school

[Guest guest]

Hey what I said was just a documentary... ... ...You don't think .....

Hi

My info came from a TV program here called 'Eurotrash'

which specialises in sleazy sex stories. The saliva thing

is probably genuine, but not in the sort of places you

frequent....

P.

[Guest guest]

>It is my hope that the school will increase the amount of hours that the

>school nurse spends in the building, and hopefully someday eliminate the

>need for private nursing while she is at school.

Thanks Jeannine for sharing that. In fact it is as I understand the laws

regarding education to begin with.

I hope you get all resolved without too much hassle as it surely would be

better use of funds to have a full time nurse available not only to Caitlin,

but also there to help with other incidental needs. I'm sure as she gets

older Caitlin would prefer to feel as independent as possible. Lots of luck

in your quest.

Cheri, mom to five

[Guest guest]

Hi Jeannine,

Our school system has several nurses that rotate schools, much like you

described. However, all through his elementary years, he had a full time

school nurse as well as a full time nurse in his class room. He will go to

middle school this year (much to my dismay!) and the nurse who was in his

class has been assigned to his middle school. She may not be in his class at

all times but will be in the building at all times.

Our district does have a school for very medically fragile children and this

school has always had a full time nurse and is across the street from

Children's Hospital. We have argued (and won) that while does have

medical needs, his socialization needs are such that the school for the more

challenged is not appropriate placement for him. So, they have made sure he

is in a setting where a nurse is on site full time.

I would think that the school system would have to provide that for Caitlyn

if it is necessary in order for her to attend.

[Guest guest]

>

> I'd like to know what other families and school districts are doing in

> this situation. Does your child's school have a nurse? How are you

> dealing with these issues?

Sounds like your district does a better job than ours in providing nursing

services. Are these registered nurses? Our district has 23 schools, (3

highschools, 3 middle and the rest elementary). It is a solid district -,

great scores on std. tests and such but for all 23 schools there are 2 and

possibly now a third full time RN's. That's it. In fact just last year

our school board had to approve a full time *paid* health room worker for

each school as prior to that they were only part time in some with parent

volunteers if the schools were lucky.

Zachary was to go 5 half days this year - he is starting first grade but

now the ped has decided that he can not attend that much until he is more

stable . Like Caitlin, he is cognitively age appropriate. We plan to

start with 2 half days and see how it goes. I made a remark to her that

surely we could count on the red cross trained health worker to take his

vital signs and she said she would surely not count on that at all. In his

situation he needs RN monitoring of vitals and he has IV and enteral access

so without a RN I can not see him attending full time ever. We can get

away with am but even that the ped and I are leery that they won't

recognize a change in his status. it's definitely a dilemma.

Unfortunately his endurance is so poor right now that even if they had a

full time RN he could not be there full time but my hope is that this will

change in the future. Once I tackle the home care issue or lack of it I

should say I guess this will be next on my list.

Anne, mom to:

Brittany, 12

Zachary, 7, G tube, J tube, CVL for TPN/lipids, adrenal insufficient

Abby, 6 ,

, 27 months, G tube, J tube, CVL for TPN/lipids, GH deficient

***Mitochondrial encephalomyopathy, (complex 1 and 4 OxPhos defect)***