Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 Just wanted to let you all know that I have found another person in the U.S. with Autoimmune Enteropathy!!! She is a 20 year old college student in Wisconsin. I wrote to her yesterday after finding her bio. on the internet and she wrote back today and said she would love to keep in touch! Sounds like her beginning was very much like my son's--she even had a G-tube for the first 3 years. But now she can eat a regular diet! She's short (4'9") and has the "puffiness" and mood side effects from the Pred. but other than that she says she feels GREAT as long as she takes her meds. I know it sounds stupid, but I am sitting her crying. It's just SO GOOD to actually have found somebody who is an adult, and who has had this since infancy, and is still doing really well (considering)! Anita...a happy mommy right now =-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 Sooo glad to hear you found someone AND that they are doing well 20 years down the road! Yay! ((((hugs))) Kathy Good news! Just wanted to let you all know that I have found another person in the U.S. with Autoimmune Enteropathy!!! She is a 20 year old college student in Wisconsin. I wrote to her yesterday after finding her bio. on the internet and she wrote back today and said she would love to keep in touch! Sounds like her beginning was very much like my son's--she even had a G-tube for the first 3 years. But now she can eat a regular diet! She's short (4'9") and has the "puffiness" and mood side effects from the Pred. but other than that she says she feels GREAT as long as she takes her meds. I know it sounds stupid, but I am sitting her crying. It's just SO GOOD to actually have found somebody who is an adult, and who has had this since infancy, and is still doing really well (considering)! Anita...a happy mommy right now =-)Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 Yes! Thanks! Anita -----Original Message-----From: Christy Sent: Tuesday, July 01, 2003 8:58 PMTo: autoimmune-ills Subject: Re: Good news! Anita, that is so wonderful! I can imagine the joy coursing through you right now! I have chill bumps! What wonderful, fabulous news that is! I hope she stays in touch but even just knowing she "made it" is a blessing! Christy Good news! Just wanted to let you all know that I have found another person in the U.S. with Autoimmune Enteropathy!!! She is a 20 year old college student in Wisconsin. I wrote to her yesterday after finding her bio. on the internet and she wrote back today and said she would love to keep in touch! Sounds like her beginning was very much like my son's--she even had a G-tube for the first 3 years. But now she can eat a regular diet! She's short (4'9") and has the "puffiness" and mood side effects from the Pred. but other than that she says she feels GREAT as long as she takes her meds. I know it sounds stupid, but I am sitting her crying. It's just SO GOOD to actually have found somebody who is an adult, and who has had this since infancy, and is still doing really well (considering)! Anita...a happy mommy right now =-)Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 Yes! Thanks! Anita -----Original Message-----From: Christy Sent: Tuesday, July 01, 2003 8:58 PMTo: autoimmune-ills Subject: Re: Good news! Anita, that is so wonderful! I can imagine the joy coursing through you right now! I have chill bumps! What wonderful, fabulous news that is! I hope she stays in touch but even just knowing she "made it" is a blessing! Christy Good news! Just wanted to let you all know that I have found another person in the U.S. with Autoimmune Enteropathy!!! She is a 20 year old college student in Wisconsin. I wrote to her yesterday after finding her bio. on the internet and she wrote back today and said she would love to keep in touch! Sounds like her beginning was very much like my son's--she even had a G-tube for the first 3 years. But now she can eat a regular diet! She's short (4'9") and has the "puffiness" and mood side effects from the Pred. but other than that she says she feels GREAT as long as she takes her meds. I know it sounds stupid, but I am sitting her crying. It's just SO GOOD to actually have found somebody who is an adult, and who has had this since infancy, and is still doing really well (considering)! Anita...a happy mommy right now =-)Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2003 Report Share Posted July 4, 2003 Anita, I am so glad you found someone that can help you with the info you need to ehlp you son. Medicene has coime a long ways. Shirley Good news! Just wanted to let you all know that I have found another person in the U.S. with Autoimmune Enteropathy!!! She is a 20 year old college student in Wisconsin. I wrote to her yesterday after finding her bio. on the internet and she wrote back today and said she would love to keep in touch! Sounds like her beginning was very much like my son's--she even had a G-tube for the first 3 years. But now she can eat a regular diet! She's short (4'9") and has the "puffiness" and mood side effects from the Pred. but other than that she says she feels GREAT as long as she takes her meds. I know it sounds stupid, but I am sitting her crying. It's just SO GOOD to actually have found somebody who is an adult, and who has had this since infancy, and is still doing really well (considering)! Anita...a happy mommy right now =-)Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Fantastic news Debbie... doing the happy happy joy joy dance with you! Topper () On Wed, 11 Aug 2004 14:12:51 -0500 Debbie K writes: Dear Friends, Just wanted to let you know my good news. The surgeon's nurse just called and my lump was benign. I was trusting that this would be the case, but it is wonderful that it has been confirmed. I am supposed to see him tomorrow, but since they had the results and they knew I wanted to know, they called. Isn't it a wonderful day! Blessings, Debbie K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Fantastic news Debbie... doing the happy happy joy joy dance with you! Topper () On Wed, 11 Aug 2004 14:12:51 -0500 Debbie K writes: Dear Friends, Just wanted to let you know my good news. The surgeon's nurse just called and my lump was benign. I was trusting that this would be the case, but it is wonderful that it has been confirmed. I am supposed to see him tomorrow, but since they had the results and they knew I wanted to know, they called. Isn't it a wonderful day! Blessings, Debbie K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Fantastic news Debbie... doing the happy happy joy joy dance with you! Topper () On Wed, 11 Aug 2004 14:12:51 -0500 Debbie K writes: Dear Friends, Just wanted to let you know my good news. The surgeon's nurse just called and my lump was benign. I was trusting that this would be the case, but it is wonderful that it has been confirmed. I am supposed to see him tomorrow, but since they had the results and they knew I wanted to know, they called. Isn't it a wonderful day! Blessings, Debbie K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Excellent!!!!!!!!! Good News! Dear Friends, Just wanted to let you know my good news. The surgeon's nurse just called and my lump was benign. I was trusting that this would be the case, but it is wonderful that it has been confirmed. I am supposed to see him tomorrow, but since they had the results and they knew I wanted to know, they called. Isn't it a wonderful day! Blessings, Debbie K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Excellent!!!!!!!!! Good News! Dear Friends, Just wanted to let you know my good news. The surgeon's nurse just called and my lump was benign. I was trusting that this would be the case, but it is wonderful that it has been confirmed. I am supposed to see him tomorrow, but since they had the results and they knew I wanted to know, they called. Isn't it a wonderful day! Blessings, Debbie K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Excellent!!!!!!!!! Good News! Dear Friends, Just wanted to let you know my good news. The surgeon's nurse just called and my lump was benign. I was trusting that this would be the case, but it is wonderful that it has been confirmed. I am supposed to see him tomorrow, but since they had the results and they knew I wanted to know, they called. Isn't it a wonderful day! Blessings, Debbie K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 So many responded my good news that I gave up on thanking you individually. Thanks to all of you. It is true..... caring friends divide sorrow and multiply joy! Love & Blessings, Debbie K. Quote Link to comment Share on other sites More sharing options...
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