saw neuro today

[Guest guest]

Hi all,

I had an appointment with a neurosurgeon today here in edmonton. He

seemed like a nice man but he doesnt agree with the things i've

learned on this site.

His opinion seems to be that a chiari must be extremely long and

even

my 7mm one is minimal. The only surgery that he has ordered for

chiari

is for a woman who had a 17 mm chiari and severe eye problems. He

said

the eye problems were measurable but things like numbness tingling

dizziness etc. is not measureable by a doctor. Until there is

something they can measure the neurosurgeons will not risk surgery.

Well i failed babinski's reflex test so that is proof that there are

neurological problems (that is measurable). I wondered but did'nt ask

if that meant that doctors considered all patients who suffered

headaches numbness etc. were considered to be faking or

hypochondriacs

because they can't measure it?

Anyway he is referring me to an opthamologist for my eyes and

urologist for my bladder and to a genetic specialist for another

condition i have.

There is another neurologist who i saw before who knew about chiari

but told me to wait until i began to lose muscle strength. Then he

left the province. Well i found out today that he is back and he had

a

conversation with the doc i saw today about me. Hopefully between the

two of them i will get what i need whatever that is.

he also ordered another mri to check on my syrinx which was last

done

in 1993. I guess i must wait until that is done now unfortunately it

can take six months to get an appointment right now.

In the meantime i will keep my appointment with Dr. Fehlings in

toronto and i will go for all the tests they recommended today. When

i

questioned him about why there is such a difference between what he

believes and what i read on the net he dismissed the net info by

saying that it was only feelings and opinions not actual research. He

said theres even a doctor in the United states who is doing chiari

surgery on people with cfs and fibro

please Forgive me for not saying what i should've that the doctors

are

not doing chiari surgery for cfs but that they are simply testing

those diagnosed with cfs for neurological problems and if they find

them then they are doing the surgery.

As i said please forgive me for not doing that but when you can find

so few doctors who will at least admit that there is potential

problems from chiari you don't want to alienate them in anyway. Call

me a chicken but i don't want to dig my ditch any deeper. Sorry this

is so long. but thanks for listening.

Marilyn in Canada

acm 7mm

syrinx c5 to t3 Which he said was relatively small does anybody have

a picture of the spine so i can find out?