Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 Hello everyone, I have finally reached a decision about what I need to do to help myself feel better. I'm taking matters into my own hands. I've only managed to be awake and out of bed about 5 hours today and even then I can only sit in a chair. I can't live like this anymore. Today I decided to restart myself on my Synthroid .125 mg. I still have my medication from my previous endo and it has 3 refills. My current endo is WRONG in not restarting me on T4 after my RAI and I know it and I'm sick and tired of suffering while I'm waiting for her to realize she made a BIG MISTAKE. Then when I see her in 6 weeks, I'll just act like I was confused and didn't know that she didn't want me on T4 supplementation. Then, at the appt while I have her attention and don't have to work through a nurse, I'll plead my case for needing to stay on T4 and just hope she lets me keep it. I'm also taking contol of my diabetes meds as well. And my blood sugar is still raging out of control since my tt. My endo did start me on Glyburide 3mg twice a day; then last week she uped it to 6mg twice a day whenever I called to complain about my sugars still being constantly elevated above 230-240 while fasting. Well, today they stayed over 300, so around 6pm tonight I took an EXTRA 3mg of Glyburide and my Blood sugar went down to 152--better, but still not normal. So, just now (at 10:30pm) I took another 3mg of Glyburide. I am determined to get those Blood sugar numbers DOWN TO NORMAL. So, I'm going to keep checking my B.S.'s and keep taking Glyburide until Monday morning whenever my part-time endo finally decides to come back to her office and allow the phone nurse to at least ask her questions and supposedly relay the answers to me. If that doesn't work, I will just keep medicating myself until I find another doctor. There is only 1 endo left in this whole area and it will probably take me about 4 months to get into see him. --Chris P.S. I AM DETERMINED to start feeling better or I will just as soon die trying! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 Chris: Self medicating is extremely dangerous. I fully understand how frustrated you feel but this is not the way to go. If you are feeling very poorly (physically & mentally) and cannot contact your endo, is there not another option? For example, could you go to a walk-in clinic - or if your numbers are really out of wack - to emergency? You have a variety of health issues, and self-medicating could have some very serious consequences. Is there a Diabetes Foundation in your community with staff/volunteers who could go with you to an appointment with your doctor? there has got to be a better way! . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 Chris: Self medicating is extremely dangerous. I fully understand how frustrated you feel but this is not the way to go. If you are feeling very poorly (physically & mentally) and cannot contact your endo, is there not another option? For example, could you go to a walk-in clinic - or if your numbers are really out of wack - to emergency? You have a variety of health issues, and self-medicating could have some very serious consequences. Is there a Diabetes Foundation in your community with staff/volunteers who could go with you to an appointment with your doctor? there has got to be a better way! . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 , Thanks for caring enough to respond. I can always count on you. I don't know the answers to your questions. It's very hard for me to think or concentrate right now. I kinda go in and out, ya know? But, I just took some of my sleep medication--it's OK, it's a prescription. My kids are asleep now and this day is finally over. At least they start school tomorrow so I don't have to feel so guilty about sleeping all day. Good-night dear friend. --Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 , Thanks for caring enough to respond. I can always count on you. I don't know the answers to your questions. It's very hard for me to think or concentrate right now. I kinda go in and out, ya know? But, I just took some of my sleep medication--it's OK, it's a prescription. My kids are asleep now and this day is finally over. At least they start school tomorrow so I don't have to feel so guilty about sleeping all day. Good-night dear friend. --Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2001 Report Share Posted August 3, 2001 Hi ! I know this is a thyroid cancer list, but I just thought you should know that if you keep self-medicating with Glyburide, you reached the maximum dose today. Please don't take anymore than prescribed. If your blood sugar is still out of control, your endo needs to add another drug, like Avandia, or Actos, or maybe Glucophage. I used to work at an endo's office, and until I developed thyca my main interest was in diabetes. I know you can't reach your endo, but it might be better to let your sugars ride a little high until she gets back. Even though the max dose for glyburide is 20 mg, it's been shown to be just as effective at 10 mg. So if you've been taking 12 mg a day, it's working the best that it can. Self-medicating in general seems like a bad idea, but I totally understand why you want to do it, especially the thyroid meds. I don't know what the best answer is as far as that goes, but good luck and hang in there! P.S. If your sugars go above 300 any urgent care facility will probably see you because you may have developed ketones in your urine. If you let them know this is chronic, they may prescribe something for you. If your sugars are high, be sure to drink plenty of water. Good luck! enjouee@... >From: christine_stier@... Subject: Medicating My Own Self >Date: Fri, 03 Aug 2001 03:36:06 -0000 > >I'm also taking contol of my