Guest guest Posted July 29, 2001 Report Share Posted July 29, 2001 Anyone have any information or experience with a child who was diagnosed with papillary thyroid cancer at the age of 7 and subsequent treatment? My daughter is now 11 and has received three doses of the I131 treatment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2001 Report Share Posted July 29, 2001 sandtrapsnme27540@... wrote: > Anyone have any information or experience with a child who was > diagnosed with papillary thyroid cancer at the age of 7 and > subsequent treatment? My daughter is now 11 and has received three > doses of the I131 treatment. There have been several parents of kids with thyca on this list, and a few are currently subscribed, I believe. But there is also a pediatric support group. If you go to http://www.thyca.org/support.htm and scroll down a bit, you'll see it. I have copied the info below. - katie Pediatric Support Group: a support forum for families dealing with pediatric thyroid cancer. Subscribe at http://groups.yahoo.com/group/Ped_thyca/join?referer=1. Note--If you are not yet registered with Yahoo, you will need to do this before subscribing; click on " I'm a New Member--Sign Me Up " at the above website. Registration is a simple and quick process, as well as free; you will get a Yahoo password. After you are registered, go back to http://groups.yahoo.com/group/Ped_thyca/join?referer=1 and subscribe to the list. You will receive a confirmation email that you MUST respond to, then you will be on the list to get and send email. If for any reason you cannot complete the Yahoo registration process, you can automatically subscribe to the list by sending a BLANK email to Ped_thyca-subscribe . This avoids acceptance of cookies but gets you basic list membership only; you will not have access to Yahoo's handy websites unless you register. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2001 Report Share Posted July 29, 2001 sandtrapsnme27540@... wrote: > Anyone have any information or experience with a child who was > diagnosed with papillary thyroid cancer at the age of 7 and > subsequent treatment? My daughter is now 11 and has received three > doses of the I131 treatment. There have been several parents of kids with thyca on this list, and a few are currently subscribed, I believe. But there is also a pediatric support group. If you go to http://www.thyca.org/support.htm and scroll down a bit, you'll see it. I have copied the info below. - katie Pediatric Support Group: a support forum for families dealing with pediatric thyroid cancer. Subscribe at http://groups.yahoo.com/group/Ped_thyca/join?referer=1. Note--If you are not yet registered with Yahoo, you will need to do this before subscribing; click on " I'm a New Member--Sign Me Up " at the above website. Registration is a simple and quick process, as well as free; you will get a Yahoo password. After you are registered, go back to http://groups.yahoo.com/group/Ped_thyca/join?referer=1 and subscribe to the list. You will receive a confirmation email that you MUST respond to, then you will be on the list to get and send email. If for any reason you cannot complete the Yahoo registration process, you can automatically subscribe to the list by sending a BLANK email to Ped_thyca-subscribe . This avoids acceptance of cookies but gets you basic list membership only; you will not have access to Yahoo's handy websites unless you register. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2001 Report Share Posted July 29, 2001 sandtrapsnme27540@... wrote: > Anyone have any information or experience with a child who was > diagnosed with papillary thyroid cancer at the age of 7 and > subsequent treatment? My daughter is now 11 and has received three > doses of the I131 treatment. There have been several parents of kids with thyca on this list, and a few are currently subscribed, I believe. But there is also a pediatric support group. If you go to http://www.thyca.org/support.htm and scroll down a bit, you'll see it. I have copied the info below. - katie Pediatric Support Group: a support forum for families dealing with pediatric thyroid cancer. Subscribe at http://groups.yahoo.com/group/Ped_thyca/join?referer=1. Note--If you are not yet registered with Yahoo, you will need to do this before subscribing; click on " I'm a New Member--Sign Me Up " at the above website. Registration is a simple and quick process, as well as free; you will get a Yahoo password. After you are registered, go back to http://groups.yahoo.com/group/Ped_thyca/join?referer=1 and subscribe to the list. You will receive a confirmation email that you MUST respond to, then you will be on the list to get and send email. If for any reason you cannot complete the Yahoo registration process, you can automatically subscribe to the list by sending a BLANK email to Ped_thyca-subscribe . This avoids acceptance of cookies but gets you basic list membership only; you will not have access to Yahoo's handy websites unless you register. