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Hey what I said was just a documentary... ... ...You don't think .....

Hi

My info came from a TV program here called 'Eurotrash'

which specialises in sleazy sex stories. The saliva thing

is probably genuine, but not in the sort of places you

frequent....

P.

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Jeannine-

Be glad you don't live near me. Within this county, there is one school nurse.

She is employed by the

Intermediate School District and works in the building which houses the severely

multiply impaired

(including some medically fragile kids who are also severely mentally impaired).

The Intermediate School

District also hires some Practical Nurses as individual aides for medically

fragile students who are out

in regular school buildings. All of the district schools are provided with a

health department nurse who

comes to the school for about an hour a week. There are only two for all the

schools in 12 school

districts. They come in to check on kids who have had ring worm or they might

look at a rash that the

school is concerned about. I have never seen them even have a blood preasure

cuff.

Laurie

I'd like to know what other families and school districts are doing in

> this situation. Does your child's school have a nurse? How are you

> dealing with these issues?

>

> Thanks,

> Jeannine, mom to

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Jeannine-

I would approach the school district and point out that adding to the time of

the school nurse would cost

them less than paying 50% of the private nurse, because she would be able to

attend to district things

while in the school.

Our county is somewhat unique in that our intermediate school district

reimburses the local districts 100%

for special ed. costs. They do have to go through a superintendents advisory

committee to get aides and

nurse aides. Kids like Caitlin are always the most difficult to program for. If

we were programing for

Caitlin, we would hope that there was at least one other student in the building

who needed some nursing

care.

Good luck,

Laurie

> Wow Laurie, remind me not to move up your way. Caitlin is categorized

> as a medically fragile child and thus the nursing care that the waiver

> program covers. She is however, completely at gradelevel cognitively,

> so she is in a regular classroom. She just needs some special nursing

> care while she attends school. It is my hope that the school system

> will increase the availability of nurses in the school

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Jeannine-

I would approach the school district and point out that adding to the time of

the school nurse would cost

them less than paying 50% of the private nurse, because she would be able to

attend to district things

while in the school.

Our county is somewhat unique in that our intermediate school district

reimburses the local districts 100%

for special ed. costs. They do have to go through a superintendents advisory

committee to get aides and

nurse aides. Kids like Caitlin are always the most difficult to program for. If

we were programing for

Caitlin, we would hope that there was at least one other student in the building

who needed some nursing

care.

Good luck,

Laurie

> Wow Laurie, remind me not to move up your way. Caitlin is categorized

> as a medically fragile child and thus the nursing care that the waiver

> program covers. She is however, completely at gradelevel cognitively,

> so she is in a regular classroom. She just needs some special nursing

> care while she attends school. It is my hope that the school system

> will increase the availability of nurses in the school

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Jeannine-

I thought you might be interested in the fact that our county has all but one

medically fragile child

attending school, at least on a part time basis. This has been on-going for al

least 7-8 years.

I provided service to a medically fragile boy from the time he was in 3rd grade

to graduation. He would

attend school from Sept to Nov and again from March to June. He would be on

homebound during the winter

months. It was never an issue of providing him with needed service.

Laurie

> The court ruling that I was referring to was last winter when the

> supreme court ruled on the case of a young man (I believe he lived in

> either Nevada, or Nebraska) that was ventilator dependent, but

> cognitively at grade level or above.

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>

> I'd like to know what other families and school districts are doing in

> this situation. Does your child's school have a nurse? How are you

> dealing with these issues?

Sounds like your district does a better job than ours in providing nursing

services. Are these registered nurses? Our district has 23 schools, (3

highschools, 3 middle and the rest elementary). It is a solid district -,

great scores on std. tests and such but for all 23 schools there are 2 and

possibly now a third full time RN's. That's it. In fact just last year

our school board had to approve a full time *paid* health room worker for

each school as prior to that they were only part time in some with parent

volunteers if the schools were lucky.

Zachary was to go 5 half days this year - he is starting first grade but

now the ped has decided that he can not attend that much until he is more

stable . Like Caitlin, he is cognitively age appropriate. We plan to

start with 2 half days and see how it goes. I made a remark to her that

surely we could count on the red cross trained health worker to take his

vital signs and she said she would surely not count on that at all. In his

situation he needs RN monitoring of vitals and he has IV and enteral access

so without a RN I can not see him attending full time ever. We can get

away with am but even that the ped and I are leery that they won't

recognize a change in his status. it's definitely a dilemma.

Unfortunately his endurance is so poor right now that even if they had a

full time RN he could not be there full time but my hope is that this will

change in the future. Once I tackle the home care issue or lack of it I

should say I guess this will be next on my list.

Anne, mom to:

Brittany, 12

Zachary, 7, G tube, J tube, CVL for TPN/lipids, adrenal insufficient

Abby, 6 ,

, 27 months, G tube, J tube, CVL for TPN/lipids, GH deficient

***Mitochondrial encephalomyopathy, (complex 1 and 4 OxPhos defect)***

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>

> I'd like to know what other families and school districts are doing in

> this situation. Does your child's school have a nurse? How are you

> dealing with these issues?

Sounds like your district does a better job than ours in providing nursing

services. Are these registered nurses? Our district has 23 schools, (3

highschools, 3 middle and the rest elementary). It is a solid district -,

great scores on std. tests and such but for all 23 schools there are 2 and

possibly now a third full time RN's. That's it. In fact just last year

our school board had to approve a full time *paid* health room worker for

each school as prior to that they were only part time in some with parent

volunteers if the schools were lucky.

Zachary was to go 5 half days this year - he is starting first grade but

now the ped has decided that he can not attend that much until he is more

stable . Like Caitlin, he is cognitively age appropriate. We plan to

start with 2 half days and see how it goes. I made a remark to her that

surely we could count on the red cross trained health worker to take his

vital signs and she said she would surely not count on that at all. In his

situation he needs RN monitoring of vitals and he has IV and enteral access

so without a RN I can not see him attending full time ever. We can get

away with am but even that the ped and I are leery that they won't

recognize a change in his status. it's definitely a dilemma.

Unfortunately his endurance is so poor right now that even if they had a

full time RN he could not be there full time but my hope is that this will

change in the future. Once I tackle the home care issue or lack of it I

should say I guess this will be next on my list.

Anne, mom to:

Brittany, 12

Zachary, 7, G tube, J tube, CVL for TPN/lipids, adrenal insufficient

Abby, 6 ,

, 27 months, G tube, J tube, CVL for TPN/lipids, GH deficient

***Mitochondrial encephalomyopathy, (complex 1 and 4 OxPhos defect)***

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Hi,

I don't know who posted the original e, but here's my .02 on the

subject. :) In our school district each school has a first aide safety

assistant full time and a nurse who covers usually 2-3 schools. On the 3

special ed campuses there are several nurses. At my kids' school there is a

full time nurse every day because has a trach. She's not in the

classroom all the time, but she is in the building at all times. I think we

had 3 nurses rotate last year, the regular assigned nurse and 2 alternates.

If for some reason a nurse can't be there I will fill in. All the nurses in

our district are either RN's or LPN's. They are the ONLY people authorized

to do specialized procedures (suctioning, tube feeding, etc.) The aid,

secretary, teacher, etc cannot do anything.

Sue ( & Jack)-worn out parents to the greatest kids on earth--

Chris-9: Leigh's Disease (?), MR (mild), hypotonia, non-walker/talker

-7: Leigh's Disease (?), MR (mild), hypotonia, non-walker/talker, trach

tube (larynotracheomalasia), g-tube/fundo Visit us! http://u2.lvcm.com/jscb

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