diabetes meds as well. And my blood sugar is >still raging out of control since my tt. My endo did start me on Glyburide >3mg twice a day; then last week she uped it to 6mg twice a day whenever I >called to complain about my sugars still being constantly elevated above >230-240 while fasting. Well, today they stayed over 300, so around 6pm >tonight I took an EXTRA 3mg of Glyburide and my Blood sugar went down to >152--better, but still not normal. So, just now (at 10:30pm) I took another >3mg of Glyburide. I am determined to get those Blood sugar numbers DOWN TO >NORMAL. So, I'm going to keep checking my B.S.'s and keep taking Glyburide >until Monday morning whenever my part-time endo finally decides to come >back to her office and allow the phone nurse to at least ask her questions >and supposedly relay the answers to me. _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2001 Report Share Posted August 3, 2001 Hi ! I know this is a thyroid cancer list, but I just thought you should know that if you keep self-medicating with Glyburide, you reached the maximum dose today. Please don't take anymore than prescribed. If your blood sugar is still out of control, your endo needs to add another drug, like Avandia, or Actos, or maybe Glucophage. I used to work at an endo's office, and until I developed thyca my main interest was in diabetes. I know you can't reach your endo, but it might be better to let your sugars ride a little high until she gets back. Even though the max dose for glyburide is 20 mg, it's been shown to be just as effective at 10 mg. So if you've been taking 12 mg a day, it's working the best that it can. Self-medicating in general seems like a bad idea, but I totally understand why you want to do it, especially the thyroid meds. I don't know what the best answer is as far as that goes, but good luck and hang in there! P.S. If your sugars go above 300 any urgent care facility will probably see you because you may have developed ketones in your urine. If you let them know this is chronic, they may prescribe something for you. If your sugars are high, be sure to drink plenty of water. Good luck! enjouee@... >From: christine_stier@... Subject: Medicating My Own Self >Date: Fri, 03 Aug 2001 03:36:06 -0000 > >I'm also taking contol of my diabetes meds as well. And my blood sugar is >still raging out of control since my tt. My endo did start me on Glyburide >3mg twice a day; then last week she uped it to 6mg twice a day whenever I >called to complain about my sugars still being constantly elevated above >230-240 while fasting. Well, today they stayed over 300, so around 6pm >tonight I took an EXTRA 3mg of Glyburide and my Blood sugar went down to >152--better, but still not normal. So, just now (at 10:30pm) I took another >3mg of Glyburide. I am determined to get those Blood sugar numbers DOWN TO >NORMAL. So, I'm going to keep checking my B.S.'s and keep taking Glyburide >until Monday morning whenever my part-time endo finally decides to come >back to her office and allow the phone nurse to at least ask her questions >and supposedly relay the answers to me. _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2001 Report Share Posted August 3, 2001 I've been in your shoes. I believe that when you really get down to the bare bones of things, we know our bodies better than anyone else can. You're not endangering your health so I say you're doing the right thing. I am looking forward to hearing that you are recovering well! Peace, Love and all that Hippie Stuff! Medicating My Own Self > Hello everyone, > I have finally reached a decision about what I need to do to help > myself feel better. I'm taking matters into my own hands. I've only > managed to be awake and out of bed about 5 hours today and even then > I can only sit in a chair. I can't live like this anymore. > > Today I decided to restart myself on my Synthroid .125 mg. I still > have my medication from my previous endo and it has 3 refills. My > current endo is WRONG in not restarting me on T4 after my RAI and I > know it and I'm sick and tired of suffering while I'm waiting for her > to realize she made a BIG MISTAKE. Then when I see her in 6 weeks, > I'll just act like I was confused and didn't know that she didn't > want me on T4 supplementation. Then, at the appt while I have her > attention and don't have to work through a nurse, I'll plead my case > for needing to stay on T4 and just hope she lets me keep it. > > I'm also taking contol of my diabetes meds as well. And my blood > sugar is still raging out of control since my tt. My endo did start > me on Glyburide 3mg twice a day; then last week she uped it to 6mg > twice a day whenever I called to complain about my sugars still being > constantly elevated above 230-240 while fasting. Well, today they > stayed over 300, so around 6pm tonight I took an EXTRA 3mg of > Glyburide and my Blood sugar went down to 152--better, but still not > normal. So, just now (at 10:30pm) I took another 3mg of Glyburide. I > am determined to get those Blood sugar numbers DOWN TO NORMAL. So, > I'm going to keep checking my B.S.'s and keep taking Glyburide until > Monday morning whenever my part-time endo finally decides to come > back to her office and allow the phone nurse to at least ask her > questions and supposedly relay the answers to me. > > If that doesn't work, I will just keep medicating myself until I find > another doctor. There is only 1 endo left in this whole area and it > will probably take me about 4 months to get into see him. > > --Chris > P.S. I AM DETERMINED to start feeling better or I will just as soon > die trying! > > > > > > > > For more information regarding thyroid cancer visit www.thyca.org. If you do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank email to thyca-unsubscribe > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2001 Report Share Posted August 3, 2001 We all reach a point, at one time or another, where we want to take control. We know our own bodies. But medicating on your own is a very poor choice for your good health. I suggest that you contact someone at your local hospital, there should be an endocrinologist on call. You need appropriate input on dosing. The medication you speak of was prescribed before you had your thyroidectomy. The chemical balance in your body is different now. I know nothing about diabetes but I sure wouldn't mess with that without a doctors input! The best way to take care of yourself right now is to find a medical professional who can assist you. I do suggest that you ask to have a TSH and Tg drawn before you start new medication. You are most probably more hypo now than you were 10 days ago ( particularly from your postings)and it would be good to know just how high your TSH has gone, and if the the Tg elevated. Good luck! Gail > Hello everyone, > I have finally reached a decision about what I need to do to help > myself feel better. I'm taking matters into my own hands. I've only > managed to be awake and out of bed about 5 hours today and even then > I can only sit in a chair. I can't live like this anymore. > > Today I decided to restart myself on my Synthroid .125 mg. I still > have my medication from my previous endo and it has 3 refills.for her > > --Chris > P.S. I AM DETERMINED to start feeling better or I will just as soon > die trying! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2001 Report Share Posted August 3, 2001 , You are obviously an intelligent woman but you are certainly not putting that knowledge to the best use right now. As everyone knows, self-medication can be extremely dangerous. And with diabetes, you're asking for trouble! If you are unable to reach your endo, a visit to your primary care physician might be warranted. He/she may have better luck reaching your doctor, and if not, they may have another contact. Don't be foolish! You mentioned that your blood sugars are running high. When my daughter was in the ICU due to ketoacidosis her physician explained that she begins to forms ketones when the blood sugar is over 180. Based on your blood sugars alone, I'd suggest you see any physician, be it an endo or not, to attempt to gain control of your diabetes. If you do not already have them, you might also consider purchasing some KETO-STRIPS which allow you to measure the ketones in your urine. Good luck and keep us posted. ===== Christy, 42, Las Vegas 2.5 cm Follicular and .9 mm Papillary 2/26/01 LL (Frozen Section was read as benign) 3/10/01 TT after a positive final pathology Hypoparathyroidism (.5 Rocaltrol/1500 mg calcium daily) 3/28/01 145 mCi RAI (without LID) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2001 Report Share Posted August 3, 2001 , You are obviously an intelligent woman but you are certainly not putting that knowledge to the best use right now. As everyone knows, self-medication can be extremely dangerous. And with diabetes, you're asking for trouble! If you are unable to reach your endo, a visit to your primary care physician might be warranted. He/she may have better luck reaching your doctor, and if not, they may have another contact. Don't be foolish! You mentioned that your blood sugars are running high. When my daughter was in the ICU due to ketoacidosis her physician explained that she begins to forms ketones when the blood sugar is over 180. Based on your blood sugars alone, I'd suggest you see any physician, be it an endo or not, to attempt to gain control of your diabetes. If you do not already have them, you might also consider purchasing some KETO-STRIPS which allow you to measure the ketones in your urine. Good luck and keep us posted. ===== Christy, 42, Las Vegas 2.5 cm Follicular and .9 mm Papillary 2/26/01 LL (Frozen Section was read as benign) 3/10/01 TT after a positive final pathology Hypoparathyroidism (.5 Rocaltrol/1500 mg calcium daily) 3/28/01 145 mCi RAI (without LID) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2001 Report Share Posted August 3, 2001 I think I should clarify my previous post. I was referring to your synthroid, not your diabetes. If you're done with treatment it won't hurt you to start on your synthroid. Is it possible your blood sugar levels are influenced by being so extremely hypo? Peace, Love and all that Hippie Stuff! Re: Medicating My Own Self > , > > You are obviously an intelligent woman but you are > certainly not putting that knowledge to the best use > right now. As everyone knows, self-medication can be > extremely dangerous. And with diabetes, you're asking > for trouble! If you are unable to reach your endo, a > visit to your primary care physician might be > warranted. He/she may have better luck reaching your > doctor, and if not, they may have another contact. > Don't be foolish! > > You mentioned that your blood sugars are running high. > When my daughter was in the ICU due to ketoacidosis > her physician explained that she begins to forms > ketones when the blood sugar is over 180. Based on > your blood sugars alone, I'd suggest you see any > physician, be it an endo or not, to attempt to gain > control of your diabetes. If you do not already have > them, you might also consider purchasing some > KETO-STRIPS which allow you to measure the ketones in > your urine. > > Good luck and keep us posted. > > > > ===== > Christy, 42, Las Vegas > > 2.5 cm Follicular and .9 mm Papillary > 2/26/01 LL (Frozen Section was read as benign) > 3/10/01 TT after a positive final pathology > Hypoparathyroidism (.5 Rocaltrol/1500 mg calcium daily) > 3/28/01 145 mCi RAI (without LID) > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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