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 FYI...there are studies showing that pediatric patients (while metastasis to the lymph system and lungs are more common) tend to have a very favorable prognosis and outcome. It does seem that results are more favorable in females as compared to males, however this could be because thyca in males if very rare in general (and therefore study results are more prevalent in women). Also, as a side note, large doses of radioactive iodine 131 hasn't shown many problems where fertility in women are concerned. Fortunately, most women are able to continue to have children with virtually no problems (with mother or child). I was happy to read this information as I was diagnosed with a pediatric onset of thyca and have had extensive amounts of RAI. Also, I have a happy, healthy 21 month old son...born Oct 1999 at 10 pounds 5 oz. He's currently being recruited for college football. LOL Love, Audra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2001 Report Share Posted August 1, 2001 My daughter was diagnosed with papillary thyroid cancer right when she turned 9. She had surgery to remove her thyroid, two parathyroids, and some thymus tissue, and then 110 millicuries of I131 about four months later. She has had two clean scans since then and is doing fine, as far as we can tell. She is moving into puberty normally. We plan to do scans every December. This may be more than is necessary, but since she has antibodies, we believe that thyroglobulin tests are not accurate enough to skip a year between scans. The only problem we are experiencing currently is whether to believe the orthodontist and do three years of major orthodonture, or wait a little longer and see how things evolve naturally. I don't want to put her through any unnecessary medical treatment right now. What are your concerns? a Pediatric Thyroid Cancer Anyone have any information or experience with a child who was diagnosed with papillary thyroid cancer at the age of 7 and subsequent treatment? My daughter is now 11 and has received three doses of the I131 treatment. For more information regarding thyroid cancer visit www.thyca.org. If you do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank email to thyca-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2001 Report Share Posted August 1, 2001 My daughter was diagnosed with papillary thyroid cancer right when she turned 9. She had surgery to remove her thyroid, two parathyroids, and some thymus tissue, and then 110 millicuries of I131 about four months later. She has had two clean scans since then and is doing fine, as far as we can tell. She is moving into puberty normally. We plan to do scans every December. This may be more than is necessary, but since she has antibodies, we believe that thyroglobulin tests are not accurate enough to skip a year between scans. The only problem we are experiencing currently is whether to believe the orthodontist and do three years of major orthodonture, or wait a little longer and see how things evolve naturally. I don't want to put her through any unnecessary medical treatment right now. What are your concerns? a Pediatric Thyroid Cancer Anyone have any information or experience with a child who was diagnosed with papillary thyroid cancer at the age of 7 and subsequent treatment? My daughter is now 11 and has received three doses of the I131 treatment. For more information regarding thyroid cancer visit www.thyca.org. If you do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank email to thyca-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2001 Report Share Posted August 1, 2001 My daughter was diagnosed with papillary thyroid cancer right when she turned 9. She had surgery to remove her thyroid, two parathyroids, and some thymus tissue, and then 110 millicuries of I131 about four months later. She has had two clean scans since then and is doing fine, as far as we can tell. She is moving into puberty normally. We plan to do scans every December. This may be more than is necessary, but since she has antibodies, we believe that thyroglobulin tests are not accurate enough to skip a year between scans. The only problem we are experiencing currently is whether to believe the orthodontist and do three years of major orthodonture, or wait a little longer and see how things evolve naturally. I don't want to put her through any unnecessary medical treatment right now. What are your concerns? a Pediatric Thyroid Cancer Anyone have any information or experience with a child who was diagnosed with papillary thyroid cancer at the age of 7 and subsequent treatment? My daughter is now 11 and has received three doses of the I131 treatment. For more information regarding thyroid cancer visit www.thyca.org. If you do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank email to thyca-unsubscribe Quote Link to comment Share on other sites More sharing options...
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