Guest guest Posted May 10, 2000 Report Share Posted May 10, 2000 Lots of folks have t old me they also had facial paralysis, but my question is to what degree; I know kyou said yours would come back in 4 months; I have absolutely NO movement, nada; my vision is very poor, my balance is poor, eating, because I was already paralyzed on the other side is a riot, talking is very difficult; just trying to be realistic about what paralysis really is and have people been this far down and had it come back, and to what degree? Thanks, Mairie incidentally, Earl is still handsome and 's dtr is doing fine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2000 Report Share Posted September 1, 2000 Carlotte, This retraining has been around for a few years. I thinks it helps the unilateral types more. I went on it years ago but never really followed up (you have to be very committed cause the improvement is super-slow). There are people I have not seen for a few years that took the retraining. The results were very noticable to me so I guess it really works (but will not get you back to your old self). I think it was a therapist in Seattle that started this. She trained other therapists here in Toronto and it is a very big thing at one on the major AN hospitals here. ---------- From: Sutter Sent: Thursday, August 31, 2000 9:00 PM To: NF2_Crewegroups Subject: Facial paralysis On the news last night out of Seattle they did a story about a therapist using a new method to train the brain to help get some movement. They are talking mainly about Bell's Palsy, but the woman in the story had her facial nerve cut during surgery for tumor removal. So far I don't have that particular problem, but am thinking it may help some of you? The link is: http://www.king5.com/health/ Charlotte On the news last night out of Seattle they did a story about a therapist using a new method to train the brain to help get some movement. They are talking mainly about Bell's Palsy, but the woman in the story had her facial nerve cut during surgery for tumor removal. So far I don't have that particular problem, but am thinking it may help some of you? The link is: http://www.king5.com/health/ Charlotte Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2000 Report Share Posted September 1, 2000 Carlotte, This retraining has been around for a few years. I thinks it helps the unilateral types more. I went on it years ago but never really followed up (you have to be very committed cause the improvement is super-slow). There are people I have not seen for a few years that took the retraining. The results were very noticable to me so I guess it really works (but will not get you back to your old self). I think it was a therapist in Seattle that started this. She trained other therapists here in Toronto and it is a very big thing at one on the major AN hospitals here. ---------- From: Sutter Sent: Thursday, August 31, 2000 9:00 PM To: NF2_Crewegroups Subject: Facial paralysis On the news last night out of Seattle they did a story about a therapist using a new method to train the brain to help get some movement. They are talking mainly about Bell's Palsy, but the woman in the story had her facial nerve cut during surgery for tumor removal. So far I don't have that particular problem, but am thinking it may help some of you? The link is: http://www.king5.com/health/ Charlotte On the news last night out of Seattle they did a story about a therapist using a new method to train the brain to help get some movement. They are talking mainly about Bell's Palsy, but the woman in the story had her facial nerve cut during surgery for tumor removal. So far I don't have that particular problem, but am thinking it may help some of you? The link is: http://www.king5.com/health/ Charlotte Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2000 Report Share Posted September 1, 2000 Carlotte, This retraining has been around for a few years. I thinks it helps the unilateral types more. I went on it years ago but never really followed up (you have to be very committed cause the improvement is super-slow). There are people I have not seen for a few years that took the retraining. The results were very noticable to me so I guess it really works (but will not get you back to your old self). I think it was a therapist in Seattle that started this. She trained other therapists here in Toronto and it is a very big thing at one on the major AN hospitals here. ---------- From: Sutter Sent: Thursday, August 31, 2000 9:00 PM To: NF2_Crewegroups Subject: Facial paralysis On the news last night out of Seattle they did a story about a therapist using a new method to train the brain to help get some movement. They are talking mainly about Bell's Palsy, but the woman in the story had her facial nerve cut during surgery for tumor removal. So far I don't have that particular problem, but am thinking it may help some of you? The link is: http://www.king5.com/health/ Charlotte On the news last night out of Seattle they did a story about a therapist using a new method to train the brain to help get some movement. They are talking mainly about Bell's Palsy, but the woman in the story had her facial nerve cut during surgery for tumor removal. So far I don't have that particular problem, but am thinking it may help some of you? The link is: http://www.king5.com/health/ Charlotte Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2000 Report Share Posted September 1, 2000 Charlotte, Jackie uses the 'pad/wires' at times too. They are eletrodes to measure if there is any activity in the facial nerves. What I was told was that sometimes the activity is so slight, you can't see it. Also, the measurement will tell you how much you are progressing since it is hard to notice. I don't know for sure if it was Jackie, perhaps someone expanded on her work. I'm pretty sure Jackie was the one who got the ball rolling on this thing. ---------- From: fetter Sent: Friday, September 01, 2000 11:27 AM To: NF2_Crewegroups Subject: Re: Facial paralysis Marie: No, didn't look like it. There were a bunch of pads with wires coming out on BOTH sides of her face. Kinda like the test when we get stuff put all over our heads with cement glue! Not that I'm saying that's what they use, just looks like it. Charlotte. (you can see the picture immediately on the link) Facial paralysis On the news last night out of Seattle they did a story about a therapist using a new method to train the brain to help get some movement. They are talking mainly about Bell's Palsy, but the woman in the story had her facial nerve cut during surgery for tumor removal. So far I don't have that particular problem, but am thinking it may help some of you? The link is: http://www.king5.com/health/ Charlotte Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.