlist as many friends as possible for our personal support group - family, friends, others we knew who had had PCa - we had nearly 100 on our email distribution list. Once made known to our church friends, other couples we did not know that also had PCa came forward to offer their support and experiences as well. We found sharing our situation both comforting and reassuring knowing that others had successfully weathered the storm with a variety of treatment choices - most comforting was knowing how many had successful treatments as far back as 10-12 years ago and all have undetectable PSA's to this day.

This group of people were so important to us that we have begun work with a local hospital to establish a new Us TOO PCa support group to help others newly diagnosed find their way thru the maze of information and available treatment options. If anyone lives near Plano TX, pls advise and I will be sure to invite you to our first formal meeting set for 9/9.

Tom

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