Re: Marissa has a gtube

[Guest guest]

Jen,

After any abdominal surgery there will be cramping and that sounds like

what's bothering her. My daughter was too young and is nonverbal to

express much and they just kept her on the anaesthetics. I don't know

about the morphine since we weren't on the diet then. I would think that

in a few days she should start feeling better. If she's waking up out of a

morphine haze...I know how disorienting that is and would account for the

terrified look on her face. If she's in and out, how will you be able to

get food/liquids into her without the tube? Just curious. This is a lot

to go through in the last stages of pregnancy. My sister just had her

second, so I'm an aunt today for the 7th time. Hang in there.

mom to Esther (Aicardi syndrome)

At 10:39 PM 7/26/01 -0400, you wrote:

>Hi everyone,

>I've been unable to access yahoo for so long. I've really missed it!

>Fortunately for me, Diane was wonderful enough to forward messages so at

>least I could read about what was going on. and Heidi finally got it working

>for me. Thank you both:o)

>Anyway, Marissa had her surgery today. There was a lot of miscommunication,

>it was cancelled and then scheduled again and we had some problems with a

>couple doctor's egos. So today she was on standby. It just happened to be

>the day of my baby shower (I've never had one before, even though it's my

>third baby), which kind of stunk because my hubby called me after only a

>little while and said I needed to get there for surgery. Of course I would

>not have missed it for anything, so the party went on without me. Surgery

>went fine, except it took an hour instead of the 20 minutes they told us. We

>were very worried, but it turned out some of their equipment had broken

>during the procedure and Marissa was fine. She seems to be in a LOT of pain

>now. She wants me to hold her, but then is so stiff and can't get comfy.

>She cries and cries:o( She got a couple doses of morphine in her IV. I

>asked about being keto friendly and was assured that it was. I'm not sure,

>though. Anyone know? She seems so twitchy, but it's hard to tell if that's

>from the surgery, because of the morphine, or because she's gonna have

>seizures. Everytime she wakes up she looks absolutely terrified. Poor baby!

> I'm questioning myself now. I can't believe I voluntarily put her through

>so much pain. I hope it turns out at well as we hope it will.

>Tomorrow we will learn how to use the tube. They said we don't have to use

>it at home for several days if we don't want to since it is only for liquids.

> That way it will be a lot less sore.

>Well, experienced gtube moms and dads, does all this sound normal? How long

>till she feels better? What do you think about that morphine?

>Thank you to all who responded to my previous emails when I was considering

>the tube. I read them all and appreciated them very much. I was just not

>able to access the list.

>Love

>Jen~ Proud mommy to Marissa (almost 4, cerebral palsy, intractible seizures,

>new gtube, my hero and teacher), (22 months, full of energy and fun),

>and New Baby due in the begining of August!

>