Re: Help! We've lost control

[Guest guest]

>Just my initial thoughts....if he did so well w/ meds and the >diet....try

>putting the med back

:

I agree with Barb that you might want to consider this, if only temporarily.

We initially went too fast for Rose on weaning medications. We slowed down

drastically & her major seizing stopped and her EEGs have continued to

improve. We used the time to fine tune the diet, which it sounds like you

need.

Rose lost control after 6 weeks because she had gained weight. Her calories

weren't calculated correctly & she was getting too many. Similarly, as she

came off meds, her metabolism increased, burning more calories, so then she

had too few calories & started having sz!! Adjust again. I think we have

it (for the moment).

If you had control before, you will have it again. Hang in there.

mom to Rose ketokid 8/00 (who should be med free next month)